coltsfan715
New member
I agree with everything mentioned above. I know my docs looked at everything Skye mentioned.
I also have found that being proactive in your own care is important - meaning that you KNOW when to bring up transplant if it is not brought up to you. I had to bring it up to my doc at the time because I had asked about it in high school. I knew I was about at that level. I had a hard time expressing to my doc my concerns apparently cause the doc at the time refused to refer me for evaluation (can anyone say moron). I went to several docs before I found one that would refer me to just get evaluated. I am glad I did - by all outward appearances I was fine except I was getting sick constantly and my PFTs were low. Turned out I needed to be on O2 and I had developed heart issues (I knew I felt bad). So yeah all of those things make a difference.
It never hurts to bring it up to your doc and I agree it is easier to go through everything when you are on the healthy side of sick. Some of the tests can be a bit overwhelming to say the least if you are extremely sick.
Take Care
Linds
I also have found that being proactive in your own care is important - meaning that you KNOW when to bring up transplant if it is not brought up to you. I had to bring it up to my doc at the time because I had asked about it in high school. I knew I was about at that level. I had a hard time expressing to my doc my concerns apparently cause the doc at the time refused to refer me for evaluation (can anyone say moron). I went to several docs before I found one that would refer me to just get evaluated. I am glad I did - by all outward appearances I was fine except I was getting sick constantly and my PFTs were low. Turned out I needed to be on O2 and I had developed heart issues (I knew I felt bad). So yeah all of those things make a difference.
It never hurts to bring it up to your doc and I agree it is easier to go through everything when you are on the healthy side of sick. Some of the tests can be a bit overwhelming to say the least if you are extremely sick.
Take Care
Linds