Any other CF'ers deal with so much mucus

A

alluneedislove

Guest
I have been coughing up so much mucus. So bad that i have a garbage by my bed to spit in in the middle of the night. Is this NORMAL for Cf'ers the only time i dont need it is if im on antibiotics. Im so sick and tired of being sick and tired. Some nights i have to get up and go do a neb of albutorol especially when my coughing fits last up to an hour straight! UGH please help. oh and its thick and green. i just got off of zyvox about 2 weeks ago. WHAT GIVES??? What do you do when this happens? If it happens to you. Please Help
 
A

alluneedislove

Guest
I have been coughing up so much mucus. So bad that i have a garbage by my bed to spit in in the middle of the night. Is this NORMAL for Cf'ers the only time i dont need it is if im on antibiotics. Im so sick and tired of being sick and tired. Some nights i have to get up and go do a neb of albutorol especially when my coughing fits last up to an hour straight! UGH please help. oh and its thick and green. i just got off of zyvox about 2 weeks ago. WHAT GIVES??? What do you do when this happens? If it happens to you. Please Help
 
A

alluneedislove

Guest
I have been coughing up so much mucus. So bad that i have a garbage by my bed to spit in in the middle of the night. Is this NORMAL for Cf'ers the only time i dont need it is if im on antibiotics. Im so sick and tired of being sick and tired. Some nights i have to get up and go do a neb of albutorol especially when my coughing fits last up to an hour straight! UGH please help. oh and its thick and green. i just got off of zyvox about 2 weeks ago. WHAT GIVES??? What do you do when this happens? If it happens to you. Please Help
 

JORDYSMOM

New member
If this mucus is different from what you normally produce, and it is a different color, you need to talk to your doc/clinic.

When was the last culture you had? You may be growing something new?? I think that if you are having to get up in the night to do a breathing treatment, you should go in & see your doc.

I hope you feel better soon. Keep us posted.

Stacey
 

JORDYSMOM

New member
If this mucus is different from what you normally produce, and it is a different color, you need to talk to your doc/clinic.

When was the last culture you had? You may be growing something new?? I think that if you are having to get up in the night to do a breathing treatment, you should go in & see your doc.

I hope you feel better soon. Keep us posted.

Stacey
 

JORDYSMOM

New member
If this mucus is different from what you normally produce, and it is a different color, you need to talk to your doc/clinic.
<br />
<br />When was the last culture you had? You may be growing something new?? I think that if you are having to get up in the night to do a breathing treatment, you should go in & see your doc.
<br />
<br />I hope you feel better soon. Keep us posted.
<br />
<br />Stacey
 

mag6125

New member
i'm pretty sure think and green usually means infection. when was the last time they did a sputum culture on you? maybe they stuff you're culturing now isn't sensitive to the antibiotics they're giving you? best bet is to see the doc if its that bad. hope you get some answers and feel better soon!
 

mag6125

New member
i'm pretty sure think and green usually means infection. when was the last time they did a sputum culture on you? maybe they stuff you're culturing now isn't sensitive to the antibiotics they're giving you? best bet is to see the doc if its that bad. hope you get some answers and feel better soon!
 

mag6125

New member
i'm pretty sure think and green usually means infection. when was the last time they did a sputum culture on you? maybe they stuff you're culturing now isn't sensitive to the antibiotics they're giving you? best bet is to see the doc if its that bad. hope you get some answers and feel better soon!
 
W

welshwitch

Guest
I find I cough up a LOT LESS if I can do some sort of proactive cleaning out during the day or the night before. If I go on a 30 minute run at night it makes a world of difference the next day. Do you have any type of cardio routine? Do you use the vest?
 
W

welshwitch

Guest
I find I cough up a LOT LESS if I can do some sort of proactive cleaning out during the day or the night before. If I go on a 30 minute run at night it makes a world of difference the next day. Do you have any type of cardio routine? Do you use the vest?
 
W

welshwitch

Guest
I find I cough up a LOT LESS if I can do some sort of proactive cleaning out during the day or the night before. If I go on a 30 minute run at night it makes a world of difference the next day. Do you have any type of cardio routine? Do you use the vest?
 

PinkPigg

New member
Teri. It really sounds like you still have an infection. Definately get to the doctor before it gets worse. What you are experiencing is not normal for someone who has CF and is feeling OK.

Hugs,
Steph
 

PinkPigg

New member
Teri. It really sounds like you still have an infection. Definately get to the doctor before it gets worse. What you are experiencing is not normal for someone who has CF and is feeling OK.

Hugs,
Steph
 

PinkPigg

New member
Teri. It really sounds like you still have an infection. Definately get to the doctor before it gets worse. What you are experiencing is not normal for someone who has CF and is feeling OK.
<br />
<br />Hugs,
<br />Steph
 

crystalina0814

New member
Teri, I can relate to how you are feeling. I just finished up a 6 week course of Bactrim and Keflex....not even 3 days later and the mucus is coming back. This has been going on for me for about 9 months.

What has helped me some is being very consistant with my treatments...and I do an albuterol treatment every 5 hours. I also make sure I do a really good round of airway clearance at bed time....I go until I can't cough anything else up. This helps me make it until the morning.

Almost every morning I wake up and do an albuterol treatment...then hop on the treadmill for a 20 min run. I do not consider this my daily cardio...but a way to move all of that night time junk out. It has helped a lot! I also walk/jog for about 60 min every other evening.

Fizzy NAC and Mucinex also help me clear the mucus throughout the day.

I hope you find the relief you need soon!
 

crystalina0814

New member
Teri, I can relate to how you are feeling. I just finished up a 6 week course of Bactrim and Keflex....not even 3 days later and the mucus is coming back. This has been going on for me for about 9 months.

What has helped me some is being very consistant with my treatments...and I do an albuterol treatment every 5 hours. I also make sure I do a really good round of airway clearance at bed time....I go until I can't cough anything else up. This helps me make it until the morning.

Almost every morning I wake up and do an albuterol treatment...then hop on the treadmill for a 20 min run. I do not consider this my daily cardio...but a way to move all of that night time junk out. It has helped a lot! I also walk/jog for about 60 min every other evening.

Fizzy NAC and Mucinex also help me clear the mucus throughout the day.

I hope you find the relief you need soon!
 

crystalina0814

New member
Teri, I can relate to how you are feeling. I just finished up a 6 week course of Bactrim and Keflex....not even 3 days later and the mucus is coming back. This has been going on for me for about 9 months.
<br />
<br />What has helped me some is being very consistant with my treatments...and I do an albuterol treatment every 5 hours. I also make sure I do a really good round of airway clearance at bed time....I go until I can't cough anything else up. This helps me make it until the morning.
<br />
<br />Almost every morning I wake up and do an albuterol treatment...then hop on the treadmill for a 20 min run. I do not consider this my daily cardio...but a way to move all of that night time junk out. It has helped a lot! I also walk/jog for about 60 min every other evening.
<br />
<br />Fizzy NAC and Mucinex also help me clear the mucus throughout the day.
<br />
<br />I hope you find the relief you need soon!
 

Solo

New member
Teri, I also keep a small container of garbage by my bed, although I very rarely require it. Basically, the only times now that I cough up mucus is when I do my treatments, and occasionally when I am working. But I went through a very rough patch when I was in my mid 20s where, I lived in a room with paneling on the walls. The panels were fashioned out of formaldehyde, which is embalming fluid. I constantly coughed up mucus, was on antibiotics every other month or so, and hospitalized once a year. I actually thought my CF was progressing so much that it was near the end. So many nights of insomnia, and staring at myself in the mirror so sickly, coughing. I was choking on my mucus, it felt as if a python were squeezing my throat. I finally had enough and rectified that by tearing all the paneling down and finding out there's warning stickers on the back of them that say that they *may* cause harm to people with upper respiratory problems. I remodeled my entire room and I am perfectly fine now.

The moral of that little story is even though things may seem real bad, most likely if you stop and analyze your situation, there is an answer. Good luck to you Teri.
 

Solo

New member
Teri, I also keep a small container of garbage by my bed, although I very rarely require it. Basically, the only times now that I cough up mucus is when I do my treatments, and occasionally when I am working. But I went through a very rough patch when I was in my mid 20s where, I lived in a room with paneling on the walls. The panels were fashioned out of formaldehyde, which is embalming fluid. I constantly coughed up mucus, was on antibiotics every other month or so, and hospitalized once a year. I actually thought my CF was progressing so much that it was near the end. So many nights of insomnia, and staring at myself in the mirror so sickly, coughing. I was choking on my mucus, it felt as if a python were squeezing my throat. I finally had enough and rectified that by tearing all the paneling down and finding out there's warning stickers on the back of them that say that they *may* cause harm to people with upper respiratory problems. I remodeled my entire room and I am perfectly fine now.

The moral of that little story is even though things may seem real bad, most likely if you stop and analyze your situation, there is an answer. Good luck to you Teri.
 
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