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Aspergillus
- Thread starter blindhearted
- Start date
OMG! Reading your post, I might have thought you were talking about me. When they told me back in August that the reason 3 months of IVs didn't work was because I had an infection that was "very difficult to treat". That being aspergillus. I seriously had NEVER heard of that, I was completely dumbfounded and depressed. I was admitted to hospital again, and treated with antibiotics, improved, but only for a short while. My IGE levels suggested that I may allergic to aspergillus (ABPA), but they did skin allergy tests that suggested I (mildly) was. Still, they believe that other combined factors suggest an ABPA diagnosis. I have since started taking anti-fungals, and am dreading the prednisone that may follow. All I know is I feel worse than ever in my life, the onset seemed quite quick (I went from 80% Fev1 to 35% in a matter of months), and it is affecting me tremendously. I, like you, cough till I feel my eyes might bulge out, I can't eat, I'm nauseous. And, I can not seem to get much info from the "experts". Can you tell I'm bitter? I would love to hear from you and hear how you are doing.
Kelly
Kelly
OMG! Reading your post, I might have thought you were talking about me. When they told me back in August that the reason 3 months of IVs didn't work was because I had an infection that was "very difficult to treat". That being aspergillus. I seriously had NEVER heard of that, I was completely dumbfounded and depressed. I was admitted to hospital again, and treated with antibiotics, improved, but only for a short while. My IGE levels suggested that I may allergic to aspergillus (ABPA), but they did skin allergy tests that suggested I (mildly) was. Still, they believe that other combined factors suggest an ABPA diagnosis. I have since started taking anti-fungals, and am dreading the prednisone that may follow. All I know is I feel worse than ever in my life, the onset seemed quite quick (I went from 80% Fev1 to 35% in a matter of months), and it is affecting me tremendously. I, like you, cough till I feel my eyes might bulge out, I can't eat, I'm nauseous. And, I can not seem to get much info from the "experts". Can you tell I'm bitter? I would love to hear from you and hear how you are doing.
Kelly
Kelly
OMG! Reading your post, I might have thought you were talking about me. When they told me back in August that the reason 3 months of IVs didn't work was because I had an infection that was "very difficult to treat". That being aspergillus. I seriously had NEVER heard of that, I was completely dumbfounded and depressed. I was admitted to hospital again, and treated with antibiotics, improved, but only for a short while. My IGE levels suggested that I may allergic to aspergillus (ABPA), but they did skin allergy tests that suggested I (mildly) was. Still, they believe that other combined factors suggest an ABPA diagnosis. I have since started taking anti-fungals, and am dreading the prednisone that may follow. All I know is I feel worse than ever in my life, the onset seemed quite quick (I went from 80% Fev1 to 35% in a matter of months), and it is affecting me tremendously. I, like you, cough till I feel my eyes might bulge out, I can't eat, I'm nauseous. And, I can not seem to get much info from the "experts". Can you tell I'm bitter? I would love to hear from you and hear how you are doing.
Kelly
Kelly
OMG! Reading your post, I might have thought you were talking about me. When they told me back in August that the reason 3 months of IVs didn't work was because I had an infection that was "very difficult to treat". That being aspergillus. I seriously had NEVER heard of that, I was completely dumbfounded and depressed. I was admitted to hospital again, and treated with antibiotics, improved, but only for a short while. My IGE levels suggested that I may allergic to aspergillus (ABPA), but they did skin allergy tests that suggested I (mildly) was. Still, they believe that other combined factors suggest an ABPA diagnosis. I have since started taking anti-fungals, and am dreading the prednisone that may follow. All I know is I feel worse than ever in my life, the onset seemed quite quick (I went from 80% Fev1 to 35% in a matter of months), and it is affecting me tremendously. I, like you, cough till I feel my eyes might bulge out, I can't eat, I'm nauseous. And, I can not seem to get much info from the "experts". Can you tell I'm bitter? I would love to hear from you and hear how you are doing.
Kelly
Kelly
OMG! Reading your post, I might have thought you were talking about me. When they told me back in August that the reason 3 months of IVs didn't work was because I had an infection that was "very difficult to treat". That being aspergillus. I seriously had NEVER heard of that, I was completely dumbfounded and depressed. I was admitted to hospital again, and treated with antibiotics, improved, but only for a short while. My IGE levels suggested that I may allergic to aspergillus (ABPA), but they did skin allergy tests that suggested I (mildly) was. Still, they believe that other combined factors suggest an ABPA diagnosis. I have since started taking anti-fungals, and am dreading the prednisone that may follow. All I know is I feel worse than ever in my life, the onset seemed quite quick (I went from 80% Fev1 to 35% in a matter of months), and it is affecting me tremendously. I, like you, cough till I feel my eyes might bulge out, I can't eat, I'm nauseous. And, I can not seem to get much info from the "experts". Can you tell I'm bitter? I would love to hear from you and hear how you are doing.
<br />Kelly
<br />
<br />Kelly
<br />
My 8 yo cultures aspergillous the majority of the time and he is allergic to it. He has really high levels of it the number 16000 comes to mind, the doc had never seeen such high numbers, he now is crusing around 9000 which is still really high but seems to be the norm for him. Health wise is does not seem to affect him at all. Frankly he loves the oral antibiotics for it because he has to have it with coke or orange juice in the morning and being the softy that I am he has coke. His really really high spike coincides with him having Psydomonus (sp?) for the first time too - but the doc assured us it was two seperate things. Aspergillus is everywhere but especially in mulch, dirt, potting mix and tan bark dust, so we keep him away from all those things.
When he was first diagnosed with it we were in the middle of landscaping our garden with all new fresh soil and heaps of tea tree mulch. Didn't we feel like the worst parents ever!!
When he was first diagnosed with it we were in the middle of landscaping our garden with all new fresh soil and heaps of tea tree mulch. Didn't we feel like the worst parents ever!!
My 8 yo cultures aspergillous the majority of the time and he is allergic to it. He has really high levels of it the number 16000 comes to mind, the doc had never seeen such high numbers, he now is crusing around 9000 which is still really high but seems to be the norm for him. Health wise is does not seem to affect him at all. Frankly he loves the oral antibiotics for it because he has to have it with coke or orange juice in the morning and being the softy that I am he has coke. His really really high spike coincides with him having Psydomonus (sp?) for the first time too - but the doc assured us it was two seperate things. Aspergillus is everywhere but especially in mulch, dirt, potting mix and tan bark dust, so we keep him away from all those things.
When he was first diagnosed with it we were in the middle of landscaping our garden with all new fresh soil and heaps of tea tree mulch. Didn't we feel like the worst parents ever!!
When he was first diagnosed with it we were in the middle of landscaping our garden with all new fresh soil and heaps of tea tree mulch. Didn't we feel like the worst parents ever!!
My 8 yo cultures aspergillous the majority of the time and he is allergic to it. He has really high levels of it the number 16000 comes to mind, the doc had never seeen such high numbers, he now is crusing around 9000 which is still really high but seems to be the norm for him. Health wise is does not seem to affect him at all. Frankly he loves the oral antibiotics for it because he has to have it with coke or orange juice in the morning and being the softy that I am he has coke. His really really high spike coincides with him having Psydomonus (sp?) for the first time too - but the doc assured us it was two seperate things. Aspergillus is everywhere but especially in mulch, dirt, potting mix and tan bark dust, so we keep him away from all those things.
When he was first diagnosed with it we were in the middle of landscaping our garden with all new fresh soil and heaps of tea tree mulch. Didn't we feel like the worst parents ever!!
When he was first diagnosed with it we were in the middle of landscaping our garden with all new fresh soil and heaps of tea tree mulch. Didn't we feel like the worst parents ever!!
My 8 yo cultures aspergillous the majority of the time and he is allergic to it. He has really high levels of it the number 16000 comes to mind, the doc had never seeen such high numbers, he now is crusing around 9000 which is still really high but seems to be the norm for him. Health wise is does not seem to affect him at all. Frankly he loves the oral antibiotics for it because he has to have it with coke or orange juice in the morning and being the softy that I am he has coke. His really really high spike coincides with him having Psydomonus (sp?) for the first time too - but the doc assured us it was two seperate things. Aspergillus is everywhere but especially in mulch, dirt, potting mix and tan bark dust, so we keep him away from all those things.
When he was first diagnosed with it we were in the middle of landscaping our garden with all new fresh soil and heaps of tea tree mulch. Didn't we feel like the worst parents ever!!
When he was first diagnosed with it we were in the middle of landscaping our garden with all new fresh soil and heaps of tea tree mulch. Didn't we feel like the worst parents ever!!
My 8 yo cultures aspergillous the majority of the time and he is allergic to it. He has really high levels of it the number 16000 comes to mind, the doc had never seeen such high numbers, he now is crusing around 9000 which is still really high but seems to be the norm for him. Health wise is does not seem to affect him at all. Frankly he loves the oral antibiotics for it because he has to have it with coke or orange juice in the morning and being the softy that I am he has coke. His really really high spike coincides with him having Psydomonus (sp?) for the first time too - but the doc assured us it was two seperate things. Aspergillus is everywhere but especially in mulch, dirt, potting mix and tan bark dust, so we keep him away from all those things.
<br />
<br />When he was first diagnosed with it we were in the middle of landscaping our garden with all new fresh soil and heaps of tea tree mulch. Didn't we feel like the worst parents ever!!
<br />
<br />When he was first diagnosed with it we were in the middle of landscaping our garden with all new fresh soil and heaps of tea tree mulch. Didn't we feel like the worst parents ever!!