Anyone have HPOA or CFAA?

Nightwriter

New member
At one point I had pain in just about every joint plus tendonitis. My doctor said it was Fibromyalgia type pains. She said that with chronic conditions like CF you have a lot of inflammation in the entire body.

I don't know if what I did will work for your son. Especiall considering you are not sure what is causing his joint pain. And if you decide to try any of things, check with your doctor before taking any supplements. Also some are blood thinners.

First, because my level of inflammation was high, I had to reduce it by cleaning up my environment and having a healthy diet. Next, I used some supplements that helped me enormously. It took a lot of trial and error. I'd take them for at least 4 or 5 months, and if it didn't help, I'd move on.

It took me a long time, but my pain is gone. This is what I took and still take:

-- Fish oil (Costco's brand (Kirkland) came out high for no contamination in a Consumer Report article)

---Sometimes I use Fish oil which also has GLA or ALA which are great anti-inflamatories. I use the inexpensive NSI brand which is sold at Vitacost.com which also tested well with Consumer Labs.

--Zyflamend -- a natural Beta Cox inhibitor. Powerful anti-inflammatory with includes Rosemary, Garlic, and Ginger. There has been some very interesting research by Columbia University scientists on this product. You can get it at Whole Foods or discounted at Vitacost.com or The Vitamin Shoppe.

--Glucosomine Condroitin MSM -- This combination worked best for me. I like the NSI brand at Vitacost because the MSM is high -- 800mg. Otherwise you can buy Glucosomine Condroitin and add the MSM. The dosage I take is 1500mg Glucosomine and 1200mg Condroitin per day. It can take up to six months to feel the effect. It actually helps build cartilage.

Another product that works well for some -- SAM-e. I never took it long enough to feel an effect.

Again, please check with your doctor because not all supplements are for all people.
 

Nightwriter

New member
At one point I had pain in just about every joint plus tendonitis. My doctor said it was Fibromyalgia type pains. She said that with chronic conditions like CF you have a lot of inflammation in the entire body.

I don't know if what I did will work for your son. Especiall considering you are not sure what is causing his joint pain. And if you decide to try any of things, check with your doctor before taking any supplements. Also some are blood thinners.

First, because my level of inflammation was high, I had to reduce it by cleaning up my environment and having a healthy diet. Next, I used some supplements that helped me enormously. It took a lot of trial and error. I'd take them for at least 4 or 5 months, and if it didn't help, I'd move on.

It took me a long time, but my pain is gone. This is what I took and still take:

-- Fish oil (Costco's brand (Kirkland) came out high for no contamination in a Consumer Report article)

---Sometimes I use Fish oil which also has GLA or ALA which are great anti-inflamatories. I use the inexpensive NSI brand which is sold at Vitacost.com which also tested well with Consumer Labs.

--Zyflamend -- a natural Beta Cox inhibitor. Powerful anti-inflammatory with includes Rosemary, Garlic, and Ginger. There has been some very interesting research by Columbia University scientists on this product. You can get it at Whole Foods or discounted at Vitacost.com or The Vitamin Shoppe.

--Glucosomine Condroitin MSM -- This combination worked best for me. I like the NSI brand at Vitacost because the MSM is high -- 800mg. Otherwise you can buy Glucosomine Condroitin and add the MSM. The dosage I take is 1500mg Glucosomine and 1200mg Condroitin per day. It can take up to six months to feel the effect. It actually helps build cartilage.

Another product that works well for some -- SAM-e. I never took it long enough to feel an effect.

Again, please check with your doctor because not all supplements are for all people.
 

Nightwriter

New member
At one point I had pain in just about every joint plus tendonitis. My doctor said it was Fibromyalgia type pains. She said that with chronic conditions like CF you have a lot of inflammation in the entire body.

I don't know if what I did will work for your son. Especiall considering you are not sure what is causing his joint pain. And if you decide to try any of things, check with your doctor before taking any supplements. Also some are blood thinners.

First, because my level of inflammation was high, I had to reduce it by cleaning up my environment and having a healthy diet. Next, I used some supplements that helped me enormously. It took a lot of trial and error. I'd take them for at least 4 or 5 months, and if it didn't help, I'd move on.

It took me a long time, but my pain is gone. This is what I took and still take:

-- Fish oil (Costco's brand (Kirkland) came out high for no contamination in a Consumer Report article)

---Sometimes I use Fish oil which also has GLA or ALA which are great anti-inflamatories. I use the inexpensive NSI brand which is sold at Vitacost.com which also tested well with Consumer Labs.

--Zyflamend -- a natural Beta Cox inhibitor. Powerful anti-inflammatory with includes Rosemary, Garlic, and Ginger. There has been some very interesting research by Columbia University scientists on this product. You can get it at Whole Foods or discounted at Vitacost.com or The Vitamin Shoppe.

--Glucosomine Condroitin MSM -- This combination worked best for me. I like the NSI brand at Vitacost because the MSM is high -- 800mg. Otherwise you can buy Glucosomine Condroitin and add the MSM. The dosage I take is 1500mg Glucosomine and 1200mg Condroitin per day. It can take up to six months to feel the effect. It actually helps build cartilage.

Another product that works well for some -- SAM-e. I never took it long enough to feel an effect.

Again, please check with your doctor because not all supplements are for all people.
 

Nightwriter

New member
At one point I had pain in just about every joint plus tendonitis. My doctor said it was Fibromyalgia type pains. She said that with chronic conditions like CF you have a lot of inflammation in the entire body.

I don't know if what I did will work for your son. Especiall considering you are not sure what is causing his joint pain. And if you decide to try any of things, check with your doctor before taking any supplements. Also some are blood thinners.

First, because my level of inflammation was high, I had to reduce it by cleaning up my environment and having a healthy diet. Next, I used some supplements that helped me enormously. It took a lot of trial and error. I'd take them for at least 4 or 5 months, and if it didn't help, I'd move on.

It took me a long time, but my pain is gone. This is what I took and still take:

-- Fish oil (Costco's brand (Kirkland) came out high for no contamination in a Consumer Report article)

---Sometimes I use Fish oil which also has GLA or ALA which are great anti-inflamatories. I use the inexpensive NSI brand which is sold at Vitacost.com which also tested well with Consumer Labs.

--Zyflamend -- a natural Beta Cox inhibitor. Powerful anti-inflammatory with includes Rosemary, Garlic, and Ginger. There has been some very interesting research by Columbia University scientists on this product. You can get it at Whole Foods or discounted at Vitacost.com or The Vitamin Shoppe.

--Glucosomine Condroitin MSM -- This combination worked best for me. I like the NSI brand at Vitacost because the MSM is high -- 800mg. Otherwise you can buy Glucosomine Condroitin and add the MSM. The dosage I take is 1500mg Glucosomine and 1200mg Condroitin per day. It can take up to six months to feel the effect. It actually helps build cartilage.

Another product that works well for some -- SAM-e. I never took it long enough to feel an effect.

Again, please check with your doctor because not all supplements are for all people.
 

Nightwriter

New member
At one point I had pain in just about every joint plus tendonitis. My doctor said it was Fibromyalgia type pains. She said that with chronic conditions like CF you have a lot of inflammation in the entire body.
<br />
<br />I don't know if what I did will work for your son. Especiall considering you are not sure what is causing his joint pain. And if you decide to try any of things, check with your doctor before taking any supplements. Also some are blood thinners.
<br />
<br />First, because my level of inflammation was high, I had to reduce it by cleaning up my environment and having a healthy diet. Next, I used some supplements that helped me enormously. It took a lot of trial and error. I'd take them for at least 4 or 5 months, and if it didn't help, I'd move on.
<br />
<br />It took me a long time, but my pain is gone. This is what I took and still take:
<br />
<br />-- Fish oil (Costco's brand (Kirkland) came out high for no contamination in a Consumer Report article)
<br />
<br />---Sometimes I use Fish oil which also has GLA or ALA which are great anti-inflamatories. I use the inexpensive NSI brand which is sold at Vitacost.com which also tested well with Consumer Labs.
<br />
<br />--Zyflamend -- a natural Beta Cox inhibitor. Powerful anti-inflammatory with includes Rosemary, Garlic, and Ginger. There has been some very interesting research by Columbia University scientists on this product. You can get it at Whole Foods or discounted at Vitacost.com or The Vitamin Shoppe.
<br />
<br />--Glucosomine Condroitin MSM -- This combination worked best for me. I like the NSI brand at Vitacost because the MSM is high -- 800mg. Otherwise you can buy Glucosomine Condroitin and add the MSM. The dosage I take is 1500mg Glucosomine and 1200mg Condroitin per day. It can take up to six months to feel the effect. It actually helps build cartilage.
<br />
<br />Another product that works well for some -- SAM-e. I never took it long enough to feel an effect.
<br />
<br />Again, please check with your doctor because not all supplements are for all people.
 

Dea

New member
Wow, this is an eye opener to me. I have had problems with this since I was about 9...that I can actually remember. I am now 35. It went through phases for a long time where it wouldnt bother me at all. It started back again my senior year in high school. I was out for a week...I got so bad, I couldnt move at all without someone's help. As a young adult it went dormant again. In my late 20's I started on Celebrex...which I took for about 3 years. It helped tremednously up until that last year. I then started to take prednisone on a daily basis because that was the ONLY thing that helped. I took it for many years. Again in my late 20s, I was doing better. Now, over the last couple of years, it is getting worse that it has ever been. It is an everday battle now. Every joint in my body hurts. I have seen a rheumatologist and he said it really is a combination of rheumatoid arthritis and osteoarthritis. It is definitely inflammation. My brother (28 w/CF) also has problems with this although not as severe as mine. I believe because people with CF are living longer, this is going to become more common and something doctors can really look into. Good luck!
Dea 35 w/CF and CFRD and CF related arthritis
 

Dea

New member
Wow, this is an eye opener to me. I have had problems with this since I was about 9...that I can actually remember. I am now 35. It went through phases for a long time where it wouldnt bother me at all. It started back again my senior year in high school. I was out for a week...I got so bad, I couldnt move at all without someone's help. As a young adult it went dormant again. In my late 20's I started on Celebrex...which I took for about 3 years. It helped tremednously up until that last year. I then started to take prednisone on a daily basis because that was the ONLY thing that helped. I took it for many years. Again in my late 20s, I was doing better. Now, over the last couple of years, it is getting worse that it has ever been. It is an everday battle now. Every joint in my body hurts. I have seen a rheumatologist and he said it really is a combination of rheumatoid arthritis and osteoarthritis. It is definitely inflammation. My brother (28 w/CF) also has problems with this although not as severe as mine. I believe because people with CF are living longer, this is going to become more common and something doctors can really look into. Good luck!
Dea 35 w/CF and CFRD and CF related arthritis
 

Dea

New member
Wow, this is an eye opener to me. I have had problems with this since I was about 9...that I can actually remember. I am now 35. It went through phases for a long time where it wouldnt bother me at all. It started back again my senior year in high school. I was out for a week...I got so bad, I couldnt move at all without someone's help. As a young adult it went dormant again. In my late 20's I started on Celebrex...which I took for about 3 years. It helped tremednously up until that last year. I then started to take prednisone on a daily basis because that was the ONLY thing that helped. I took it for many years. Again in my late 20s, I was doing better. Now, over the last couple of years, it is getting worse that it has ever been. It is an everday battle now. Every joint in my body hurts. I have seen a rheumatologist and he said it really is a combination of rheumatoid arthritis and osteoarthritis. It is definitely inflammation. My brother (28 w/CF) also has problems with this although not as severe as mine. I believe because people with CF are living longer, this is going to become more common and something doctors can really look into. Good luck!
Dea 35 w/CF and CFRD and CF related arthritis
 

Dea

New member
Wow, this is an eye opener to me. I have had problems with this since I was about 9...that I can actually remember. I am now 35. It went through phases for a long time where it wouldnt bother me at all. It started back again my senior year in high school. I was out for a week...I got so bad, I couldnt move at all without someone's help. As a young adult it went dormant again. In my late 20's I started on Celebrex...which I took for about 3 years. It helped tremednously up until that last year. I then started to take prednisone on a daily basis because that was the ONLY thing that helped. I took it for many years. Again in my late 20s, I was doing better. Now, over the last couple of years, it is getting worse that it has ever been. It is an everday battle now. Every joint in my body hurts. I have seen a rheumatologist and he said it really is a combination of rheumatoid arthritis and osteoarthritis. It is definitely inflammation. My brother (28 w/CF) also has problems with this although not as severe as mine. I believe because people with CF are living longer, this is going to become more common and something doctors can really look into. Good luck!
Dea 35 w/CF and CFRD and CF related arthritis
 

Dea

New member
Wow, this is an eye opener to me. I have had problems with this since I was about 9...that I can actually remember. I am now 35. It went through phases for a long time where it wouldnt bother me at all. It started back again my senior year in high school. I was out for a week...I got so bad, I couldnt move at all without someone's help. As a young adult it went dormant again. In my late 20's I started on Celebrex...which I took for about 3 years. It helped tremednously up until that last year. I then started to take prednisone on a daily basis because that was the ONLY thing that helped. I took it for many years. Again in my late 20s, I was doing better. Now, over the last couple of years, it is getting worse that it has ever been. It is an everday battle now. Every joint in my body hurts. I have seen a rheumatologist and he said it really is a combination of rheumatoid arthritis and osteoarthritis. It is definitely inflammation. My brother (28 w/CF) also has problems with this although not as severe as mine. I believe because people with CF are living longer, this is going to become more common and something doctors can really look into. Good luck!
<br />Dea 35 w/CF and CFRD and CF related arthritis
 

MicheleGazelle

New member
It occurs to me that it might help folks if I posted this link:
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cfnutrition4life.com/cfnu/readarticle.php?article_id=16">http://www.cfnutrition4life.co...icle.php?article_id=16</a>

It's the story of how I was talking to someone with arthritis (no cf) who was telling me that avoiding acidic foods helped her avoid taking too many anti-inflammatory drugs and that's what got me started on working on my own PH. So to my mind there is a clear relationship between the inflammation of arthritis and the inflammation of CF. And if you can treat that underlying inflammation, you can improve both conditions.
 

MicheleGazelle

New member
It occurs to me that it might help folks if I posted this link:
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cfnutrition4life.com/cfnu/readarticle.php?article_id=16">http://www.cfnutrition4life.co...icle.php?article_id=16</a>

It's the story of how I was talking to someone with arthritis (no cf) who was telling me that avoiding acidic foods helped her avoid taking too many anti-inflammatory drugs and that's what got me started on working on my own PH. So to my mind there is a clear relationship between the inflammation of arthritis and the inflammation of CF. And if you can treat that underlying inflammation, you can improve both conditions.
 

MicheleGazelle

New member
It occurs to me that it might help folks if I posted this link:
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cfnutrition4life.com/cfnu/readarticle.php?article_id=16">http://www.cfnutrition4life.co...icle.php?article_id=16</a>

It's the story of how I was talking to someone with arthritis (no cf) who was telling me that avoiding acidic foods helped her avoid taking too many anti-inflammatory drugs and that's what got me started on working on my own PH. So to my mind there is a clear relationship between the inflammation of arthritis and the inflammation of CF. And if you can treat that underlying inflammation, you can improve both conditions.
 

MicheleGazelle

New member
It occurs to me that it might help folks if I posted this link:
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cfnutrition4life.com/cfnu/readarticle.php?article_id=16">http://www.cfnutrition4life.co...icle.php?article_id=16</a>

It's the story of how I was talking to someone with arthritis (no cf) who was telling me that avoiding acidic foods helped her avoid taking too many anti-inflammatory drugs and that's what got me started on working on my own PH. So to my mind there is a clear relationship between the inflammation of arthritis and the inflammation of CF. And if you can treat that underlying inflammation, you can improve both conditions.
 

MicheleGazelle

New member
It occurs to me that it might help folks if I posted this link:
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.cfnutrition4life.com/cfnu/readarticle.php?article_id=16">http://www.cfnutrition4life.co...icle.php?article_id=16</a>
<br />
<br />It's the story of how I was talking to someone with arthritis (no cf) who was telling me that avoiding acidic foods helped her avoid taking too many anti-inflammatory drugs and that's what got me started on working on my own PH. So to my mind there is a clear relationship between the inflammation of arthritis and the inflammation of CF. And if you can treat that underlying inflammation, you can improve both conditions.
 
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