My daughter was diagnosed a PI several months before she was diagnosed with CF. She actually had the gene testing for CF and only had a single mutation so the GI thought it was just PI but then she started having Respiratory issues and the Pulmonologist did a sweat test which was very positive. So she got diagnosed with CF then. I would do the sweat test first.
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Anyone diagnosed PI before being diagnosed w/CF
- Thread starter MADHATTER1979
- Start date
My daughter was diagnosed a PI several months before she was diagnosed with CF. She actually had the gene testing for CF and only had a single mutation so the GI thought it was just PI but then she started having Respiratory issues and the Pulmonologist did a sweat test which was very positive. So she got diagnosed with CF then. I would do the sweat test first.
My daughter was diagnosed a PI several months before she was diagnosed with CF. She actually had the gene testing for CF and only had a single mutation so the GI thought it was just PI but then she started having Respiratory issues and the Pulmonologist did a sweat test which was very positive. So she got diagnosed with CF then. I would do the sweat test first.
My daughter was diagnosed a PI several months before she was diagnosed with CF. She actually had the gene testing for CF and only had a single mutation so the GI thought it was just PI but then she started having Respiratory issues and the Pulmonologist did a sweat test which was very positive. So she got diagnosed with CF then. I would do the sweat test first.
My daughter was diagnosed a PI several months before she was diagnosed with CF. She actually had the gene testing for CF and only had a single mutation so the GI thought it was just PI but then she started having Respiratory issues and the Pulmonologist did a sweat test which was very positive. So she got diagnosed with CF then. I would do the sweat test first.
M
Mommafirst
Guest
My daughter was born with a meconium plug and has not developed any other symptoms since (though she does struggle to gain weight). She is 2 and a half. I would be very surprised if your son who is PI and born with the plug doesn't have CF. I'm sorry. I know this is hard, but know that my daughter is doing great with all her CF meds, I'm sure your son will do well too.
M
Mommafirst
Guest
My daughter was born with a meconium plug and has not developed any other symptoms since (though she does struggle to gain weight). She is 2 and a half. I would be very surprised if your son who is PI and born with the plug doesn't have CF. I'm sorry. I know this is hard, but know that my daughter is doing great with all her CF meds, I'm sure your son will do well too.
M
Mommafirst
Guest
My daughter was born with a meconium plug and has not developed any other symptoms since (though she does struggle to gain weight). She is 2 and a half. I would be very surprised if your son who is PI and born with the plug doesn't have CF. I'm sorry. I know this is hard, but know that my daughter is doing great with all her CF meds, I'm sure your son will do well too.
M
Mommafirst
Guest
My daughter was born with a meconium plug and has not developed any other symptoms since (though she does struggle to gain weight). She is 2 and a half. I would be very surprised if your son who is PI and born with the plug doesn't have CF. I'm sorry. I know this is hard, but know that my daughter is doing great with all her CF meds, I'm sure your son will do well too.
M
Mommafirst
Guest
My daughter was born with a meconium plug and has not developed any other symptoms since (though she does struggle to gain weight). She is 2 and a half. I would be very surprised if your son who is PI and born with the plug doesn't have CF. I'm sorry. I know this is hard, but know that my daughter is doing great with all her CF meds, I'm sure your son will do well too.
V
valigirl21
Guest
It was my son's PI status that lead to his being treated for CF. He has had lung issues since birth, but still is not "definitely " dx w/ CF for lack of identifiable genetic mutations. IMHO you should persue the sweat test, and go from there once you know your son's number.
V
valigirl21
Guest
It was my son's PI status that lead to his being treated for CF. He has had lung issues since birth, but still is not "definitely " dx w/ CF for lack of identifiable genetic mutations. IMHO you should persue the sweat test, and go from there once you know your son's number.
V
valigirl21
Guest
It was my son's PI status that lead to his being treated for CF. He has had lung issues since birth, but still is not "definitely " dx w/ CF for lack of identifiable genetic mutations. IMHO you should persue the sweat test, and go from there once you know your son's number.
V
valigirl21
Guest
It was my son's PI status that lead to his being treated for CF. He has had lung issues since birth, but still is not "definitely " dx w/ CF for lack of identifiable genetic mutations. IMHO you should persue the sweat test, and go from there once you know your son's number.
V
valigirl21
Guest
It was my son's PI status that lead to his being treated for CF. He has had lung issues since birth, but still is not "definitely " dx w/ CF for lack of identifiable genetic mutations. IMHO you should persue the sweat test, and go from there once you know your son's number.
MADHATTER1979
New member
Thank you so much for all the information.
MADHATTER1979
New member
Thank you so much for all the information.
MADHATTER1979
New member
Thank you so much for all the information.
MADHATTER1979
New member
Thank you so much for all the information.
MADHATTER1979
New member
Thank you so much for all the information.