At what age did you start to notice....

[thefrogprincess]

I remember being a little kid and asking for my "wheezy medicine" (albuterol) when I needed it. I knew it worked. I guess my point is that she may already be noticing when something works and something doesn't, she just might not know how to communicate it to you. If my parents had asked me how I felt after the wheezy medicine I probably would have just said "better" or "fine". Be patient with her, she'll get it figured out, and help her find the words she needs.

 

[thefrogprincess]

I remember being a little kid and asking for my "wheezy medicine" (albuterol) when I needed it. I knew it worked. I guess my point is that she may already be noticing when something works and something doesn't, she just might not know how to communicate it to you. If my parents had asked me how I felt after the wheezy medicine I probably would have just said "better" or "fine". Be patient with her, she'll get it figured out, and help her find the words she needs.

 

[thefrogprincess]

I remember being a little kid and asking for my "wheezy medicine" (albuterol) when I needed it. I knew it worked. I guess my point is that she may already be noticing when something works and something doesn't, she just might not know how to communicate it to you. If my parents had asked me how I felt after the wheezy medicine I probably would have just said "better" or "fine". Be patient with her, she'll get it figured out, and help her find the words she needs.

 

[thefrogprincess]

I remember being a little kid and asking for my "wheezy medicine" (albuterol) when I needed it. I knew it worked. I guess my point is that she may already be noticing when something works and something doesn't, she just might not know how to communicate it to you. If my parents had asked me how I felt after the wheezy medicine I probably would have just said "better" or "fine". Be patient with her, she'll get it figured out, and help her find the words she needs.

 

[thefrogprincess]

I remember being a little kid and asking for my "wheezy medicine" (albuterol) when I needed it. I knew it worked. I guess my point is that she may already be noticing when something works and something doesn't, she just might not know how to communicate it to you. If my parents had asked me how I felt after the wheezy medicine I probably would have just said "better" or "fine". Be patient with her, she'll get it figured out, and help her find the words she needs.

 

[kmaried]

Hi Jessica!

I think this completely varies. Our bodies change as we get older too, and sometimes what we think works or doesn't work when we're young, might work as we get a bit older. For example, I took pulmozyme as soon as it was fda approved (I was probably around 12), and thought it did nothing, so I stopped it. I gave it another go around age 18 and have been doing it since because I really think it helps. Of course, this might have something to do with the fact I'm more congested now than I was back then so it's a more notice-able change now!

The other thing to keep in mind is sometimes it's confusing - we're on so many things at the same time, it's hard to tell what makes a difference and what doesn't... especially since sometimes we just have a coincidental "good" or "bad" year!!

That being said, I think the early you incorporate her being a "partner" in her health care the better. From a young age, I was better with the Adult CF model of care -- where the doctor listens to me as much as I listen to him, then the Pediatric model, where you get told what to do. I'm less likely to rebel if I'm a part of the decision!! <img src="i/expressions/face-icon-small-smile.gif" border="0">

Kris
26 w/ CF

 

[kmaried]

Hi Jessica!

I think this completely varies. Our bodies change as we get older too, and sometimes what we think works or doesn't work when we're young, might work as we get a bit older. For example, I took pulmozyme as soon as it was fda approved (I was probably around 12), and thought it did nothing, so I stopped it. I gave it another go around age 18 and have been doing it since because I really think it helps. Of course, this might have something to do with the fact I'm more congested now than I was back then so it's a more notice-able change now!

The other thing to keep in mind is sometimes it's confusing - we're on so many things at the same time, it's hard to tell what makes a difference and what doesn't... especially since sometimes we just have a coincidental "good" or "bad" year!!

That being said, I think the early you incorporate her being a "partner" in her health care the better. From a young age, I was better with the Adult CF model of care -- where the doctor listens to me as much as I listen to him, then the Pediatric model, where you get told what to do. I'm less likely to rebel if I'm a part of the decision!! <img src="i/expressions/face-icon-small-smile.gif" border="0">

Kris
26 w/ CF

 

[kmaried]

Hi Jessica!

I think this completely varies. Our bodies change as we get older too, and sometimes what we think works or doesn't work when we're young, might work as we get a bit older. For example, I took pulmozyme as soon as it was fda approved (I was probably around 12), and thought it did nothing, so I stopped it. I gave it another go around age 18 and have been doing it since because I really think it helps. Of course, this might have something to do with the fact I'm more congested now than I was back then so it's a more notice-able change now!

The other thing to keep in mind is sometimes it's confusing - we're on so many things at the same time, it's hard to tell what makes a difference and what doesn't... especially since sometimes we just have a coincidental "good" or "bad" year!!

That being said, I think the early you incorporate her being a "partner" in her health care the better. From a young age, I was better with the Adult CF model of care -- where the doctor listens to me as much as I listen to him, then the Pediatric model, where you get told what to do. I'm less likely to rebel if I'm a part of the decision!! <img src="i/expressions/face-icon-small-smile.gif" border="0">

Kris
26 w/ CF

 

[kmaried]

Hi Jessica!

I think this completely varies. Our bodies change as we get older too, and sometimes what we think works or doesn't work when we're young, might work as we get a bit older. For example, I took pulmozyme as soon as it was fda approved (I was probably around 12), and thought it did nothing, so I stopped it. I gave it another go around age 18 and have been doing it since because I really think it helps. Of course, this might have something to do with the fact I'm more congested now than I was back then so it's a more notice-able change now!

The other thing to keep in mind is sometimes it's confusing - we're on so many things at the same time, it's hard to tell what makes a difference and what doesn't... especially since sometimes we just have a coincidental "good" or "bad" year!!

That being said, I think the early you incorporate her being a "partner" in her health care the better. From a young age, I was better with the Adult CF model of care -- where the doctor listens to me as much as I listen to him, then the Pediatric model, where you get told what to do. I'm less likely to rebel if I'm a part of the decision!! <img src="i/expressions/face-icon-small-smile.gif" border="0">

Kris
26 w/ CF

 

[kmaried]

Hi Jessica!
<br />
<br />I think this completely varies. Our bodies change as we get older too, and sometimes what we think works or doesn't work when we're young, might work as we get a bit older. For example, I took pulmozyme as soon as it was fda approved (I was probably around 12), and thought it did nothing, so I stopped it. I gave it another go around age 18 and have been doing it since because I really think it helps. Of course, this might have something to do with the fact I'm more congested now than I was back then so it's a more notice-able change now!
<br />
<br />The other thing to keep in mind is sometimes it's confusing - we're on so many things at the same time, it's hard to tell what makes a difference and what doesn't... especially since sometimes we just have a coincidental "good" or "bad" year!!
<br />
<br />That being said, I think the early you incorporate her being a "partner" in her health care the better. From a young age, I was better with the Adult CF model of care -- where the doctor listens to me as much as I listen to him, then the Pediatric model, where you get told what to do. I'm less likely to rebel if I'm a part of the decision!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />Kris
<br />26 w/ CF

 

[Kelli]

Hello.
For me, I couldn't really tell any difference until my mid 20's. By that, I mean, that I didn't really 'need' to do treatments, I felt fine. Then after I got married, I felt I started to decline....hmmm, it has nothing to do my husband. lol.
But now I totally feel bad if I skip a treatment so I'm very faithful about doing what I need to do in order to feel good. And no matter how much my parents nagged, I just didn't want to do treatments, heck, I didn't even have to cough back then!
Now it's a world of difference, which started around age 25.

<img src="i/expressions/face-icon-small-smile.gif" border="0">
Kelli

 

[Kelli]

Hello.
For me, I couldn't really tell any difference until my mid 20's. By that, I mean, that I didn't really 'need' to do treatments, I felt fine. Then after I got married, I felt I started to decline....hmmm, it has nothing to do my husband. lol.
But now I totally feel bad if I skip a treatment so I'm very faithful about doing what I need to do in order to feel good. And no matter how much my parents nagged, I just didn't want to do treatments, heck, I didn't even have to cough back then!
Now it's a world of difference, which started around age 25.

<img src="i/expressions/face-icon-small-smile.gif" border="0">
Kelli

 

[Kelli]

Hello.
For me, I couldn't really tell any difference until my mid 20's. By that, I mean, that I didn't really 'need' to do treatments, I felt fine. Then after I got married, I felt I started to decline....hmmm, it has nothing to do my husband. lol.
But now I totally feel bad if I skip a treatment so I'm very faithful about doing what I need to do in order to feel good. And no matter how much my parents nagged, I just didn't want to do treatments, heck, I didn't even have to cough back then!
Now it's a world of difference, which started around age 25.

<img src="i/expressions/face-icon-small-smile.gif" border="0">
Kelli

 

[Kelli]

Hello.
For me, I couldn't really tell any difference until my mid 20's. By that, I mean, that I didn't really 'need' to do treatments, I felt fine. Then after I got married, I felt I started to decline....hmmm, it has nothing to do my husband. lol.
But now I totally feel bad if I skip a treatment so I'm very faithful about doing what I need to do in order to feel good. And no matter how much my parents nagged, I just didn't want to do treatments, heck, I didn't even have to cough back then!
Now it's a world of difference, which started around age 25.

<img src="i/expressions/face-icon-small-smile.gif" border="0">
Kelli

 

[Kelli]

Hello.
<br />For me, I couldn't really tell any difference until my mid 20's. By that, I mean, that I didn't really 'need' to do treatments, I felt fine. Then after I got married, I felt I started to decline....hmmm, it has nothing to do my husband. lol.
<br />But now I totally feel bad if I skip a treatment so I'm very faithful about doing what I need to do in order to feel good. And no matter how much my parents nagged, I just didn't want to do treatments, heck, I didn't even have to cough back then!
<br />Now it's a world of difference, which started around age 25.
<br />
<br /><img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />Kelli