Another baby??

julie

New member
PGD (pre-genetic implantation diagnosis) is where they take cells from the egg and determine if they carry any of the most common CF mutations. It in NO way harms the embryo unless there is a large error made in the procedure to the embryo itself and then it will "destroy"/miscarry. I have a large segment in my website about it that discusses it in depth and provides links to other websites.

IVF by itself does NOT involve any dissection of the egg. If you have more questions, would like to see more information, PLEASE visit this site for more accurate information: <a target=new class=ftalternatingbarlinklarge href="http://www.cysticfibrosismaleinfertility.com/ivf.html">http://www.cysticfibrosismaleinfertility.com/ivf.html</a>- this is on IVF
<a target=new class=ftalternatingbarlinklarge href="http://www.cysticfibrosismaleinfertility.com/PGD.html">http://www.cysticfibrosismaleinfertility.com/PGD.html</a>-this is on PGD
 

anonymous

New member
Is the egg fertilized when they do they test? And if so what do they do with the egg after they discover it has the CF mutation, and you decide you do not want it?
 

julie

New member
Yes it is fertilized and they wait till it gets to a certain stage before removing a cell so it won't harm the growth. If the embryo is discovered to have CF you can decide to 1. go through with the pregnancy regardless, 2. terminate the embryo, 3. donate the embryo to science for further research of gene therapy, stem cell research, a better understanding of CF mutations...
 

anonymous

New member
Thanks to all that applied...to the last post about Abortion....That is the most stupid thing i have ever heard....I am not going to get into the debate on eggs etc.....as nothing is even fertilised...I suggest you start looking up on IVF and then you may have an understanding!!!!
I feel that i will eventually do IVF but not for 5 years or so...my 2 children will always come first on this one....Thanks Paula Mum to Ruby and Joe.....
 

anonymous

New member
Paula, it is not stupid to those who do believe that life begins with conception. There are many people who believe life begins at conception and do IVF anyway - which is why it is possible to adopt the unused embyos. Some couples feel so strongly about making sure their unused embyos have a chance that they will give them up for adoption.

This make not make SENSE to you but to say that it is "stupid" is a poor choice of words.
 

Emily65Roses

New member
I don't know if it's necessarily true of IVF or not.. but if you take into account exactly what Paula said, she's right. If there's no fertilization, then there's no conception, and calling it abortion is indeed stupid. I know IVF requires an embyro, but maybe they test the egg and sperm separately first. In which case, disposing of either of them is nothing more than male masturbation or a female period, neither of which is considered abortion.
 

anonymous

New member
Emily, LOL can you really imagine someone testing sperm to see if they are "CF Carrier Sperm" that would be a tedious job!!

Not that it will change anyone's mind but here is some basic info on PGD for those who are a little confused about the the whole "is it just an egg or is it an embryo thing" (this explains why people who believe that life begins at conception would not feel right about doing PGD themselves.)


Pre- Genetic Implantation Diagnosis or PGD is the analysing of a cell from an embryo. At present sex linked chromosomal abnormalities and single gene disorders can be treated with PGD. Couples who are offered treatment have either:

Been identified as a carrier of a genetic disease
Have had children born who have been affected
Have experienced recurrent miscarriages and this has been linked to a genetic abnormality
The couple would need to be counselled by a genetic counsellor to explore the implications of PGD and treatment. In order to produce embryo?s for testing a couple would have to have an IVF/ ICSI treatment cycle. Following treatment the embryologists would perform an embryo biopsy on an 8 cell embryo. An embryo normally reaches 8 cells on Day 3 of its development. Following the biopsy the cell will either be sexed or a strand of the cell will be processed to identify affected embryo?s. Those that are not affected by the genetic disorder will then be selected for embryo replacement. The Embryo Replacement would then proceed Day 4/5, the unaffected embryo?s being replaced into the uterus.
 

Emily65Roses

New member
Shows how much I know. But hell, I think any of the testing is tedious. Heh. My only point was (and you seem to have understood it just fine) that if what Paula said was true, then an abortion discussion wasn't relevant.
 

anonymous

New member
Emily.
If you look at the above post from Julie she states that the egg is fertilized and even calls it an embryo (trusting she is right) This to me is a baby and discarding it because it has CF is not something I could do. However it is each persons individual choice and I am not here to judge them for it, that is someone else's job.
 

Emily65Roses

New member
I wasn't getting into an abortion debate, I was just commenting specifically on what Paula said. If I wanted to get into an abortion debate, it'd be an entirely different discussion, but I didn't think that was worth it.
 

anonymous

New member
My husband and I both had a child when we married in 1999, they are both healthy. My son who is 12 is a cf carrier, we don't know about my 13 year old step-daughter being a carrier or not. Anyways we have a 4 year old CF child together, a boy. We decided to try for another because our plan was to have two children together and we weren't going to let CF stop us. So I got pregnant and had the amino and it came back she does NOT have cf. We did find out recently that she does have a chromosone 9q deleltion, 9q 21.2 q 22.1, so you just never know, we were worried about the CF and then this 1 in 6 million chance thing happened. We love them both, but my point is any of us could walk in front of a car and die tomorrow, you just never know. I say go with it if you want another child and if God decides you get another child with cf that just means he thinks you can handle it and you must be very special parents!

Take care and Good luck!
 

anonymous

New member
My mom decided to have my younger sibling, because she thought if they had cf then we could have cf together, that i wouldnt be alone and if they didnt have cf, then great. Turns out she doesnt have cf. Of course back then, I was healthy and cf wasnt really a problem to deal with.
 
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