awareness color?

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cfgirl38

New member
Milan foundation is run by a family out of her home. Although she just got an outside office to run it from. She is also on cystic-l and sends emails on updates. So be patient with her. Anyway there's another site I recieved some really different things from it's www.curecf4valerie.com She also runs out of her house but I recieved my items within a couple weeks. She has such a cute CF ceramic tile. I love it. Just an fyi. Eva
 
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anonymous

New member
Hi Julie - I hope you don't take this as a negitive response......Over the past four years (since my daughter was diagnosed) I have struggled with your same thought "it is important to support other "foundations" that help CFers with some daily struggles". However, I look at all the other national foundations (cancer, MS, MD, etc.) and see what they have done for their patients in terms of medicine, financial help, etc. and maybe I am a little biased (because I can afford the treatments, barely!!!!!!!!!!!), but they are not any where near the "stage" if you will, that CF is in their research. I do agree that it would be nice to have a lot of help with the very costly medincines, etc., but I also look at the fact that there will probably be a cure for CF WAY before cancer, MS, MD, etc. because of the money they put into research. YEs, it is hard for me and my family to pay for the expensive treatments, but there is help out there that doesn't take away from the hard work that the CF foundations does. Sorry if I went off topic here, but this is how I feel.

Also, I have to say that I did get my bracelets after a couple of weeks, but from what I understand, they are about a month behind in getting them out...this only means that people are ordering them and that the CF foundation is raising more money for a cure!!!!!!!!!!!!!<img src="i/expressions/rose.gif" border="0"><img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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Mockingbird

New member
My CF center gave one of the purple ones, my first thought was, "I can't wear that, it's purple!" =-) I'm wearing it anyway, though. =-)

Jarod
22 w/cf
 
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shamrock

New member
I'm trying to get some nice purple bracelets. Do livestrong do purple ones?<img src="i/expressions/rose.gif" border="0">
 
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allie1

New member
I found out from the CF Foundation that they are in the middle of designing a BLUE magnetic car ribbon. I'm not sure when it will be available but they said to keep checking their website.

Amy
 
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shamrock

New member
Guys, my bracelets arrived yesterday!!!!!!!! I ordered them 2weeks ago fron the milan foundation and i was getting worried when i was reading people were waiting a month or more for theres! i live in Ireland and everything!
 
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EmilysMom

New member
I ordered 20 of them at Thanksgiving and had them in time for Christmas. Needless to say, EVERYONE got one for Christmas and my family are all wearing them faithfully. YAY Gode's !!
 
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Emily65Roses

New member
Hey now, Yay LeClaires too! Mike's family is wearing them! And Kristin had a pretty beaded one up until Gav grabbed at it and it broke apart. Hahaha.
 
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