AZLI Advocacy

K

kmaried

New member
Hi guys -

Received this email from the CFF today (as I'm sure many of you did). I'm sure a lot of you would like to send a letter. I'm going to send it off to my friends and family to write on my behalf as well....

Kris



Dear Advocate,

Have you or someone you know had a personal experience using Aztreonam Lysine for Inhalation (AZLI)?

AZLI is a promising new inhaled antibiotic treatment that appears to help combat the pulmonary symptoms of cystic fibrosis. By sharing your experience using AZLI, you can help the Foundation as it works with the Food and Drug Administration (FDA) to move this new therapy forward.

To help, simply:
Read our sample letter - <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/UploadedFiles/GetInvolved/Advocate/AdvocacyToolkit/Write/Sample-Letter-AZLI.doc
">http://www.cff.org/UploadedFil...ample-Letter-AZLI.doc
</a>Write about what AZLI has done for you
E-mail your letter to publicpolicy@cff.org by November 28, 2008.

Read additional information about AZLI and the importance of the drug for treating CF - <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/UploadedFiles/GetInvolved/Advocate/AdvocacyToolkit/Write/AZLI-White-Paper-and-Cover-Letter.pdf
">http://www.cff.org/UploadedFil...-and-Cover-Letter.pdf
</a>
Thank you for helping us work with the FDA to advance vital new treatments for cystic fibrosis.

Cystic Fibrosis Foundation
6931 Arlington Road
Bethesda, MD 20814
(800) FIGHT CF
E-mail: publicpolicy@cff.org
Web: www.cff.org/GetInvolved/Advocate
P.S. Please forward this email to anyone who might be interested in sharing their story about using ALZI.
 
K

kmaried

New member
Hi guys -

Received this email from the CFF today (as I'm sure many of you did). I'm sure a lot of you would like to send a letter. I'm going to send it off to my friends and family to write on my behalf as well....

Kris



Dear Advocate,

Have you or someone you know had a personal experience using Aztreonam Lysine for Inhalation (AZLI)?

AZLI is a promising new inhaled antibiotic treatment that appears to help combat the pulmonary symptoms of cystic fibrosis. By sharing your experience using AZLI, you can help the Foundation as it works with the Food and Drug Administration (FDA) to move this new therapy forward.

To help, simply:
Read our sample letter - <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/UploadedFiles/GetInvolved/Advocate/AdvocacyToolkit/Write/Sample-Letter-AZLI.doc
">http://www.cff.org/UploadedFil...ample-Letter-AZLI.doc
</a>Write about what AZLI has done for you
E-mail your letter to publicpolicy@cff.org by November 28, 2008.

Read additional information about AZLI and the importance of the drug for treating CF - <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/UploadedFiles/GetInvolved/Advocate/AdvocacyToolkit/Write/AZLI-White-Paper-and-Cover-Letter.pdf
">http://www.cff.org/UploadedFil...-and-Cover-Letter.pdf
</a>
Thank you for helping us work with the FDA to advance vital new treatments for cystic fibrosis.

Cystic Fibrosis Foundation
6931 Arlington Road
Bethesda, MD 20814
(800) FIGHT CF
E-mail: publicpolicy@cff.org
Web: www.cff.org/GetInvolved/Advocate
P.S. Please forward this email to anyone who might be interested in sharing their story about using ALZI.
 
K

kmaried

New member
Hi guys -

Received this email from the CFF today (as I'm sure many of you did). I'm sure a lot of you would like to send a letter. I'm going to send it off to my friends and family to write on my behalf as well....

Kris



Dear Advocate,

Have you or someone you know had a personal experience using Aztreonam Lysine for Inhalation (AZLI)?

AZLI is a promising new inhaled antibiotic treatment that appears to help combat the pulmonary symptoms of cystic fibrosis. By sharing your experience using AZLI, you can help the Foundation as it works with the Food and Drug Administration (FDA) to move this new therapy forward.

To help, simply:
Read our sample letter - <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/UploadedFiles/GetInvolved/Advocate/AdvocacyToolkit/Write/Sample-Letter-AZLI.doc
">http://www.cff.org/UploadedFil...ample-Letter-AZLI.doc
</a>Write about what AZLI has done for you
E-mail your letter to publicpolicy@cff.org by November 28, 2008.

Read additional information about AZLI and the importance of the drug for treating CF - <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/UploadedFiles/GetInvolved/Advocate/AdvocacyToolkit/Write/AZLI-White-Paper-and-Cover-Letter.pdf
">http://www.cff.org/UploadedFil...-and-Cover-Letter.pdf
</a>
Thank you for helping us work with the FDA to advance vital new treatments for cystic fibrosis.

Cystic Fibrosis Foundation
6931 Arlington Road
Bethesda, MD 20814
(800) FIGHT CF
E-mail: publicpolicy@cff.org
Web: www.cff.org/GetInvolved/Advocate
P.S. Please forward this email to anyone who might be interested in sharing their story about using ALZI.
 
K

kmaried

New member
Hi guys -

Received this email from the CFF today (as I'm sure many of you did). I'm sure a lot of you would like to send a letter. I'm going to send it off to my friends and family to write on my behalf as well....

Kris



Dear Advocate,

Have you or someone you know had a personal experience using Aztreonam Lysine for Inhalation (AZLI)?

AZLI is a promising new inhaled antibiotic treatment that appears to help combat the pulmonary symptoms of cystic fibrosis. By sharing your experience using AZLI, you can help the Foundation as it works with the Food and Drug Administration (FDA) to move this new therapy forward.

To help, simply:
Read our sample letter - <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/UploadedFiles/GetInvolved/Advocate/AdvocacyToolkit/Write/Sample-Letter-AZLI.doc
">http://www.cff.org/UploadedFil...ample-Letter-AZLI.doc
</a>Write about what AZLI has done for you
E-mail your letter to publicpolicy@cff.org by November 28, 2008.

Read additional information about AZLI and the importance of the drug for treating CF - <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/UploadedFiles/GetInvolved/Advocate/AdvocacyToolkit/Write/AZLI-White-Paper-and-Cover-Letter.pdf
">http://www.cff.org/UploadedFil...-and-Cover-Letter.pdf
</a>
Thank you for helping us work with the FDA to advance vital new treatments for cystic fibrosis.

Cystic Fibrosis Foundation
6931 Arlington Road
Bethesda, MD 20814
(800) FIGHT CF
E-mail: publicpolicy@cff.org
Web: www.cff.org/GetInvolved/Advocate
P.S. Please forward this email to anyone who might be interested in sharing their story about using ALZI.
 
K

kmaried

New member
Hi guys -
<br />
<br />Received this email from the CFF today (as I'm sure many of you did). I'm sure a lot of you would like to send a letter. I'm going to send it off to my friends and family to write on my behalf as well....
<br />
<br />Kris
<br />
<br />
<br />
<br />Dear Advocate,
<br />
<br />Have you or someone you know had a personal experience using Aztreonam Lysine for Inhalation (AZLI)?
<br />
<br />AZLI is a promising new inhaled antibiotic treatment that appears to help combat the pulmonary symptoms of cystic fibrosis. By sharing your experience using AZLI, you can help the Foundation as it works with the Food and Drug Administration (FDA) to move this new therapy forward.
<br />
<br />To help, simply:
<br />Read our sample letter - <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/UploadedFiles/GetInvolved/Advocate/AdvocacyToolkit/Write/Sample-Letter-AZLI.doc
">http://www.cff.org/UploadedFil...ample-Letter-AZLI.doc
</a><br />Write about what AZLI has done for you
<br />E-mail your letter to publicpolicy@cff.org by November 28, 2008.
<br />
<br />Read additional information about AZLI and the importance of the drug for treating CF - <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/UploadedFiles/GetInvolved/Advocate/AdvocacyToolkit/Write/AZLI-White-Paper-and-Cover-Letter.pdf
">http://www.cff.org/UploadedFil...-and-Cover-Letter.pdf
</a><br />
<br />Thank you for helping us work with the FDA to advance vital new treatments for cystic fibrosis.
<br />
<br />Cystic Fibrosis Foundation
<br />6931 Arlington Road
<br />Bethesda, MD 20814
<br />(800) FIGHT CF
<br />E-mail: publicpolicy@cff.org
<br />Web: www.cff.org/GetInvolved/Advocate
<br />P.S. Please forward this email to anyone who might be interested in sharing their story about using ALZI.
<br />
 
L

ladybug

New member
Thanks for sharing. Unfortunately, I was not in the research group and cannot yet get this.

I did ask at my clinic today about the "red tape" and was told that its likely it was because of lobbyists that got to the FDA. Also, at some point, it was said that CF has "enough inhaled antibiotics" for treatment. What a stupid statement to make. So, sounds like it won't be out for a long time until they finally do determine that it will help us and isn't just "another" inhaled antibiotic.
 
L

ladybug

New member
Thanks for sharing. Unfortunately, I was not in the research group and cannot yet get this.

I did ask at my clinic today about the "red tape" and was told that its likely it was because of lobbyists that got to the FDA. Also, at some point, it was said that CF has "enough inhaled antibiotics" for treatment. What a stupid statement to make. So, sounds like it won't be out for a long time until they finally do determine that it will help us and isn't just "another" inhaled antibiotic.
 
L

ladybug

New member
Thanks for sharing. Unfortunately, I was not in the research group and cannot yet get this.

I did ask at my clinic today about the "red tape" and was told that its likely it was because of lobbyists that got to the FDA. Also, at some point, it was said that CF has "enough inhaled antibiotics" for treatment. What a stupid statement to make. So, sounds like it won't be out for a long time until they finally do determine that it will help us and isn't just "another" inhaled antibiotic.
 
L

ladybug

New member
Thanks for sharing. Unfortunately, I was not in the research group and cannot yet get this.

I did ask at my clinic today about the "red tape" and was told that its likely it was because of lobbyists that got to the FDA. Also, at some point, it was said that CF has "enough inhaled antibiotics" for treatment. What a stupid statement to make. So, sounds like it won't be out for a long time until they finally do determine that it will help us and isn't just "another" inhaled antibiotic.
 
L

ladybug

New member
Thanks for sharing. Unfortunately, I was not in the research group and cannot yet get this.
<br />
<br />I did ask at my clinic today about the "red tape" and was told that its likely it was because of lobbyists that got to the FDA. Also, at some point, it was said that CF has "enough inhaled antibiotics" for treatment. What a stupid statement to make. So, sounds like it won't be out for a long time until they finally do determine that it will help us and isn't just "another" inhaled antibiotic.
<br />
<br />
 
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