Asking for testing... UPDATE in first post

[zoe4life]

Asking for testing...

I have to agree with everyone else. I was stupid. My ped. told me the same thing yours is telling you. Don't listen to them. If your gut instinct tells you to have them tested, do it. Tell them you want the test done. I didn't do what my gut instinct told me, listened to my ped., and zoe suffered. She wasn't diagnosed until she was a year old. Do what your gut tells you.

 

[zoe4life]

Asking for testing...

I have to agree with everyone else. I was stupid. My ped. told me the same thing yours is telling you. Don't listen to them. If your gut instinct tells you to have them tested, do it. Tell them you want the test done. I didn't do what my gut instinct told me, listened to my ped., and zoe suffered. She wasn't diagnosed until she was a year old. Do what your gut tells you.

 

[zoe4life]

Asking for testing...

I have to agree with everyone else. I was stupid. My ped. told me the same thing yours is telling you. Don't listen to them. If your gut instinct tells you to have them tested, do it. Tell them you want the test done. I didn't do what my gut instinct told me, listened to my ped., and zoe suffered. She wasn't diagnosed until she was a year old. Do what your gut tells you.

 

[zoe4life]

Asking for testing...

I have to agree with everyone else. I was stupid. My ped. told me the same thing yours is telling you. Don't listen to them. If your gut instinct tells you to have them tested, do it. Tell them you want the test done. I didn't do what my gut instinct told me, listened to my ped., and zoe suffered. She wasn't diagnosed until she was a year old. Do what your gut tells you.

 

[zoe4life]

Asking for testing...

I have to agree with everyone else. I was stupid. My ped. told me the same thing yours is telling you. Don't listen to them. If your gut instinct tells you to have them tested, do it. Tell them you want the test done. I didn't do what my gut instinct told me, listened to my ped., and zoe suffered. She wasn't diagnosed until she was a year old. Do what your gut tells you.

 

[JORDYSMOM]

Asking for testing...

As everyone else has said, get the test. Your doctor is definitely not up to date on CF. My son is 6' tall!! He has CF. He has never been dx with FTT. Tell the doctor that you want the full panel Ambry genetic test, and do not take no for an answer. You are your child's advocate. If your doc had to look up CF in a book to tell you about it, she doesn't know enough about it to advise anyone. That's not to say that she's not a good doctor, it just means that CF is not her specialty.

You are here looking for answers on your own, and I commend you for that. Listen to your mommy instinct. It's rarely wrong. I wish you the best, and I hope you will keep us posted on what happens.

Stacey

 

[JORDYSMOM]

Asking for testing...

As everyone else has said, get the test. Your doctor is definitely not up to date on CF. My son is 6' tall!! He has CF. He has never been dx with FTT. Tell the doctor that you want the full panel Ambry genetic test, and do not take no for an answer. You are your child's advocate. If your doc had to look up CF in a book to tell you about it, she doesn't know enough about it to advise anyone. That's not to say that she's not a good doctor, it just means that CF is not her specialty.

You are here looking for answers on your own, and I commend you for that. Listen to your mommy instinct. It's rarely wrong. I wish you the best, and I hope you will keep us posted on what happens.

Stacey

 

[JORDYSMOM]

Asking for testing...

As everyone else has said, get the test. Your doctor is definitely not up to date on CF. My son is 6' tall!! He has CF. He has never been dx with FTT. Tell the doctor that you want the full panel Ambry genetic test, and do not take no for an answer. You are your child's advocate. If your doc had to look up CF in a book to tell you about it, she doesn't know enough about it to advise anyone. That's not to say that she's not a good doctor, it just means that CF is not her specialty.

You are here looking for answers on your own, and I commend you for that. Listen to your mommy instinct. It's rarely wrong. I wish you the best, and I hope you will keep us posted on what happens.

Stacey

 

[JORDYSMOM]

Asking for testing...

As everyone else has said, get the test. Your doctor is definitely not up to date on CF. My son is 6' tall!! He has CF. He has never been dx with FTT. Tell the doctor that you want the full panel Ambry genetic test, and do not take no for an answer. You are your child's advocate. If your doc had to look up CF in a book to tell you about it, she doesn't know enough about it to advise anyone. That's not to say that she's not a good doctor, it just means that CF is not her specialty.

You are here looking for answers on your own, and I commend you for that. Listen to your mommy instinct. It's rarely wrong. I wish you the best, and I hope you will keep us posted on what happens.

Stacey

 

[JORDYSMOM]

Asking for testing...

As everyone else has said, get the test. Your doctor is definitely not up to date on CF. My son is 6' tall!! He has CF. He has never been dx with FTT. Tell the doctor that you want the full panel Ambry genetic test, and do not take no for an answer. You are your child's advocate. If your doc had to look up CF in a book to tell you about it, she doesn't know enough about it to advise anyone. That's not to say that she's not a good doctor, it just means that CF is not her specialty.
<br />
<br />You are here looking for answers on your own, and I commend you for that. Listen to your mommy instinct. It's rarely wrong. I wish you the best, and I hope you will keep us posted on what happens.
<br />
<br />Stacey