Hey everyone...well i am getting a mickey button soon on Tuesday....and i have some questions about it.....like how far does it stick out and is it noticeable? Umm....like does it leak alot and are there any suggestions for that kind of stuff....thanx....! Well since i am getting a boyfriend i dunno how to explain this...i dunno if he knows i hace cf yet so...what to do?
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ASAP...Please....mickey button feeding tube and other!
- Thread starter anonymous
- Start date
falloutboygurl16
New member
Hey...sorry everyone...that was me who posted this!!! LOL! yepp!
Hi,
My daughter has a mickey button and it sticks out a little. You can notice a little bulge if she is wearing a tight fitting shirt. If you layer a couple of shirts you really don't notice it. She can wear a two peice bathing suit (tankini top) and it covers it completly!
The only time it leaks is when she disconnects it from the pump. It never has leaked during the day.
Good luck! Hope this helps.
Susanna
My daughter has a mickey button and it sticks out a little. You can notice a little bulge if she is wearing a tight fitting shirt. If you layer a couple of shirts you really don't notice it. She can wear a two peice bathing suit (tankini top) and it covers it completly!
The only time it leaks is when she disconnects it from the pump. It never has leaked during the day.
Good luck! Hope this helps.
Susanna
falloutboygurl16
New member
ooh it is a feeding tube...there is stages u go through to get a button and well you get this thing that is alot smaller than the actual feeding tube....i really wish i could get mine out!!!
Homechic101
New member
<img src="i/expressions/moon.gif" border="0"> Hi im 12 goin on 13 and i have had a mikey button since i was four. it sticks out a little and you can only notice it if you are wearing a very tight shirt. it doesnt leak that much enless it is gettin two small. if you have any more questions just ask. my email and instant message is Homechic101 or Homechic101@aim.com ANd bout your boyfriend tell him that you love him and make him say it back then just tell him bout CF and tell him that you have it . Then tell him that you are gettin a mikey button. And if he really loves you he will understand and just help and support you through it.
falloutboygurl16
New member
Thanx so much!
Its not that noticable... I have know people with them and never really noticed it until they pointed it out... and your boyfreind dont worry about it.. if he really likes you then he wont care... I do nto have CF but my boyfreind dose, and i realize that if you love someone a little thing like the feeding tube wont matter <img src="i/expressions/face-icon-small-smile.gif" border="0"> you will be fine sweety... think of it as a fun new accesory lol... <img src="i/expressions/face-icon-small-smile.gif" border="0">
<3
carolynn
<3
carolynn
Its not that noticable... I have know people with them and never really noticed it until they pointed it out... and your boyfreind dont worry about it.. if he really likes you then he wont care... I do nto have CF but my boyfreind dose, and i realize that if you love someone a little thing like the feeding tube wont matter <img src="i/expressions/face-icon-small-smile.gif" border="0"> you will be fine sweety... think of it as a fun new accesory lol... <img src="i/expressions/face-icon-small-smile.gif" border="0">
<3
carolynn
<3
carolynn
It sticks some and yesh it leaks, i found out that i couldnt wear white tees ebcause of the leakage. it sticks out about not even a inch. To the boyfriend, i dunno i never actually had aboyfriend when i had my mickey my boyfriends were more like best friends then anything.plus the kids just thought it was kool to look at....I had mine for 11 years and i had it taken out a few years ago. andyesh its a bit noticable .
It sticks some and yesh it leaks, i found out that i couldnt wear white tees ebcause of the leakage. it sticks out about not even a inch. To the boyfriend, i dunno i never actually had aboyfriend when i had my mickey my boyfriends were more like best friends then anything.plus the kids just thought it was kool to look at....I had mine for 11 years and i had it taken out a few years ago. andyesh its a bit noticable .
me? at that time i was about 11 and he was about that age too. But now my fiance knows about the whole thing and is very understanding about the tenderness of my belly. I am always paranoid if someone touches it bc one year they went to measure how deep the whole was and the jerk of a doctor jerked it out without deflating the balloon all the way..he messed up my back and stomach for a full month. But not all docs are that dumb dont let that scare ya.
me? at that time i was about 11 and he was about that age too. But now my fiance knows about the whole thing and is very understanding about the tenderness of my belly. I am always paranoid if someone touches it bc one year they went to measure how deep the whole was and the jerk of a doctor jerked it out without deflating the balloon all the way..he messed up my back and stomach for a full month. But not all docs are that dumb dont let that scare ya.
falloutboygurl16
New member
my boyfriend is 15 and i am 16...17 in a month YAY!
falloutboygurl16
New member
my boyfriend is 15 and i am 16...17 in a month YAY!
Hi,
My two boys (14 and 10) have had G-tubes for two years. They have the Bard style which is flatter than the Mic-key style button. It does stick out a little, but not bad. They both swim and play basketball with no problem. They usually keep a big bandaid over the button when playing (mostly because they don't want people to see it). There are pros and cons with both styles.
The Bard is put in during surgery with a one-step process and stays in place using a flat sponge on the inside of the stomach. It has to be replaced with another surgery. For the Mic-key, a tube is put in first and when the site heals it is replaced with a button. It stays in place with a small balloon that can be deflated to remove.
The Bard has a lower profile which is why my kids chose it. It has a rubber flap with a tip that closes the hole. When hooking up the feeding tube, we need to tape the connection because it DOES come apart in the night. The Mic-key has a twist connection so that this doesn't happen. One of my kids has had problems with his Bard, some leaking, some granulation tissue and a replacement. The other kid has had NO problem at all.
We weren't really given a choice whether or not to do the g-tubes. We really feel that we were pressured a little. It came at a very stressful time when both boys had been hospitalized and were pretty sick. It was very emotional for us. I'm glad you were given time to mull over your decision and to do ask questions. Looking back, it was probably for the best, but I wish it was handled in a different way. It does add a lot more to our daily routine, but both kids have gained weight so it's worth it. Another good thing is that if they need to take bad-tasting medicine or need an extra cup of fluid, we can just put it through the tube.
Good luck with your decision!
Jane
My two boys (14 and 10) have had G-tubes for two years. They have the Bard style which is flatter than the Mic-key style button. It does stick out a little, but not bad. They both swim and play basketball with no problem. They usually keep a big bandaid over the button when playing (mostly because they don't want people to see it). There are pros and cons with both styles.
The Bard is put in during surgery with a one-step process and stays in place using a flat sponge on the inside of the stomach. It has to be replaced with another surgery. For the Mic-key, a tube is put in first and when the site heals it is replaced with a button. It stays in place with a small balloon that can be deflated to remove.
The Bard has a lower profile which is why my kids chose it. It has a rubber flap with a tip that closes the hole. When hooking up the feeding tube, we need to tape the connection because it DOES come apart in the night. The Mic-key has a twist connection so that this doesn't happen. One of my kids has had problems with his Bard, some leaking, some granulation tissue and a replacement. The other kid has had NO problem at all.
We weren't really given a choice whether or not to do the g-tubes. We really feel that we were pressured a little. It came at a very stressful time when both boys had been hospitalized and were pretty sick. It was very emotional for us. I'm glad you were given time to mull over your decision and to do ask questions. Looking back, it was probably for the best, but I wish it was handled in a different way. It does add a lot more to our daily routine, but both kids have gained weight so it's worth it. Another good thing is that if they need to take bad-tasting medicine or need an extra cup of fluid, we can just put it through the tube.
Good luck with your decision!
Jane
Hi,
My two boys (14 and 10) have had G-tubes for two years. They have the Bard style which is flatter than the Mic-key style button. It does stick out a little, but not bad. They both swim and play basketball with no problem. They usually keep a big bandaid over the button when playing (mostly because they don't want people to see it). There are pros and cons with both styles.
The Bard is put in during surgery with a one-step process and stays in place using a flat sponge on the inside of the stomach. It has to be replaced with another surgery. For the Mic-key, a tube is put in first and when the site heals it is replaced with a button. It stays in place with a small balloon that can be deflated to remove.
The Bard has a lower profile which is why my kids chose it. It has a rubber flap with a tip that closes the hole. When hooking up the feeding tube, we need to tape the connection because it DOES come apart in the night. The Mic-key has a twist connection so that this doesn't happen. One of my kids has had problems with his Bard, some leaking, some granulation tissue and a replacement. The other kid has had NO problem at all.
We weren't really given a choice whether or not to do the g-tubes. We really feel that we were pressured a little. It came at a very stressful time when both boys had been hospitalized and were pretty sick. It was very emotional for us. I'm glad you were given time to mull over your decision and to do ask questions. Looking back, it was probably for the best, but I wish it was handled in a different way. It does add a lot more to our daily routine, but both kids have gained weight so it's worth it. Another good thing is that if they need to take bad-tasting medicine or need an extra cup of fluid, we can just put it through the tube.
Good luck with your decision!
Jane
My two boys (14 and 10) have had G-tubes for two years. They have the Bard style which is flatter than the Mic-key style button. It does stick out a little, but not bad. They both swim and play basketball with no problem. They usually keep a big bandaid over the button when playing (mostly because they don't want people to see it). There are pros and cons with both styles.
The Bard is put in during surgery with a one-step process and stays in place using a flat sponge on the inside of the stomach. It has to be replaced with another surgery. For the Mic-key, a tube is put in first and when the site heals it is replaced with a button. It stays in place with a small balloon that can be deflated to remove.
The Bard has a lower profile which is why my kids chose it. It has a rubber flap with a tip that closes the hole. When hooking up the feeding tube, we need to tape the connection because it DOES come apart in the night. The Mic-key has a twist connection so that this doesn't happen. One of my kids has had problems with his Bard, some leaking, some granulation tissue and a replacement. The other kid has had NO problem at all.
We weren't really given a choice whether or not to do the g-tubes. We really feel that we were pressured a little. It came at a very stressful time when both boys had been hospitalized and were pretty sick. It was very emotional for us. I'm glad you were given time to mull over your decision and to do ask questions. Looking back, it was probably for the best, but I wish it was handled in a different way. It does add a lot more to our daily routine, but both kids have gained weight so it's worth it. Another good thing is that if they need to take bad-tasting medicine or need an extra cup of fluid, we can just put it through the tube.
Good luck with your decision!
Jane