So, as I've posted in some other areas on this site already, we decided to pursue CF testing for our 3-year old daughter this month due to family history, never-ending respiratory "infections", salty skin and digestive issues. Despite the signs and symptoms, her pediatrician acted like I'm just an overly-worried parent and that he would be "very surprised" if the test came back positive. I really don't think she has it either because she was screened as a newborn and everthing was normal and yet she has these symptoms that aren't going away and if anything seem to be getting worse. Anyway, I just had to vent, because wouldn't you think a pediatrician would want to figure out what's going on and with her symtoms wouldn't CF be one of the first things that came to mind?!! Well, crazy parent or not, I'm relieved the test has been ordered and that we'll know (at least about whether she has CF) before the end of the year.
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an alternative browser.
You should upgrade or use an alternative browser.
Arrg!
- Thread starter hhildema
- Start date
So, as I've posted in some other areas on this site already, we decided to pursue CF testing for our 3-year old daughter this month due to family history, never-ending respiratory "infections", salty skin and digestive issues. Despite the signs and symptoms, her pediatrician acted like I'm just an overly-worried parent and that he would be "very surprised" if the test came back positive. I really don't think she has it either because she was screened as a newborn and everthing was normal and yet she has these symptoms that aren't going away and if anything seem to be getting worse. Anyway, I just had to vent, because wouldn't you think a pediatrician would want to figure out what's going on and with her symtoms wouldn't CF be one of the first things that came to mind?!! Well, crazy parent or not, I'm relieved the test has been ordered and that we'll know (at least about whether she has CF) before the end of the year.
So, as I've posted in some other areas on this site already, we decided to pursue CF testing for our 3-year old daughter this month due to family history, never-ending respiratory "infections", salty skin and digestive issues. Despite the signs and symptoms, her pediatrician acted like I'm just an overly-worried parent and that he would be "very surprised" if the test came back positive. I really don't think she has it either because she was screened as a newborn and everthing was normal and yet she has these symptoms that aren't going away and if anything seem to be getting worse. Anyway, I just had to vent, because wouldn't you think a pediatrician would want to figure out what's going on and with her symtoms wouldn't CF be one of the first things that came to mind?!! Well, crazy parent or not, I'm relieved the test has been ordered and that we'll know (at least about whether she has CF) before the end of the year.
You are doing the right thing by advocating for your child. You are for sure NOT the only parent who has dealt with (what sounds like) an ignorant pediatrician. There is no reason why you shouldn't test considering what you've mentioned.
out of curiosity, is she having a sweat test or a genetic test? And if she's having a genetic test, do you know through which company?
Keep us posted on the results,
out of curiosity, is she having a sweat test or a genetic test? And if she's having a genetic test, do you know through which company?
Keep us posted on the results,
You are doing the right thing by advocating for your child. You are for sure NOT the only parent who has dealt with (what sounds like) an ignorant pediatrician. There is no reason why you shouldn't test considering what you've mentioned.
out of curiosity, is she having a sweat test or a genetic test? And if she's having a genetic test, do you know through which company?
Keep us posted on the results,
out of curiosity, is she having a sweat test or a genetic test? And if she's having a genetic test, do you know through which company?
Keep us posted on the results,
You are doing the right thing by advocating for your child. You are for sure NOT the only parent who has dealt with (what sounds like) an ignorant pediatrician. There is no reason why you shouldn't test considering what you've mentioned.
out of curiosity, is she having a sweat test or a genetic test? And if she's having a genetic test, do you know through which company?
Keep us posted on the results,
out of curiosity, is she having a sweat test or a genetic test? And if she's having a genetic test, do you know through which company?
Keep us posted on the results,
M
Mommafirst
Guest
Lots of pediatricians don't really know as much about CF as one would think they should. Our pediatrician kept saying she didn't think my daughter could possibly have CF saying, "She looks too healthy". It is frustrating!!! I hope you get some answers!!
M
Mommafirst
Guest
Lots of pediatricians don't really know as much about CF as one would think they should. Our pediatrician kept saying she didn't think my daughter could possibly have CF saying, "She looks too healthy". It is frustrating!!! I hope you get some answers!!
M
Mommafirst
Guest
Lots of pediatricians don't really know as much about CF as one would think they should. Our pediatrician kept saying she didn't think my daughter could possibly have CF saying, "She looks too healthy". It is frustrating!!! I hope you get some answers!!
We decided to not proceed w/ genetic testing until the sweat test results come back. We understand there's no such thing as a false-positive sweat test so we wouldn't need to do genetic testing if the sweat test is positive. What we're really hoping for is a negative sweat test, at which time we'd request genetic testing b/c from what I understand there can be false-negative sweat tests and I'm the type of person who needs to know for sure. It would also be nice to know whether she's carrier (if she doesn't have CF) since it's likely I'm a carrier. With this scare we'd also like my husband to get tested but need to check into how much it costs, which company is the most reliable, whether our insurance will cover it, etc. Any helpful hints, recommendations, etc would be appreciated. Thanks!
We decided to not proceed w/ genetic testing until the sweat test results come back. We understand there's no such thing as a false-positive sweat test so we wouldn't need to do genetic testing if the sweat test is positive. What we're really hoping for is a negative sweat test, at which time we'd request genetic testing b/c from what I understand there can be false-negative sweat tests and I'm the type of person who needs to know for sure. It would also be nice to know whether she's carrier (if she doesn't have CF) since it's likely I'm a carrier. With this scare we'd also like my husband to get tested but need to check into how much it costs, which company is the most reliable, whether our insurance will cover it, etc. Any helpful hints, recommendations, etc would be appreciated. Thanks!
We decided to not proceed w/ genetic testing until the sweat test results come back. We understand there's no such thing as a false-positive sweat test so we wouldn't need to do genetic testing if the sweat test is positive. What we're really hoping for is a negative sweat test, at which time we'd request genetic testing b/c from what I understand there can be false-negative sweat tests and I'm the type of person who needs to know for sure. It would also be nice to know whether she's carrier (if she doesn't have CF) since it's likely I'm a carrier. With this scare we'd also like my husband to get tested but need to check into how much it costs, which company is the most reliable, whether our insurance will cover it, etc. Any helpful hints, recommendations, etc would be appreciated. Thanks!