Another Child lost to CF

BabyBeauty

New member
I have read over Haley's website and my heart breaks for this family! I have been praying for them as well as asking others to do the same.

Haley's passing has really hit my husband and I very hard. You think that with all of the meds, treatments, appts you can beat this. But in all reality it is up to God.

Again my heart goes out to her family.
 

BabyBeauty

New member
I have read over Haley's website and my heart breaks for this family! I have been praying for them as well as asking others to do the same.

Haley's passing has really hit my husband and I very hard. You think that with all of the meds, treatments, appts you can beat this. But in all reality it is up to God.

Again my heart goes out to her family.
 

BabyBeauty

New member
I have read over Haley's website and my heart breaks for this family! I have been praying for them as well as asking others to do the same.

Haley's passing has really hit my husband and I very hard. You think that with all of the meds, treatments, appts you can beat this. But in all reality it is up to God.

Again my heart goes out to her family.
 

BabyBeauty

New member
I have read over Haley's website and my heart breaks for this family! I have been praying for them as well as asking others to do the same.

Haley's passing has really hit my husband and I very hard. You think that with all of the meds, treatments, appts you can beat this. But in all reality it is up to God.

Again my heart goes out to her family.
 

BabyBeauty

New member
I have read over Haley's website and my heart breaks for this family! I have been praying for them as well as asking others to do the same.
<br />
<br />Haley's passing has really hit my husband and I very hard. You think that with all of the meds, treatments, appts you can beat this. But in all reality it is up to God.
<br />
<br />Again my heart goes out to her family.
 

shimmereestar

New member
There are no words to describe the grief I felt after reading about Haley. My heart broke for her family. My prayers for peace and strength are with her family. She was such a beautiful child.
 

shimmereestar

New member
There are no words to describe the grief I felt after reading about Haley. My heart broke for her family. My prayers for peace and strength are with her family. She was such a beautiful child.
 

shimmereestar

New member
There are no words to describe the grief I felt after reading about Haley. My heart broke for her family. My prayers for peace and strength are with her family. She was such a beautiful child.
 

shimmereestar

New member
There are no words to describe the grief I felt after reading about Haley. My heart broke for her family. My prayers for peace and strength are with her family. She was such a beautiful child.
 

shimmereestar

New member
There are no words to describe the grief I felt after reading about Haley. My heart broke for her family. My prayers for peace and strength are with her family. She was such a beautiful child.
 

Daddy2Noah

New member
I read things like this and it truly breaks my heart. She was beautiful, as are all children. I have to keep reminding myself that death is only "final" or "the end" to those of us who are left behind without answers.

I am so completely and totally thankful for every second that I get to look into my sons eyes... for every breath that he takes and for every beat that his heart makes. He's completely healthy right now but I know that can change on the drop of a dime... and he could be taken home at any moment.

I need to start doing everything I can to make someones day, everyday. I'm going to do everything that I can to win the day, everyday. Maybe somedays it will just be making someone smile by smiling at them first... maybe it will be a hug... a wave... maybe holding a door for someone, buying someone a coffee... maybe a phonecall to say hello, maybe a joke or just a conversation. Anything... it's what these kids would want. It's how we can change this world for the better while they look for a cure for this horrible disease.

Then I have to remind myself that anybodies kid(s) could be taken from them at any moment, not just mine/ours. It's in the news every day anymore. Senseless hit and runs, molesting, murders, accidental shootings, drugs, school shootings, etc... and that helps me to understand that CF has brought my family so much closer together, and that every second gets cherished and valued, where is might not be this way had Noah not had CF.

So for that I am thankful, because if it can happen to anyone, anywhere (the loss of a child) then I am damn thankful for anything that wakes me up and makes me take notice of the little things, the things that matter... every second, the magic he sees in an earthworm... a spider... the magic he sees in a simple ball, a ride on a swingset... the magic he lives everyday through the stuff that I use to find trivial and meaningless.

Our children show us everyday what strength really is, what magic really is... that's their gift to us. Well, that and unconditional love... pure unconditional love.

Meanwhile, I'm off to try to make someones day. Anyone with me?
 

Daddy2Noah

New member
I read things like this and it truly breaks my heart. She was beautiful, as are all children. I have to keep reminding myself that death is only "final" or "the end" to those of us who are left behind without answers.

I am so completely and totally thankful for every second that I get to look into my sons eyes... for every breath that he takes and for every beat that his heart makes. He's completely healthy right now but I know that can change on the drop of a dime... and he could be taken home at any moment.

I need to start doing everything I can to make someones day, everyday. I'm going to do everything that I can to win the day, everyday. Maybe somedays it will just be making someone smile by smiling at them first... maybe it will be a hug... a wave... maybe holding a door for someone, buying someone a coffee... maybe a phonecall to say hello, maybe a joke or just a conversation. Anything... it's what these kids would want. It's how we can change this world for the better while they look for a cure for this horrible disease.

Then I have to remind myself that anybodies kid(s) could be taken from them at any moment, not just mine/ours. It's in the news every day anymore. Senseless hit and runs, molesting, murders, accidental shootings, drugs, school shootings, etc... and that helps me to understand that CF has brought my family so much closer together, and that every second gets cherished and valued, where is might not be this way had Noah not had CF.

So for that I am thankful, because if it can happen to anyone, anywhere (the loss of a child) then I am damn thankful for anything that wakes me up and makes me take notice of the little things, the things that matter... every second, the magic he sees in an earthworm... a spider... the magic he sees in a simple ball, a ride on a swingset... the magic he lives everyday through the stuff that I use to find trivial and meaningless.

Our children show us everyday what strength really is, what magic really is... that's their gift to us. Well, that and unconditional love... pure unconditional love.

Meanwhile, I'm off to try to make someones day. Anyone with me?
 

Daddy2Noah

New member
I read things like this and it truly breaks my heart. She was beautiful, as are all children. I have to keep reminding myself that death is only "final" or "the end" to those of us who are left behind without answers.

I am so completely and totally thankful for every second that I get to look into my sons eyes... for every breath that he takes and for every beat that his heart makes. He's completely healthy right now but I know that can change on the drop of a dime... and he could be taken home at any moment.

I need to start doing everything I can to make someones day, everyday. I'm going to do everything that I can to win the day, everyday. Maybe somedays it will just be making someone smile by smiling at them first... maybe it will be a hug... a wave... maybe holding a door for someone, buying someone a coffee... maybe a phonecall to say hello, maybe a joke or just a conversation. Anything... it's what these kids would want. It's how we can change this world for the better while they look for a cure for this horrible disease.

Then I have to remind myself that anybodies kid(s) could be taken from them at any moment, not just mine/ours. It's in the news every day anymore. Senseless hit and runs, molesting, murders, accidental shootings, drugs, school shootings, etc... and that helps me to understand that CF has brought my family so much closer together, and that every second gets cherished and valued, where is might not be this way had Noah not had CF.

So for that I am thankful, because if it can happen to anyone, anywhere (the loss of a child) then I am damn thankful for anything that wakes me up and makes me take notice of the little things, the things that matter... every second, the magic he sees in an earthworm... a spider... the magic he sees in a simple ball, a ride on a swingset... the magic he lives everyday through the stuff that I use to find trivial and meaningless.

Our children show us everyday what strength really is, what magic really is... that's their gift to us. Well, that and unconditional love... pure unconditional love.

Meanwhile, I'm off to try to make someones day. Anyone with me?
 

Daddy2Noah

New member
I read things like this and it truly breaks my heart. She was beautiful, as are all children. I have to keep reminding myself that death is only "final" or "the end" to those of us who are left behind without answers.

I am so completely and totally thankful for every second that I get to look into my sons eyes... for every breath that he takes and for every beat that his heart makes. He's completely healthy right now but I know that can change on the drop of a dime... and he could be taken home at any moment.

I need to start doing everything I can to make someones day, everyday. I'm going to do everything that I can to win the day, everyday. Maybe somedays it will just be making someone smile by smiling at them first... maybe it will be a hug... a wave... maybe holding a door for someone, buying someone a coffee... maybe a phonecall to say hello, maybe a joke or just a conversation. Anything... it's what these kids would want. It's how we can change this world for the better while they look for a cure for this horrible disease.

Then I have to remind myself that anybodies kid(s) could be taken from them at any moment, not just mine/ours. It's in the news every day anymore. Senseless hit and runs, molesting, murders, accidental shootings, drugs, school shootings, etc... and that helps me to understand that CF has brought my family so much closer together, and that every second gets cherished and valued, where is might not be this way had Noah not had CF.

So for that I am thankful, because if it can happen to anyone, anywhere (the loss of a child) then I am damn thankful for anything that wakes me up and makes me take notice of the little things, the things that matter... every second, the magic he sees in an earthworm... a spider... the magic he sees in a simple ball, a ride on a swingset... the magic he lives everyday through the stuff that I use to find trivial and meaningless.

Our children show us everyday what strength really is, what magic really is... that's their gift to us. Well, that and unconditional love... pure unconditional love.

Meanwhile, I'm off to try to make someones day. Anyone with me?
 

Daddy2Noah

New member
I read things like this and it truly breaks my heart. She was beautiful, as are all children. I have to keep reminding myself that death is only "final" or "the end" to those of us who are left behind without answers.
<br />
<br />I am so completely and totally thankful for every second that I get to look into my sons eyes... for every breath that he takes and for every beat that his heart makes. He's completely healthy right now but I know that can change on the drop of a dime... and he could be taken home at any moment.
<br />
<br />I need to start doing everything I can to make someones day, everyday. I'm going to do everything that I can to win the day, everyday. Maybe somedays it will just be making someone smile by smiling at them first... maybe it will be a hug... a wave... maybe holding a door for someone, buying someone a coffee... maybe a phonecall to say hello, maybe a joke or just a conversation. Anything... it's what these kids would want. It's how we can change this world for the better while they look for a cure for this horrible disease.
<br />
<br />Then I have to remind myself that anybodies kid(s) could be taken from them at any moment, not just mine/ours. It's in the news every day anymore. Senseless hit and runs, molesting, murders, accidental shootings, drugs, school shootings, etc... and that helps me to understand that CF has brought my family so much closer together, and that every second gets cherished and valued, where is might not be this way had Noah not had CF.
<br />
<br />So for that I am thankful, because if it can happen to anyone, anywhere (the loss of a child) then I am damn thankful for anything that wakes me up and makes me take notice of the little things, the things that matter... every second, the magic he sees in an earthworm... a spider... the magic he sees in a simple ball, a ride on a swingset... the magic he lives everyday through the stuff that I use to find trivial and meaningless.
<br />
<br />Our children show us everyday what strength really is, what magic really is... that's their gift to us. Well, that and unconditional love... pure unconditional love.
<br />
<br />Meanwhile, I'm off to try to make someones day. Anyone with me?
<br />
<br />
 
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