Hi there. I had been in the very same situation 7 years ago. We had a prenatal diagnosis of CF for our little girl when I was 23 weeks pregnant with her. I already had a healthy 4 yearold boy. it was a shock. I think meeting with your CF doc is a great idea; to do it beforehand. Arm yourself with questions, write them down, no question is a silly question. I also agree that it is a very wise idea to have a level 2 ultrasound to watch for echogenic bowel in your baby while your wife is pregnant. Newborns with CF can get what is called a meconium ileus; my daughter needed surgery after birth to relieve her obstruction. So, you may want to deliver your baby at a hospital equipped with specialists who deal with CF newborns and babies with bowel obstructions. Not trying to scare you but wish I had been more prepared in this area when my baby was born. Also, your wife may be dealing with a ton of emotions...I was a wreck when I was pregnant. If she wants to PM I would be happy to talk with her. I couldn;t sleep or eat, cried all the time..It took a while to deal with all those feelings. However, our family is so blessed to have our beautiful daughter . She is 6 1/2 years old now, getting ready to start 1st grade. She is outgoing, funny and has a happy childhood. If you click on our link below you can see what she looks like.
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Amnio diagnosis....now what happens?
- Thread starter pnut1975
- Start date
Hi there. I had been in the very same situation 7 years ago. We had a prenatal diagnosis of CF for our little girl when I was 23 weeks pregnant with her. I already had a healthy 4 yearold boy. it was a shock. I think meeting with your CF doc is a great idea; to do it beforehand. Arm yourself with questions, write them down, no question is a silly question. I also agree that it is a very wise idea to have a level 2 ultrasound to watch for echogenic bowel in your baby while your wife is pregnant. Newborns with CF can get what is called a meconium ileus; my daughter needed surgery after birth to relieve her obstruction. So, you may want to deliver your baby at a hospital equipped with specialists who deal with CF newborns and babies with bowel obstructions. Not trying to scare you but wish I had been more prepared in this area when my baby was born. Also, your wife may be dealing with a ton of emotions...I was a wreck when I was pregnant. If she wants to PM I would be happy to talk with her. I couldn;t sleep or eat, cried all the time..It took a while to deal with all those feelings. However, our family is so blessed to have our beautiful daughter . She is 6 1/2 years old now, getting ready to start 1st grade. She is outgoing, funny and has a happy childhood. If you click on our link below you can see what she looks like.
Hi there. I had been in the very same situation 7 years ago. We had a prenatal diagnosis of CF for our little girl when I was 23 weeks pregnant with her. I already had a healthy 4 yearold boy. it was a shock. I think meeting with your CF doc is a great idea; to do it beforehand. Arm yourself with questions, write them down, no question is a silly question. I also agree that it is a very wise idea to have a level 2 ultrasound to watch for echogenic bowel in your baby while your wife is pregnant. Newborns with CF can get what is called a meconium ileus; my daughter needed surgery after birth to relieve her obstruction. So, you may want to deliver your baby at a hospital equipped with specialists who deal with CF newborns and babies with bowel obstructions. Not trying to scare you but wish I had been more prepared in this area when my baby was born. Also, your wife may be dealing with a ton of emotions...I was a wreck when I was pregnant. If she wants to PM I would be happy to talk with her. I couldn;t sleep or eat, cried all the time..It took a while to deal with all those feelings. However, our family is so blessed to have our beautiful daughter . She is 6 1/2 years old now, getting ready to start 1st grade. She is outgoing, funny and has a happy childhood. If you click on our link below you can see what she looks like.
Hi there. I had been in the very same situation 7 years ago. We had a prenatal diagnosis of CF for our little girl when I was 23 weeks pregnant with her. I already had a healthy 4 yearold boy. it was a shock. I think meeting with your CF doc is a great idea; to do it beforehand. Arm yourself with questions, write them down, no question is a silly question. I also agree that it is a very wise idea to have a level 2 ultrasound to watch for echogenic bowel in your baby while your wife is pregnant. Newborns with CF can get what is called a meconium ileus; my daughter needed surgery after birth to relieve her obstruction. So, you may want to deliver your baby at a hospital equipped with specialists who deal with CF newborns and babies with bowel obstructions. Not trying to scare you but wish I had been more prepared in this area when my baby was born. Also, your wife may be dealing with a ton of emotions...I was a wreck when I was pregnant. If she wants to PM I would be happy to talk with her. I couldn;t sleep or eat, cried all the time..It took a while to deal with all those feelings. However, our family is so blessed to have our beautiful daughter . She is 6 1/2 years old now, getting ready to start 1st grade. She is outgoing, funny and has a happy childhood. If you click on our link below you can see what she looks like.
Hi there. I had been in the very same situation 7 years ago. We had a prenatal diagnosis of CF for our little girl when I was 23 weeks pregnant with her. I already had a healthy 4 yearold boy. it was a shock. I think meeting with your CF doc is a great idea; to do it beforehand. Arm yourself with questions, write them down, no question is a silly question. I also agree that it is a very wise idea to have a level 2 ultrasound to watch for echogenic bowel in your baby while your wife is pregnant. Newborns with CF can get what is called a meconium ileus; my daughter needed surgery after birth to relieve her obstruction. So, you may want to deliver your baby at a hospital equipped with specialists who deal with CF newborns and babies with bowel obstructions. Not trying to scare you but wish I had been more prepared in this area when my baby was born. Also, your wife may be dealing with a ton of emotions...I was a wreck when I was pregnant. If she wants to PM I would be happy to talk with her. I couldn;t sleep or eat, cried all the time..It took a while to deal with all those feelings. However, our family is so blessed to have our beautiful daughter . She is 6 1/2 years old now, getting ready to start 1st grade. She is outgoing, funny and has a happy childhood. If you click on our link below you can see what she looks like.
K
kaylee04cassidy08
Guest
I delivered at a hospital with a level III D NICU for that very reason. Thankfully she did not need the surgery, but her bowel was echogenic on ultrasound and they suspected an obstruction. I did not want to deliver at the community hospital and have her Mercy flighted (that's what we call it around here)away from me and me not be able to go to her because of my c-section. Perhaps you should ask for your wife to be seen by a high-risk OB for the ultrasounds. They are more used to dealing with this situation. They may recognize the problem where a community hospital tech may not. I suppose this is something you really ought to bring up with your docs. We really don't want to scare you, but you should really ask about this - not all docs are familiar with it.
K
kaylee04cassidy08
Guest
I delivered at a hospital with a level III D NICU for that very reason. Thankfully she did not need the surgery, but her bowel was echogenic on ultrasound and they suspected an obstruction. I did not want to deliver at the community hospital and have her Mercy flighted (that's what we call it around here)away from me and me not be able to go to her because of my c-section. Perhaps you should ask for your wife to be seen by a high-risk OB for the ultrasounds. They are more used to dealing with this situation. They may recognize the problem where a community hospital tech may not. I suppose this is something you really ought to bring up with your docs. We really don't want to scare you, but you should really ask about this - not all docs are familiar with it.
K
kaylee04cassidy08
Guest
I delivered at a hospital with a level III D NICU for that very reason. Thankfully she did not need the surgery, but her bowel was echogenic on ultrasound and they suspected an obstruction. I did not want to deliver at the community hospital and have her Mercy flighted (that's what we call it around here)away from me and me not be able to go to her because of my c-section. Perhaps you should ask for your wife to be seen by a high-risk OB for the ultrasounds. They are more used to dealing with this situation. They may recognize the problem where a community hospital tech may not. I suppose this is something you really ought to bring up with your docs. We really don't want to scare you, but you should really ask about this - not all docs are familiar with it.
K
kaylee04cassidy08
Guest
I delivered at a hospital with a level III D NICU for that very reason. Thankfully she did not need the surgery, but her bowel was echogenic on ultrasound and they suspected an obstruction. I did not want to deliver at the community hospital and have her Mercy flighted (that's what we call it around here)away from me and me not be able to go to her because of my c-section. Perhaps you should ask for your wife to be seen by a high-risk OB for the ultrasounds. They are more used to dealing with this situation. They may recognize the problem where a community hospital tech may not. I suppose this is something you really ought to bring up with your docs. We really don't want to scare you, but you should really ask about this - not all docs are familiar with it.
K
kaylee04cassidy08
Guest
I delivered at a hospital with a level III D NICU for that very reason. Thankfully she did not need the surgery, but her bowel was echogenic on ultrasound and they suspected an obstruction. I did not want to deliver at the community hospital and have her Mercy flighted (that's what we call it around here)away from me and me not be able to go to her because of my c-section. Perhaps you should ask for your wife to be seen by a high-risk OB for the ultrasounds. They are more used to dealing with this situation. They may recognize the problem where a community hospital tech may not. I suppose this is something you really ought to bring up with your docs. We really don't want to scare you, but you should really ask about this - not all docs are familiar with it.
Hi and welcome to the site. Sorry to hear this news. Just continue to enjoy your pregnancy to the fullest as there is nothing you can do right at the moment. Yes, informing yourselves is a great idea, but don't let any of it scare you. Every case is different. I have a 4 year old with DDF508 and she was born with a blockage that we were unaware of during pregnancy. She was in our community hospital for a couple days with her belly just swelling up. Finally, they transferred her to the NICU in a city nearby...of course as stated in a previous entry I read...I had a C-section and was left behind. Was unable to see my baby til I got out of the hospital. She got her obstruction out with enemas and has been very healthy since. Slow weight gain, but nothing scary with her lungs so far. She appears to be a very normal 4 year old and is super smart!
Now, with my second we did the high level ultrasounds to watch for any problems. They could see the bowel blockage and we made sure we would deliver at the hospital in the nearby city to make sure she received the care she needed right away. She was early, due to no movement (during c-section found ambilical cord around neck). She then had to undergo surgery to remove the meconium. She had a stoma for 7 weeks and then underwent the reconnection surgery. She also has gone through lung problems w/ thick mucous since birth. She spent 2 1/2 months in the hospital and is now home and happy!
I just want you to see that there is a different case with every child regardless of the gene mutations. So don't let what you read on this site scare you. I am happy to see you are the father and taking these steps. I can't seem to talk my fiance into reading any of this cuz he does not want to read all the horror stories about 'what could happen'. It is hard since our first has always shown very minimal signs of having CF. But my views have changed alot since joining this site. I want to take as much precaution as I can to make sure it does not happen. But you still need to live your life happily and try to treat your children as normal as possible.
I really do suggest, as others already have, getting the high level ultrasounds til birth and making sure there will be doctors with the correct knowledge to care for her when she is born. There is nothing worse than watching your baby have problems when the right doctor is not there to help.
Oh yeah...I also wanted to add that neither of my children ever had a sweat test done. It was all genetic around here. From what I read about them, they are not always right and you have to get the genetic test done after all anyways.
Hope this helps...PM me if you want someone to chat or have any questions...I was just recently in the pregnancy stage.
Now, with my second we did the high level ultrasounds to watch for any problems. They could see the bowel blockage and we made sure we would deliver at the hospital in the nearby city to make sure she received the care she needed right away. She was early, due to no movement (during c-section found ambilical cord around neck). She then had to undergo surgery to remove the meconium. She had a stoma for 7 weeks and then underwent the reconnection surgery. She also has gone through lung problems w/ thick mucous since birth. She spent 2 1/2 months in the hospital and is now home and happy!
I just want you to see that there is a different case with every child regardless of the gene mutations. So don't let what you read on this site scare you. I am happy to see you are the father and taking these steps. I can't seem to talk my fiance into reading any of this cuz he does not want to read all the horror stories about 'what could happen'. It is hard since our first has always shown very minimal signs of having CF. But my views have changed alot since joining this site. I want to take as much precaution as I can to make sure it does not happen. But you still need to live your life happily and try to treat your children as normal as possible.
I really do suggest, as others already have, getting the high level ultrasounds til birth and making sure there will be doctors with the correct knowledge to care for her when she is born. There is nothing worse than watching your baby have problems when the right doctor is not there to help.
Oh yeah...I also wanted to add that neither of my children ever had a sweat test done. It was all genetic around here. From what I read about them, they are not always right and you have to get the genetic test done after all anyways.
Hope this helps...PM me if you want someone to chat or have any questions...I was just recently in the pregnancy stage.
Hi and welcome to the site. Sorry to hear this news. Just continue to enjoy your pregnancy to the fullest as there is nothing you can do right at the moment. Yes, informing yourselves is a great idea, but don't let any of it scare you. Every case is different. I have a 4 year old with DDF508 and she was born with a blockage that we were unaware of during pregnancy. She was in our community hospital for a couple days with her belly just swelling up. Finally, they transferred her to the NICU in a city nearby...of course as stated in a previous entry I read...I had a C-section and was left behind. Was unable to see my baby til I got out of the hospital. She got her obstruction out with enemas and has been very healthy since. Slow weight gain, but nothing scary with her lungs so far. She appears to be a very normal 4 year old and is super smart!
Now, with my second we did the high level ultrasounds to watch for any problems. They could see the bowel blockage and we made sure we would deliver at the hospital in the nearby city to make sure she received the care she needed right away. She was early, due to no movement (during c-section found ambilical cord around neck). She then had to undergo surgery to remove the meconium. She had a stoma for 7 weeks and then underwent the reconnection surgery. She also has gone through lung problems w/ thick mucous since birth. She spent 2 1/2 months in the hospital and is now home and happy!
I just want you to see that there is a different case with every child regardless of the gene mutations. So don't let what you read on this site scare you. I am happy to see you are the father and taking these steps. I can't seem to talk my fiance into reading any of this cuz he does not want to read all the horror stories about 'what could happen'. It is hard since our first has always shown very minimal signs of having CF. But my views have changed alot since joining this site. I want to take as much precaution as I can to make sure it does not happen. But you still need to live your life happily and try to treat your children as normal as possible.
I really do suggest, as others already have, getting the high level ultrasounds til birth and making sure there will be doctors with the correct knowledge to care for her when she is born. There is nothing worse than watching your baby have problems when the right doctor is not there to help.
Oh yeah...I also wanted to add that neither of my children ever had a sweat test done. It was all genetic around here. From what I read about them, they are not always right and you have to get the genetic test done after all anyways.
Hope this helps...PM me if you want someone to chat or have any questions...I was just recently in the pregnancy stage.
Now, with my second we did the high level ultrasounds to watch for any problems. They could see the bowel blockage and we made sure we would deliver at the hospital in the nearby city to make sure she received the care she needed right away. She was early, due to no movement (during c-section found ambilical cord around neck). She then had to undergo surgery to remove the meconium. She had a stoma for 7 weeks and then underwent the reconnection surgery. She also has gone through lung problems w/ thick mucous since birth. She spent 2 1/2 months in the hospital and is now home and happy!
I just want you to see that there is a different case with every child regardless of the gene mutations. So don't let what you read on this site scare you. I am happy to see you are the father and taking these steps. I can't seem to talk my fiance into reading any of this cuz he does not want to read all the horror stories about 'what could happen'. It is hard since our first has always shown very minimal signs of having CF. But my views have changed alot since joining this site. I want to take as much precaution as I can to make sure it does not happen. But you still need to live your life happily and try to treat your children as normal as possible.
I really do suggest, as others already have, getting the high level ultrasounds til birth and making sure there will be doctors with the correct knowledge to care for her when she is born. There is nothing worse than watching your baby have problems when the right doctor is not there to help.
Oh yeah...I also wanted to add that neither of my children ever had a sweat test done. It was all genetic around here. From what I read about them, they are not always right and you have to get the genetic test done after all anyways.
Hope this helps...PM me if you want someone to chat or have any questions...I was just recently in the pregnancy stage.
Hi and welcome to the site. Sorry to hear this news. Just continue to enjoy your pregnancy to the fullest as there is nothing you can do right at the moment. Yes, informing yourselves is a great idea, but don't let any of it scare you. Every case is different. I have a 4 year old with DDF508 and she was born with a blockage that we were unaware of during pregnancy. She was in our community hospital for a couple days with her belly just swelling up. Finally, they transferred her to the NICU in a city nearby...of course as stated in a previous entry I read...I had a C-section and was left behind. Was unable to see my baby til I got out of the hospital. She got her obstruction out with enemas and has been very healthy since. Slow weight gain, but nothing scary with her lungs so far. She appears to be a very normal 4 year old and is super smart!
Now, with my second we did the high level ultrasounds to watch for any problems. They could see the bowel blockage and we made sure we would deliver at the hospital in the nearby city to make sure she received the care she needed right away. She was early, due to no movement (during c-section found ambilical cord around neck). She then had to undergo surgery to remove the meconium. She had a stoma for 7 weeks and then underwent the reconnection surgery. She also has gone through lung problems w/ thick mucous since birth. She spent 2 1/2 months in the hospital and is now home and happy!
I just want you to see that there is a different case with every child regardless of the gene mutations. So don't let what you read on this site scare you. I am happy to see you are the father and taking these steps. I can't seem to talk my fiance into reading any of this cuz he does not want to read all the horror stories about 'what could happen'. It is hard since our first has always shown very minimal signs of having CF. But my views have changed alot since joining this site. I want to take as much precaution as I can to make sure it does not happen. But you still need to live your life happily and try to treat your children as normal as possible.
I really do suggest, as others already have, getting the high level ultrasounds til birth and making sure there will be doctors with the correct knowledge to care for her when she is born. There is nothing worse than watching your baby have problems when the right doctor is not there to help.
Oh yeah...I also wanted to add that neither of my children ever had a sweat test done. It was all genetic around here. From what I read about them, they are not always right and you have to get the genetic test done after all anyways.
Hope this helps...PM me if you want someone to chat or have any questions...I was just recently in the pregnancy stage.
Now, with my second we did the high level ultrasounds to watch for any problems. They could see the bowel blockage and we made sure we would deliver at the hospital in the nearby city to make sure she received the care she needed right away. She was early, due to no movement (during c-section found ambilical cord around neck). She then had to undergo surgery to remove the meconium. She had a stoma for 7 weeks and then underwent the reconnection surgery. She also has gone through lung problems w/ thick mucous since birth. She spent 2 1/2 months in the hospital and is now home and happy!
I just want you to see that there is a different case with every child regardless of the gene mutations. So don't let what you read on this site scare you. I am happy to see you are the father and taking these steps. I can't seem to talk my fiance into reading any of this cuz he does not want to read all the horror stories about 'what could happen'. It is hard since our first has always shown very minimal signs of having CF. But my views have changed alot since joining this site. I want to take as much precaution as I can to make sure it does not happen. But you still need to live your life happily and try to treat your children as normal as possible.
I really do suggest, as others already have, getting the high level ultrasounds til birth and making sure there will be doctors with the correct knowledge to care for her when she is born. There is nothing worse than watching your baby have problems when the right doctor is not there to help.
Oh yeah...I also wanted to add that neither of my children ever had a sweat test done. It was all genetic around here. From what I read about them, they are not always right and you have to get the genetic test done after all anyways.
Hope this helps...PM me if you want someone to chat or have any questions...I was just recently in the pregnancy stage.
Hi and welcome to the site. Sorry to hear this news. Just continue to enjoy your pregnancy to the fullest as there is nothing you can do right at the moment. Yes, informing yourselves is a great idea, but don't let any of it scare you. Every case is different. I have a 4 year old with DDF508 and she was born with a blockage that we were unaware of during pregnancy. She was in our community hospital for a couple days with her belly just swelling up. Finally, they transferred her to the NICU in a city nearby...of course as stated in a previous entry I read...I had a C-section and was left behind. Was unable to see my baby til I got out of the hospital. She got her obstruction out with enemas and has been very healthy since. Slow weight gain, but nothing scary with her lungs so far. She appears to be a very normal 4 year old and is super smart!
Now, with my second we did the high level ultrasounds to watch for any problems. They could see the bowel blockage and we made sure we would deliver at the hospital in the nearby city to make sure she received the care she needed right away. She was early, due to no movement (during c-section found ambilical cord around neck). She then had to undergo surgery to remove the meconium. She had a stoma for 7 weeks and then underwent the reconnection surgery. She also has gone through lung problems w/ thick mucous since birth. She spent 2 1/2 months in the hospital and is now home and happy!
I just want you to see that there is a different case with every child regardless of the gene mutations. So don't let what you read on this site scare you. I am happy to see you are the father and taking these steps. I can't seem to talk my fiance into reading any of this cuz he does not want to read all the horror stories about 'what could happen'. It is hard since our first has always shown very minimal signs of having CF. But my views have changed alot since joining this site. I want to take as much precaution as I can to make sure it does not happen. But you still need to live your life happily and try to treat your children as normal as possible.
I really do suggest, as others already have, getting the high level ultrasounds til birth and making sure there will be doctors with the correct knowledge to care for her when she is born. There is nothing worse than watching your baby have problems when the right doctor is not there to help.
Oh yeah...I also wanted to add that neither of my children ever had a sweat test done. It was all genetic around here. From what I read about them, they are not always right and you have to get the genetic test done after all anyways.
Hope this helps...PM me if you want someone to chat or have any questions...I was just recently in the pregnancy stage.
Now, with my second we did the high level ultrasounds to watch for any problems. They could see the bowel blockage and we made sure we would deliver at the hospital in the nearby city to make sure she received the care she needed right away. She was early, due to no movement (during c-section found ambilical cord around neck). She then had to undergo surgery to remove the meconium. She had a stoma for 7 weeks and then underwent the reconnection surgery. She also has gone through lung problems w/ thick mucous since birth. She spent 2 1/2 months in the hospital and is now home and happy!
I just want you to see that there is a different case with every child regardless of the gene mutations. So don't let what you read on this site scare you. I am happy to see you are the father and taking these steps. I can't seem to talk my fiance into reading any of this cuz he does not want to read all the horror stories about 'what could happen'. It is hard since our first has always shown very minimal signs of having CF. But my views have changed alot since joining this site. I want to take as much precaution as I can to make sure it does not happen. But you still need to live your life happily and try to treat your children as normal as possible.
I really do suggest, as others already have, getting the high level ultrasounds til birth and making sure there will be doctors with the correct knowledge to care for her when she is born. There is nothing worse than watching your baby have problems when the right doctor is not there to help.
Oh yeah...I also wanted to add that neither of my children ever had a sweat test done. It was all genetic around here. From what I read about them, they are not always right and you have to get the genetic test done after all anyways.
Hope this helps...PM me if you want someone to chat or have any questions...I was just recently in the pregnancy stage.
Hi and welcome to the site. Sorry to hear this news. Just continue to enjoy your pregnancy to the fullest as there is nothing you can do right at the moment. Yes, informing yourselves is a great idea, but don't let any of it scare you. Every case is different. I have a 4 year old with DDF508 and she was born with a blockage that we were unaware of during pregnancy. She was in our community hospital for a couple days with her belly just swelling up. Finally, they transferred her to the NICU in a city nearby...of course as stated in a previous entry I read...I had a C-section and was left behind. Was unable to see my baby til I got out of the hospital. She got her obstruction out with enemas and has been very healthy since. Slow weight gain, but nothing scary with her lungs so far. She appears to be a very normal 4 year old and is super smart!
<br />Now, with my second we did the high level ultrasounds to watch for any problems. They could see the bowel blockage and we made sure we would deliver at the hospital in the nearby city to make sure she received the care she needed right away. She was early, due to no movement (during c-section found ambilical cord around neck). She then had to undergo surgery to remove the meconium. She had a stoma for 7 weeks and then underwent the reconnection surgery. She also has gone through lung problems w/ thick mucous since birth. She spent 2 1/2 months in the hospital and is now home and happy!
<br />I just want you to see that there is a different case with every child regardless of the gene mutations. So don't let what you read on this site scare you. I am happy to see you are the father and taking these steps. I can't seem to talk my fiance into reading any of this cuz he does not want to read all the horror stories about 'what could happen'. It is hard since our first has always shown very minimal signs of having CF. But my views have changed alot since joining this site. I want to take as much precaution as I can to make sure it does not happen. But you still need to live your life happily and try to treat your children as normal as possible.
<br />I really do suggest, as others already have, getting the high level ultrasounds til birth and making sure there will be doctors with the correct knowledge to care for her when she is born. There is nothing worse than watching your baby have problems when the right doctor is not there to help.
<br />Oh yeah...I also wanted to add that neither of my children ever had a sweat test done. It was all genetic around here. From what I read about them, they are not always right and you have to get the genetic test done after all anyways.
<br />Hope this helps...PM me if you want someone to chat or have any questions...I was just recently in the pregnancy stage.
<br />Now, with my second we did the high level ultrasounds to watch for any problems. They could see the bowel blockage and we made sure we would deliver at the hospital in the nearby city to make sure she received the care she needed right away. She was early, due to no movement (during c-section found ambilical cord around neck). She then had to undergo surgery to remove the meconium. She had a stoma for 7 weeks and then underwent the reconnection surgery. She also has gone through lung problems w/ thick mucous since birth. She spent 2 1/2 months in the hospital and is now home and happy!
<br />I just want you to see that there is a different case with every child regardless of the gene mutations. So don't let what you read on this site scare you. I am happy to see you are the father and taking these steps. I can't seem to talk my fiance into reading any of this cuz he does not want to read all the horror stories about 'what could happen'. It is hard since our first has always shown very minimal signs of having CF. But my views have changed alot since joining this site. I want to take as much precaution as I can to make sure it does not happen. But you still need to live your life happily and try to treat your children as normal as possible.
<br />I really do suggest, as others already have, getting the high level ultrasounds til birth and making sure there will be doctors with the correct knowledge to care for her when she is born. There is nothing worse than watching your baby have problems when the right doctor is not there to help.
<br />Oh yeah...I also wanted to add that neither of my children ever had a sweat test done. It was all genetic around here. From what I read about them, they are not always right and you have to get the genetic test done after all anyways.
<br />Hope this helps...PM me if you want someone to chat or have any questions...I was just recently in the pregnancy stage.
We have our 20 week full ultrasound scheduled for tomorrow with our OB. He had already mentioned the chance of the obstruction that many of you are speaking of. I will be sure to inquire about how a procedure would be handled if necessary. The hospital here has a full surgery center so I would imagine we will be fine. I have never been one to avoid the worst case scenario. I can only hope and pray that it is a mild case but I feel like I should prepare and be ready for anything that comes our way. I may PM some of you to ask questions and I really appreciate all the support.
I have been reading like crazy the last several days to understand all the different medications and treatments that could be necessary to treat the various effects of the disorder.
I did find a great article discussing the medicines in the pipeline that are designed to help "fix" the faulty mutation as opposed to treating symptoms. This may be old news to all the seasoned pros living with this but it was the first article I found that broke it down pretty easily for me to understand. Here is the link. <a target=_blank class=ftalternatingbarlinklarge href="http://www.xconomy.com/national/2009/08/07/vertex-drug-could-be-man-walking-on-the-moon-for-cystic-fibrosis-treatment-says-seattle-researcher-bonnie-ramsey/1/">http://www.xconomy.com/nationa...rcher-bonnie-ramsey/1/</a>
I have been reading like crazy the last several days to understand all the different medications and treatments that could be necessary to treat the various effects of the disorder.
I did find a great article discussing the medicines in the pipeline that are designed to help "fix" the faulty mutation as opposed to treating symptoms. This may be old news to all the seasoned pros living with this but it was the first article I found that broke it down pretty easily for me to understand. Here is the link. <a target=_blank class=ftalternatingbarlinklarge href="http://www.xconomy.com/national/2009/08/07/vertex-drug-could-be-man-walking-on-the-moon-for-cystic-fibrosis-treatment-says-seattle-researcher-bonnie-ramsey/1/">http://www.xconomy.com/nationa...rcher-bonnie-ramsey/1/</a>
We have our 20 week full ultrasound scheduled for tomorrow with our OB. He had already mentioned the chance of the obstruction that many of you are speaking of. I will be sure to inquire about how a procedure would be handled if necessary. The hospital here has a full surgery center so I would imagine we will be fine. I have never been one to avoid the worst case scenario. I can only hope and pray that it is a mild case but I feel like I should prepare and be ready for anything that comes our way. I may PM some of you to ask questions and I really appreciate all the support.
I have been reading like crazy the last several days to understand all the different medications and treatments that could be necessary to treat the various effects of the disorder.
I did find a great article discussing the medicines in the pipeline that are designed to help "fix" the faulty mutation as opposed to treating symptoms. This may be old news to all the seasoned pros living with this but it was the first article I found that broke it down pretty easily for me to understand. Here is the link. <a target=_blank class=ftalternatingbarlinklarge href="http://www.xconomy.com/national/2009/08/07/vertex-drug-could-be-man-walking-on-the-moon-for-cystic-fibrosis-treatment-says-seattle-researcher-bonnie-ramsey/1/">http://www.xconomy.com/nationa...rcher-bonnie-ramsey/1/</a>
I have been reading like crazy the last several days to understand all the different medications and treatments that could be necessary to treat the various effects of the disorder.
I did find a great article discussing the medicines in the pipeline that are designed to help "fix" the faulty mutation as opposed to treating symptoms. This may be old news to all the seasoned pros living with this but it was the first article I found that broke it down pretty easily for me to understand. Here is the link. <a target=_blank class=ftalternatingbarlinklarge href="http://www.xconomy.com/national/2009/08/07/vertex-drug-could-be-man-walking-on-the-moon-for-cystic-fibrosis-treatment-says-seattle-researcher-bonnie-ramsey/1/">http://www.xconomy.com/nationa...rcher-bonnie-ramsey/1/</a>
We have our 20 week full ultrasound scheduled for tomorrow with our OB. He had already mentioned the chance of the obstruction that many of you are speaking of. I will be sure to inquire about how a procedure would be handled if necessary. The hospital here has a full surgery center so I would imagine we will be fine. I have never been one to avoid the worst case scenario. I can only hope and pray that it is a mild case but I feel like I should prepare and be ready for anything that comes our way. I may PM some of you to ask questions and I really appreciate all the support.
I have been reading like crazy the last several days to understand all the different medications and treatments that could be necessary to treat the various effects of the disorder.
I did find a great article discussing the medicines in the pipeline that are designed to help "fix" the faulty mutation as opposed to treating symptoms. This may be old news to all the seasoned pros living with this but it was the first article I found that broke it down pretty easily for me to understand. Here is the link. <a target=_blank class=ftalternatingbarlinklarge href="http://www.xconomy.com/national/2009/08/07/vertex-drug-could-be-man-walking-on-the-moon-for-cystic-fibrosis-treatment-says-seattle-researcher-bonnie-ramsey/1/">http://www.xconomy.com/nationa...rcher-bonnie-ramsey/1/</a>
I have been reading like crazy the last several days to understand all the different medications and treatments that could be necessary to treat the various effects of the disorder.
I did find a great article discussing the medicines in the pipeline that are designed to help "fix" the faulty mutation as opposed to treating symptoms. This may be old news to all the seasoned pros living with this but it was the first article I found that broke it down pretty easily for me to understand. Here is the link. <a target=_blank class=ftalternatingbarlinklarge href="http://www.xconomy.com/national/2009/08/07/vertex-drug-could-be-man-walking-on-the-moon-for-cystic-fibrosis-treatment-says-seattle-researcher-bonnie-ramsey/1/">http://www.xconomy.com/nationa...rcher-bonnie-ramsey/1/</a>
We have our 20 week full ultrasound scheduled for tomorrow with our OB. He had already mentioned the chance of the obstruction that many of you are speaking of. I will be sure to inquire about how a procedure would be handled if necessary. The hospital here has a full surgery center so I would imagine we will be fine. I have never been one to avoid the worst case scenario. I can only hope and pray that it is a mild case but I feel like I should prepare and be ready for anything that comes our way. I may PM some of you to ask questions and I really appreciate all the support.
I have been reading like crazy the last several days to understand all the different medications and treatments that could be necessary to treat the various effects of the disorder.
I did find a great article discussing the medicines in the pipeline that are designed to help "fix" the faulty mutation as opposed to treating symptoms. This may be old news to all the seasoned pros living with this but it was the first article I found that broke it down pretty easily for me to understand. Here is the link. <a target=_blank class=ftalternatingbarlinklarge href="http://www.xconomy.com/national/2009/08/07/vertex-drug-could-be-man-walking-on-the-moon-for-cystic-fibrosis-treatment-says-seattle-researcher-bonnie-ramsey/1/">http://www.xconomy.com/nationa...rcher-bonnie-ramsey/1/</a>
I have been reading like crazy the last several days to understand all the different medications and treatments that could be necessary to treat the various effects of the disorder.
I did find a great article discussing the medicines in the pipeline that are designed to help "fix" the faulty mutation as opposed to treating symptoms. This may be old news to all the seasoned pros living with this but it was the first article I found that broke it down pretty easily for me to understand. Here is the link. <a target=_blank class=ftalternatingbarlinklarge href="http://www.xconomy.com/national/2009/08/07/vertex-drug-could-be-man-walking-on-the-moon-for-cystic-fibrosis-treatment-says-seattle-researcher-bonnie-ramsey/1/">http://www.xconomy.com/nationa...rcher-bonnie-ramsey/1/</a>
We have our 20 week full ultrasound scheduled for tomorrow with our OB. He had already mentioned the chance of the obstruction that many of you are speaking of. I will be sure to inquire about how a procedure would be handled if necessary. The hospital here has a full surgery center so I would imagine we will be fine. I have never been one to avoid the worst case scenario. I can only hope and pray that it is a mild case but I feel like I should prepare and be ready for anything that comes our way. I may PM some of you to ask questions and I really appreciate all the support.
<br />
<br />I have been reading like crazy the last several days to understand all the different medications and treatments that could be necessary to treat the various effects of the disorder.
<br />
<br />I did find a great article discussing the medicines in the pipeline that are designed to help "fix" the faulty mutation as opposed to treating symptoms. This may be old news to all the seasoned pros living with this but it was the first article I found that broke it down pretty easily for me to understand. Here is the link. <a target=_blank class=ftalternatingbarlinklarge href="http://www.xconomy.com/national/2009/08/07/vertex-drug-could-be-man-walking-on-the-moon-for-cystic-fibrosis-treatment-says-seattle-researcher-bonnie-ramsey/1/">http://www.xconomy.com/nationa...rcher-bonnie-ramsey/1/</a>
<br />
<br />I have been reading like crazy the last several days to understand all the different medications and treatments that could be necessary to treat the various effects of the disorder.
<br />
<br />I did find a great article discussing the medicines in the pipeline that are designed to help "fix" the faulty mutation as opposed to treating symptoms. This may be old news to all the seasoned pros living with this but it was the first article I found that broke it down pretty easily for me to understand. Here is the link. <a target=_blank class=ftalternatingbarlinklarge href="http://www.xconomy.com/national/2009/08/07/vertex-drug-could-be-man-walking-on-the-moon-for-cystic-fibrosis-treatment-says-seattle-researcher-bonnie-ramsey/1/">http://www.xconomy.com/nationa...rcher-bonnie-ramsey/1/</a>