dswilson67
New member
Dan has been having alot of pain in his joints. The reumatologist came into see him and they did xrays, and they said it might be HPOA or CFAA. Anyone else have this?
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Anyone have HPOA or CFAA?
- Thread starter dswilson67
- Start date
dswilson67
New member
Dan has been having alot of pain in his joints. The reumatologist came into see him and they did xrays, and they said it might be HPOA or CFAA. Anyone else have this?
dswilson67
New member
Dan has been having alot of pain in his joints. The reumatologist came into see him and they did xrays, and they said it might be HPOA or CFAA. Anyone else have this?
dswilson67
New member
Dan has been having alot of pain in his joints. The reumatologist came into see him and they did xrays, and they said it might be HPOA or CFAA. Anyone else have this?
dswilson67
New member
Dan has been having alot of pain in his joints. The reumatologist came into see him and they did xrays, and they said it might be HPOA or CFAA. Anyone else have this?
<br />
<br />
Hi!,
Poor guy - joint pain can range from annoying to debilitating. Is it constant joint pain, or does he have 'flare-ups' that might even come with a fever?
I don't think there is a whole lot known factually about CF and body/joint pain. I suffered with this for a long time. I used to take a lot of ibuprofen and then started to have problems with coughing up bood. Since ibu is a blood thinner, I couldn't take that anymore. I resorted to tylenol (didnt do much) and when I had bad flare-ups - prednisone or perkacet.
I finally went to a rheumatologist who says I have Still's Disease. She put me on plaquenil (originally a Malaria medication) which has improved my quality of life GREATLY. My CF Doc disagrees with the Still's Disease diagnosis, and still thinks it is a form of CFAA, but does agree with the treatment nonetheless.
Mine kind of progressed from aches and pains, to these flare-ups that could give me a fever of up to 104.
Either way, I really hope he gets relief! Keep us updated...
Kris
26 w/cf
Poor guy - joint pain can range from annoying to debilitating. Is it constant joint pain, or does he have 'flare-ups' that might even come with a fever?
I don't think there is a whole lot known factually about CF and body/joint pain. I suffered with this for a long time. I used to take a lot of ibuprofen and then started to have problems with coughing up bood. Since ibu is a blood thinner, I couldn't take that anymore. I resorted to tylenol (didnt do much) and when I had bad flare-ups - prednisone or perkacet.
I finally went to a rheumatologist who says I have Still's Disease. She put me on plaquenil (originally a Malaria medication) which has improved my quality of life GREATLY. My CF Doc disagrees with the Still's Disease diagnosis, and still thinks it is a form of CFAA, but does agree with the treatment nonetheless.
Mine kind of progressed from aches and pains, to these flare-ups that could give me a fever of up to 104.
Either way, I really hope he gets relief! Keep us updated...
Kris
26 w/cf
Hi!,
Poor guy - joint pain can range from annoying to debilitating. Is it constant joint pain, or does he have 'flare-ups' that might even come with a fever?
I don't think there is a whole lot known factually about CF and body/joint pain. I suffered with this for a long time. I used to take a lot of ibuprofen and then started to have problems with coughing up bood. Since ibu is a blood thinner, I couldn't take that anymore. I resorted to tylenol (didnt do much) and when I had bad flare-ups - prednisone or perkacet.
I finally went to a rheumatologist who says I have Still's Disease. She put me on plaquenil (originally a Malaria medication) which has improved my quality of life GREATLY. My CF Doc disagrees with the Still's Disease diagnosis, and still thinks it is a form of CFAA, but does agree with the treatment nonetheless.
Mine kind of progressed from aches and pains, to these flare-ups that could give me a fever of up to 104.
Either way, I really hope he gets relief! Keep us updated...
Kris
26 w/cf
Poor guy - joint pain can range from annoying to debilitating. Is it constant joint pain, or does he have 'flare-ups' that might even come with a fever?
I don't think there is a whole lot known factually about CF and body/joint pain. I suffered with this for a long time. I used to take a lot of ibuprofen and then started to have problems with coughing up bood. Since ibu is a blood thinner, I couldn't take that anymore. I resorted to tylenol (didnt do much) and when I had bad flare-ups - prednisone or perkacet.
I finally went to a rheumatologist who says I have Still's Disease. She put me on plaquenil (originally a Malaria medication) which has improved my quality of life GREATLY. My CF Doc disagrees with the Still's Disease diagnosis, and still thinks it is a form of CFAA, but does agree with the treatment nonetheless.
Mine kind of progressed from aches and pains, to these flare-ups that could give me a fever of up to 104.
Either way, I really hope he gets relief! Keep us updated...
Kris
26 w/cf
Hi!,
Poor guy - joint pain can range from annoying to debilitating. Is it constant joint pain, or does he have 'flare-ups' that might even come with a fever?
I don't think there is a whole lot known factually about CF and body/joint pain. I suffered with this for a long time. I used to take a lot of ibuprofen and then started to have problems with coughing up bood. Since ibu is a blood thinner, I couldn't take that anymore. I resorted to tylenol (didnt do much) and when I had bad flare-ups - prednisone or perkacet.
I finally went to a rheumatologist who says I have Still's Disease. She put me on plaquenil (originally a Malaria medication) which has improved my quality of life GREATLY. My CF Doc disagrees with the Still's Disease diagnosis, and still thinks it is a form of CFAA, but does agree with the treatment nonetheless.
Mine kind of progressed from aches and pains, to these flare-ups that could give me a fever of up to 104.
Either way, I really hope he gets relief! Keep us updated...
Kris
26 w/cf
Poor guy - joint pain can range from annoying to debilitating. Is it constant joint pain, or does he have 'flare-ups' that might even come with a fever?
I don't think there is a whole lot known factually about CF and body/joint pain. I suffered with this for a long time. I used to take a lot of ibuprofen and then started to have problems with coughing up bood. Since ibu is a blood thinner, I couldn't take that anymore. I resorted to tylenol (didnt do much) and when I had bad flare-ups - prednisone or perkacet.
I finally went to a rheumatologist who says I have Still's Disease. She put me on plaquenil (originally a Malaria medication) which has improved my quality of life GREATLY. My CF Doc disagrees with the Still's Disease diagnosis, and still thinks it is a form of CFAA, but does agree with the treatment nonetheless.
Mine kind of progressed from aches and pains, to these flare-ups that could give me a fever of up to 104.
Either way, I really hope he gets relief! Keep us updated...
Kris
26 w/cf
Hi!,
Poor guy - joint pain can range from annoying to debilitating. Is it constant joint pain, or does he have 'flare-ups' that might even come with a fever?
I don't think there is a whole lot known factually about CF and body/joint pain. I suffered with this for a long time. I used to take a lot of ibuprofen and then started to have problems with coughing up bood. Since ibu is a blood thinner, I couldn't take that anymore. I resorted to tylenol (didnt do much) and when I had bad flare-ups - prednisone or perkacet.
I finally went to a rheumatologist who says I have Still's Disease. She put me on plaquenil (originally a Malaria medication) which has improved my quality of life GREATLY. My CF Doc disagrees with the Still's Disease diagnosis, and still thinks it is a form of CFAA, but does agree with the treatment nonetheless.
Mine kind of progressed from aches and pains, to these flare-ups that could give me a fever of up to 104.
Either way, I really hope he gets relief! Keep us updated...
Kris
26 w/cf
Poor guy - joint pain can range from annoying to debilitating. Is it constant joint pain, or does he have 'flare-ups' that might even come with a fever?
I don't think there is a whole lot known factually about CF and body/joint pain. I suffered with this for a long time. I used to take a lot of ibuprofen and then started to have problems with coughing up bood. Since ibu is a blood thinner, I couldn't take that anymore. I resorted to tylenol (didnt do much) and when I had bad flare-ups - prednisone or perkacet.
I finally went to a rheumatologist who says I have Still's Disease. She put me on plaquenil (originally a Malaria medication) which has improved my quality of life GREATLY. My CF Doc disagrees with the Still's Disease diagnosis, and still thinks it is a form of CFAA, but does agree with the treatment nonetheless.
Mine kind of progressed from aches and pains, to these flare-ups that could give me a fever of up to 104.
Either way, I really hope he gets relief! Keep us updated...
Kris
26 w/cf
Hi!,
<br />
<br />Poor guy - joint pain can range from annoying to debilitating. Is it constant joint pain, or does he have 'flare-ups' that might even come with a fever?
<br />
<br />I don't think there is a whole lot known factually about CF and body/joint pain. I suffered with this for a long time. I used to take a lot of ibuprofen and then started to have problems with coughing up bood. Since ibu is a blood thinner, I couldn't take that anymore. I resorted to tylenol (didnt do much) and when I had bad flare-ups - prednisone or perkacet.
<br />
<br />I finally went to a rheumatologist who says I have Still's Disease. She put me on plaquenil (originally a Malaria medication) which has improved my quality of life GREATLY. My CF Doc disagrees with the Still's Disease diagnosis, and still thinks it is a form of CFAA, but does agree with the treatment nonetheless.
<br />
<br />Mine kind of progressed from aches and pains, to these flare-ups that could give me a fever of up to 104.
<br />
<br />Either way, I really hope he gets relief! Keep us updated...
<br />
<br />Kris
<br />26 w/cf
<br />
<br />Poor guy - joint pain can range from annoying to debilitating. Is it constant joint pain, or does he have 'flare-ups' that might even come with a fever?
<br />
<br />I don't think there is a whole lot known factually about CF and body/joint pain. I suffered with this for a long time. I used to take a lot of ibuprofen and then started to have problems with coughing up bood. Since ibu is a blood thinner, I couldn't take that anymore. I resorted to tylenol (didnt do much) and when I had bad flare-ups - prednisone or perkacet.
<br />
<br />I finally went to a rheumatologist who says I have Still's Disease. She put me on plaquenil (originally a Malaria medication) which has improved my quality of life GREATLY. My CF Doc disagrees with the Still's Disease diagnosis, and still thinks it is a form of CFAA, but does agree with the treatment nonetheless.
<br />
<br />Mine kind of progressed from aches and pains, to these flare-ups that could give me a fever of up to 104.
<br />
<br />Either way, I really hope he gets relief! Keep us updated...
<br />
<br />Kris
<br />26 w/cf
lightNlife
New member
Hi. I was just diagnosed with CFAA a couple months ago. I was told that the flare-ups may coincide with when my lungs are inflamed because of infection. This has proven to be the case. I've been charting my flare-ups along with my Peak Flow and FEV1 (I have a home spirometer) and I see that the three do correlate. I also run a fever when the flare-ups are happening.
I've noticed that the pain and swelling starts in my fingers and progresses from there to knees, then ankles. When I'm at my worst my hips hurt and I can hardly walk but instead hobble around sort of hunched over. Navigating the stairs in my house was torture during those times.
I'm on tramadol for the pain and low dose steroid for the inflammation. So far things are going well and I'm getting the relief I need so that I can actually function. Being in constant pain for so long got old.
I've noticed that the pain and swelling starts in my fingers and progresses from there to knees, then ankles. When I'm at my worst my hips hurt and I can hardly walk but instead hobble around sort of hunched over. Navigating the stairs in my house was torture during those times.
I'm on tramadol for the pain and low dose steroid for the inflammation. So far things are going well and I'm getting the relief I need so that I can actually function. Being in constant pain for so long got old.
lightNlife
New member
Hi. I was just diagnosed with CFAA a couple months ago. I was told that the flare-ups may coincide with when my lungs are inflamed because of infection. This has proven to be the case. I've been charting my flare-ups along with my Peak Flow and FEV1 (I have a home spirometer) and I see that the three do correlate. I also run a fever when the flare-ups are happening.
I've noticed that the pain and swelling starts in my fingers and progresses from there to knees, then ankles. When I'm at my worst my hips hurt and I can hardly walk but instead hobble around sort of hunched over. Navigating the stairs in my house was torture during those times.
I'm on tramadol for the pain and low dose steroid for the inflammation. So far things are going well and I'm getting the relief I need so that I can actually function. Being in constant pain for so long got old.
I've noticed that the pain and swelling starts in my fingers and progresses from there to knees, then ankles. When I'm at my worst my hips hurt and I can hardly walk but instead hobble around sort of hunched over. Navigating the stairs in my house was torture during those times.
I'm on tramadol for the pain and low dose steroid for the inflammation. So far things are going well and I'm getting the relief I need so that I can actually function. Being in constant pain for so long got old.
lightNlife
New member
Hi. I was just diagnosed with CFAA a couple months ago. I was told that the flare-ups may coincide with when my lungs are inflamed because of infection. This has proven to be the case. I've been charting my flare-ups along with my Peak Flow and FEV1 (I have a home spirometer) and I see that the three do correlate. I also run a fever when the flare-ups are happening.
I've noticed that the pain and swelling starts in my fingers and progresses from there to knees, then ankles. When I'm at my worst my hips hurt and I can hardly walk but instead hobble around sort of hunched over. Navigating the stairs in my house was torture during those times.
I'm on tramadol for the pain and low dose steroid for the inflammation. So far things are going well and I'm getting the relief I need so that I can actually function. Being in constant pain for so long got old.
I've noticed that the pain and swelling starts in my fingers and progresses from there to knees, then ankles. When I'm at my worst my hips hurt and I can hardly walk but instead hobble around sort of hunched over. Navigating the stairs in my house was torture during those times.
I'm on tramadol for the pain and low dose steroid for the inflammation. So far things are going well and I'm getting the relief I need so that I can actually function. Being in constant pain for so long got old.
lightNlife
New member
Hi. I was just diagnosed with CFAA a couple months ago. I was told that the flare-ups may coincide with when my lungs are inflamed because of infection. This has proven to be the case. I've been charting my flare-ups along with my Peak Flow and FEV1 (I have a home spirometer) and I see that the three do correlate. I also run a fever when the flare-ups are happening.
I've noticed that the pain and swelling starts in my fingers and progresses from there to knees, then ankles. When I'm at my worst my hips hurt and I can hardly walk but instead hobble around sort of hunched over. Navigating the stairs in my house was torture during those times.
I'm on tramadol for the pain and low dose steroid for the inflammation. So far things are going well and I'm getting the relief I need so that I can actually function. Being in constant pain for so long got old.
I've noticed that the pain and swelling starts in my fingers and progresses from there to knees, then ankles. When I'm at my worst my hips hurt and I can hardly walk but instead hobble around sort of hunched over. Navigating the stairs in my house was torture during those times.
I'm on tramadol for the pain and low dose steroid for the inflammation. So far things are going well and I'm getting the relief I need so that I can actually function. Being in constant pain for so long got old.
lightNlife
New member
Hi. I was just diagnosed with CFAA a couple months ago. I was told that the flare-ups may coincide with when my lungs are inflamed because of infection. This has proven to be the case. I've been charting my flare-ups along with my Peak Flow and FEV1 (I have a home spirometer) and I see that the three do correlate. I also run a fever when the flare-ups are happening.
<br />
<br />I've noticed that the pain and swelling starts in my fingers and progresses from there to knees, then ankles. When I'm at my worst my hips hurt and I can hardly walk but instead hobble around sort of hunched over. Navigating the stairs in my house was torture during those times.
<br />
<br />I'm on tramadol for the pain and low dose steroid for the inflammation. So far things are going well and I'm getting the relief I need so that I can actually function. Being in constant pain for so long got old.
<br />
<br />
<br />I've noticed that the pain and swelling starts in my fingers and progresses from there to knees, then ankles. When I'm at my worst my hips hurt and I can hardly walk but instead hobble around sort of hunched over. Navigating the stairs in my house was torture during those times.
<br />
<br />I'm on tramadol for the pain and low dose steroid for the inflammation. So far things are going well and I'm getting the relief I need so that I can actually function. Being in constant pain for so long got old.
<br />
Wow Kris,
My rheumatologist said the same thing about the Still's Disease. I also would get "flare-ups" and high fevers as well. I also get these little bumps all over...that seem to be hot as well. Its like a rash, but they are raised...and do not itch. They actually are sore to the touch. Unfortunately, I have had it so long, full arthritis has set in. He believes that it also somehow related to the CF. Mine were happening all the time, though...not with just lung infections. I tried plaquenil for a while. It didnt seem to work for me. I have resorted back to prednisone. Although now, as Ive said...I am sore all the time, so I really dont want to be on prednisone all the time. Im due to see the rheumatologist again in a few months. Maybe he will have another suggestion. I felt like I was the only one with this problem...I hate that anyone else does...because I understand the pain. But is also nice to know others understand. Take Care to All!
Dea
35 w/CF
My rheumatologist said the same thing about the Still's Disease. I also would get "flare-ups" and high fevers as well. I also get these little bumps all over...that seem to be hot as well. Its like a rash, but they are raised...and do not itch. They actually are sore to the touch. Unfortunately, I have had it so long, full arthritis has set in. He believes that it also somehow related to the CF. Mine were happening all the time, though...not with just lung infections. I tried plaquenil for a while. It didnt seem to work for me. I have resorted back to prednisone. Although now, as Ive said...I am sore all the time, so I really dont want to be on prednisone all the time. Im due to see the rheumatologist again in a few months. Maybe he will have another suggestion. I felt like I was the only one with this problem...I hate that anyone else does...because I understand the pain. But is also nice to know others understand. Take Care to All!
Dea
35 w/CF
Wow Kris,
My rheumatologist said the same thing about the Still's Disease. I also would get "flare-ups" and high fevers as well. I also get these little bumps all over...that seem to be hot as well. Its like a rash, but they are raised...and do not itch. They actually are sore to the touch. Unfortunately, I have had it so long, full arthritis has set in. He believes that it also somehow related to the CF. Mine were happening all the time, though...not with just lung infections. I tried plaquenil for a while. It didnt seem to work for me. I have resorted back to prednisone. Although now, as Ive said...I am sore all the time, so I really dont want to be on prednisone all the time. Im due to see the rheumatologist again in a few months. Maybe he will have another suggestion. I felt like I was the only one with this problem...I hate that anyone else does...because I understand the pain. But is also nice to know others understand. Take Care to All!
Dea
35 w/CF
My rheumatologist said the same thing about the Still's Disease. I also would get "flare-ups" and high fevers as well. I also get these little bumps all over...that seem to be hot as well. Its like a rash, but they are raised...and do not itch. They actually are sore to the touch. Unfortunately, I have had it so long, full arthritis has set in. He believes that it also somehow related to the CF. Mine were happening all the time, though...not with just lung infections. I tried plaquenil for a while. It didnt seem to work for me. I have resorted back to prednisone. Although now, as Ive said...I am sore all the time, so I really dont want to be on prednisone all the time. Im due to see the rheumatologist again in a few months. Maybe he will have another suggestion. I felt like I was the only one with this problem...I hate that anyone else does...because I understand the pain. But is also nice to know others understand. Take Care to All!
Dea
35 w/CF
Wow Kris,
My rheumatologist said the same thing about the Still's Disease. I also would get "flare-ups" and high fevers as well. I also get these little bumps all over...that seem to be hot as well. Its like a rash, but they are raised...and do not itch. They actually are sore to the touch. Unfortunately, I have had it so long, full arthritis has set in. He believes that it also somehow related to the CF. Mine were happening all the time, though...not with just lung infections. I tried plaquenil for a while. It didnt seem to work for me. I have resorted back to prednisone. Although now, as Ive said...I am sore all the time, so I really dont want to be on prednisone all the time. Im due to see the rheumatologist again in a few months. Maybe he will have another suggestion. I felt like I was the only one with this problem...I hate that anyone else does...because I understand the pain. But is also nice to know others understand. Take Care to All!
Dea
35 w/CF
My rheumatologist said the same thing about the Still's Disease. I also would get "flare-ups" and high fevers as well. I also get these little bumps all over...that seem to be hot as well. Its like a rash, but they are raised...and do not itch. They actually are sore to the touch. Unfortunately, I have had it so long, full arthritis has set in. He believes that it also somehow related to the CF. Mine were happening all the time, though...not with just lung infections. I tried plaquenil for a while. It didnt seem to work for me. I have resorted back to prednisone. Although now, as Ive said...I am sore all the time, so I really dont want to be on prednisone all the time. Im due to see the rheumatologist again in a few months. Maybe he will have another suggestion. I felt like I was the only one with this problem...I hate that anyone else does...because I understand the pain. But is also nice to know others understand. Take Care to All!
Dea
35 w/CF
Wow Kris,
My rheumatologist said the same thing about the Still's Disease. I also would get "flare-ups" and high fevers as well. I also get these little bumps all over...that seem to be hot as well. Its like a rash, but they are raised...and do not itch. They actually are sore to the touch. Unfortunately, I have had it so long, full arthritis has set in. He believes that it also somehow related to the CF. Mine were happening all the time, though...not with just lung infections. I tried plaquenil for a while. It didnt seem to work for me. I have resorted back to prednisone. Although now, as Ive said...I am sore all the time, so I really dont want to be on prednisone all the time. Im due to see the rheumatologist again in a few months. Maybe he will have another suggestion. I felt like I was the only one with this problem...I hate that anyone else does...because I understand the pain. But is also nice to know others understand. Take Care to All!
Dea
35 w/CF
My rheumatologist said the same thing about the Still's Disease. I also would get "flare-ups" and high fevers as well. I also get these little bumps all over...that seem to be hot as well. Its like a rash, but they are raised...and do not itch. They actually are sore to the touch. Unfortunately, I have had it so long, full arthritis has set in. He believes that it also somehow related to the CF. Mine were happening all the time, though...not with just lung infections. I tried plaquenil for a while. It didnt seem to work for me. I have resorted back to prednisone. Although now, as Ive said...I am sore all the time, so I really dont want to be on prednisone all the time. Im due to see the rheumatologist again in a few months. Maybe he will have another suggestion. I felt like I was the only one with this problem...I hate that anyone else does...because I understand the pain. But is also nice to know others understand. Take Care to All!
Dea
35 w/CF
Wow Kris,
<br />My rheumatologist said the same thing about the Still's Disease. I also would get "flare-ups" and high fevers as well. I also get these little bumps all over...that seem to be hot as well. Its like a rash, but they are raised...and do not itch. They actually are sore to the touch. Unfortunately, I have had it so long, full arthritis has set in. He believes that it also somehow related to the CF. Mine were happening all the time, though...not with just lung infections. I tried plaquenil for a while. It didnt seem to work for me. I have resorted back to prednisone. Although now, as Ive said...I am sore all the time, so I really dont want to be on prednisone all the time. Im due to see the rheumatologist again in a few months. Maybe he will have another suggestion. I felt like I was the only one with this problem...I hate that anyone else does...because I understand the pain. But is also nice to know others understand. Take Care to All!
<br />Dea
<br />35 w/CF
<br />My rheumatologist said the same thing about the Still's Disease. I also would get "flare-ups" and high fevers as well. I also get these little bumps all over...that seem to be hot as well. Its like a rash, but they are raised...and do not itch. They actually are sore to the touch. Unfortunately, I have had it so long, full arthritis has set in. He believes that it also somehow related to the CF. Mine were happening all the time, though...not with just lung infections. I tried plaquenil for a while. It didnt seem to work for me. I have resorted back to prednisone. Although now, as Ive said...I am sore all the time, so I really dont want to be on prednisone all the time. Im due to see the rheumatologist again in a few months. Maybe he will have another suggestion. I felt like I was the only one with this problem...I hate that anyone else does...because I understand the pain. But is also nice to know others understand. Take Care to All!
<br />Dea
<br />35 w/CF