anyone know what happened

[douglaslang85]

I was wondering how many people can say what happened when their pfts or fev 1 levels dropped and they never got them back up...
Wondering what happened if you could share your story...

Was it treatments
was it food
was it doctors
was it a cold
anything...

thanks

 

[douglaslang85]

I was wondering how many people can say what happened when their pfts or fev 1 levels dropped and they never got them back up...
Wondering what happened if you could share your story...

Was it treatments
was it food
was it doctors
was it a cold
anything...

thanks

 

[douglaslang85]

I was wondering how many people can say what happened when their pfts or fev 1 levels dropped and they never got them back up...
Wondering what happened if you could share your story...

Was it treatments
was it food
was it doctors
was it a cold
anything...

thanks

 

[douglaslang85]

I was wondering how many people can say what happened when their pfts or fev 1 levels dropped and they never got them back up...
Wondering what happened if you could share your story...

Was it treatments
was it food
was it doctors
was it a cold
anything...

thanks

 

[douglaslang85]

I was wondering how many people can say what happened when their pfts or fev 1 levels dropped and they never got them back up...
Wondering what happened if you could share your story...

Was it treatments
was it food
was it doctors
was it a cold
anything...

thanks

 

[douglaslang85]

I was wondering how many people can say what happened when their pfts or fev 1 levels dropped and they never got them back up...
Wondering what happened if you could share your story...

Was it treatments
was it food
was it doctors
was it a cold
anything...

thanks

 

[NoExcuses]

I personally haven't had a huge drop ever, but many things can cause a drop in FEV1.

A cold, allergies, massive hemoptasis (sp?), lung infection (this causes permanent damange to the lungs that cannot be regained), pneumothorax, etc.

 

[NoExcuses]

I personally haven't had a huge drop ever, but many things can cause a drop in FEV1.

A cold, allergies, massive hemoptasis (sp?), lung infection (this causes permanent damange to the lungs that cannot be regained), pneumothorax, etc.

 

[NoExcuses]

I personally haven't had a huge drop ever, but many things can cause a drop in FEV1.

A cold, allergies, massive hemoptasis (sp?), lung infection (this causes permanent damange to the lungs that cannot be regained), pneumothorax, etc.

 

[NoExcuses]

I personally haven't had a huge drop ever, but many things can cause a drop in FEV1.

A cold, allergies, massive hemoptasis (sp?), lung infection (this causes permanent damange to the lungs that cannot be regained), pneumothorax, etc.

 

[NoExcuses]

I personally haven't had a huge drop ever, but many things can cause a drop in FEV1.

A cold, allergies, massive hemoptasis (sp?), lung infection (this causes permanent damange to the lungs that cannot be regained), pneumothorax, etc.

 

[NoExcuses]

I personally haven't had a huge drop ever, but many things can cause a drop in FEV1.

A cold, allergies, massive hemoptasis (sp?), lung infection (this causes permanent damange to the lungs that cannot be regained), pneumothorax, etc.

 

[CowTown]

I pretty much know exactly what got me and took me from 78% one year to 36% the next. One nice big fat drop that I've only been able to come back up 10% from.

For me it was a mycobacterium that decided to rear it's head and kick my butt. I had had the bug for 8 years (or so by that time), but it wasn't doing anything to me up until it wanted to. It took a while to determine if my quick dropping FEV1 was due to normal CF progression or something more. Finally I hit 36% we started the heavy duty cocktail list. Lung damage was done, but at least I was able to stop the progression at that point. I've been able to maintain my FEV1s and go up 10% like I mentioned.

That was my story. Mycobacteriums can be very complicated and use very powerful meds to treat. You do'nt want to take those drugs unless you really need to, b/c serious side effects can happen as well. You end up choose one evil over another sometimes. Anyways.....very happy we stopped the little beast in it's tracks.

 

[CowTown]

I pretty much know exactly what got me and took me from 78% one year to 36% the next. One nice big fat drop that I've only been able to come back up 10% from.

For me it was a mycobacterium that decided to rear it's head and kick my butt. I had had the bug for 8 years (or so by that time), but it wasn't doing anything to me up until it wanted to. It took a while to determine if my quick dropping FEV1 was due to normal CF progression or something more. Finally I hit 36% we started the heavy duty cocktail list. Lung damage was done, but at least I was able to stop the progression at that point. I've been able to maintain my FEV1s and go up 10% like I mentioned.

That was my story. Mycobacteriums can be very complicated and use very powerful meds to treat. You do'nt want to take those drugs unless you really need to, b/c serious side effects can happen as well. You end up choose one evil over another sometimes. Anyways.....very happy we stopped the little beast in it's tracks.

 

[CowTown]

I pretty much know exactly what got me and took me from 78% one year to 36% the next. One nice big fat drop that I've only been able to come back up 10% from.

For me it was a mycobacterium that decided to rear it's head and kick my butt. I had had the bug for 8 years (or so by that time), but it wasn't doing anything to me up until it wanted to. It took a while to determine if my quick dropping FEV1 was due to normal CF progression or something more. Finally I hit 36% we started the heavy duty cocktail list. Lung damage was done, but at least I was able to stop the progression at that point. I've been able to maintain my FEV1s and go up 10% like I mentioned.

That was my story. Mycobacteriums can be very complicated and use very powerful meds to treat. You do'nt want to take those drugs unless you really need to, b/c serious side effects can happen as well. You end up choose one evil over another sometimes. Anyways.....very happy we stopped the little beast in it's tracks.

 

[CowTown]

I pretty much know exactly what got me and took me from 78% one year to 36% the next. One nice big fat drop that I've only been able to come back up 10% from.

For me it was a mycobacterium that decided to rear it's head and kick my butt. I had had the bug for 8 years (or so by that time), but it wasn't doing anything to me up until it wanted to. It took a while to determine if my quick dropping FEV1 was due to normal CF progression or something more. Finally I hit 36% we started the heavy duty cocktail list. Lung damage was done, but at least I was able to stop the progression at that point. I've been able to maintain my FEV1s and go up 10% like I mentioned.

That was my story. Mycobacteriums can be very complicated and use very powerful meds to treat. You do'nt want to take those drugs unless you really need to, b/c serious side effects can happen as well. You end up choose one evil over another sometimes. Anyways.....very happy we stopped the little beast in it's tracks.

 

[CowTown]

I pretty much know exactly what got me and took me from 78% one year to 36% the next. One nice big fat drop that I've only been able to come back up 10% from.

For me it was a mycobacterium that decided to rear it's head and kick my butt. I had had the bug for 8 years (or so by that time), but it wasn't doing anything to me up until it wanted to. It took a while to determine if my quick dropping FEV1 was due to normal CF progression or something more. Finally I hit 36% we started the heavy duty cocktail list. Lung damage was done, but at least I was able to stop the progression at that point. I've been able to maintain my FEV1s and go up 10% like I mentioned.

That was my story. Mycobacteriums can be very complicated and use very powerful meds to treat. You do'nt want to take those drugs unless you really need to, b/c serious side effects can happen as well. You end up choose one evil over another sometimes. Anyways.....very happy we stopped the little beast in it's tracks.

 

[CowTown]

I pretty much know exactly what got me and took me from 78% one year to 36% the next. One nice big fat drop that I've only been able to come back up 10% from.

For me it was a mycobacterium that decided to rear it's head and kick my butt. I had had the bug for 8 years (or so by that time), but it wasn't doing anything to me up until it wanted to. It took a while to determine if my quick dropping FEV1 was due to normal CF progression or something more. Finally I hit 36% we started the heavy duty cocktail list. Lung damage was done, but at least I was able to stop the progression at that point. I've been able to maintain my FEV1s and go up 10% like I mentioned.

That was my story. Mycobacteriums can be very complicated and use very powerful meds to treat. You do'nt want to take those drugs unless you really need to, b/c serious side effects can happen as well. You end up choose one evil over another sometimes. Anyways.....very happy we stopped the little beast in it's tracks.

 

[douglaslang85]

This might be stupid but do you know how you got Mycobacteriums ( I know its infection in the lungs, but I didnt know if you knew what age or how long before you went to the hospital) Or did it just show up in your culture one day...thanks

 

[douglaslang85]

This might be stupid but do you know how you got Mycobacteriums ( I know its infection in the lungs, but I didnt know if you knew what age or how long before you went to the hospital) Or did it just show up in your culture one day...thanks