Anyone have thrush?

vestgirl

New member
I have a patch of white called thrush that forms on my tongue
every now and then. I brush my teeth and I am a clean person.
<img src="i/expressions/face-icon-small-smile.gif" border="0"> How do I get rid of it? I have been told that it is due to CF
related diabetes but I am two points away from having CF
diabetes, so I do not know why I get it or how to get rid
of it. Also I have heard that it forms when you take steroids but I
am not on any advair at the moment or any type of steroids. I have
been told to use swish and swallow. But any other remedies. Any
advice? Thanks <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

blindhearted

New member
I get thrush every now and again. Specially if I'm on antibiotics or doing inhaled TOBI. I dont have diabetes. My doctor Rx me a med called Nystatin. You swish it in our mouth (swallow or spit, whatever ur doc says) a few times a day to get rid of it. It works great. And it doesnt taste bad. Other than that, I dont have any suggestions.
 

Emily65Roses

New member
Yeah you need to see a doc about it. I had it years ago and the doc gave me these little... pills to suck on a few times a day.
 

EnergyGal

New member
I use Biotene mouth wash and I never get Thrush. A transplant patient is prone to Thrush and since I have been using Biotene mouth wash and toothpaste I have a pink tongue. I take my biotene after I use Advair because that can increase your chances of thrush. I take about half of a teaspoon mixed into water and gargle and spit. No swallowing with biotene.

I cannot stand that swish and swallow stuff. It does not work for me.

My doctors allowed me to use my own Biotene when I was in the ICU so they must believe that it works for me.
 

Jane

Digital opinion leader
My kids take acidophilus capsules every day. Thrush is a yeast infection that happens when your good bacteria is out of balance. The Nystatin (swish and swallow) works when thrush appears, but the acidophilus will help keep it away.


<a target=_blank class=ftalternatingbarlinklarge href="http://en.wikipedia.org/wiki/Candidiasis">http://en.wikipedia.org/wiki/Candidiasis</a>
 

EnergyGal

New member
Acidolphilus is great and so is yogurt. I think all of these treatments are great if you are prone to yeast infections such as thrush.
 

coltsfan715

New member
I have gotten thrush several times and have NEVER been told it is caused by CFRD. I have only gotten it when I am on antibiotics. Like Jane said thrush is an over growth of yeast.

I have had 2 different treatments for it when I have it. The first is I have been prescribed Diflucan to take one a day for 7 days straight. I have also been given Mycelex Tablets - take 1 every 4 hours no more than 4 a day.

They both worked well. The tablets tasted kind of citrusy to me - they were not chalky like I had imagined they would be.

I would try to get something for it. I know if I don't get something to treat it right away I end up with a throat so sore I can barely swallow and somewhat losing my voice.

Also - with thrush no matter how hard or often you scrub your tongue with the toothbrush the white stuff will NOT go away. I have tried and have been told by my docs it is a waste of time lol.

Lindsey
 

thelizardqueen

New member
You could try garggling with water and salt. That always works for me. I've been told that thrush is caused by inhaled meds and steroids, not CFRD.
 

anonymous

New member
Some doctors call that thrush, but others do not. I am favoring not calling that thrush. Thrush is when your mouth, tongue, and or throat get red and raw, and becomes sensitive to touch and taste, though more the former than the latter.

It is a form of fungus, like Candida Albicans, or yeast infection, when in taking antibiotics your body loses its pro-biotic bacteria and gives rise to fungus. For me, this usually occurs after a week of oral Zyvox, or at least four days of IV antibiotics. I use not to be so sensitive, where I could be on antibiotics (oral or IV) for two or three weeks and nothing would happen. Though, either as I have aged or as antibiotics have become more powerful, it happens like clock work.

The white stuff is just fine mucus secreted by your tongue. In Asian or Eastern Medicine this represents an excess of mucus and or inflammation. When your lungs are as clear as a bell look at your tongue, and you will find less or no white film/mucus/stuff. And when you are overwhelmed with congestion, you are likely to have thick patches of the white stuff, which might even take on a slightly yellow hue.

The doctors who call that thrush are idiots in my book. You can make your own judgments. The fact that no one has written a limited study simply evaluating this issue or manifestation in CFers and its correlation to congestion or exacerbations surprises me.
 

Scarlett81

New member
You can also get it if you don't wash you mouth out after doing Advair, Pulmicort or some other inhalers. I get it sometimes too if I'm in a rush and forget to tinse.
 

vestgirl

New member
Thank you everyone for all of your advice. My doctor told me that
thrush can form when there is an imbalance of good and bad bacteria
in the mouth, and CFRD because of the sugar particles that form on
the tongue it can form a yeast patch. Seems a little nasty. I have
been told by my Ear, Nose, and Throat doctor to not brush my tongue
because it will kill the good bacteria that fights the bad.<br>
 <br>
I do not like the Nystatin taste so I will look into the other ways
of helping it go away. Either taking a pill or the biotene
toothpaste and mouthwash sounds great. I make sure to eat yogurt
everyday just because of all the meds I'm on anyways, I love
yogurt! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

EnergyGal

New member
let me know if the Biotene products work for you. I use them every single day. I wish I knew about them years ago when my tongue was always white especially during my cycle.
 
L

littlemisssilly

Guest
Hi Jen,

Yes, CFRD or any form of diabetes can cause thrush infections. Elevated blood sugars are known to cause a disturbance of the normal flora causing an over growth of candida leading to thrush. It is particularly true for vaginal thrush as well. Sometimes before some women are finally diagnosed with diabetes (eg Type II) they often report a history of recurrent thrush. This is because their sugars have been elevated for some time without them realising it.

So, it is important to keep an eye on your diabetes if you are experiencing recurrent thrush because it could mean that your blood sugars are higher than what they should be. Hope that helps <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

vestgirl

New member
Risa,<br>
Can I get the Biotene products at Publix? I will let you know how
the Biotene works for me.<br>
<br>
LB,<br>
I have been told by my doctor that I am borderline CFRD and to
watch what I eat, but I have noticed the reoccurring of thrush so
I've been very specific of what I am putting in my mouth and making
sure to stay away from sugar. So even though my blood test have
shown that my pancreas is still producing insulin, I am eating as
though it is not. Is there a way to prevent getting CFRD or is it
inevitable?  
 
L

littlemisssilly

Guest
Hi Jen,

Good on you for watching your carb intake. Keeping refined / simple sugars to a minimum will certainly reduce the strain on your pancreas. Simple sugars have almost always a high glyceamic intake, which means that they are absorbed into your blood stream really quickly and cause a rapid rise in your blood sugar levels, therefore your pancreas has to work harder to produce enough insulin and quickly to cope with the demand.

Remember though that carbs are carbs, whether they come from simple sugars or wholergrain breads / pastas etc. Eventhough you are avoiding simple sugars, which is great <img src="i/expressions/face-icon-small-smile.gif" border="0"> You still be eating foods with high carb loading, like breads, rice, pasta without realising the impact they still have on your blood sugars.

I suppose given that CF is progressive and the damage to the organs is progressive, I'm guessing that CFRD may not be able to be avoided BUT it can certainly be managed and better controlled than people with classic Type I and Type II diabetes. Like you said, most people with CFRD still produce insulin to varying degrees, just not enough, this means that CFers often require less insulin to manage their diabetes and are less prone to go into what's called ketoacidosis (which is very serious).

I've had CFRD since I was 19 and was commenced on insulin straight away more so because CFers need to have a high calorie intake. Carbs are very important sources of fuel for the body especially the brain, in fact, our brains only function on glucose, so if you're finding that you are restricting your carbs too much and still having higher than normal sugars, your doctor may recommend insulin in the future. It sounds really stressful, but once you get the hang of it, you have much more freedom with your food intake (I always have to watch my carb intake but I adjust my insulin accordingly), you put on weight easier, are less prone to infections (because your sugars are stable), the list goes on.

As for Candida in the lungs. People normally carry Candida in their mouths (and ladies in their vagina) as part of the normal flora, it's only when the fungus has an opportunity to grow out of control do the symptoms of thrush appear. I have noticed that some members on this site have cultured Candida in their sputum, I'm not sure how they responded to treatment and if they cultured it all the time, so I guess it is possible for the Candida to spread to the lungs. I'd imagine it would be treatable with anti-fungals.

Lastly, have you been on prednisone lately? Steroids suppress the immune system and allow for opportunistic infections like thrush to occur.
Sorry about the long post.... I got carried away!
 

princessjdc

New member
I use to get thrush, sometimes it would get bad and the doc would prescribe me diflucan. Thrush LOVES sugar. I Love to chew gum and every time I chewed Thrush would appear, and my solution was chew sugarless gum, and that has fixed my thrush problem. Also Im on Advair so I rinse my mouth with water after each use. Im a sugar freak, but as long as I rinse my mouth then Im always fine, gum was the only problem I had with my thrush.
 

EnergyGal

New member
I buy Biotene at Walmart or Walgreens. I do not know if they carry it at Publix but I would imagine they might. You can probably buy it from their website. I would google it up and see what you find.

Currently I use their mouthwash twice daily along with their toothpaste. They have other products too.
 

EnergyGal

New member
<a target=_blank class=ftalternatingbarlinklarge href="http://www.drugstore.com/templates/brand/default.asp?brand=1780&aid=336064&aparam=xsp76973
">http://www.drugstore.com/templ...36064&aparam=xsp76973
</a>
Here is a link to check out. I forgot how much I pay for Biotene.
it is not cheap at all but to me it is worth every penny. I dilute my biotene with water so it lasts a lot longer. Always keep the cap closed because their are enzymes in the bottle. I always shake it up before each use.

Pink Tongue and no more dry cotton mouth. Gone with Biotene. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Lance2020x

New member
I've never heard it be related to CFRD, ever. I don't have CFRD, and I get thrush when ever I'm put on DS Bactrum, or any other kind of strong oral med. I get it on the roof of my mouth though... never my tongue. I dunno, water helps me a little, but it doesn't bother me until it starts to get sore from the loss of skin. I just deal with it.
 
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