J
jrotier
Guest
<BR>Thank you everyone! I will be going to my clinic in a few weeks, and now I have something to bring to them!
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The only thing I really grow is aspergillus and I do NOT have APBA, and I am treated for that with 200 mg of Voriconizonle (V-Fend) twice a day.
I don't think you need to have APBA to get treated - aspergillus can be very dangerous if not treated regardless if it's an allergy or not. I had to have my upper right lobe of my lung removed b/c I had a nectarine sized fungus ball hanging out up there that the antifungals couldn't reach and they most likely would not consider me for transplant unless the fungal ball was gone.
Maybe one argument is that for patients who have already been transplanted, Voriconizole is on the list of must-take drugs, because aspergillus can quickly invade the lung and cause infection (I won't get into the details). Aspergillus can also be different types - Opportunistic versus Invasive - so depending what is going on in your lung, this would be something to consider. I would not think leaving this untreated would be an option. I would push your doctor to try Itricanizole or V-Fend if you're culturing out aspergillus.
CFF also says that use of antifungals reduce long term risk. See: http://www.cff.org/LivingWithCF/StayingHealthy/Germs/ABPA/
I don't think you need to have APBA to get treated - aspergillus can be very dangerous if not treated regardless if it's an allergy or not. I had to have my upper right lobe of my lung removed b/c I had a nectarine sized fungus ball hanging out up there that the antifungals couldn't reach and they most likely would not consider me for transplant unless the fungal ball was gone.
Maybe one argument is that for patients who have already been transplanted, Voriconizole is on the list of must-take drugs, because aspergillus can quickly invade the lung and cause infection (I won't get into the details). Aspergillus can also be different types - Opportunistic versus Invasive - so depending what is going on in your lung, this would be something to consider. I would not think leaving this untreated would be an option. I would push your doctor to try Itricanizole or V-Fend if you're culturing out aspergillus.
CFF also says that use of antifungals reduce long term risk. See: http://www.cff.org/LivingWithCF/StayingHealthy/Germs/ABPA/
The only thing I really grow is aspergillus and I do NOT have APBA, and I am treated for that with 200 mg of Voriconizonle (V-Fend) twice a day.
I don't think you need to have APBA to get treated - aspergillus can be very dangerous if not treated regardless if it's an allergy or not. I had to have my upper right lobe of my lung removed b/c I had a nectarine sized fungus ball hanging out up there that the antifungals couldn't reach and they most likely would not consider me for transplant unless the fungal ball was gone.
Maybe one argument is that for patients who have already been transplanted, Voriconizole is on the list of must-take drugs, because aspergillus can quickly invade the lung and cause infection (I won't get into the details). Aspergillus can also be different types - Opportunistic versus Invasive - so depending what is going on in your lung, this would be something to consider. I would not think leaving this untreated would be an option. I would push your doctor to try Itricanizole or V-Fend if you're culturing out aspergillus.
CFF also says that use of antifungals reduce long term risk. See: http://www.cff.org/LivingWithCF/StayingHealthy/Germs/ABPA/
I don't think you need to have APBA to get treated - aspergillus can be very dangerous if not treated regardless if it's an allergy or not. I had to have my upper right lobe of my lung removed b/c I had a nectarine sized fungus ball hanging out up there that the antifungals couldn't reach and they most likely would not consider me for transplant unless the fungal ball was gone.
Maybe one argument is that for patients who have already been transplanted, Voriconizole is on the list of must-take drugs, because aspergillus can quickly invade the lung and cause infection (I won't get into the details). Aspergillus can also be different types - Opportunistic versus Invasive - so depending what is going on in your lung, this would be something to consider. I would not think leaving this untreated would be an option. I would push your doctor to try Itricanizole or V-Fend if you're culturing out aspergillus.
CFF also says that use of antifungals reduce long term risk. See: http://www.cff.org/LivingWithCF/StayingHealthy/Germs/ABPA/
The only thing I really grow is aspergillus and I do NOT have APBA, and I am treated for that with 200 mg of Voriconizonle (V-Fend) twice a day.
<br />
<br />I don't think you need to have APBA to get treated - aspergillus can be very dangerous if not treated regardless if it's an allergy or not. I had to have my upper right lobe of my lung removed b/c I had a nectarine sized fungus ball hanging out up there that the antifungals couldn't reach and they most likely would not consider me for transplant unless the fungal ball was gone.
<br />
<br />Maybe one argument is that for patients who have already been transplanted, Voriconizole is on the list of must-take drugs, because aspergillus can quickly invade the lung and cause infection (I won't get into the details). Aspergillus can also be different types - Opportunistic versus Invasive - so depending what is going on in your lung, this would be something to consider. I would not think leaving this untreated would be an option. I would push your doctor to try Itricanizole or V-Fend if you're culturing out aspergillus.
<br />
<br />CFF also says that use of antifungals reduce long term risk. See: http://www.cff.org/LivingWithCF/StayingHealthy/Germs/ABPA/
<br />
<br />I don't think you need to have APBA to get treated - aspergillus can be very dangerous if not treated regardless if it's an allergy or not. I had to have my upper right lobe of my lung removed b/c I had a nectarine sized fungus ball hanging out up there that the antifungals couldn't reach and they most likely would not consider me for transplant unless the fungal ball was gone.
<br />
<br />Maybe one argument is that for patients who have already been transplanted, Voriconizole is on the list of must-take drugs, because aspergillus can quickly invade the lung and cause infection (I won't get into the details). Aspergillus can also be different types - Opportunistic versus Invasive - so depending what is going on in your lung, this would be something to consider. I would not think leaving this untreated would be an option. I would push your doctor to try Itricanizole or V-Fend if you're culturing out aspergillus.
<br />
<br />CFF also says that use of antifungals reduce long term risk. See: http://www.cff.org/LivingWithCF/StayingHealthy/Germs/ABPA/