Another morbid question...

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Transplantmommy

New member
I also think, like most, that it is not the parents. My Mom took great care of me but did not force me to take my meds and I am still here. I think that some people just have the unfortunate luck of their CF progressing a lot worse than others. I was 24 before I was told that I needed transplants (lungs and liver). I was unfortunate to get both the GI and the lungs pretty bad but was fortunate that it didn't really progress until high school.

I have met and stayed in contact with another girl for quite a while who has only the digestive part. She's older than me and has never ever had problems with her lungs but she is soooo much skinnier than I have ever been. The last time I saw her was right after I had Brady. She and her parents came to see us in the hospital. She was doing really well.

Anyway, I really don't think it's because of crappy parenting (unless they do it on purpose, which some do). I think it really has to do with what mutations the child has and how severe of a case they have.
 
T

Transplantmommy

New member
I also think, like most, that it is not the parents. My Mom took great care of me but did not force me to take my meds and I am still here. I think that some people just have the unfortunate luck of their CF progressing a lot worse than others. I was 24 before I was told that I needed transplants (lungs and liver). I was unfortunate to get both the GI and the lungs pretty bad but was fortunate that it didn't really progress until high school.

I have met and stayed in contact with another girl for quite a while who has only the digestive part. She's older than me and has never ever had problems with her lungs but she is soooo much skinnier than I have ever been. The last time I saw her was right after I had Brady. She and her parents came to see us in the hospital. She was doing really well.

Anyway, I really don't think it's because of crappy parenting (unless they do it on purpose, which some do). I think it really has to do with what mutations the child has and how severe of a case they have.
 
T

Transplantmommy

New member
I also think, like most, that it is not the parents. My Mom took great care of me but did not force me to take my meds and I am still here. I think that some people just have the unfortunate luck of their CF progressing a lot worse than others. I was 24 before I was told that I needed transplants (lungs and liver). I was unfortunate to get both the GI and the lungs pretty bad but was fortunate that it didn't really progress until high school.

I have met and stayed in contact with another girl for quite a while who has only the digestive part. She's older than me and has never ever had problems with her lungs but she is soooo much skinnier than I have ever been. The last time I saw her was right after I had Brady. She and her parents came to see us in the hospital. She was doing really well.

Anyway, I really don't think it's because of crappy parenting (unless they do it on purpose, which some do). I think it really has to do with what mutations the child has and how severe of a case they have.
 
T

Transplantmommy

New member
I also think, like most, that it is not the parents. My Mom took great care of me but did not force me to take my meds and I am still here. I think that some people just have the unfortunate luck of their CF progressing a lot worse than others. I was 24 before I was told that I needed transplants (lungs and liver). I was unfortunate to get both the GI and the lungs pretty bad but was fortunate that it didn't really progress until high school.

I have met and stayed in contact with another girl for quite a while who has only the digestive part. She's older than me and has never ever had problems with her lungs but she is soooo much skinnier than I have ever been. The last time I saw her was right after I had Brady. She and her parents came to see us in the hospital. She was doing really well.

Anyway, I really don't think it's because of crappy parenting (unless they do it on purpose, which some do). I think it really has to do with what mutations the child has and how severe of a case they have.
 
T

Transplantmommy

New member
I also think, like most, that it is not the parents. My Mom took great care of me but did not force me to take my meds and I am still here. I think that some people just have the unfortunate luck of their CF progressing a lot worse than others. I was 24 before I was told that I needed transplants (lungs and liver). I was unfortunate to get both the GI and the lungs pretty bad but was fortunate that it didn't really progress until high school.
<br />
<br />I have met and stayed in contact with another girl for quite a while who has only the digestive part. She's older than me and has never ever had problems with her lungs but she is soooo much skinnier than I have ever been. The last time I saw her was right after I had Brady. She and her parents came to see us in the hospital. She was doing really well.
<br />
<br />Anyway, I really don't think it's because of crappy parenting (unless they do it on purpose, which some do). I think it really has to do with what mutations the child has and how severe of a case they have.
 
P

purplemartin

New member
I know that neither my husband nor I had anything to do with "why" are son has had so many different complications so far to this disease! We do CPT, neb treatments, orals, enzymes, high calorie food, and everything in-between to make sure Briceton is able to enjoy his life for as looooong as possible! But then again, he has had numerous complications......do you really think it's my fault?

Personally, I think it's just the way the cards fall and unfortunately my little man got a bad deal as do a lot. But I promise you, my parenting has NOTHING to do with how his CF is affecting him! We have taken this disease head on and aren't backing down!


Also, DDF508 is not a "healthier" gene; it's the most "common" gene!
 
P

purplemartin

New member
I know that neither my husband nor I had anything to do with "why" are son has had so many different complications so far to this disease! We do CPT, neb treatments, orals, enzymes, high calorie food, and everything in-between to make sure Briceton is able to enjoy his life for as looooong as possible! But then again, he has had numerous complications......do you really think it's my fault?

Personally, I think it's just the way the cards fall and unfortunately my little man got a bad deal as do a lot. But I promise you, my parenting has NOTHING to do with how his CF is affecting him! We have taken this disease head on and aren't backing down!


Also, DDF508 is not a "healthier" gene; it's the most "common" gene!
 
P

purplemartin

New member
I know that neither my husband nor I had anything to do with "why" are son has had so many different complications so far to this disease! We do CPT, neb treatments, orals, enzymes, high calorie food, and everything in-between to make sure Briceton is able to enjoy his life for as looooong as possible! But then again, he has had numerous complications......do you really think it's my fault?

Personally, I think it's just the way the cards fall and unfortunately my little man got a bad deal as do a lot. But I promise you, my parenting has NOTHING to do with how his CF is affecting him! We have taken this disease head on and aren't backing down!


Also, DDF508 is not a "healthier" gene; it's the most "common" gene!
 
P

purplemartin

New member
I know that neither my husband nor I had anything to do with "why" are son has had so many different complications so far to this disease! We do CPT, neb treatments, orals, enzymes, high calorie food, and everything in-between to make sure Briceton is able to enjoy his life for as looooong as possible! But then again, he has had numerous complications......do you really think it's my fault?

Personally, I think it's just the way the cards fall and unfortunately my little man got a bad deal as do a lot. But I promise you, my parenting has NOTHING to do with how his CF is affecting him! We have taken this disease head on and aren't backing down!


Also, DDF508 is not a "healthier" gene; it's the most "common" gene!
 
P

purplemartin

New member
I know that neither my husband nor I had anything to do with "why" are son has had so many different complications so far to this disease! We do CPT, neb treatments, orals, enzymes, high calorie food, and everything in-between to make sure Briceton is able to enjoy his life for as looooong as possible! But then again, he has had numerous complications......do you really think it's my fault?
<br />
<br />Personally, I think it's just the way the cards fall and unfortunately my little man got a bad deal as do a lot. But I promise you, my parenting has NOTHING to do with how his CF is affecting him! We have taken this disease head on and aren't backing down!
<br />
<br />
<br />Also, DDF508 is not a "healthier" gene; it's the most "common" gene!
<br />
 
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Buckeye

New member
Katie - to answer your question, I don't think anyone knows for sure. The same question stumps the Scientists and Researchers - they would love to know why CF affects some people more than others and at different ages so they would know how to control the disease more effectively. The one thing I can tell you is that it being the parent's fault if a child dies young is ridiculous.
 
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Buckeye

New member
Katie - to answer your question, I don't think anyone knows for sure. The same question stumps the Scientists and Researchers - they would love to know why CF affects some people more than others and at different ages so they would know how to control the disease more effectively. The one thing I can tell you is that it being the parent's fault if a child dies young is ridiculous.
 
B

Buckeye

New member
Katie - to answer your question, I don't think anyone knows for sure. The same question stumps the Scientists and Researchers - they would love to know why CF affects some people more than others and at different ages so they would know how to control the disease more effectively. The one thing I can tell you is that it being the parent's fault if a child dies young is ridiculous.
 
B

Buckeye

New member
Katie - to answer your question, I don't think anyone knows for sure. The same question stumps the Scientists and Researchers - they would love to know why CF affects some people more than others and at different ages so they would know how to control the disease more effectively. The one thing I can tell you is that it being the parent's fault if a child dies young is ridiculous.
 
B

Buckeye

New member
<p>Katie - to answer your question, I don't think anyone knows for sure. The same question stumps the Scientists and Researchers - they would love to know why CF affects some people more than others and at different ages so they would know how to control the disease more effectively. The one thing I can tell you is that it being the parent's fault if a child dies young is ridiculous.
 
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Necron99

New member
i completely agree alot of it has to do with parenting. My mother allowed my stepfather to smoke around me , to this day i wonder if my health would be different . My father wanted nothing to do with the disease there for is completely ignorant and hardly ever made me take my meds when i would visit him.

Crying offensive to carrierae21, is just childish . Car didnt say "YOUR PARENTING" and point out any individual . They mearly said its one of the things that determines the health be it good or bad. I think some people are so high and mighty or just find it easy on here to jump down some ones throat for thier opinion . There are some silly people on here that need not take things so personally .. we are all in the same boat here so check your self rightiousness at the door
 
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Necron99

New member
i completely agree alot of it has to do with parenting. My mother allowed my stepfather to smoke around me , to this day i wonder if my health would be different . My father wanted nothing to do with the disease there for is completely ignorant and hardly ever made me take my meds when i would visit him.

Crying offensive to carrierae21, is just childish . Car didnt say "YOUR PARENTING" and point out any individual . They mearly said its one of the things that determines the health be it good or bad. I think some people are so high and mighty or just find it easy on here to jump down some ones throat for thier opinion . There are some silly people on here that need not take things so personally .. we are all in the same boat here so check your self rightiousness at the door
 
N

Necron99

New member
i completely agree alot of it has to do with parenting. My mother allowed my stepfather to smoke around me , to this day i wonder if my health would be different . My father wanted nothing to do with the disease there for is completely ignorant and hardly ever made me take my meds when i would visit him.

Crying offensive to carrierae21, is just childish . Car didnt say "YOUR PARENTING" and point out any individual . They mearly said its one of the things that determines the health be it good or bad. I think some people are so high and mighty or just find it easy on here to jump down some ones throat for thier opinion . There are some silly people on here that need not take things so personally .. we are all in the same boat here so check your self rightiousness at the door
 
N

Necron99

New member
i completely agree alot of it has to do with parenting. My mother allowed my stepfather to smoke around me , to this day i wonder if my health would be different . My father wanted nothing to do with the disease there for is completely ignorant and hardly ever made me take my meds when i would visit him.

Crying offensive to carrierae21, is just childish . Car didnt say "YOUR PARENTING" and point out any individual . They mearly said its one of the things that determines the health be it good or bad. I think some people are so high and mighty or just find it easy on here to jump down some ones throat for thier opinion . There are some silly people on here that need not take things so personally .. we are all in the same boat here so check your self rightiousness at the door
 
N

Necron99

New member
i completely agree alot of it has to do with parenting. My mother allowed my stepfather to smoke around me , to this day i wonder if my health would be different . My father wanted nothing to do with the disease there for is completely ignorant and hardly ever made me take my meds when i would visit him.
<br />
<br />Crying offensive to carrierae21, is just childish . Car didnt say "YOUR PARENTING" and point out any individual . They mearly said its one of the things that determines the health be it good or bad. I think some people are so high and mighty or just find it easy on here to jump down some ones throat for thier opinion . There are some silly people on here that need not take things so personally .. we are all in the same boat here so check your self rightiousness at the door
 
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