Antibiotics and Lung Function

laulau555

New member
i am on zithromax (which is azithromicyn) 3 times a week. i have been on it for about four years now and i know a lot of other people in my clinic are on it too. it mostly helps with inflammation more than killing bacteria. since it is only 3 times a week it probably wouldn't set him up for resistant bacterial infections, stronger more potent medicine like tobi would do that (which is why i go on tobi every other month). if you are really concerned talk to his doctor.
 

laulau555

New member
i am on zithromax (which is azithromicyn) 3 times a week. i have been on it for about four years now and i know a lot of other people in my clinic are on it too. it mostly helps with inflammation more than killing bacteria. since it is only 3 times a week it probably wouldn't set him up for resistant bacterial infections, stronger more potent medicine like tobi would do that (which is why i go on tobi every other month). if you are really concerned talk to his doctor.
 

laulau555

New member
i am on zithromax (which is azithromicyn) 3 times a week. i have been on it for about four years now and i know a lot of other people in my clinic are on it too. it mostly helps with inflammation more than killing bacteria. since it is only 3 times a week it probably wouldn't set him up for resistant bacterial infections, stronger more potent medicine like tobi would do that (which is why i go on tobi every other month). if you are really concerned talk to his doctor.
 

laulau555

New member
i am on zithromax (which is azithromicyn) 3 times a week. i have been on it for about four years now and i know a lot of other people in my clinic are on it too. it mostly helps with inflammation more than killing bacteria. since it is only 3 times a week it probably wouldn't set him up for resistant bacterial infections, stronger more potent medicine like tobi would do that (which is why i go on tobi every other month). if you are really concerned talk to his doctor.
 

laulau555

New member
i am on zithromax (which is azithromicyn) 3 times a week. i have been on it for about four years now and i know a lot of other people in my clinic are on it too. it mostly helps with inflammation more than killing bacteria. since it is only 3 times a week it probably wouldn't set him up for resistant bacterial infections, stronger more potent medicine like tobi would do that (which is why i go on tobi every other month). if you are really concerned talk to his doctor.
 

Nightwriter

New member
I think your concern is a valid one. While Azithromyacin works great and is appropriate for some people, eventually staph infections become resistant to it. The next question is "Is it right for your son?" And an even more important question might be, "Is there any other way to diminish inflammation in the lungs?"

I had my first visit to a CF clinic recently and they strongly touted Azithromyacin to me. They told me they had a patient improve their FEV1 from 29% to 79%. I was impressed...until I read the literature -- that the average improvement was 6% and then there was the resistance problem. And yes, less hospital days.

When I asked my own Pulmonary Doctor about the C.F. Clinic's recommendation, she said, "Why would they recommend that to someone who is stable?" My doctor said, if I was not doing well, she would throw everything at me. But in fact my lung function went up in the last year, doing my own anti-inflamatory protocol. The other problem is that these are short term studies. So for me I decided against it. Maybe for someone else it's the perfect drug.

That still leaves the idea of reducing inflammation, the culprit of many exacerbations and declining lung function. I couldn't possibly list all the things that I do to reduce inflamation, but 11 years ago, after going to this doctor and learning a different way to treat my disease, I got off continuous Tobi, stopped going into the hospital, and my lung function -- instead of going steadily down every year, went up. Amongst the many things I do, I practice strict allergy control. And I'm really not allergic to much. But what is an allergy to one person is an irritant to another.

The obvious: no carpets, using hepa air filters, nasal rinses, pillow protectors, closed windows, avoiding bad air, (there is a lot of info on allergy/irritant avoidance out there)
And the less obvious: stopping a post nasal drip, cleaning only with vinegar and water, hepa vacuum, wearing a mask in cold, smoggy, or windy weather, home remedies so that I don't get colds for more than a day, and since I added hypertonic saline, tumeric and NAC, I haven't been on any antibiotics in 2 years (knock wood).

For me, the more I do, the less symptoms I have. One more note: This is what works for me. Some of these things may not be appropriate for kids.

Hope this helps.

My meds: Foridil, Spiriva, Asmanex, Singulair, Claritin, Astilin, Nasonex, Nasalcrom, Cromolyn Sodium, Xopenex HFA
 

Nightwriter

New member
I think your concern is a valid one. While Azithromyacin works great and is appropriate for some people, eventually staph infections become resistant to it. The next question is "Is it right for your son?" And an even more important question might be, "Is there any other way to diminish inflammation in the lungs?"

I had my first visit to a CF clinic recently and they strongly touted Azithromyacin to me. They told me they had a patient improve their FEV1 from 29% to 79%. I was impressed...until I read the literature -- that the average improvement was 6% and then there was the resistance problem. And yes, less hospital days.

When I asked my own Pulmonary Doctor about the C.F. Clinic's recommendation, she said, "Why would they recommend that to someone who is stable?" My doctor said, if I was not doing well, she would throw everything at me. But in fact my lung function went up in the last year, doing my own anti-inflamatory protocol. The other problem is that these are short term studies. So for me I decided against it. Maybe for someone else it's the perfect drug.

That still leaves the idea of reducing inflammation, the culprit of many exacerbations and declining lung function. I couldn't possibly list all the things that I do to reduce inflamation, but 11 years ago, after going to this doctor and learning a different way to treat my disease, I got off continuous Tobi, stopped going into the hospital, and my lung function -- instead of going steadily down every year, went up. Amongst the many things I do, I practice strict allergy control. And I'm really not allergic to much. But what is an allergy to one person is an irritant to another.

The obvious: no carpets, using hepa air filters, nasal rinses, pillow protectors, closed windows, avoiding bad air, (there is a lot of info on allergy/irritant avoidance out there)
And the less obvious: stopping a post nasal drip, cleaning only with vinegar and water, hepa vacuum, wearing a mask in cold, smoggy, or windy weather, home remedies so that I don't get colds for more than a day, and since I added hypertonic saline, tumeric and NAC, I haven't been on any antibiotics in 2 years (knock wood).

For me, the more I do, the less symptoms I have. One more note: This is what works for me. Some of these things may not be appropriate for kids.

Hope this helps.

My meds: Foridil, Spiriva, Asmanex, Singulair, Claritin, Astilin, Nasonex, Nasalcrom, Cromolyn Sodium, Xopenex HFA
 

Nightwriter

New member
I think your concern is a valid one. While Azithromyacin works great and is appropriate for some people, eventually staph infections become resistant to it. The next question is "Is it right for your son?" And an even more important question might be, "Is there any other way to diminish inflammation in the lungs?"

I had my first visit to a CF clinic recently and they strongly touted Azithromyacin to me. They told me they had a patient improve their FEV1 from 29% to 79%. I was impressed...until I read the literature -- that the average improvement was 6% and then there was the resistance problem. And yes, less hospital days.

When I asked my own Pulmonary Doctor about the C.F. Clinic's recommendation, she said, "Why would they recommend that to someone who is stable?" My doctor said, if I was not doing well, she would throw everything at me. But in fact my lung function went up in the last year, doing my own anti-inflamatory protocol. The other problem is that these are short term studies. So for me I decided against it. Maybe for someone else it's the perfect drug.

That still leaves the idea of reducing inflammation, the culprit of many exacerbations and declining lung function. I couldn't possibly list all the things that I do to reduce inflamation, but 11 years ago, after going to this doctor and learning a different way to treat my disease, I got off continuous Tobi, stopped going into the hospital, and my lung function -- instead of going steadily down every year, went up. Amongst the many things I do, I practice strict allergy control. And I'm really not allergic to much. But what is an allergy to one person is an irritant to another.

The obvious: no carpets, using hepa air filters, nasal rinses, pillow protectors, closed windows, avoiding bad air, (there is a lot of info on allergy/irritant avoidance out there)
And the less obvious: stopping a post nasal drip, cleaning only with vinegar and water, hepa vacuum, wearing a mask in cold, smoggy, or windy weather, home remedies so that I don't get colds for more than a day, and since I added hypertonic saline, tumeric and NAC, I haven't been on any antibiotics in 2 years (knock wood).

For me, the more I do, the less symptoms I have. One more note: This is what works for me. Some of these things may not be appropriate for kids.

Hope this helps.

My meds: Foridil, Spiriva, Asmanex, Singulair, Claritin, Astilin, Nasonex, Nasalcrom, Cromolyn Sodium, Xopenex HFA
 

Nightwriter

New member
I think your concern is a valid one. While Azithromyacin works great and is appropriate for some people, eventually staph infections become resistant to it. The next question is "Is it right for your son?" And an even more important question might be, "Is there any other way to diminish inflammation in the lungs?"

I had my first visit to a CF clinic recently and they strongly touted Azithromyacin to me. They told me they had a patient improve their FEV1 from 29% to 79%. I was impressed...until I read the literature -- that the average improvement was 6% and then there was the resistance problem. And yes, less hospital days.

When I asked my own Pulmonary Doctor about the C.F. Clinic's recommendation, she said, "Why would they recommend that to someone who is stable?" My doctor said, if I was not doing well, she would throw everything at me. But in fact my lung function went up in the last year, doing my own anti-inflamatory protocol. The other problem is that these are short term studies. So for me I decided against it. Maybe for someone else it's the perfect drug.

That still leaves the idea of reducing inflammation, the culprit of many exacerbations and declining lung function. I couldn't possibly list all the things that I do to reduce inflamation, but 11 years ago, after going to this doctor and learning a different way to treat my disease, I got off continuous Tobi, stopped going into the hospital, and my lung function -- instead of going steadily down every year, went up. Amongst the many things I do, I practice strict allergy control. And I'm really not allergic to much. But what is an allergy to one person is an irritant to another.

The obvious: no carpets, using hepa air filters, nasal rinses, pillow protectors, closed windows, avoiding bad air, (there is a lot of info on allergy/irritant avoidance out there)
And the less obvious: stopping a post nasal drip, cleaning only with vinegar and water, hepa vacuum, wearing a mask in cold, smoggy, or windy weather, home remedies so that I don't get colds for more than a day, and since I added hypertonic saline, tumeric and NAC, I haven't been on any antibiotics in 2 years (knock wood).

For me, the more I do, the less symptoms I have. One more note: This is what works for me. Some of these things may not be appropriate for kids.

Hope this helps.

My meds: Foridil, Spiriva, Asmanex, Singulair, Claritin, Astilin, Nasonex, Nasalcrom, Cromolyn Sodium, Xopenex HFA
 

Nightwriter

New member
I think your concern is a valid one. While Azithromyacin works great and is appropriate for some people, eventually staph infections become resistant to it. The next question is "Is it right for your son?" And an even more important question might be, "Is there any other way to diminish inflammation in the lungs?"
<br />
<br />I had my first visit to a CF clinic recently and they strongly touted Azithromyacin to me. They told me they had a patient improve their FEV1 from 29% to 79%. I was impressed...until I read the literature -- that the average improvement was 6% and then there was the resistance problem. And yes, less hospital days.
<br />
<br />When I asked my own Pulmonary Doctor about the C.F. Clinic's recommendation, she said, "Why would they recommend that to someone who is stable?" My doctor said, if I was not doing well, she would throw everything at me. But in fact my lung function went up in the last year, doing my own anti-inflamatory protocol. The other problem is that these are short term studies. So for me I decided against it. Maybe for someone else it's the perfect drug.
<br />
<br />That still leaves the idea of reducing inflammation, the culprit of many exacerbations and declining lung function. I couldn't possibly list all the things that I do to reduce inflamation, but 11 years ago, after going to this doctor and learning a different way to treat my disease, I got off continuous Tobi, stopped going into the hospital, and my lung function -- instead of going steadily down every year, went up. Amongst the many things I do, I practice strict allergy control. And I'm really not allergic to much. But what is an allergy to one person is an irritant to another.
<br />
<br />The obvious: no carpets, using hepa air filters, nasal rinses, pillow protectors, closed windows, avoiding bad air, (there is a lot of info on allergy/irritant avoidance out there)
<br />And the less obvious: stopping a post nasal drip, cleaning only with vinegar and water, hepa vacuum, wearing a mask in cold, smoggy, or windy weather, home remedies so that I don't get colds for more than a day, and since I added hypertonic saline, tumeric and NAC, I haven't been on any antibiotics in 2 years (knock wood).
<br />
<br />For me, the more I do, the less symptoms I have. One more note: This is what works for me. Some of these things may not be appropriate for kids.
<br />
<br />Hope this helps.
<br />
<br />My meds: Foridil, Spiriva, Asmanex, Singulair, Claritin, Astilin, Nasonex, Nasalcrom, Cromolyn Sodium, Xopenex HFA
 

MicheleGazelle

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jimiv</b></i>

Parker had his CF visit yesterday and while they were thrilled that he has put on 10 pounds in 4 months, they commented that his lung function could be better. The doctor talked about using Azithromycin three times a week to improve his lung function. This initially made sense but then I had some questions. My big one is that doesn't this set him up (and the rest of the house) for resistant bacterial infections? Does anyone else use this method or something similar??</end quote></div>

This seems to be a fairly common practice.

Giving him magnesium may help reduce the likelihood of developing an antibiotic resistent infection from taking the zithromax:
<a target=_blank class=ftalternatingbarlinklarge href="http://www.healthgazelle.org/magnesiumandazythromycin.shtml">Magnesium and Azithromycin </a>
I have concerns that taking zithromax can create a vicious cycle: it is given in part to control inflammation, but it tends to cause a magnesium deficiency and a magnesium deficiency will tend to make you more acid which will promote inflammation and then you will need more anti-inflammatory drugs to control it and you need more of them precisely because you are already taking them ....etc and round and round we go. In contrast, reducing excess acidity via diet and supplements has helped me get off multiple anti-inflammatory drugs.

When I was on prescription medication, zithromax was my drug of choice because it worked better for me than biaxin (which is supposed to be stronger) and some other things. So I took it a lot for a while. It has it's good points. But I think your concerns are very reasonable. If you can find a way to address his lung issues without him being put on a maintenance drug long term, more power to you. However, not treating it at all is very bad news for a CF-er.

Good luck.
 

MicheleGazelle

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jimiv</b></i>

Parker had his CF visit yesterday and while they were thrilled that he has put on 10 pounds in 4 months, they commented that his lung function could be better. The doctor talked about using Azithromycin three times a week to improve his lung function. This initially made sense but then I had some questions. My big one is that doesn't this set him up (and the rest of the house) for resistant bacterial infections? Does anyone else use this method or something similar??</end quote></div>

This seems to be a fairly common practice.

Giving him magnesium may help reduce the likelihood of developing an antibiotic resistent infection from taking the zithromax:
<a target=_blank class=ftalternatingbarlinklarge href="http://www.healthgazelle.org/magnesiumandazythromycin.shtml">Magnesium and Azithromycin </a>
I have concerns that taking zithromax can create a vicious cycle: it is given in part to control inflammation, but it tends to cause a magnesium deficiency and a magnesium deficiency will tend to make you more acid which will promote inflammation and then you will need more anti-inflammatory drugs to control it and you need more of them precisely because you are already taking them ....etc and round and round we go. In contrast, reducing excess acidity via diet and supplements has helped me get off multiple anti-inflammatory drugs.

When I was on prescription medication, zithromax was my drug of choice because it worked better for me than biaxin (which is supposed to be stronger) and some other things. So I took it a lot for a while. It has it's good points. But I think your concerns are very reasonable. If you can find a way to address his lung issues without him being put on a maintenance drug long term, more power to you. However, not treating it at all is very bad news for a CF-er.

Good luck.
 

MicheleGazelle

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jimiv</b></i>

Parker had his CF visit yesterday and while they were thrilled that he has put on 10 pounds in 4 months, they commented that his lung function could be better. The doctor talked about using Azithromycin three times a week to improve his lung function. This initially made sense but then I had some questions. My big one is that doesn't this set him up (and the rest of the house) for resistant bacterial infections? Does anyone else use this method or something similar??</end quote></div>

This seems to be a fairly common practice.

Giving him magnesium may help reduce the likelihood of developing an antibiotic resistent infection from taking the zithromax:
<a target=_blank class=ftalternatingbarlinklarge href="http://www.healthgazelle.org/magnesiumandazythromycin.shtml">Magnesium and Azithromycin </a>
I have concerns that taking zithromax can create a vicious cycle: it is given in part to control inflammation, but it tends to cause a magnesium deficiency and a magnesium deficiency will tend to make you more acid which will promote inflammation and then you will need more anti-inflammatory drugs to control it and you need more of them precisely because you are already taking them ....etc and round and round we go. In contrast, reducing excess acidity via diet and supplements has helped me get off multiple anti-inflammatory drugs.

When I was on prescription medication, zithromax was my drug of choice because it worked better for me than biaxin (which is supposed to be stronger) and some other things. So I took it a lot for a while. It has it's good points. But I think your concerns are very reasonable. If you can find a way to address his lung issues without him being put on a maintenance drug long term, more power to you. However, not treating it at all is very bad news for a CF-er.

Good luck.
 

MicheleGazelle

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jimiv</b></i>

Parker had his CF visit yesterday and while they were thrilled that he has put on 10 pounds in 4 months, they commented that his lung function could be better. The doctor talked about using Azithromycin three times a week to improve his lung function. This initially made sense but then I had some questions. My big one is that doesn't this set him up (and the rest of the house) for resistant bacterial infections? Does anyone else use this method or something similar??</end quote>

This seems to be a fairly common practice.

Giving him magnesium may help reduce the likelihood of developing an antibiotic resistent infection from taking the zithromax:
<a target=_blank class=ftalternatingbarlinklarge href="http://www.healthgazelle.org/magnesiumandazythromycin.shtml">Magnesium and Azithromycin </a>
I have concerns that taking zithromax can create a vicious cycle: it is given in part to control inflammation, but it tends to cause a magnesium deficiency and a magnesium deficiency will tend to make you more acid which will promote inflammation and then you will need more anti-inflammatory drugs to control it and you need more of them precisely because you are already taking them ....etc and round and round we go. In contrast, reducing excess acidity via diet and supplements has helped me get off multiple anti-inflammatory drugs.

When I was on prescription medication, zithromax was my drug of choice because it worked better for me than biaxin (which is supposed to be stronger) and some other things. So I took it a lot for a while. It has it's good points. But I think your concerns are very reasonable. If you can find a way to address his lung issues without him being put on a maintenance drug long term, more power to you. However, not treating it at all is very bad news for a CF-er.

Good luck.
 

MicheleGazelle

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jimiv</b></i>
<br />
<br />Parker had his CF visit yesterday and while they were thrilled that he has put on 10 pounds in 4 months, they commented that his lung function could be better. The doctor talked about using Azithromycin three times a week to improve his lung function. This initially made sense but then I had some questions. My big one is that doesn't this set him up (and the rest of the house) for resistant bacterial infections? Does anyone else use this method or something similar??</end quote>
<br />
<br />This seems to be a fairly common practice.
<br />
<br />Giving him magnesium may help reduce the likelihood of developing an antibiotic resistent infection from taking the zithromax:
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.healthgazelle.org/magnesiumandazythromycin.shtml">Magnesium and Azithromycin </a>
<br />I have concerns that taking zithromax can create a vicious cycle: it is given in part to control inflammation, but it tends to cause a magnesium deficiency and a magnesium deficiency will tend to make you more acid which will promote inflammation and then you will need more anti-inflammatory drugs to control it and you need more of them precisely because you are already taking them ....etc and round and round we go. In contrast, reducing excess acidity via diet and supplements has helped me get off multiple anti-inflammatory drugs.
<br />
<br />When I was on prescription medication, zithromax was my drug of choice because it worked better for me than biaxin (which is supposed to be stronger) and some other things. So I took it a lot for a while. It has it's good points. But I think your concerns are very reasonable. If you can find a way to address his lung issues without him being put on a maintenance drug long term, more power to you. However, not treating it at all is very bad news for a CF-er.
<br />
<br />Good luck.
 
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