lalasmomallie
New member
Hi Steve. We're one of those families in limbo and awaiting genetic test results. We will be having another sweat test next Thusday but in the meantime I had a question regarding the panels that were ordered for our daughter. I am very thankful that all we had to do was ask our ped for the test however I am concerned that he may not have ordered the <b>full</b> screening. The ped nurse called me at home and said that the hospital couldn't send off the sample to you guys without a more detailed order written. (So she was asking me what it was!) Anyway, I described what I had read on this site and she said she would take care of it. Needless to say this wasn't very reassuring. We've been playing the "Let's-hurry-up-and-wait-game" for over a year now. Also, I have found out that our daughter may be more likely a carrier for CF because of my husbands Jewish ancestry. (My father in law came over from Russia. ) Also we may have CF on my side of the family but I do not have all the information at this time. (It would have been my grandmothers sister and a first cousin as well) Anyway, I was wondering if there was a more common mutation in Ashkenazi Jews with cf. Is there anything else we should be doing at this time or will our orders be sufficient? Thanks so much for your help.