An Admirer

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MlleKathy

New member
Hi. I'm new to this site because I wanted to know more about this disease just for my own understanding. I usually search diseases... Usually uncommon ones. They are very interesting and I want to know why it happens to someone. For my own knowledge, I watch things like "Mystery Diagnosis" This disease isn't so... "rare" but it is still interesting. I'm sorry for those who suffer under it, and I wish the best luck. I especially want to know what it is like for young people. What is it like for school, do you miss a lot of school being sick? If you are admitted into the hospital, for what reason and for how long? What are your daily routines for treating the sickness? What do you do for treatments, are they at home or at the clinic? If anyone would ease my curiosity... Thanks so much!! <img src="i/expressions/face-icon-small-happy.gif" border="0">
 
M

MlleKathy

New member
Hi. I'm new to this site because I wanted to know more about this disease just for my own understanding. I usually search diseases... Usually uncommon ones. They are very interesting and I want to know why it happens to someone. For my own knowledge, I watch things like "Mystery Diagnosis" This disease isn't so... "rare" but it is still interesting. I'm sorry for those who suffer under it, and I wish the best luck. I especially want to know what it is like for young people. What is it like for school, do you miss a lot of school being sick? If you are admitted into the hospital, for what reason and for how long? What are your daily routines for treating the sickness? What do you do for treatments, are they at home or at the clinic? If anyone would ease my curiosity... Thanks so much!! <img src="i/expressions/face-icon-small-happy.gif" border="0">
 
M

MlleKathy

New member
Hi. I'm new to this site because I wanted to know more about this disease just for my own understanding. I usually search diseases... Usually uncommon ones. They are very interesting and I want to know why it happens to someone. For my own knowledge, I watch things like "Mystery Diagnosis" This disease isn't so... "rare" but it is still interesting. I'm sorry for those who suffer under it, and I wish the best luck. I especially want to know what it is like for young people. What is it like for school, do you miss a lot of school being sick? If you are admitted into the hospital, for what reason and for how long? What are your daily routines for treating the sickness? What do you do for treatments, are they at home or at the clinic? If anyone would ease my curiosity... Thanks so much!! <img src="i/expressions/face-icon-small-happy.gif" border="0">
 
M

MlleKathy

New member
Hi. I'm new to this site because I wanted to know more about this disease just for my own understanding. I usually search diseases... Usually uncommon ones. They are very interesting and I want to know why it happens to someone. For my own knowledge, I watch things like "Mystery Diagnosis" This disease isn't so... "rare" but it is still interesting. I'm sorry for those who suffer under it, and I wish the best luck. I especially want to know what it is like for young people. What is it like for school, do you miss a lot of school being sick? If you are admitted into the hospital, for what reason and for how long? What are your daily routines for treating the sickness? What do you do for treatments, are they at home or at the clinic? If anyone would ease my curiosity... Thanks so much!! <img src="i/expressions/face-icon-small-happy.gif" border="0">
 
M

MlleKathy

New member
Hi. I'm new to this site because I wanted to know more about this disease just for my own understanding. I usually search diseases... Usually uncommon ones. They are very interesting and I want to know why it happens to someone. For my own knowledge, I watch things like "Mystery Diagnosis" This disease isn't so... "rare" but it is still interesting. I'm sorry for those who suffer under it, and I wish the best luck. I especially want to know what it is like for young people. What is it like for school, do you miss a lot of school being sick? If you are admitted into the hospital, for what reason and for how long? What are your daily routines for treating the sickness? What do you do for treatments, are they at home or at the clinic? If anyone would ease my curiosity... Thanks so much!! <img src="i/expressions/face-icon-small-happy.gif" border="0">
 
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bananagirl

New member
Yes I do miss a lot of school. Not all the time but like last year I missed two weeks in the fall and two in the spring. This year I have been doing Iv meds at home so I haven't missed any school. Hospital stays for me are usually two weeks long and I do lots of nebulizer and vest treatments (four times a day to be exact) as well as Iv meds. When I do them at home I just do the Iv Meds and my usual once a day vest and nebulizer treatments. A typical day for me goes like this. wake up, take some pills, go to school. Come home from school, do two cans of formula in my g-tube, do homework, do whatever, have dinner, do the dishes, do my vest and nebulizer, do another two cans of formula, take a shower and go to bed. The nebulizer is a thing that puffs out medicine in a mist form that I breath in. The vest is a machine that has a vest attached to it that I put on and it shakes my chest to help clear it. These are the typical cfer treatments and I think most people do them at home though some do it more often then others and use different types of medicine and not everyone uses a vest. For me Clinic visits are like other doctor visits. The one difference is that we do a lung function test called pfts. The main thing they check is the fev1 which I think is the amount of air you can blow out in 1 second. When this is low I usually have to do Iv meds and come into the hospital although I hate going which is why I have been doing iv meds at home instead. I hope this is helpful to you. If you want to know more you can e-mail me your questions my e-mail is annabananaarb@yahoo.com just put cf questions for the subject.
 
B

bananagirl

New member
Yes I do miss a lot of school. Not all the time but like last year I missed two weeks in the fall and two in the spring. This year I have been doing Iv meds at home so I haven't missed any school. Hospital stays for me are usually two weeks long and I do lots of nebulizer and vest treatments (four times a day to be exact) as well as Iv meds. When I do them at home I just do the Iv Meds and my usual once a day vest and nebulizer treatments. A typical day for me goes like this. wake up, take some pills, go to school. Come home from school, do two cans of formula in my g-tube, do homework, do whatever, have dinner, do the dishes, do my vest and nebulizer, do another two cans of formula, take a shower and go to bed. The nebulizer is a thing that puffs out medicine in a mist form that I breath in. The vest is a machine that has a vest attached to it that I put on and it shakes my chest to help clear it. These are the typical cfer treatments and I think most people do them at home though some do it more often then others and use different types of medicine and not everyone uses a vest. For me Clinic visits are like other doctor visits. The one difference is that we do a lung function test called pfts. The main thing they check is the fev1 which I think is the amount of air you can blow out in 1 second. When this is low I usually have to do Iv meds and come into the hospital although I hate going which is why I have been doing iv meds at home instead. I hope this is helpful to you. If you want to know more you can e-mail me your questions my e-mail is annabananaarb@yahoo.com just put cf questions for the subject.
 
B

bananagirl

New member
Yes I do miss a lot of school. Not all the time but like last year I missed two weeks in the fall and two in the spring. This year I have been doing Iv meds at home so I haven't missed any school. Hospital stays for me are usually two weeks long and I do lots of nebulizer and vest treatments (four times a day to be exact) as well as Iv meds. When I do them at home I just do the Iv Meds and my usual once a day vest and nebulizer treatments. A typical day for me goes like this. wake up, take some pills, go to school. Come home from school, do two cans of formula in my g-tube, do homework, do whatever, have dinner, do the dishes, do my vest and nebulizer, do another two cans of formula, take a shower and go to bed. The nebulizer is a thing that puffs out medicine in a mist form that I breath in. The vest is a machine that has a vest attached to it that I put on and it shakes my chest to help clear it. These are the typical cfer treatments and I think most people do them at home though some do it more often then others and use different types of medicine and not everyone uses a vest. For me Clinic visits are like other doctor visits. The one difference is that we do a lung function test called pfts. The main thing they check is the fev1 which I think is the amount of air you can blow out in 1 second. When this is low I usually have to do Iv meds and come into the hospital although I hate going which is why I have been doing iv meds at home instead. I hope this is helpful to you. If you want to know more you can e-mail me your questions my e-mail is annabananaarb@yahoo.com just put cf questions for the subject.
 
B

bananagirl

New member
Yes I do miss a lot of school. Not all the time but like last year I missed two weeks in the fall and two in the spring. This year I have been doing Iv meds at home so I haven't missed any school. Hospital stays for me are usually two weeks long and I do lots of nebulizer and vest treatments (four times a day to be exact) as well as Iv meds. When I do them at home I just do the Iv Meds and my usual once a day vest and nebulizer treatments. A typical day for me goes like this. wake up, take some pills, go to school. Come home from school, do two cans of formula in my g-tube, do homework, do whatever, have dinner, do the dishes, do my vest and nebulizer, do another two cans of formula, take a shower and go to bed. The nebulizer is a thing that puffs out medicine in a mist form that I breath in. The vest is a machine that has a vest attached to it that I put on and it shakes my chest to help clear it. These are the typical cfer treatments and I think most people do them at home though some do it more often then others and use different types of medicine and not everyone uses a vest. For me Clinic visits are like other doctor visits. The one difference is that we do a lung function test called pfts. The main thing they check is the fev1 which I think is the amount of air you can blow out in 1 second. When this is low I usually have to do Iv meds and come into the hospital although I hate going which is why I have been doing iv meds at home instead. I hope this is helpful to you. If you want to know more you can e-mail me your questions my e-mail is annabananaarb@yahoo.com just put cf questions for the subject.
 
B

bananagirl

New member
Yes I do miss a lot of school. Not all the time but like last year I missed two weeks in the fall and two in the spring. This year I have been doing Iv meds at home so I haven't missed any school. Hospital stays for me are usually two weeks long and I do lots of nebulizer and vest treatments (four times a day to be exact) as well as Iv meds. When I do them at home I just do the Iv Meds and my usual once a day vest and nebulizer treatments. A typical day for me goes like this. wake up, take some pills, go to school. Come home from school, do two cans of formula in my g-tube, do homework, do whatever, have dinner, do the dishes, do my vest and nebulizer, do another two cans of formula, take a shower and go to bed. The nebulizer is a thing that puffs out medicine in a mist form that I breath in. The vest is a machine that has a vest attached to it that I put on and it shakes my chest to help clear it. These are the typical cfer treatments and I think most people do them at home though some do it more often then others and use different types of medicine and not everyone uses a vest. For me Clinic visits are like other doctor visits. The one difference is that we do a lung function test called pfts. The main thing they check is the fev1 which I think is the amount of air you can blow out in 1 second. When this is low I usually have to do Iv meds and come into the hospital although I hate going which is why I have been doing iv meds at home instead. I hope this is helpful to you. If you want to know more you can e-mail me your questions my e-mail is annabananaarb@yahoo.com just put cf questions for the subject.
 
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