Assistance in California

[anonymous]

I was wondering if there are any CFers in California that are recieving some sort of assistance for their CF. I know some areas like Atlanta Georgia, New york and New jersey have programs specifically to help those with CF. But my husband and I are really struggling since we moved to california in May (military move). In Washington we got food stamps, meidcaid, cash assistance and Section 8 housing. In california, we don't qualify for anything but maybe medicaid although they can't "open" a medi-cal case for us until his December 10th Disability hearing. So far I have tried Lungs for life and am trying to get a social worker to get that information on our behalf, but other than that we are really struggling (rent, groceries-which is very important as we all know) and I am kind of at my witts end. Any suggestions, solutions, ideas are welcome.

Thank you

 

[anonymous]

I was wondering if there are any CFers in California that are recieving some sort of assistance for their CF. I know some areas like Atlanta Georgia, New york and New jersey have programs specifically to help those with CF. But my husband and I are really struggling since we moved to california in May (military move). In Washington we got food stamps, meidcaid, cash assistance and Section 8 housing. In california, we don't qualify for anything but maybe medicaid although they can't "open" a medi-cal case for us until his December 10th Disability hearing. So far I have tried Lungs for life and am trying to get a social worker to get that information on our behalf, but other than that we are really struggling (rent, groceries-which is very important as we all know) and I am kind of at my witts end. Any suggestions, solutions, ideas are welcome.

Thank you

 

[anonymous]

Yes, it is called G.H.P.P. 1800 639 0597, or 9196 327 0470. They cover all of your medical stuff. The budget is getting cut back, so things are going slower, but you can get in. You will need proof of you haveing CF. If you are in San Diego, they have a great clinic by Dr. Conrad at UCSD Thorton(off the 5 in La Jolla). the Clinic's phone number is 858 657 7073. Or just find the Clinic in your neck of the woods and they can help you get set up.

Good luck

Colin Maydahl 22m/wCF

 

[anonymous]

Yes, it is called G.H.P.P. 1800 639 0597, or 9196 327 0470. They cover all of your medical stuff. The budget is getting cut back, so things are going slower, but you can get in. You will need proof of you haveing CF. If you are in San Diego, they have a great clinic by Dr. Conrad at UCSD Thorton(off the 5 in La Jolla). the Clinic's phone number is 858 657 7073. Or just find the Clinic in your neck of the woods and they can help you get set up.

Good luck

Colin Maydahl 22m/wCF

 

[anonymous]

I know that you can get prescription meds from the cystic fibrosis pharmacy. You can look at that on line. I know it's not much, but perhaps, that little bit can help.
good luck to you!!

 

[anonymous]

I know that you can get prescription meds from the cystic fibrosis pharmacy. You can look at that on line. I know it's not much, but perhaps, that little bit can help.
good luck to you!!

 

[anonymous]

thank you

 

[anonymous]

thank you

 

[supermanfan]

GHPP was wonderful. I have Kaiser, and woouldn't change for the world. They cover everything including hospital stays. I have a very small co-pay of $10 for doctor vists only; all lab work is free to me, and a small perscription cost $10 for generic, and $25 for non generic. I pay absolutely nothing else. However Oxygen wasn't covered on my particular policy, so that's where GHPP came in for me. They covered it, and I never had to pay. It was a beautiful thing.
<img src="i/expressions/face-icon-small-happy.gif" border="0">

 

[anonymous]

Supermanfan,
About the GHPP, my husband has insurance now that coveres everything except the nutritional supplements (boost plus or ensure). When I called them and asked for an application, they said they would send me one-but that since he already has insurance they might not be able to help us with anything. Did they ever say that to you? The dietary supplements are not a covered benefit, so I would think they would try to help us out, but I don't know. What do you think or what was your experience.

Julie

 

[anonymous]

GHPP will become a secondary ins. So they will cover the boost, or anything else that your regular ins. wont.

Colin

 

[LindseyRose]

I applied for GHPP about 2 years ago, right when I turned 21 (which is the minimum age.) I have an HMO but I applied because I was getting to the age where I wouldn't be covered by my parents insurance and my job doesn't offer benefits. It was a long process, about 10 months total, to apply. They asked for my household income, and at the time I was living with my boyfriend and his brother. I didn't understand what his brother's income had to do with my insurance. They said that based on our household income I would have to pay $600 a year. That didn't seem so bad. But because I had an HMO they would only cover one doctor visit per year. Thats it! One $600 doctor visit per year! No tests, no labs, definitely no hospitalizations! Needless to say, I declined the insurance. I just turned 23 so now I'm really going to be dropped from my parents insurance. Also, I'm getting married in June and my fiancee's insurance isn't that great. I will probably try GHPP again and see what they can give me now that I won't have good insurance.

 

[pamela]

Aloha to you , and so sorry to hear that you are having a hard time. It is almost 12/10 and hopefully you receive some help for your troubles. If you need assistance, and the State of California doesn't help you then we probably would be able to help you receive your medications free. We have a website which assists individual's who do not have prescripton drug coverage, and fit within a certain income bracket. The average income to qualify is $18,000. for a single person, and $25,000. for a couple. There are over 170 pharmaceutical companies and they all have different guidelines. Let me know if you need help I've been disabled for over 6 years, and have been getting my medications (7) free for over 2 years. My email address is: medsolutions00@yahoo.com

Aloha, and Happy Holidays- Pamela

 

[anonymous]

My husband is in the Navy, and we are based in San Diego. We just found out last week that our daughter has CF. I am in the process of trying to find a support group in San Diego, and am wondering if you know of one. Where do I look? I am also interested in hearing from another military family. How do you do it when the military member is deployed? I would love to know how that plays out. And your posting actually peaked my curiosity. If you are military, are you not completely covered through TriWest? I realize we may come to a point where we decide to leave the military, but I'm thankful right now that I'm not having to pay for my daughter's treatment.

 

[JazzysMom]

Your best bet is to get in touch with Julie, wife of Mark with CF. She is in the military (Navy) & just recently moved from CA to WA. She has a website & email on her profile. She has helped many people on here. Her username is Julie!