Asia's cheque up

A

AleksandraKaczynska

New member
When Asia was a todler she started to have small, not relevant, changes in lungs. For 5 years they where unchanged. Today, at a cheque up, we learned that they are much more small - best present ever.
[FONT=Helvetica, Arial, lucida grande, tahoma, verdana, arial, sans-serif]We do not have Kalydeco. [/FONT]
 
A

AleksandraKaczynska

New member
Thank you :) Even her cf doctor said she has a reason to celebrate :) even though she had to tell new parent about diagnosis - it turned out fine - cause they where still in the room when we where alllowed in and they heard about big performances, school and saw a happy girl :)
 
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