Anyone have dr's who actually call them back?!!!

M

mysterygrl19

New member
I have resistan B Cepacia that nothing will kill off. I have been on IV's since Jan. and end up getting high fevers and bad congestion after a week on the meds. This time I lasted two weeks, and actually got hopefull that things were turning around. My PFT's are finally good enough for them to do sinus surgery. I saw my ENT monday after getting a CT done, and he told me now he doesnt think the surgery will do any good, but would consult with my cf doc (who is all for the surgery) this week.
I call this afternoon after not hearing ANYTHING all week. The nurse said he hasnt gotten to it yet. have to call back monday.
I just started with a 103 fever this evening. here i go again.
 
M

mysterygrl19

New member
I have resistan B Cepacia that nothing will kill off. I have been on IV's since Jan. and end up getting high fevers and bad congestion after a week on the meds. This time I lasted two weeks, and actually got hopefull that things were turning around. My PFT's are finally good enough for them to do sinus surgery. I saw my ENT monday after getting a CT done, and he told me now he doesnt think the surgery will do any good, but would consult with my cf doc (who is all for the surgery) this week.
I call this afternoon after not hearing ANYTHING all week. The nurse said he hasnt gotten to it yet. have to call back monday.
I just started with a 103 fever this evening. here i go again.
 
M

mysterygrl19

New member
I have resistan B Cepacia that nothing will kill off. I have been on IV's since Jan. and end up getting high fevers and bad congestion after a week on the meds. This time I lasted two weeks, and actually got hopefull that things were turning around. My PFT's are finally good enough for them to do sinus surgery. I saw my ENT monday after getting a CT done, and he told me now he doesnt think the surgery will do any good, but would consult with my cf doc (who is all for the surgery) this week.
I call this afternoon after not hearing ANYTHING all week. The nurse said he hasnt gotten to it yet. have to call back monday.
I just started with a 103 fever this evening. here i go again.
 
M

mysterygrl19

New member
I have resistan B Cepacia that nothing will kill off. I have been on IV's since Jan. and end up getting high fevers and bad congestion after a week on the meds. This time I lasted two weeks, and actually got hopefull that things were turning around. My PFT's are finally good enough for them to do sinus surgery. I saw my ENT monday after getting a CT done, and he told me now he doesnt think the surgery will do any good, but would consult with my cf doc (who is all for the surgery) this week.
I call this afternoon after not hearing ANYTHING all week. The nurse said he hasnt gotten to it yet. have to call back monday.
I just started with a 103 fever this evening. here i go again.
 
M

mysterygrl19

New member
I have resistan B Cepacia that nothing will kill off. I have been on IV's since Jan. and end up getting high fevers and bad congestion after a week on the meds. This time I lasted two weeks, and actually got hopefull that things were turning around. My PFT's are finally good enough for them to do sinus surgery. I saw my ENT monday after getting a CT done, and he told me now he doesnt think the surgery will do any good, but would consult with my cf doc (who is all for the surgery) this week.
<br />I call this afternoon after not hearing ANYTHING all week. The nurse said he hasnt gotten to it yet. have to call back monday.
<br />I just started with a 103 fever this evening. here i go again.
 
T

Transplantmommy

New member
I'm sorry that you guys have docs who never call you back.

I have several doctors that do call me back if I call them. My CF doc would always call me back, even if it was a day ot two later. When I found out that I was pregnant, he told me to abort the baby and we had a really long discussion and I got really upset. The next day he actually called me at work to apologize for what he had had to tell me the day before. I also had his cell phone number in case I couldn't reach him at the office and it was an emergency. I hardly ever used it though.

My Tx docs are pretty good at calling me back too. I would think that they would have to be. I actually have my main Tx doctors e-mail address and she normally gets back to me pretty quickly if I e-mail her.

I don't know, I guess I have just been lucky in this aspect.
 
T

Transplantmommy

New member
I'm sorry that you guys have docs who never call you back.

I have several doctors that do call me back if I call them. My CF doc would always call me back, even if it was a day ot two later. When I found out that I was pregnant, he told me to abort the baby and we had a really long discussion and I got really upset. The next day he actually called me at work to apologize for what he had had to tell me the day before. I also had his cell phone number in case I couldn't reach him at the office and it was an emergency. I hardly ever used it though.

My Tx docs are pretty good at calling me back too. I would think that they would have to be. I actually have my main Tx doctors e-mail address and she normally gets back to me pretty quickly if I e-mail her.

I don't know, I guess I have just been lucky in this aspect.
 
T

Transplantmommy

New member
I'm sorry that you guys have docs who never call you back.

I have several doctors that do call me back if I call them. My CF doc would always call me back, even if it was a day ot two later. When I found out that I was pregnant, he told me to abort the baby and we had a really long discussion and I got really upset. The next day he actually called me at work to apologize for what he had had to tell me the day before. I also had his cell phone number in case I couldn't reach him at the office and it was an emergency. I hardly ever used it though.

My Tx docs are pretty good at calling me back too. I would think that they would have to be. I actually have my main Tx doctors e-mail address and she normally gets back to me pretty quickly if I e-mail her.

I don't know, I guess I have just been lucky in this aspect.
 
T

Transplantmommy

New member
I'm sorry that you guys have docs who never call you back.

I have several doctors that do call me back if I call them. My CF doc would always call me back, even if it was a day ot two later. When I found out that I was pregnant, he told me to abort the baby and we had a really long discussion and I got really upset. The next day he actually called me at work to apologize for what he had had to tell me the day before. I also had his cell phone number in case I couldn't reach him at the office and it was an emergency. I hardly ever used it though.

My Tx docs are pretty good at calling me back too. I would think that they would have to be. I actually have my main Tx doctors e-mail address and she normally gets back to me pretty quickly if I e-mail her.

I don't know, I guess I have just been lucky in this aspect.
 
T

Transplantmommy

New member
I'm sorry that you guys have docs who never call you back.
<br />
<br />I have several doctors that do call me back if I call them. My CF doc would always call me back, even if it was a day ot two later. When I found out that I was pregnant, he told me to abort the baby and we had a really long discussion and I got really upset. The next day he actually called me at work to apologize for what he had had to tell me the day before. I also had his cell phone number in case I couldn't reach him at the office and it was an emergency. I hardly ever used it though.
<br />
<br />My Tx docs are pretty good at calling me back too. I would think that they would have to be. I actually have my main Tx doctors e-mail address and she normally gets back to me pretty quickly if I e-mail her.
<br />
<br />I don't know, I guess I have just been lucky in this aspect.
 
C

CountryGirl

New member
Both my CF docs and TX docs always call me back. Usually its the same day, but if not then its definitely the next day. I have all of my doctor's email addresses and one of my CF drs even gave me his beeper number in case of an emergency..I've never used it. I also have a number to call the on call transplant dr for after hours and weekends incase there's an emergency.
 
C

CountryGirl

New member
Both my CF docs and TX docs always call me back. Usually its the same day, but if not then its definitely the next day. I have all of my doctor's email addresses and one of my CF drs even gave me his beeper number in case of an emergency..I've never used it. I also have a number to call the on call transplant dr for after hours and weekends incase there's an emergency.
 
C

CountryGirl

New member
Both my CF docs and TX docs always call me back. Usually its the same day, but if not then its definitely the next day. I have all of my doctor's email addresses and one of my CF drs even gave me his beeper number in case of an emergency..I've never used it. I also have a number to call the on call transplant dr for after hours and weekends incase there's an emergency.
 
C

CountryGirl

New member
Both my CF docs and TX docs always call me back. Usually its the same day, but if not then its definitely the next day. I have all of my doctor's email addresses and one of my CF drs even gave me his beeper number in case of an emergency..I've never used it. I also have a number to call the on call transplant dr for after hours and weekends incase there's an emergency.
 
C

CountryGirl

New member
Both my CF docs and TX docs always call me back. Usually its the same day, but if not then its definitely the next day. I have all of my doctor's email addresses and one of my CF drs even gave me his beeper number in case of an emergency..I've never used it. I also have a number to call the on call transplant dr for after hours and weekends incase there's an emergency.
 
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