Hi Fiona-
I had frontal sinus obliteration in Christmas of 2003. Up to that point in my life, I had eight regular sinus surgeries and always ended up getting severe pain in my forehead not long after the surgeries. CT revealed frontal sinus involvement. After several attempts to open up my frontal sinus by drilling little holes up the through the nose, I was given the option of frontal sinus obliteration.
After speaking with my doctors (pulmos and ENT) we agreed that this was the best option. For several years prior to this, my lung disease had been worsening due to the constant infection in my frontal sinus dripping into my lungs. My ENT had previously performed a frontal sinus obliteration on a cystic and it changed the whole course of her lung disease...her pfts increased, her pain was gone forever and she never had sinus issues again. My quality of life had really deteriorated due to severe pain (I was taking nine advil a day) for a year and a half and my lungs were beginning to suffer. Exercise was not possible as the pain in my head was excruciating.
There are some serious risks of course, because it is an extensive surgery. They cut you from ear to ear, pull down your scalp to expose the frontal sinuses...I called this my face off surgery<img src="i/expressions/face-icon-small-smile.gif" border="0"> and because I went through this I cannot ever comprehend how people have face lifts!! once the forehead is exposed they cut holes in the bone and literally scoop out your sinuses...they drill them out actually. The trick is to get all of the sinus removed bc if you don't, you can develop a mucus seal. This is what you were talking about when you were saying more infections. These develop when sinus tiisue is left behind and it has no place to grow or drain. They then would have to go in again and scrape the tissue out.
After they remove the sinuses, they fill the space with fat they harvested from my tummy...that actually hurt the most after surgery. This fat eventually calcifies and becomes part of the bone. After filling what used to be the sinus cavity, they put titanium plates over the two holes where they cut into the bone and pull your face back on<img src="i/expressions/face-icon-small-smile.gif" border="0"> and then sew your scalp back together.
This surgery saved my life. Within weeks I was pain free which I hadn't been in years<img src="i/expressions/face-icon-small-smile.gif" border="0"> I did experience some numbness for six months across my scalp...and it itched as the nerves regenerated. My only glitch was that the bones in my forehead remodeled so I had some small indentations on my forehead...I called one my "dent" bc it was obvious. I was an actress so this really concerned me as I did not want any permanent facial issues<img src="i/expressions/face-icon-small-smile.gif" border="0"> My ent sent me to his plastic surgeon who injected it with a permanent filler and now you can't even tell<img src="i/expressions/face-icon-small-smile.gif" border="0">
As far as my sinuses are concerned, my CF doc and ENT agree that this really saved me. Now, my sinuses look better than a normal person WITHOUT CF. My ENT says it was the best decision we ever made for my health.
Since 2003, I have had one sinus infection which was the result of a terrible cold. I have no polyps and no inflammation. I never have morning sinus drainage ever. I wish I would have done it sooner!!!
My doc is one of the leading ENT surgeons in the country. He was trained under the doc who invented this surgery. His name is Bradley Marple at UT Southwestern in Dallas. My only advice to you is make sure that you go to an experienced surgeon who has performed this surgery countless times...
I wish you luck and pray that your test comes back negative<img src="i/expressions/face-icon-small-smile.gif" border="0"> for CF. As far as the surgery goes, it was the best decision I ever made for my health (besides going on glutathione)
Most cystics are born without frontal sinuses bc they never develop...which is why most have never heard of this surgery<img src="i/expressions/face-icon-small-smile.gif" border="0"> Lucky you and lucky me<img src="i/expressions/face-icon-small-smile.gif" border="0">
Take care.
mandy