Anxiety

Rebjane

Super Moderator
I don't have it all the time but having a CF child just makes me on edge at times. As moms and parents we worry about our children; CF just gives us extra to worry about. So, I'm curious how you all cope with that low-level, or high level anxiety. I have a few strategies; exercize, especially running burns off ALOT of stress; reading a great book(or brain candy), a glass of wine or two, venting at this site. I feel like I need more ways to get rid of the stress though. I really don't have people to talk to about my worries with CF; my family is probably just tired of it. My husband of course will listen but he works so hard, we're so tired , don't feel like talking. Plus, when Maggie has gotten really sick in the past, I can't go running, I'm too stressed to drink wine..reading a book is good in the hospital though. Thanks for your insight.
 

Rebjane

Super Moderator
I don't have it all the time but having a CF child just makes me on edge at times. As moms and parents we worry about our children; CF just gives us extra to worry about. So, I'm curious how you all cope with that low-level, or high level anxiety. I have a few strategies; exercize, especially running burns off ALOT of stress; reading a great book(or brain candy), a glass of wine or two, venting at this site. I feel like I need more ways to get rid of the stress though. I really don't have people to talk to about my worries with CF; my family is probably just tired of it. My husband of course will listen but he works so hard, we're so tired , don't feel like talking. Plus, when Maggie has gotten really sick in the past, I can't go running, I'm too stressed to drink wine..reading a book is good in the hospital though. Thanks for your insight.
 

Rebjane

Super Moderator
I don't have it all the time but having a CF child just makes me on edge at times. As moms and parents we worry about our children; CF just gives us extra to worry about. So, I'm curious how you all cope with that low-level, or high level anxiety. I have a few strategies; exercize, especially running burns off ALOT of stress; reading a great book(or brain candy), a glass of wine or two, venting at this site. I feel like I need more ways to get rid of the stress though. I really don't have people to talk to about my worries with CF; my family is probably just tired of it. My husband of course will listen but he works so hard, we're so tired , don't feel like talking. Plus, when Maggie has gotten really sick in the past, I can't go running, I'm too stressed to drink wine..reading a book is good in the hospital though. Thanks for your insight.
 

Rebjane

Super Moderator
I don't have it all the time but having a CF child just makes me on edge at times. As moms and parents we worry about our children; CF just gives us extra to worry about. So, I'm curious how you all cope with that low-level, or high level anxiety. I have a few strategies; exercize, especially running burns off ALOT of stress; reading a great book(or brain candy), a glass of wine or two, venting at this site. I feel like I need more ways to get rid of the stress though. I really don't have people to talk to about my worries with CF; my family is probably just tired of it. My husband of course will listen but he works so hard, we're so tired , don't feel like talking. Plus, when Maggie has gotten really sick in the past, I can't go running, I'm too stressed to drink wine..reading a book is good in the hospital though. Thanks for your insight.
 

Rebjane

Super Moderator
I don't have it all the time but having a CF child just makes me on edge at times. As moms and parents we worry about our children; CF just gives us extra to worry about. So, I'm curious how you all cope with that low-level, or high level anxiety. I have a few strategies; exercize, especially running burns off ALOT of stress; reading a great book(or brain candy), a glass of wine or two, venting at this site. I feel like I need more ways to get rid of the stress though. I really don't have people to talk to about my worries with CF; my family is probably just tired of it. My husband of course will listen but he works so hard, we're so tired , don't feel like talking. Plus, when Maggie has gotten really sick in the past, I can't go running, I'm too stressed to drink wine..reading a book is good in the hospital though. Thanks for your insight.
 

pjspiegle

New member
Wow, just more proof we aren't alone. I find that the stress gets me at times too but not all the time. I did take an anti-depressant for a while, but the problem was that I don't need it all the time and supposedly you can't take it only when you need it. I spend a lot of time on the computer when stressed, but you can only express so much of it on the computer.

I am interested to see what suggestions are made.
 

pjspiegle

New member
Wow, just more proof we aren't alone. I find that the stress gets me at times too but not all the time. I did take an anti-depressant for a while, but the problem was that I don't need it all the time and supposedly you can't take it only when you need it. I spend a lot of time on the computer when stressed, but you can only express so much of it on the computer.

I am interested to see what suggestions are made.
 

pjspiegle

New member
Wow, just more proof we aren't alone. I find that the stress gets me at times too but not all the time. I did take an anti-depressant for a while, but the problem was that I don't need it all the time and supposedly you can't take it only when you need it. I spend a lot of time on the computer when stressed, but you can only express so much of it on the computer.

I am interested to see what suggestions are made.
 

pjspiegle

New member
Wow, just more proof we aren't alone. I find that the stress gets me at times too but not all the time. I did take an anti-depressant for a while, but the problem was that I don't need it all the time and supposedly you can't take it only when you need it. I spend a lot of time on the computer when stressed, but you can only express so much of it on the computer.

I am interested to see what suggestions are made.
 

pjspiegle

New member
Wow, just more proof we aren't alone. I find that the stress gets me at times too but not all the time. I did take an anti-depressant for a while, but the problem was that I don't need it all the time and supposedly you can't take it only when you need it. I spend a lot of time on the computer when stressed, but you can only express so much of it on the computer.
<br />
<br />I am interested to see what suggestions are made.
 

folione

New member
I mostly take the "CF" out of your first sentence and then think about life with my boy. His having CF is a stressor, but it is not the only one and maybe not even the biggest one. It can backfire, but I usually remind myself that knowing he has CF means I'm lucky to be able to do all the right things to deal with that aspect of his life - meanwhile, I can't do much of anything to protect him from the myriad bad things that can fall out of a clear blue sky. I worry more about him when I'm at work and he is in the car with his mother doing errands than when I sit with him while he takes tobi.
 

folione

New member
I mostly take the "CF" out of your first sentence and then think about life with my boy. His having CF is a stressor, but it is not the only one and maybe not even the biggest one. It can backfire, but I usually remind myself that knowing he has CF means I'm lucky to be able to do all the right things to deal with that aspect of his life - meanwhile, I can't do much of anything to protect him from the myriad bad things that can fall out of a clear blue sky. I worry more about him when I'm at work and he is in the car with his mother doing errands than when I sit with him while he takes tobi.
 

folione

New member
I mostly take the "CF" out of your first sentence and then think about life with my boy. His having CF is a stressor, but it is not the only one and maybe not even the biggest one. It can backfire, but I usually remind myself that knowing he has CF means I'm lucky to be able to do all the right things to deal with that aspect of his life - meanwhile, I can't do much of anything to protect him from the myriad bad things that can fall out of a clear blue sky. I worry more about him when I'm at work and he is in the car with his mother doing errands than when I sit with him while he takes tobi.
 

folione

New member
I mostly take the "CF" out of your first sentence and then think about life with my boy. His having CF is a stressor, but it is not the only one and maybe not even the biggest one. It can backfire, but I usually remind myself that knowing he has CF means I'm lucky to be able to do all the right things to deal with that aspect of his life - meanwhile, I can't do much of anything to protect him from the myriad bad things that can fall out of a clear blue sky. I worry more about him when I'm at work and he is in the car with his mother doing errands than when I sit with him while he takes tobi.
 

folione

New member
I mostly take the "CF" out of your first sentence and then think about life with my boy. His having CF is a stressor, but it is not the only one and maybe not even the biggest one. It can backfire, but I usually remind myself that knowing he has CF means I'm lucky to be able to do all the right things to deal with that aspect of his life - meanwhile, I can't do much of anything to protect him from the myriad bad things that can fall out of a clear blue sky. I worry more about him when I'm at work and he is in the car with his mother doing errands than when I sit with him while he takes tobi.
 
U

usedtobeinca

Guest
Sounds like we've been using the same CF Parent stress-relief playbook. My wife and I similarly don't have family or friends to bounce the issues off of (primarily because they have not yet come to grips to a point where they can 'be there' when it comes to our son's CF).

In the hospital (8 weeks of the summer of 2006), at the urging of the CF docs, we took breaks outside the room each afternoon (walks, short drives, bite to eat, etc) in addition to uploading updates on our son to friends and family. Music in the room also helped - Jack Johnson - something mellow. For a time last summer we did also regularly talk to the social worker at our CF clinic - which actually helped a TON!

We try to keep communication lines open in the evenings even if we're tired - it often turns out that similar issues are on our minds with CF. Also, since I work outside the home I don't see how my son is doing all day and tend to worry more than my wife who sees that he is doing great all day. It helps to keep it in perspective with a chat. We don't talk about it every night or anything, but we try when necessary.

Curious to hear what others have to say.
 
U

usedtobeinca

Guest
Sounds like we've been using the same CF Parent stress-relief playbook. My wife and I similarly don't have family or friends to bounce the issues off of (primarily because they have not yet come to grips to a point where they can 'be there' when it comes to our son's CF).

In the hospital (8 weeks of the summer of 2006), at the urging of the CF docs, we took breaks outside the room each afternoon (walks, short drives, bite to eat, etc) in addition to uploading updates on our son to friends and family. Music in the room also helped - Jack Johnson - something mellow. For a time last summer we did also regularly talk to the social worker at our CF clinic - which actually helped a TON!

We try to keep communication lines open in the evenings even if we're tired - it often turns out that similar issues are on our minds with CF. Also, since I work outside the home I don't see how my son is doing all day and tend to worry more than my wife who sees that he is doing great all day. It helps to keep it in perspective with a chat. We don't talk about it every night or anything, but we try when necessary.

Curious to hear what others have to say.
 
U

usedtobeinca

Guest
Sounds like we've been using the same CF Parent stress-relief playbook. My wife and I similarly don't have family or friends to bounce the issues off of (primarily because they have not yet come to grips to a point where they can 'be there' when it comes to our son's CF).

In the hospital (8 weeks of the summer of 2006), at the urging of the CF docs, we took breaks outside the room each afternoon (walks, short drives, bite to eat, etc) in addition to uploading updates on our son to friends and family. Music in the room also helped - Jack Johnson - something mellow. For a time last summer we did also regularly talk to the social worker at our CF clinic - which actually helped a TON!

We try to keep communication lines open in the evenings even if we're tired - it often turns out that similar issues are on our minds with CF. Also, since I work outside the home I don't see how my son is doing all day and tend to worry more than my wife who sees that he is doing great all day. It helps to keep it in perspective with a chat. We don't talk about it every night or anything, but we try when necessary.

Curious to hear what others have to say.
 
U

usedtobeinca

Guest
Sounds like we've been using the same CF Parent stress-relief playbook. My wife and I similarly don't have family or friends to bounce the issues off of (primarily because they have not yet come to grips to a point where they can 'be there' when it comes to our son's CF).

In the hospital (8 weeks of the summer of 2006), at the urging of the CF docs, we took breaks outside the room each afternoon (walks, short drives, bite to eat, etc) in addition to uploading updates on our son to friends and family. Music in the room also helped - Jack Johnson - something mellow. For a time last summer we did also regularly talk to the social worker at our CF clinic - which actually helped a TON!

We try to keep communication lines open in the evenings even if we're tired - it often turns out that similar issues are on our minds with CF. Also, since I work outside the home I don't see how my son is doing all day and tend to worry more than my wife who sees that he is doing great all day. It helps to keep it in perspective with a chat. We don't talk about it every night or anything, but we try when necessary.

Curious to hear what others have to say.
 
U

usedtobeinca

Guest
Sounds like we've been using the same CF Parent stress-relief playbook. My wife and I similarly don't have family or friends to bounce the issues off of (primarily because they have not yet come to grips to a point where they can 'be there' when it comes to our son's CF).
<br />
<br />In the hospital (8 weeks of the summer of 2006), at the urging of the CF docs, we took breaks outside the room each afternoon (walks, short drives, bite to eat, etc) in addition to uploading updates on our son to friends and family. Music in the room also helped - Jack Johnson - something mellow. For a time last summer we did also regularly talk to the social worker at our CF clinic - which actually helped a TON!
<br />
<br />We try to keep communication lines open in the evenings even if we're tired - it often turns out that similar issues are on our minds with CF. Also, since I work outside the home I don't see how my son is doing all day and tend to worry more than my wife who sees that he is doing great all day. It helps to keep it in perspective with a chat. We don't talk about it every night or anything, but we try when necessary.
<br />
<br />Curious to hear what others have to say.
 
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