Anyone had Colistin in an iv?

lightNlife

New member
Colistin needs to be carefully ramped up to the most effective concentration that doesn't have wicked side effects.

My experience with it has been very good in terms of quickly taking care of infection. The side effects although tolerable, were weird.

-metalic taste in mouth (makes the burden of eating enough calories even tougher)

-tingling/numbness of lips and tongue (again, making eating not so fun)

-balance problems (I had a very hard time walking in a straight line and turning corners without swinging so wide I almost fell)

Usually the doctor will stop increasing the dosage concentration at the first onset of the tingly feeling in the lips. The tingly feeling will probably last throughout the course of treatment. My FEV1 improved quite dramatically when I was on the IV form of this medication. I was able to regain more than .5L

As with the other IV antibiotics we take, make sure you drink LOTS of water to keep your kidneys healthy. You might want to throw in some yogurt too to keep C.Diff and yeast infections at bay.
 

lightNlife

New member
Colistin needs to be carefully ramped up to the most effective concentration that doesn't have wicked side effects.

My experience with it has been very good in terms of quickly taking care of infection. The side effects although tolerable, were weird.

-metalic taste in mouth (makes the burden of eating enough calories even tougher)

-tingling/numbness of lips and tongue (again, making eating not so fun)

-balance problems (I had a very hard time walking in a straight line and turning corners without swinging so wide I almost fell)

Usually the doctor will stop increasing the dosage concentration at the first onset of the tingly feeling in the lips. The tingly feeling will probably last throughout the course of treatment. My FEV1 improved quite dramatically when I was on the IV form of this medication. I was able to regain more than .5L

As with the other IV antibiotics we take, make sure you drink LOTS of water to keep your kidneys healthy. You might want to throw in some yogurt too to keep C.Diff and yeast infections at bay.
 

lightNlife

New member
Colistin needs to be carefully ramped up to the most effective concentration that doesn't have wicked side effects.

My experience with it has been very good in terms of quickly taking care of infection. The side effects although tolerable, were weird.

-metalic taste in mouth (makes the burden of eating enough calories even tougher)

-tingling/numbness of lips and tongue (again, making eating not so fun)

-balance problems (I had a very hard time walking in a straight line and turning corners without swinging so wide I almost fell)

Usually the doctor will stop increasing the dosage concentration at the first onset of the tingly feeling in the lips. The tingly feeling will probably last throughout the course of treatment. My FEV1 improved quite dramatically when I was on the IV form of this medication. I was able to regain more than .5L

As with the other IV antibiotics we take, make sure you drink LOTS of water to keep your kidneys healthy. You might want to throw in some yogurt too to keep C.Diff and yeast infections at bay.
 

lightNlife

New member
Colistin needs to be carefully ramped up to the most effective concentration that doesn't have wicked side effects.

My experience with it has been very good in terms of quickly taking care of infection. The side effects although tolerable, were weird.

-metalic taste in mouth (makes the burden of eating enough calories even tougher)

-tingling/numbness of lips and tongue (again, making eating not so fun)

-balance problems (I had a very hard time walking in a straight line and turning corners without swinging so wide I almost fell)

Usually the doctor will stop increasing the dosage concentration at the first onset of the tingly feeling in the lips. The tingly feeling will probably last throughout the course of treatment. My FEV1 improved quite dramatically when I was on the IV form of this medication. I was able to regain more than .5L

As with the other IV antibiotics we take, make sure you drink LOTS of water to keep your kidneys healthy. You might want to throw in some yogurt too to keep C.Diff and yeast infections at bay.
 

lightNlife

New member
Colistin needs to be carefully ramped up to the most effective concentration that doesn't have wicked side effects.
<br />
<br />My experience with it has been very good in terms of quickly taking care of infection. The side effects although tolerable, were weird.
<br />
<br />-metalic taste in mouth (makes the burden of eating enough calories even tougher)
<br />
<br />-tingling/numbness of lips and tongue (again, making eating not so fun)
<br />
<br />-balance problems (I had a very hard time walking in a straight line and turning corners without swinging so wide I almost fell)
<br />
<br />Usually the doctor will stop increasing the dosage concentration at the first onset of the tingly feeling in the lips. The tingly feeling will probably last throughout the course of treatment. My FEV1 improved quite dramatically when I was on the IV form of this medication. I was able to regain more than .5L
<br />
<br />As with the other IV antibiotics we take, make sure you drink LOTS of water to keep your kidneys healthy. You might want to throw in some yogurt too to keep C.Diff and yeast infections at bay.
 

Diane

New member
Thanks for the replies <img src="i/expressions/face-icon-small-smile.gif" border="0">
I myself am noticing some dizziness and tongue numbness. Although the dizziness might be from being on Tobramycin for 4 weeks. If it works and gets me back to where i need to be, then that would be a great thing.
My Dr. took me off of the Tobramycin since it has definitely made my hearing odd like it sometimes does .
 

Diane

New member
Thanks for the replies <img src="i/expressions/face-icon-small-smile.gif" border="0">
I myself am noticing some dizziness and tongue numbness. Although the dizziness might be from being on Tobramycin for 4 weeks. If it works and gets me back to where i need to be, then that would be a great thing.
My Dr. took me off of the Tobramycin since it has definitely made my hearing odd like it sometimes does .
 

Diane

New member
Thanks for the replies <img src="i/expressions/face-icon-small-smile.gif" border="0">
I myself am noticing some dizziness and tongue numbness. Although the dizziness might be from being on Tobramycin for 4 weeks. If it works and gets me back to where i need to be, then that would be a great thing.
My Dr. took me off of the Tobramycin since it has definitely made my hearing odd like it sometimes does .
 

Diane

New member
Thanks for the replies <img src="i/expressions/face-icon-small-smile.gif" border="0">
I myself am noticing some dizziness and tongue numbness. Although the dizziness might be from being on Tobramycin for 4 weeks. If it works and gets me back to where i need to be, then that would be a great thing.
My Dr. took me off of the Tobramycin since it has definitely made my hearing odd like it sometimes does .
 

Diane

New member
Thanks for the replies <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />I myself am noticing some dizziness and tongue numbness. Although the dizziness might be from being on Tobramycin for 4 weeks. If it works and gets me back to where i need to be, then that would be a great thing.
<br />My Dr. took me off of the Tobramycin since it has definitely made my hearing odd like it sometimes does .
 

LGMClark

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Uli</b></i>

I had it mixed wit NaCl both in clinic and in the home-infusion-Balloons.
</end quote></div>

Me too..and the numbness was not only on my face and tongue, but my hands and arms too!

After a week, I stopped it because it seemed like my throat was starting to tighten.

I've heard it works though ... I just didn't stay on it long enough to find out ;-(
 

LGMClark

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Uli</b></i>

I had it mixed wit NaCl both in clinic and in the home-infusion-Balloons.
</end quote></div>

Me too..and the numbness was not only on my face and tongue, but my hands and arms too!

After a week, I stopped it because it seemed like my throat was starting to tighten.

I've heard it works though ... I just didn't stay on it long enough to find out ;-(
 

LGMClark

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Uli</b></i>

I had it mixed wit NaCl both in clinic and in the home-infusion-Balloons.
</end quote></div>

Me too..and the numbness was not only on my face and tongue, but my hands and arms too!

After a week, I stopped it because it seemed like my throat was starting to tighten.

I've heard it works though ... I just didn't stay on it long enough to find out ;-(
 

LGMClark

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Uli</b></i>

I had it mixed wit NaCl both in clinic and in the home-infusion-Balloons.
</end quote>

Me too..and the numbness was not only on my face and tongue, but my hands and arms too!

After a week, I stopped it because it seemed like my throat was starting to tighten.

I've heard it works though ... I just didn't stay on it long enough to find out ;-(
 

LGMClark

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Uli</b></i>
<br />
<br />I had it mixed wit NaCl both in clinic and in the home-infusion-Balloons.
<br /></end quote>
<br />
<br />Me too..and the numbness was not only on my face and tongue, but my hands and arms too!
<br />
<br />After a week, I stopped it because it seemed like my throat was starting to tighten.
<br />
<br />I've heard it works though ... I just didn't stay on it long enough to find out ;-(
 
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