Aunt in need of some help

[Alyssa]

If I'm reading between the lines correctly, you are not sure how accurate the information is that your sister is sharing with you?

Without good communication from her, it's very hard to say for sure.There is such a wide verity of severity and how a patient responds or doesn't respond to treatment.

Yes, having bacteria in the lungs and checking into the hospital are very typical things for those with CF, but sometimes it is viewed as a run of the mill tune up and other times there could be very serious issues going on.

How many miles separate you and your sister? Is it possible to go visit and learn more that way? Does she give you any specifics about what is being done at the hospital and/or what issues they are dealing with? Has she said why he is not expected to return from the hospital?

If it's a run of the mill tune up they would be dealing with IV antibiotics and extra nutrition to try and bring up or maintain a healthy body weight - the attitude would be one of "routine maintenance". If the child is in very poor health, I'm sure you would hear a different tone from doctors and nurses. Others would be able to add to my list here, but I would imagine you might hear discussion of oxygen saturation, pulmonary function, use of oxygen, liver failure, imaging of lungs or brochoscope, and a heavy emphasis on watching vital signs and or talk of lung transplant.

 

[Alyssa]

If I'm reading between the lines correctly, you are not sure how accurate the information is that your sister is sharing with you?

Without good communication from her, it's very hard to say for sure.There is such a wide verity of severity and how a patient responds or doesn't respond to treatment.

Yes, having bacteria in the lungs and checking into the hospital are very typical things for those with CF, but sometimes it is viewed as a run of the mill tune up and other times there could be very serious issues going on.

How many miles separate you and your sister? Is it possible to go visit and learn more that way? Does she give you any specifics about what is being done at the hospital and/or what issues they are dealing with? Has she said why he is not expected to return from the hospital?

If it's a run of the mill tune up they would be dealing with IV antibiotics and extra nutrition to try and bring up or maintain a healthy body weight - the attitude would be one of "routine maintenance". If the child is in very poor health, I'm sure you would hear a different tone from doctors and nurses. Others would be able to add to my list here, but I would imagine you might hear discussion of oxygen saturation, pulmonary function, use of oxygen, liver failure, imaging of lungs or brochoscope, and a heavy emphasis on watching vital signs and or talk of lung transplant.

 

[Alyssa]

If I'm reading between the lines correctly, you are not sure how accurate the information is that your sister is sharing with you?

Without good communication from her, it's very hard to say for sure.There is such a wide verity of severity and how a patient responds or doesn't respond to treatment.

Yes, having bacteria in the lungs and checking into the hospital are very typical things for those with CF, but sometimes it is viewed as a run of the mill tune up and other times there could be very serious issues going on.

How many miles separate you and your sister? Is it possible to go visit and learn more that way? Does she give you any specifics about what is being done at the hospital and/or what issues they are dealing with? Has she said why he is not expected to return from the hospital?

If it's a run of the mill tune up they would be dealing with IV antibiotics and extra nutrition to try and bring up or maintain a healthy body weight - the attitude would be one of "routine maintenance". If the child is in very poor health, I'm sure you would hear a different tone from doctors and nurses. Others would be able to add to my list here, but I would imagine you might hear discussion of oxygen saturation, pulmonary function, use of oxygen, liver failure, imaging of lungs or brochoscope, and a heavy emphasis on watching vital signs and or talk of lung transplant.

 

[Alyssa]

If I'm reading between the lines correctly, you are not sure how accurate the information is that your sister is sharing with you?

Without good communication from her, it's very hard to say for sure.There is such a wide verity of severity and how a patient responds or doesn't respond to treatment.

Yes, having bacteria in the lungs and checking into the hospital are very typical things for those with CF, but sometimes it is viewed as a run of the mill tune up and other times there could be very serious issues going on.

How many miles separate you and your sister? Is it possible to go visit and learn more that way? Does she give you any specifics about what is being done at the hospital and/or what issues they are dealing with? Has she said why he is not expected to return from the hospital?

If it's a run of the mill tune up they would be dealing with IV antibiotics and extra nutrition to try and bring up or maintain a healthy body weight - the attitude would be one of "routine maintenance". If the child is in very poor health, I'm sure you would hear a different tone from doctors and nurses. Others would be able to add to my list here, but I would imagine you might hear discussion of oxygen saturation, pulmonary function, use of oxygen, liver failure, imaging of lungs or brochoscope, and a heavy emphasis on watching vital signs and or talk of lung transplant.

 

[Alyssa]

<br />
<br />If I'm reading between the lines correctly, you are not sure how accurate the information is that your sister is sharing with you?
<br />
<br />Without good communication from her, it's very hard to say for sure.There is such a wide verity of severity and how a patient responds or doesn't respond to treatment.
<br />
<br />Yes, having bacteria in the lungs and checking into the hospital are very typical things for those with CF, but sometimes it is viewed as a run of the mill tune up and other times there could be very serious issues going on.
<br />
<br />How many miles separate you and your sister? Is it possible to go visit and learn more that way? Does she give you any specifics about what is being done at the hospital and/or what issues they are dealing with? Has she said why he is not expected to return from the hospital?
<br />
<br />If it's a run of the mill tune up they would be dealing with IV antibiotics and extra nutrition to try and bring up or maintain a healthy body weight - the attitude would be one of "routine maintenance". If the child is in very poor health, I'm sure you would hear a different tone from doctors and nurses. Others would be able to add to my list here, but I would imagine you might hear discussion of oxygen saturation, pulmonary function, use of oxygen, liver failure, imaging of lungs or brochoscope, and a heavy emphasis on watching vital signs and or talk of lung transplant.

 

[JennyCoulon]

I would agree if you are close to where your sister lives that it would be great to go to the visits with her. Not only will you get the information that you need to get answers from us on here you also can be your sisters *SHINING STAR* when she needs someone to talk to that actually knows what is going on.

I would say that sister would be glad for you to go so you can just be there for them. Let us know any other info you have so we can help.

 

[JennyCoulon]

I would agree if you are close to where your sister lives that it would be great to go to the visits with her. Not only will you get the information that you need to get answers from us on here you also can be your sisters *SHINING STAR* when she needs someone to talk to that actually knows what is going on.

I would say that sister would be glad for you to go so you can just be there for them. Let us know any other info you have so we can help.

 

[JennyCoulon]

I would agree if you are close to where your sister lives that it would be great to go to the visits with her. Not only will you get the information that you need to get answers from us on here you also can be your sisters *SHINING STAR* when she needs someone to talk to that actually knows what is going on.

I would say that sister would be glad for you to go so you can just be there for them. Let us know any other info you have so we can help.

 

[JennyCoulon]

I would agree if you are close to where your sister lives that it would be great to go to the visits with her. Not only will you get the information that you need to get answers from us on here you also can be your sisters *SHINING STAR* when she needs someone to talk to that actually knows what is going on.

I would say that sister would be glad for you to go so you can just be there for them. Let us know any other info you have so we can help.

 

[JennyCoulon]

I would agree if you are close to where your sister lives that it would be great to go to the visits with her. Not only will you get the information that you need to get answers from us on here you also can be your sisters *SHINING STAR* when she needs someone to talk to that actually knows what is going on.
<br />
<br />I would say that sister would be glad for you to go so you can just be there for them. Let us know any other info you have so we can help.

 

[Aunty]

Thanks so much.

We see our nephew every couple of days and I am now realizing that I have to get info on my own and not rely on my sister. He is in pretty good health, is growing and gaining weight, runs around and plays any sport he can with his cousin!!!!

 

[Aunty]

Thanks so much.

We see our nephew every couple of days and I am now realizing that I have to get info on my own and not rely on my sister. He is in pretty good health, is growing and gaining weight, runs around and plays any sport he can with his cousin!!!!

 

[Aunty]

Thanks so much.

We see our nephew every couple of days and I am now realizing that I have to get info on my own and not rely on my sister. He is in pretty good health, is growing and gaining weight, runs around and plays any sport he can with his cousin!!!!

 

[Aunty]

Thanks so much.

We see our nephew every couple of days and I am now realizing that I have to get info on my own and not rely on my sister. He is in pretty good health, is growing and gaining weight, runs around and plays any sport he can with his cousin!!!!

 

[Aunty]

Thanks so much.
<br />
<br />We see our nephew every couple of days and I am now realizing that I have to get info on my own and not rely on my sister. He is in pretty good health, is growing and gaining weight, runs around and plays any sport he can with his cousin!!!!