Hello everyone. I have another enzyme question. Parker was on 1/2 a capsule of pancrease MT4 for awhile and at the last visit with the nutritionist, they upped the amount to 3/4 capsule because he was still eating every 3 hours and she thought it should be 4 (Parker will be 2 months on the 12th of this month). I also spoke about how his poop seemed to be smelling more and more. Once I started giving him more enzymes, it was like night and day. His poop has completely stopped smelling and he was eating every 4 hours during the day (longer periods at night). So, here's my question: The last few days he's been eating all the time it seems. Every 2-3 hours and ate a whole 6 oz in one sitting for his grandma today and then 2 hours later ate again (breastfed and not bottle usually). Poop hasn't been stinky until today, just a tiny bit. We upped the enzymes April 19th, could he need more again already?? How often did your little ones up their dosage at this age? We're going in next Wednesday for the regular clinic visit, so I'll definately bring it up then if not before then. Just wasn't sure if this is a regular growth spurt or a CF thing? Anyone? Thanks!
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Another enzyme ? from me :)
- Thread starter sdavis227
- Start date
Hello everyone. I have another enzyme question. Parker was on 1/2 a capsule of pancrease MT4 for awhile and at the last visit with the nutritionist, they upped the amount to 3/4 capsule because he was still eating every 3 hours and she thought it should be 4 (Parker will be 2 months on the 12th of this month). I also spoke about how his poop seemed to be smelling more and more. Once I started giving him more enzymes, it was like night and day. His poop has completely stopped smelling and he was eating every 4 hours during the day (longer periods at night). So, here's my question: The last few days he's been eating all the time it seems. Every 2-3 hours and ate a whole 6 oz in one sitting for his grandma today and then 2 hours later ate again (breastfed and not bottle usually). Poop hasn't been stinky until today, just a tiny bit. We upped the enzymes April 19th, could he need more again already?? How often did your little ones up their dosage at this age? We're going in next Wednesday for the regular clinic visit, so I'll definately bring it up then if not before then. Just wasn't sure if this is a regular growth spurt or a CF thing? Anyone? Thanks!
Hello everyone. I have another enzyme question. Parker was on 1/2 a capsule of pancrease MT4 for awhile and at the last visit with the nutritionist, they upped the amount to 3/4 capsule because he was still eating every 3 hours and she thought it should be 4 (Parker will be 2 months on the 12th of this month). I also spoke about how his poop seemed to be smelling more and more. Once I started giving him more enzymes, it was like night and day. His poop has completely stopped smelling and he was eating every 4 hours during the day (longer periods at night). So, here's my question: The last few days he's been eating all the time it seems. Every 2-3 hours and ate a whole 6 oz in one sitting for his grandma today and then 2 hours later ate again (breastfed and not bottle usually). Poop hasn't been stinky until today, just a tiny bit. We upped the enzymes April 19th, could he need more again already?? How often did your little ones up their dosage at this age? We're going in next Wednesday for the regular clinic visit, so I'll definately bring it up then if not before then. Just wasn't sure if this is a regular growth spurt or a CF thing? Anyone? Thanks!
He could be going thru a growth spurt. Sounds like he needs more enzymes. We'd gradually increase by about half a capsule when DS' poops became more frequent and loose. If he got really uncomfortable and had difficulty stooling, then we'd back down again, but most of the time he needed the extra enzyme beads. The red monkey but from frequent loose diapers, poop up the back...
Our doctors and dieticians weren't specfic about enzymes. They'd ask how many we were giving ds, how is poop was, check his caloric intake and his growth. Would basically tell us we were doing fine. Drove me nuts 'cuz I was always asking what normal poop looked like and they'd say "you'll know". No, I didn't know that's why I was asking -- and to me the week he was on pregestimil -- poop the color of grass is NOT normal.
Our doctors and dieticians weren't specfic about enzymes. They'd ask how many we were giving ds, how is poop was, check his caloric intake and his growth. Would basically tell us we were doing fine. Drove me nuts 'cuz I was always asking what normal poop looked like and they'd say "you'll know". No, I didn't know that's why I was asking -- and to me the week he was on pregestimil -- poop the color of grass is NOT normal.
He could be going thru a growth spurt. Sounds like he needs more enzymes. We'd gradually increase by about half a capsule when DS' poops became more frequent and loose. If he got really uncomfortable and had difficulty stooling, then we'd back down again, but most of the time he needed the extra enzyme beads. The red monkey but from frequent loose diapers, poop up the back...
Our doctors and dieticians weren't specfic about enzymes. They'd ask how many we were giving ds, how is poop was, check his caloric intake and his growth. Would basically tell us we were doing fine. Drove me nuts 'cuz I was always asking what normal poop looked like and they'd say "you'll know". No, I didn't know that's why I was asking -- and to me the week he was on pregestimil -- poop the color of grass is NOT normal.
Our doctors and dieticians weren't specfic about enzymes. They'd ask how many we were giving ds, how is poop was, check his caloric intake and his growth. Would basically tell us we were doing fine. Drove me nuts 'cuz I was always asking what normal poop looked like and they'd say "you'll know". No, I didn't know that's why I was asking -- and to me the week he was on pregestimil -- poop the color of grass is NOT normal.
He could be going thru a growth spurt. Sounds like he needs more enzymes. We'd gradually increase by about half a capsule when DS' poops became more frequent and loose. If he got really uncomfortable and had difficulty stooling, then we'd back down again, but most of the time he needed the extra enzyme beads. The red monkey but from frequent loose diapers, poop up the back...
Our doctors and dieticians weren't specfic about enzymes. They'd ask how many we were giving ds, how is poop was, check his caloric intake and his growth. Would basically tell us we were doing fine. Drove me nuts 'cuz I was always asking what normal poop looked like and they'd say "you'll know". No, I didn't know that's why I was asking -- and to me the week he was on pregestimil -- poop the color of grass is NOT normal.
Our doctors and dieticians weren't specfic about enzymes. They'd ask how many we were giving ds, how is poop was, check his caloric intake and his growth. Would basically tell us we were doing fine. Drove me nuts 'cuz I was always asking what normal poop looked like and they'd say "you'll know". No, I didn't know that's why I was asking -- and to me the week he was on pregestimil -- poop the color of grass is NOT normal.
What we eventually figured out with my son's enzyme needs was to look at the amount of fat calories he was eating and adjust enqymes up/down to suit it. We figured out how much enzyme was needed for something predictable, like a 4 ounce bottle of formula, and used that as a benchmark for other foods or amounts of food. In addition, theCF Doc. gave us an upper limit on how much enzyme he could get, though I forget exactly what it was back at that age. The quantity and quality of poop also factored in, but during the first year it was a diaper change per meal anyway so that was not nearly as good a measure as it is now.
The other thing that affects enzyme needs is his antacid meds: he used zantac until about age 3 1/2 then switched to prevacid. After a while on prevacid we found his enzyme needs decreased by about 1/3 compared to on zantac.
The other thing that affects enzyme needs is his antacid meds: he used zantac until about age 3 1/2 then switched to prevacid. After a while on prevacid we found his enzyme needs decreased by about 1/3 compared to on zantac.
What we eventually figured out with my son's enzyme needs was to look at the amount of fat calories he was eating and adjust enqymes up/down to suit it. We figured out how much enzyme was needed for something predictable, like a 4 ounce bottle of formula, and used that as a benchmark for other foods or amounts of food. In addition, theCF Doc. gave us an upper limit on how much enzyme he could get, though I forget exactly what it was back at that age. The quantity and quality of poop also factored in, but during the first year it was a diaper change per meal anyway so that was not nearly as good a measure as it is now.
The other thing that affects enzyme needs is his antacid meds: he used zantac until about age 3 1/2 then switched to prevacid. After a while on prevacid we found his enzyme needs decreased by about 1/3 compared to on zantac.
The other thing that affects enzyme needs is his antacid meds: he used zantac until about age 3 1/2 then switched to prevacid. After a while on prevacid we found his enzyme needs decreased by about 1/3 compared to on zantac.
What we eventually figured out with my son's enzyme needs was to look at the amount of fat calories he was eating and adjust enqymes up/down to suit it. We figured out how much enzyme was needed for something predictable, like a 4 ounce bottle of formula, and used that as a benchmark for other foods or amounts of food. In addition, theCF Doc. gave us an upper limit on how much enzyme he could get, though I forget exactly what it was back at that age. The quantity and quality of poop also factored in, but during the first year it was a diaper change per meal anyway so that was not nearly as good a measure as it is now.
The other thing that affects enzyme needs is his antacid meds: he used zantac until about age 3 1/2 then switched to prevacid. After a while on prevacid we found his enzyme needs decreased by about 1/3 compared to on zantac.
The other thing that affects enzyme needs is his antacid meds: he used zantac until about age 3 1/2 then switched to prevacid. After a while on prevacid we found his enzyme needs decreased by about 1/3 compared to on zantac.
hi my 16 mnth old daughter has been on pancrease mt 4 capsules since she was diagnosed at 2 weeks old . at 2 months old she was on a half a capsule per feeding but very shortly after she went up to 1 per feeding. at 9 months old she took 2 per feeding , at 11 months old she was on 3 per feeding and since shes been 15 months old to present she takes 4 per feeding. we went thru a big ordeal w/ rectal prolapse when she was 9 mnths old due to not taking enough enzymes per feeding, they did a 72 hr fecal fat study and found that she needed 2 per feeding but i learned that the # 4 stands for 4,000 units of lipase so each capsule has 4,000 units of lipase and i was told that she needed so many units of lipase a day they told me 48 - 70,000 units a day but to not go over 70,000 units because 2 many enzymes or units of lipase can be really bad, i guess the amount they need daily goes up w / age weight and i think definetly the amount of calories there going to intake. at 9 mnths old she was on the 3rd per 4 weight when they adjusted her enzymes properly she went from 13 pnds and is now 23 pnds and in the 50th per, yaaa, i ask w/ every visit to the gi about enzymes i make it a point. the whole enzyme thing can be confusing sometimes and after that whole experience i dont wait 4 the dr to tell me when i ask her - hope this was helful , i know what its like to b confused on the enzyme thing, good luck little parker
cfmom65
daughter 9 yrs old w/o cf and baby girl 16 mnths w/ cf
cfmom65
daughter 9 yrs old w/o cf and baby girl 16 mnths w/ cf
hi my 16 mnth old daughter has been on pancrease mt 4 capsules since she was diagnosed at 2 weeks old . at 2 months old she was on a half a capsule per feeding but very shortly after she went up to 1 per feeding. at 9 months old she took 2 per feeding , at 11 months old she was on 3 per feeding and since shes been 15 months old to present she takes 4 per feeding. we went thru a big ordeal w/ rectal prolapse when she was 9 mnths old due to not taking enough enzymes per feeding, they did a 72 hr fecal fat study and found that she needed 2 per feeding but i learned that the # 4 stands for 4,000 units of lipase so each capsule has 4,000 units of lipase and i was told that she needed so many units of lipase a day they told me 48 - 70,000 units a day but to not go over 70,000 units because 2 many enzymes or units of lipase can be really bad, i guess the amount they need daily goes up w / age weight and i think definetly the amount of calories there going to intake. at 9 mnths old she was on the 3rd per 4 weight when they adjusted her enzymes properly she went from 13 pnds and is now 23 pnds and in the 50th per, yaaa, i ask w/ every visit to the gi about enzymes i make it a point. the whole enzyme thing can be confusing sometimes and after that whole experience i dont wait 4 the dr to tell me when i ask her - hope this was helful , i know what its like to b confused on the enzyme thing, good luck little parker
cfmom65
daughter 9 yrs old w/o cf and baby girl 16 mnths w/ cf
cfmom65
daughter 9 yrs old w/o cf and baby girl 16 mnths w/ cf
hi my 16 mnth old daughter has been on pancrease mt 4 capsules since she was diagnosed at 2 weeks old . at 2 months old she was on a half a capsule per feeding but very shortly after she went up to 1 per feeding. at 9 months old she took 2 per feeding , at 11 months old she was on 3 per feeding and since shes been 15 months old to present she takes 4 per feeding. we went thru a big ordeal w/ rectal prolapse when she was 9 mnths old due to not taking enough enzymes per feeding, they did a 72 hr fecal fat study and found that she needed 2 per feeding but i learned that the # 4 stands for 4,000 units of lipase so each capsule has 4,000 units of lipase and i was told that she needed so many units of lipase a day they told me 48 - 70,000 units a day but to not go over 70,000 units because 2 many enzymes or units of lipase can be really bad, i guess the amount they need daily goes up w / age weight and i think definetly the amount of calories there going to intake. at 9 mnths old she was on the 3rd per 4 weight when they adjusted her enzymes properly she went from 13 pnds and is now 23 pnds and in the 50th per, yaaa, i ask w/ every visit to the gi about enzymes i make it a point. the whole enzyme thing can be confusing sometimes and after that whole experience i dont wait 4 the dr to tell me when i ask her - hope this was helful , i know what its like to b confused on the enzyme thing, good luck little parker
cfmom65
daughter 9 yrs old w/o cf and baby girl 16 mnths w/ cf
cfmom65
daughter 9 yrs old w/o cf and baby girl 16 mnths w/ cf
DS was on 3-3 1/2 pancrease mt4s for a LONG time and he still had fluffy, creamy (not really loose) that sorta smelled like feta cheese and were yellowish -- formula poo. If we'd increase to 4 he'd start having constipation issues. I'd mention it during clinic appointments and they weren't too concerned provided he was still gaining weight -- left it up to us to adjust his enzymes accordingly. He was on formula, with cream mixed in until he was about 16 months and then we switched him to whole milk with cream and some carnation instant breakfast. Then we dealt with constipation issues. I will say that now that he's no longer formula fed he tends to have normal looking stools -- well, normal for him -- he's into blue jello & yogurt these days, so green technicolor poo <img src="i/expressions/face-icon-small-smile.gif" border="0">
DS was on 3-3 1/2 pancrease mt4s for a LONG time and he still had fluffy, creamy (not really loose) that sorta smelled like feta cheese and were yellowish -- formula poo. If we'd increase to 4 he'd start having constipation issues. I'd mention it during clinic appointments and they weren't too concerned provided he was still gaining weight -- left it up to us to adjust his enzymes accordingly. He was on formula, with cream mixed in until he was about 16 months and then we switched him to whole milk with cream and some carnation instant breakfast. Then we dealt with constipation issues. I will say that now that he's no longer formula fed he tends to have normal looking stools -- well, normal for him -- he's into blue jello & yogurt these days, so green technicolor poo <img src="i/expressions/face-icon-small-smile.gif" border="0">
DS was on 3-3 1/2 pancrease mt4s for a LONG time and he still had fluffy, creamy (not really loose) that sorta smelled like feta cheese and were yellowish -- formula poo. If we'd increase to 4 he'd start having constipation issues. I'd mention it during clinic appointments and they weren't too concerned provided he was still gaining weight -- left it up to us to adjust his enzymes accordingly. He was on formula, with cream mixed in until he was about 16 months and then we switched him to whole milk with cream and some carnation instant breakfast. Then we dealt with constipation issues. I will say that now that he's no longer formula fed he tends to have normal looking stools -- well, normal for him -- he's into blue jello & yogurt these days, so green technicolor poo <img src="i/expressions/face-icon-small-smile.gif" border="0">
Thanks everyone for your replies.
I called the CF clinic yesterday and the doc said to go ahead and start giving him a full capsule. We started doing that yesterday and today he went from 8 until almost 1 before he wanted to eat again.
Liza - I didn't know they had trouble stooling if they had too many enzymes. Parker will go a day or a day in a half before going sometimes, but so did my son w/o CF, so I thought this was ok?
It's nice to know how many capsules your little ones were taking at this age. Even thought every child is different, it still gives me a little bit of a timeline - thanks!
I called the CF clinic yesterday and the doc said to go ahead and start giving him a full capsule. We started doing that yesterday and today he went from 8 until almost 1 before he wanted to eat again.
Liza - I didn't know they had trouble stooling if they had too many enzymes. Parker will go a day or a day in a half before going sometimes, but so did my son w/o CF, so I thought this was ok?
It's nice to know how many capsules your little ones were taking at this age. Even thought every child is different, it still gives me a little bit of a timeline - thanks!
Thanks everyone for your replies.
I called the CF clinic yesterday and the doc said to go ahead and start giving him a full capsule. We started doing that yesterday and today he went from 8 until almost 1 before he wanted to eat again.
Liza - I didn't know they had trouble stooling if they had too many enzymes. Parker will go a day or a day in a half before going sometimes, but so did my son w/o CF, so I thought this was ok?
It's nice to know how many capsules your little ones were taking at this age. Even thought every child is different, it still gives me a little bit of a timeline - thanks!
I called the CF clinic yesterday and the doc said to go ahead and start giving him a full capsule. We started doing that yesterday and today he went from 8 until almost 1 before he wanted to eat again.
Liza - I didn't know they had trouble stooling if they had too many enzymes. Parker will go a day or a day in a half before going sometimes, but so did my son w/o CF, so I thought this was ok?
It's nice to know how many capsules your little ones were taking at this age. Even thought every child is different, it still gives me a little bit of a timeline - thanks!