anyone from Canada?

Ratatosk

Administrator
Staff member
As new parents of cfers, it might be fine for you adults to meet, but there may be issues with cross-contamination. Usually CFers should keep at least a 3' distance. Liza
 

mamaj

New member
Hi Amanda,<br>
<br>
I will send you a private message, with contact information.
 It is true, CF's are at risk from each other.  I have a
clinic appointment on Wednesday, and will ask them so more
questions about it (all the CF's go to the same clinic... so there
is some space to breathe regarding this subject).  We just
have to be careful.  Either way, it would be nice for us to
chat.
 

mamaj

New member
Hi Amanda,<br>
<br>
I will send you a private message, with contact information.
 It is true, CF's are at risk from each other.  I have a
clinic appointment on Wednesday, and will ask them so more
questions about it (all the CF's go to the same clinic... so there
is some space to breathe regarding this subject).  We just
have to be careful.  Either way, it would be nice for us to
chat.
 

mamaj

New member
Hi Amanda,<br>
<br>
I will send you a private message, with contact information.
 It is true, CF's are at risk from each other.  I have a
clinic appointment on Wednesday, and will ask them so more
questions about it (all the CF's go to the same clinic... so there
is some space to breathe regarding this subject).  We just
have to be careful.  Either way, it would be nice for us to
chat.
 

Ratatosk

Administrator
Staff member
Close... North Dakota. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Welcome to the board! Hope I didn't sound to harsh about the cross contamination issue. I just wanted you to be aware of it. It isn't something our local clinic talks about, but we were told about it when DS was first diagnosed in the city at an accreditted clinic.

Our son has cultured pseudomonas, HIB and Enterbacter Cholae in the past. While you can get pseudo from just about anywhere, someone on this site has posted that it can live on surfaces for 8 days. I know of people who go to our CF clinic whose children have cultured staph.
 

Ratatosk

Administrator
Staff member
Close... North Dakota. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Welcome to the board! Hope I didn't sound to harsh about the cross contamination issue. I just wanted you to be aware of it. It isn't something our local clinic talks about, but we were told about it when DS was first diagnosed in the city at an accreditted clinic.

Our son has cultured pseudomonas, HIB and Enterbacter Cholae in the past. While you can get pseudo from just about anywhere, someone on this site has posted that it can live on surfaces for 8 days. I know of people who go to our CF clinic whose children have cultured staph.
 

Ratatosk

Administrator
Staff member
Close... North Dakota. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Welcome to the board! Hope I didn't sound to harsh about the cross contamination issue. I just wanted you to be aware of it. It isn't something our local clinic talks about, but we were told about it when DS was first diagnosed in the city at an accreditted clinic.

Our son has cultured pseudomonas, HIB and Enterbacter Cholae in the past. While you can get pseudo from just about anywhere, someone on this site has posted that it can live on surfaces for 8 days. I know of people who go to our CF clinic whose children have cultured staph.
 

mamaj

New member
Thanks Liza.  I'm a bit sensitive... still reeling.  <br>
<br>
You mentioned your son had HiB.<br>
<br>
Do you have any thoughts on vaccinations?  I was completely on
the no-vax train, but now, with the CF diagnosis, I'm trying to
figure out the lesser of the two evils.  My CF doctor is
primarily concerned with the Hib, Pertusis, and Polio shots.
 Did your son have the Hib vaccination?  How did he get
Hib?<br>
<br>
<br>
Jana
 

mamaj

New member
Thanks Liza.  I'm a bit sensitive... still reeling.  <br>
<br>
You mentioned your son had HiB.<br>
<br>
Do you have any thoughts on vaccinations?  I was completely on
the no-vax train, but now, with the CF diagnosis, I'm trying to
figure out the lesser of the two evils.  My CF doctor is
primarily concerned with the Hib, Pertusis, and Polio shots.
 Did your son have the Hib vaccination?  How did he get
Hib?<br>
<br>
<br>
Jana
 

mamaj

New member
Thanks Liza.  I'm a bit sensitive... still reeling.  <br>
<br>
You mentioned your son had HiB.<br>
<br>
Do you have any thoughts on vaccinations?  I was completely on
the no-vax train, but now, with the CF diagnosis, I'm trying to
figure out the lesser of the two evils.  My CF doctor is
primarily concerned with the Hib, Pertusis, and Polio shots.
 Did your son have the Hib vaccination?  How did he get
Hib?<br>
<br>
<br>
Jana
 

Ratatosk

Administrator
Staff member
My son has had all his vaccinations, including HIB. Wondered the same thing -- some docs consider it to be "natural flora". Our doctor thought zithromax might take care of it once he started.

Our primary cf physician is an infectious disease specialist. Stresses vaccinations -- chicken pox can get into the lungs and cause damage, ditto with pertussis... I've never had a problem with vaccinations, so I'm probably the wrong person to ask. I believe there are several people on this site who have an opposite opinion and have chosen not to vaccinate. Hopefully they can give some insight. You may want to post this question on the family forum area to get more of a response. L
 

Ratatosk

Administrator
Staff member
My son has had all his vaccinations, including HIB. Wondered the same thing -- some docs consider it to be "natural flora". Our doctor thought zithromax might take care of it once he started.

Our primary cf physician is an infectious disease specialist. Stresses vaccinations -- chicken pox can get into the lungs and cause damage, ditto with pertussis... I've never had a problem with vaccinations, so I'm probably the wrong person to ask. I believe there are several people on this site who have an opposite opinion and have chosen not to vaccinate. Hopefully they can give some insight. You may want to post this question on the family forum area to get more of a response. L
 

Ratatosk

Administrator
Staff member
My son has had all his vaccinations, including HIB. Wondered the same thing -- some docs consider it to be "natural flora". Our doctor thought zithromax might take care of it once he started.

Our primary cf physician is an infectious disease specialist. Stresses vaccinations -- chicken pox can get into the lungs and cause damage, ditto with pertussis... I've never had a problem with vaccinations, so I'm probably the wrong person to ask. I believe there are several people on this site who have an opposite opinion and have chosen not to vaccinate. Hopefully they can give some insight. You may want to post this question on the family forum area to get more of a response. L
 

Jackie

New member
<div class="messagetext_container">I posted some messages on the
"newly diagnosed"<br>
<br>
I thought I would come here since some of you are from Canada. My 5
year old had the sweat test done here at the hospital and it came
back at a 51. The doctor said that's only one over what its
supposed to be and that he wants to retest her in 3 months. If in 3
months she tests the same then we would get sent to Vancouver for a
definite test.<br>
<br>
Everything i read on the net says 51 is borderline. But he says no.
So I guess there testing here is different??</div>
 

Jackie

New member
<div class="messagetext_container">I posted some messages on the
"newly diagnosed"<br>
<br>
I thought I would come here since some of you are from Canada. My 5
year old had the sweat test done here at the hospital and it came
back at a 51. The doctor said that's only one over what its
supposed to be and that he wants to retest her in 3 months. If in 3
months she tests the same then we would get sent to Vancouver for a
definite test.<br>
<br>
Everything i read on the net says 51 is borderline. But he says no.
So I guess there testing here is different??</div>
 

Jackie

New member
<div class="messagetext_container">I posted some messages on the
"newly diagnosed"<br>
<br>
I thought I would come here since some of you are from Canada. My 5
year old had the sweat test done here at the hospital and it came
back at a 51. The doctor said that's only one over what its
supposed to be and that he wants to retest her in 3 months. If in 3
months she tests the same then we would get sent to Vancouver for a
definite test.<br>
<br>
Everything i read on the net says 51 is borderline. But he says no.
So I guess there testing here is different??</div>
 

khmommy

New member
I'm in Nova Scotia, Canada. I'm not sure what the numbers were when my 10 year old was diagnosed 6 1/2 years ago, but my 2 year old was tested when she was 2 months old.

They told me that since her numbers were below 50...she does not have CF.
 
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