My son has cf, autism, and other special needs. The following post is completely off topic, but since this is such a large community, i am hoping someone has experienced this or knows someone who has and can answer my questions.
my son has a malformed tailbone, that protrudes out very far causing pain and pressure ulcers. He needed to be inpatient fir the last one. Rhe orthopedic surgeon and the general surgeon feel our only option is to remove the tailbone to avoid any further pain and skin breakdown. This is a VERY RARE surgery with only 7 ever being performed at Children's Hospital Pittsburgh, and our surgeorn has performed 3 of them. He says the surgery is pretty straight forward taking about 1- 1 1/2 hours. He will be admitted for atleast 24 hrs and can go home when his pain is managed. The recovery though is very long, possibly 3 months. As you can imagine, this is freaking me out.
Can anyone shed some light on this? There is not much info. out there because this is a rare procedure and used as a last resort.
the only way to stop the pressure ulcers is to remove it, but the painful recovery time scares me to death.
Any advise will be greatly appreciated.
thank you, jshet
my son has a malformed tailbone, that protrudes out very far causing pain and pressure ulcers. He needed to be inpatient fir the last one. Rhe orthopedic surgeon and the general surgeon feel our only option is to remove the tailbone to avoid any further pain and skin breakdown. This is a VERY RARE surgery with only 7 ever being performed at Children's Hospital Pittsburgh, and our surgeorn has performed 3 of them. He says the surgery is pretty straight forward taking about 1- 1 1/2 hours. He will be admitted for atleast 24 hrs and can go home when his pain is managed. The recovery though is very long, possibly 3 months. As you can imagine, this is freaking me out.
Can anyone shed some light on this? There is not much info. out there because this is a rare procedure and used as a last resort.
the only way to stop the pressure ulcers is to remove it, but the painful recovery time scares me to death.
Any advise will be greatly appreciated.
thank you, jshet