Anyone have back pain

I have had back pain for years. The doctors can't seem to figure out what the cause is nor do they want to really check anything more than an X-ray. I started doing my vest again and it aggravates my back. I switched to a new primary and he wants to stop the little bit of meds my old primary gave me. Why is it doctors don't want to find the cause of pain nor treat it. Is it so wrong to want to live a good quality of life and have less pain so I can work full time and be a functional part if society?
 

bloggymom

Member
I started having horrible back pain a few months ago. I went to a spine doctor and he could not find anything wrong. Agree... it is frustrating.
 
They just act like well nothing's wrong. How about exercising. I work 40-48 hours every week, I am on my feet most of the time and don't why away from heavy stuff because it has to get done. The pain is real. I can't sit still watching tv, I shift all the time if we go to the movies. It really sucks! And the only one who may understand are people who have chronic pain. I am a nurse I don't tell my patients well your incision isn't that bad so you shouldn't have that much pain, sucks to be you.
 

LittleLab4CF

Super Moderator
Indeed doctors most often act like nothing is wrong. And they believe it does no harm!

That aside, CFer's pretty much all have back pain. Some of this involves malabsorption of fat soluble nutrients and vitamins. Some of those essential vitamins insure bone calcium is maintained rather than leached from the bones. Organic back pain or pain that has its origin in the bones and structure of the back could easily be arthritis or spinal degeneration.


That all too common kyphosis or humped back is not so much your back protruding as your chest caving in, taking the ribs with it. This is a very justifiable and easily seen back problem. Once the spine is deformed by our lung infections attacking and scarring the back, a lordosis or an exaggerated curvature in the low back can develop to compensate for the upper back and light up everything from your abdomen to the great sciatic nerves going down the legs.

At one time or another, I have dealt with low back pain, pain in the thorasic spine and sciatica so bad I endured about forty, many times the recommended maximum, epidural steroid injections. Without any CF diagnosis in sight, I was always a suspect patient until a bio-feedback technician noticed a pattern where I could think away all the back spasms except for one area on one side. This prompted a wrong but effective treatment of my pare-spinal muscle spasms that wouldn’t shut down. This was done by depolarizing the trigger points. I say it was wrong because the pain was in my large bowel as it turned out. Depolarizing the trigger points in my back helped a great deal and after I addressed my gut issues, one more round of trigger point injections and that part of my back never hurt again.

Back pain unfortunately is a dominant symptom in CF. Most of this back pain is referred pain from areas of the body. The gallbladder, bile ducts and pancreas refer pain to the back, pretty much between the shoulder blades. An observant doctor may be able to tell which organ is causing the referred pain since the gallbladder and pancreas refer pain to slightly different spots. That aside, the organs affected by CF can’t scream so the lungs hurt high in the back to near the base of the ribs. The low back and lumbar spine experience referred pain from the large bowel and the urogenital organs plus most of the gut in one way or another. My point is back pain for Cfer’s easily could be referred from organs and such attacked by CF.

In my experience, that referred pain is just the beginning. The pain is not symmetrical and neither are the muscles in the back. If referred pain causes a muscle spasm in the paraspinal muscles, your stronger side will not spasm less out of fairness. Say, the right side is stronger, this can cause the spine to distort sending the whole back into a losing battle to keep everything upright and balanced. Before long, a few days or years of intra-scapular pain has turned you into a bent crippled person.

If I have any suggestions, I would make certain your back pain can’t be resolved by a cholecystectomy or some other CF issue involving referred pain to the back. Back pain is also a human condition involving most of the population at sometime in their lives so find the best back clinic around and go to back school, or go back to school, whichever.

Sorry you are suffering,

LL
 
Go back to school? Do you mean in reference to working 40-48 hours a week? That is with a degree. I am working as a nurse but the medical expenses are so much even with insurance that to make ends meet I have to work full time. As far as a back clinic what do you suggest I ask my primary to find a back doctor?
 

LittleLab4CF

Super Moderator
Cheerfulpuppies,

Thank you, I needed that. Once again I lost track of somebody’s primary issue. My experience has been very much like yours, especially your simple plea for some pain free time. On one hand it is unconscionable to cause suffering by omitting an essential analgesic, narcotic or otherwise. As a nurse, as an adult you know the perilous road once doctor and patient have agreed on a habit forming pain medicine. A significant number of people have addictive tendencies, I believe to be genetic, but the combination of the propensity toward addiction and genuine unresolved pain often becomes a tug-of-war at the least.

This is where doctors who specialize in pain management come in. I had an exceptional GP for fifteen years when he became so fed up with insurance, he quit practicing. He was sending me off to various specialists that he had been working with and recommended a pain management practice for my chronic back pain. He also suggested I go to Spalding Spine Clinic in Colorado, which included pain management doctors.

I was sent from the pain management doctor to what they called, “Back School”, a service of the spine center. Back School as they do it involves several disciplines. Bio-feedback was one that I already alluded to. I won’t go into everything but in includes back exercise classes, occupational therapy and a host of non-drug ways of dealing with back pain on your own. The pedigree of the doctors included crack neurologists to osteos and coconut specialists and of course pain management doctors. The theory being most people acquire back pain and if anything postural or otherwise correctable without surgery should be addressed first. In truth, it was a world of good for me. It confirmed the places I did have postural back pain and eliminated everything they knew from the rest. This made understanding referred pain a lot easier. Had I not gone through the spine center’s hoo-ha, I might still be doubting the source of certain back pain.

As for your frustration over pain treatment, you are not just speaking to the choir, I direct a small one. The absolute capricious politics of pain management is something I have watched for most of my sixty-three years. Last year the alarm went out after the popular press got wind of the morbidity/mortality statistics involving prescription overdosing. The numbers that came out were saying doctors once again had too many reckless patients, or sometimes the other way around.

The result of this alarm was a systematic evaluation of every patient’s medications, most often the involving the PCP. The new statistics on prescription overdoses include all CII and CIII class drugs in the U.S. Although narcotics mostly fall in these two areas, nearly all medications used in treating mental health issues fall into these groups as well and account for a large portion of the statistics. This is important, but oddly a PCP may have no problem with Xanax, a very habit forming drug but suspend or reduce a little Norco. You won’t suffer anxiety over your pain I guess would be the philosophy. Psychiatrists saw their specialty drugs like Xanax got a going over as well but it hasn’t been so coldly taken away like pain medications.

This is some of the mind set behind your PCP in all probability. Situations like this are exasperating and untenable. If a person is in pain and doesn’t need a bone set or wound sutured, they have to enter into a stupid game now. Doctors are trained to look for drug seeking behavior, something medicine still considers a character weakness. You NEED to seek a drug or treatment for your medical issues and pain can be debilitating. You almost need to seduce the doctor like some predatory spider waiting to spring your trap. Do it wrong and you lose.

LL
 
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