ataluren

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inna1977

New member
just wondering if anyone is on the open label ataluren yet and if they are feeling any different.  <div>thanks</div>
 
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momtohazel

New member
i am also interested to hear folks experiences who are taking this. i often wonder why we don't hear more about it?<br>
 
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momtohazel

New member
i am also interested to hear folks experiences who are taking this. i often wonder why we don't hear more about it?<br>
 
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momtohazel

New member
i am also interested to hear folks experiences who are taking this. i often wonder why we don't hear more about it?<br>
 
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missT

Member
I am on the drug now but the open label has not started yet....but soon. I dont' know if I am on drug or placebo. If anyone wants to pm me about the progress please feel free.
 
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missT

Member
I am on the drug now but the open label has not started yet....but soon. I dont' know if I am on drug or placebo. If anyone wants to pm me about the progress please feel free.
 
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missT

Member
I am on the drug now but the open label has not started yet....but soon. I dont' know if I am on drug or placebo. If anyone wants to pm me about the progress please feel free.<BR>
 
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inna1977

New member
<A HREF="http://ptct.client.shareholder.com/releasedetail.cfm?ReleaseID=588684">http://ptct.client.shareholder.com/releasedetail.cfm?ReleaseID=588684</A>
 
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inna1977

New member
<A HREF="http://ptct.client.shareholder.com/releasedetail.cfm?ReleaseID=588684">http://ptct.client.shareholder.com/releasedetail.cfm?ReleaseID=588684</A>
 
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inna1977

New member
<A HREF="http://ptct.client.shareholder.com/releasedetail.cfm?ReleaseID=588684">http://ptct.client.shareholder.com/releasedetail.cfm?ReleaseID=588684</A>
 
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Hannah08

New member
I just started open label about a month ago. I pretty much know that I had the placebo in the closed label (the real stuff tastes like s***, if yours doesn't you dont have the real thing hahaha). They said it might take a couple of months to start feeling better, but I have noticed that mucus is becoming easier and easier to bring up, and its almost like it is thinner. Like I said, I don't think I would have started to notice full effects yet, but I think the mucus thing is a good sign.
 
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Hannah08

New member
I just started open label about a month ago. I pretty much know that I had the placebo in the closed label (the real stuff tastes like s***, if yours doesn't you dont have the real thing hahaha). They said it might take a couple of months to start feeling better, but I have noticed that mucus is becoming easier and easier to bring up, and its almost like it is thinner. Like I said, I don't think I would have started to notice full effects yet, but I think the mucus thing is a good sign.
 
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Hannah08

New member
I just started open label about a month ago. I pretty much know that I had the placebo in the closed label (the real stuff tastes like s***, if yours doesn't you dont have the real thing hahaha). They said it might take a couple of months to start feeling better, but I have noticed that mucus is becoming easier and easier to bring up, and its almost like it is thinner. Like I said, I don't think I would have started to notice full effects yet, but I think the mucus thing is a good sign.
 
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missT

Member
Hannah08, I am so glad you responded. I feel so alone in my experience. i am going to PM you. If there are others out there on open label can you please share your experiences. I have been on placebo/drug for a year and I am so depressed about this. I start open soon.
 
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missT

Member
Hannah08, I am so glad you responded. I feel so alone in my experience. i am going to PM you. If there are others out there on open label can you please share your experiences. I have been on placebo/drug for a year and I am so depressed about this. I start open soon.
 
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