M
Mommy2Zeke
Guest
Small world! We went to the team for transplant eval last year! He's doing much better now. Is your son on TPN? If he is, is he in the Omegaven trial? That saved my son's liver. He had a Bilirubin of 17 when we got there. He is now at .5.
We didn't end up going through being listed, but they were very close to it. They put Zeke in the intestinal rehab program instead and he has thrived. Dr. Mercer is Zeke's main doc now, but we've seen Dr. Grant and Dr. Botha at times. I hope your son is doing ok. PM me. I would love to hear from another parent who has been through this all.
We didn't end up going through being listed, but they were very close to it. They put Zeke in the intestinal rehab program instead and he has thrived. Dr. Mercer is Zeke's main doc now, but we've seen Dr. Grant and Dr. Botha at times. I hope your son is doing ok. PM me. I would love to hear from another parent who has been through this all.