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Any little one's with a G-tube?
- Thread starter anonymous
- Start date
Hi,
My eight month old has had a gtube since he was just a couple months old.
There are a few different styles of buttons, the "mini button" is what he had for a few months, it did not stick out far at all.
In March he had to have another surgery, a funduplication, and before surgery they chaged his button out, the one he has now has a much longer tube, it sticks out about six inches, which is annoying, because I have to be more carefull of it, it can get caught on things. The only reason why I'm keeping this tube is because the enzymes flow right through it with a little bit of water in a syringe, that did not work with the mini button, the opening is WAY to small and enzymes will clog it very easily.
Unfortunately, my son has CF and Cerebral Palsy, so he is unable to take food by mouth and the g-tube is neccessary for all feeding, thus we absolutely have to get the enzymes through it. This is most likely not as important for you and won't be a big issue.
Hope that helps
My eight month old has had a gtube since he was just a couple months old.
There are a few different styles of buttons, the "mini button" is what he had for a few months, it did not stick out far at all.
In March he had to have another surgery, a funduplication, and before surgery they chaged his button out, the one he has now has a much longer tube, it sticks out about six inches, which is annoying, because I have to be more carefull of it, it can get caught on things. The only reason why I'm keeping this tube is because the enzymes flow right through it with a little bit of water in a syringe, that did not work with the mini button, the opening is WAY to small and enzymes will clog it very easily.
Unfortunately, my son has CF and Cerebral Palsy, so he is unable to take food by mouth and the g-tube is neccessary for all feeding, thus we absolutely have to get the enzymes through it. This is most likely not as important for you and won't be a big issue.
Hope that helps
Hi, My son has had his g-tube since he was 17 months and he is 5 and still has it. It does not stick out to far but you can notice it alittle his shirt sticks out alittle. He does not slow down any because of it. He is in preschool and did fine. He has a nutraport. I change them out myself he does very well. At first our home health nurse changed it for us. It has been a life saver for us he was 14 lbs at a year when he was diagnosed with CF and now he still gets night feeds 3 days a week right now and he weighs 40lbs and turned 5 in Jan. He was below 0% on weight when we got it and now is around 40%. Hope everything goes well. I was nervous about it at first and now no big deal. We call it his special button. IF you have any question I may be able to help. My email address is
www.burkhalter_95@sbcglobal.net
Mom to 9yr old w/cf, 5yr old w/cf and a 2 yr old w/o cf
www.burkhalter_95@sbcglobal.net
Mom to 9yr old w/cf, 5yr old w/cf and a 2 yr old w/o cf