anyone have a sinus frontal obliteration?

[dramamama]

I forgot to say that because of the way my surgeon braided my hair before surgery (it took him one hour as he insisted on doing this part himself) I lost no hair follicles. yeah!!

They did shave a line, however. When this hair grew back it was curly (as in ringlets) and I have straight normally. For two full years, a had a line of curls from the surgery line... It has finally gone back to normal.

 

[dramamama]

I forgot to say that because of the way my surgeon braided my hair before surgery (it took him one hour as he insisted on doing this part himself) I lost no hair follicles. yeah!!

They did shave a line, however. When this hair grew back it was curly (as in ringlets) and I have straight normally. For two full years, a had a line of curls from the surgery line... It has finally gone back to normal.

 

[dramamama]

I forgot to say that because of the way my surgeon braided my hair before surgery (it took him one hour as he insisted on doing this part himself) I lost no hair follicles. yeah!!

They did shave a line, however. When this hair grew back it was curly (as in ringlets) and I have straight normally. For two full years, a had a line of curls from the surgery line... It has finally gone back to normal.

 

[dramamama]

I forgot to say that because of the way my surgeon braided my hair before surgery (it took him one hour as he insisted on doing this part himself) I lost no hair follicles. yeah!!

They did shave a line, however. When this hair grew back it was curly (as in ringlets) and I have straight normally. For two full years, a had a line of curls from the surgery line... It has finally gone back to normal.

 

[dramamama]

I forgot to say that because of the way my surgeon braided my hair before surgery (it took him one hour as he insisted on doing this part himself) I lost no hair follicles. yeah!!
<br />
<br />They did shave a line, however. When this hair grew back it was curly (as in ringlets) and I have straight normally. For two full years, a had a line of curls from the surgery line... It has finally gone back to normal.

 

[fiona]

Thanks Mandy for this information. I'm to see two more ENT's for their opinion about the frontal obliteration as I always like to have 3 opinions before I make a decision on such a major surgery. Unfortunately, I think it's inevitable. I had the sweat test yesterday, but given my age (49) I doubt it'll show I have CF....I'm probably just a carrier and that would require more extensive genetic bloodwork, which I'm not sure my ins. co. would approve.

How long did the pain from the frontal obliteration last?

Unfortunately, I also have another medical problem I'm having to deal with. I already have had a cervical fusion (2003) and now the MRI's showing I have another herniated disk in my neck. So looks like I may be also facing another fusion along with this potential frontal obliteration. Wish they could do both at the same time but not realistic. Which would you recommend I get done first, if I do , indeed, need both surgeries? Would having the neck fixed first be a good idea?

Thanks for all your help!
Fiona

 

[fiona]

Thanks Mandy for this information. I'm to see two more ENT's for their opinion about the frontal obliteration as I always like to have 3 opinions before I make a decision on such a major surgery. Unfortunately, I think it's inevitable. I had the sweat test yesterday, but given my age (49) I doubt it'll show I have CF....I'm probably just a carrier and that would require more extensive genetic bloodwork, which I'm not sure my ins. co. would approve.

How long did the pain from the frontal obliteration last?

Unfortunately, I also have another medical problem I'm having to deal with. I already have had a cervical fusion (2003) and now the MRI's showing I have another herniated disk in my neck. So looks like I may be also facing another fusion along with this potential frontal obliteration. Wish they could do both at the same time but not realistic. Which would you recommend I get done first, if I do , indeed, need both surgeries? Would having the neck fixed first be a good idea?

Thanks for all your help!
Fiona

 

[fiona]

Thanks Mandy for this information. I'm to see two more ENT's for their opinion about the frontal obliteration as I always like to have 3 opinions before I make a decision on such a major surgery. Unfortunately, I think it's inevitable. I had the sweat test yesterday, but given my age (49) I doubt it'll show I have CF....I'm probably just a carrier and that would require more extensive genetic bloodwork, which I'm not sure my ins. co. would approve.

How long did the pain from the frontal obliteration last?

Unfortunately, I also have another medical problem I'm having to deal with. I already have had a cervical fusion (2003) and now the MRI's showing I have another herniated disk in my neck. So looks like I may be also facing another fusion along with this potential frontal obliteration. Wish they could do both at the same time but not realistic. Which would you recommend I get done first, if I do , indeed, need both surgeries? Would having the neck fixed first be a good idea?

Thanks for all your help!
Fiona

 

[fiona]

Thanks Mandy for this information. I'm to see two more ENT's for their opinion about the frontal obliteration as I always like to have 3 opinions before I make a decision on such a major surgery. Unfortunately, I think it's inevitable. I had the sweat test yesterday, but given my age (49) I doubt it'll show I have CF....I'm probably just a carrier and that would require more extensive genetic bloodwork, which I'm not sure my ins. co. would approve.

How long did the pain from the frontal obliteration last?

Unfortunately, I also have another medical problem I'm having to deal with. I already have had a cervical fusion (2003) and now the MRI's showing I have another herniated disk in my neck. So looks like I may be also facing another fusion along with this potential frontal obliteration. Wish they could do both at the same time but not realistic. Which would you recommend I get done first, if I do , indeed, need both surgeries? Would having the neck fixed first be a good idea?

Thanks for all your help!
Fiona

 

[fiona]

Thanks Mandy for this information. I'm to see two more ENT's for their opinion about the frontal obliteration as I always like to have 3 opinions before I make a decision on such a major surgery. Unfortunately, I think it's inevitable. I had the sweat test yesterday, but given my age (49) I doubt it'll show I have CF....I'm probably just a carrier and that would require more extensive genetic bloodwork, which I'm not sure my ins. co. would approve.
<br />
<br />How long did the pain from the frontal obliteration last?
<br />
<br />Unfortunately, I also have another medical problem I'm having to deal with. I already have had a cervical fusion (2003) and now the MRI's showing I have another herniated disk in my neck. So looks like I may be also facing another fusion along with this potential frontal obliteration. Wish they could do both at the same time but not realistic. Which would you recommend I get done first, if I do , indeed, need both surgeries? Would having the neck fixed first be a good idea?
<br />
<br />Thanks for all your help!
<br />Fiona

 

[PepperKitty]

Please be wary of Frontal obliteration surgery!

I had a sinus obliteration in 2000. I had 9-10 extensive surgeries before that. My sinus problems have always been very painful and disabling. I had to quit public school, and start home schooling in 7th grade because of how sick they made me. My sinuses have literally tried to kill me several times. So when my ENT suggested an obliteration I jumped on it. It was a big mistake!
I had severe complications & I'm still suffering from them. I developed a mucus seal right smack in the middle of my forehead. I look like I have two noses. It grows and shinks with the infection. There was also alot of nerve damage. My forehead pain is worse then ever. I need IV antibiotics about every 2 monthes for 3-6 weeks to treat infections. I'm sorry I had the obliteration it has only caused me more problems.

 

[PepperKitty]

Please be wary of Frontal obliteration surgery!

I had a sinus obliteration in 2000. I had 9-10 extensive surgeries before that. My sinus problems have always been very painful and disabling. I had to quit public school, and start home schooling in 7th grade because of how sick they made me. My sinuses have literally tried to kill me several times. So when my ENT suggested an obliteration I jumped on it. It was a big mistake!
I had severe complications & I'm still suffering from them. I developed a mucus seal right smack in the middle of my forehead. I look like I have two noses. It grows and shinks with the infection. There was also alot of nerve damage. My forehead pain is worse then ever. I need IV antibiotics about every 2 monthes for 3-6 weeks to treat infections. I'm sorry I had the obliteration it has only caused me more problems.

 

[PepperKitty]

Please be wary of Frontal obliteration surgery!

I had a sinus obliteration in 2000. I had 9-10 extensive surgeries before that. My sinus problems have always been very painful and disabling. I had to quit public school, and start home schooling in 7th grade because of how sick they made me. My sinuses have literally tried to kill me several times. So when my ENT suggested an obliteration I jumped on it. It was a big mistake!
I had severe complications & I'm still suffering from them. I developed a mucus seal right smack in the middle of my forehead. I look like I have two noses. It grows and shinks with the infection. There was also alot of nerve damage. My forehead pain is worse then ever. I need IV antibiotics about every 2 monthes for 3-6 weeks to treat infections. I'm sorry I had the obliteration it has only caused me more problems.

 

[PepperKitty]

Please be wary of Frontal obliteration surgery!

I had a sinus obliteration in 2000. I had 9-10 extensive surgeries before that. My sinus problems have always been very painful and disabling. I had to quit public school, and start home schooling in 7th grade because of how sick they made me. My sinuses have literally tried to kill me several times. So when my ENT suggested an obliteration I jumped on it. It was a big mistake!
I had severe complications & I'm still suffering from them. I developed a mucus seal right smack in the middle of my forehead. I look like I have two noses. It grows and shinks with the infection. There was also alot of nerve damage. My forehead pain is worse then ever. I need IV antibiotics about every 2 monthes for 3-6 weeks to treat infections. I'm sorry I had the obliteration it has only caused me more problems.

 

[PepperKitty]

Please be wary of Frontal obliteration surgery!

I had a sinus obliteration in 2000. I had 9-10 extensive surgeries before that. My sinus problems have always been very painful and disabling. I had to quit public school, and start home schooling in 7th grade because of how sick they made me. My sinuses have literally tried to kill me several times. So when my ENT suggested an obliteration I jumped on it. It was a big mistake!
I had severe complications & I'm still suffering from them. I developed a mucus seal right smack in the middle of my forehead. I look like I have two noses. It grows and shinks with the infection. There was also alot of nerve damage. My forehead pain is worse then ever. I need IV antibiotics about every 2 monthes for 3-6 weeks to treat infections. I'm sorry I had the obliteration it has only caused me more problems.

 

[fiona]

PepperKitty: Wow, sorry to hear you've had so many complications from the surgery. I did come across an article on the web that said that 5-10% of the obliterations don't work out and develop the mucocele problems. This article seems to imply that there are corrective measures that surgeons can take to get rid of the problem, however. Is this article wrong? Have they tried any surgical corrective measures with you? How many of these types of surgeries had your ENT previously done? I'm curious as to whether it's the level of skill on the part of the ENT that is the big player here, or if it's the state of our health to begin with (and also affects us after the surgery).

I'm wondering if any of you here on this forum, who are prone to recurrent sinus and/or lung infections, have been tested for Primary Immune Deficiency?? My immunologist, who is a big time researcher in PID, seems to think there may be a genetic link between CF and PID, hence my being tested for CF. Pepperkitty, the infection you keep getting in your sinuses MAY BE (I'm no doctor here) due to the fact that again, I'm saying, maybe, you have PID also. It's simple to get tested for it. If you're interested in more information about the testing, reply here and I'll elaborate. If not, that's okay too. Just don't want to ramble on and bore you folks about the finer details of being tested for PID if you, or no one else is really interested.

 

[fiona]

PepperKitty: Wow, sorry to hear you've had so many complications from the surgery. I did come across an article on the web that said that 5-10% of the obliterations don't work out and develop the mucocele problems. This article seems to imply that there are corrective measures that surgeons can take to get rid of the problem, however. Is this article wrong? Have they tried any surgical corrective measures with you? How many of these types of surgeries had your ENT previously done? I'm curious as to whether it's the level of skill on the part of the ENT that is the big player here, or if it's the state of our health to begin with (and also affects us after the surgery).

I'm wondering if any of you here on this forum, who are prone to recurrent sinus and/or lung infections, have been tested for Primary Immune Deficiency?? My immunologist, who is a big time researcher in PID, seems to think there may be a genetic link between CF and PID, hence my being tested for CF. Pepperkitty, the infection you keep getting in your sinuses MAY BE (I'm no doctor here) due to the fact that again, I'm saying, maybe, you have PID also. It's simple to get tested for it. If you're interested in more information about the testing, reply here and I'll elaborate. If not, that's okay too. Just don't want to ramble on and bore you folks about the finer details of being tested for PID if you, or no one else is really interested.

 

[fiona]

PepperKitty: Wow, sorry to hear you've had so many complications from the surgery. I did come across an article on the web that said that 5-10% of the obliterations don't work out and develop the mucocele problems. This article seems to imply that there are corrective measures that surgeons can take to get rid of the problem, however. Is this article wrong? Have they tried any surgical corrective measures with you? How many of these types of surgeries had your ENT previously done? I'm curious as to whether it's the level of skill on the part of the ENT that is the big player here, or if it's the state of our health to begin with (and also affects us after the surgery).

I'm wondering if any of you here on this forum, who are prone to recurrent sinus and/or lung infections, have been tested for Primary Immune Deficiency?? My immunologist, who is a big time researcher in PID, seems to think there may be a genetic link between CF and PID, hence my being tested for CF. Pepperkitty, the infection you keep getting in your sinuses MAY BE (I'm no doctor here) due to the fact that again, I'm saying, maybe, you have PID also. It's simple to get tested for it. If you're interested in more information about the testing, reply here and I'll elaborate. If not, that's okay too. Just don't want to ramble on and bore you folks about the finer details of being tested for PID if you, or no one else is really interested.

 

[fiona]

PepperKitty: Wow, sorry to hear you've had so many complications from the surgery. I did come across an article on the web that said that 5-10% of the obliterations don't work out and develop the mucocele problems. This article seems to imply that there are corrective measures that surgeons can take to get rid of the problem, however. Is this article wrong? Have they tried any surgical corrective measures with you? How many of these types of surgeries had your ENT previously done? I'm curious as to whether it's the level of skill on the part of the ENT that is the big player here, or if it's the state of our health to begin with (and also affects us after the surgery).

I'm wondering if any of you here on this forum, who are prone to recurrent sinus and/or lung infections, have been tested for Primary Immune Deficiency?? My immunologist, who is a big time researcher in PID, seems to think there may be a genetic link between CF and PID, hence my being tested for CF. Pepperkitty, the infection you keep getting in your sinuses MAY BE (I'm no doctor here) due to the fact that again, I'm saying, maybe, you have PID also. It's simple to get tested for it. If you're interested in more information about the testing, reply here and I'll elaborate. If not, that's okay too. Just don't want to ramble on and bore you folks about the finer details of being tested for PID if you, or no one else is really interested.

 

[fiona]

PepperKitty: Wow, sorry to hear you've had so many complications from the surgery. I did come across an article on the web that said that 5-10% of the obliterations don't work out and develop the mucocele problems. This article seems to imply that there are corrective measures that surgeons can take to get rid of the problem, however. Is this article wrong? Have they tried any surgical corrective measures with you? How many of these types of surgeries had your ENT previously done? I'm curious as to whether it's the level of skill on the part of the ENT that is the big player here, or if it's the state of our health to begin with (and also affects us after the surgery).
<br />
<br />I'm wondering if any of you here on this forum, who are prone to recurrent sinus and/or lung infections, have been tested for Primary Immune Deficiency?? My immunologist, who is a big time researcher in PID, seems to think there may be a genetic link between CF and PID, hence my being tested for CF. Pepperkitty, the infection you keep getting in your sinuses MAY BE (I'm no doctor here) due to the fact that again, I'm saying, maybe, you have PID also. It's simple to get tested for it. If you're interested in more information about the testing, reply here and I'll elaborate. If not, that's okay too. Just don't want to ramble on and bore you folks about the finer details of being tested for PID if you, or no one else is really interested.
<br />
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