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B
brewz2
Guest
I was so excited b/c I found the eflow online, and I thought wow, I'll just order one, since we have to give it back at the end of the study. Unfortnately I talked to the clinic and was told that they're not ready to ok them yet when it comes to other meds. She said that the dosages arent' always the same when used in the eflow. I was really bummed b/c they want to start my daughter on pulmozyme after the study is over, and I keep thinking, ugh - tobi, and pulmozyme? My daughter is gonna burn out quick. She already does the eye roll when she knows her tobi month is here.
I'm not really convinced that she needs the pulmozyme. She does albuterol, & symbicort and her PFT's are in the high 90's. We were told at the clinic the other day that they want to start it with her just to have an added extra protection against infection, and it helps to clear out the extra white blood cells. Does that sound right? What do doctors prescribe pulmozyme for? ARe there certain symptoms that send up a red flag?
I'm not really convinced that she needs the pulmozyme. She does albuterol, & symbicort and her PFT's are in the high 90's. We were told at the clinic the other day that they want to start it with her just to have an added extra protection against infection, and it helps to clear out the extra white blood cells. Does that sound right? What do doctors prescribe pulmozyme for? ARe there certain symptoms that send up a red flag?
B
brewz2
Guest
I was so excited b/c I found the eflow online, and I thought wow, I'll just order one, since we have to give it back at the end of the study. Unfortnately I talked to the clinic and was told that they're not ready to ok them yet when it comes to other meds. She said that the dosages arent' always the same when used in the eflow. I was really bummed b/c they want to start my daughter on pulmozyme after the study is over, and I keep thinking, ugh - tobi, and pulmozyme? My daughter is gonna burn out quick. She already does the eye roll when she knows her tobi month is here.
I'm not really convinced that she needs the pulmozyme. She does albuterol, & symbicort and her PFT's are in the high 90's. We were told at the clinic the other day that they want to start it with her just to have an added extra protection against infection, and it helps to clear out the extra white blood cells. Does that sound right? What do doctors prescribe pulmozyme for? ARe there certain symptoms that send up a red flag?
I'm not really convinced that she needs the pulmozyme. She does albuterol, & symbicort and her PFT's are in the high 90's. We were told at the clinic the other day that they want to start it with her just to have an added extra protection against infection, and it helps to clear out the extra white blood cells. Does that sound right? What do doctors prescribe pulmozyme for? ARe there certain symptoms that send up a red flag?
B
brewz2
Guest
I was so excited b/c I found the eflow online, and I thought wow, I'll just order one, since we have to give it back at the end of the study. Unfortnately I talked to the clinic and was told that they're not ready to ok them yet when it comes to other meds. She said that the dosages arent' always the same when used in the eflow. I was really bummed b/c they want to start my daughter on pulmozyme after the study is over, and I keep thinking, ugh - tobi, and pulmozyme? My daughter is gonna burn out quick. She already does the eye roll when she knows her tobi month is here.
I'm not really convinced that she needs the pulmozyme. She does albuterol, & symbicort and her PFT's are in the high 90's. We were told at the clinic the other day that they want to start it with her just to have an added extra protection against infection, and it helps to clear out the extra white blood cells. Does that sound right? What do doctors prescribe pulmozyme for? ARe there certain symptoms that send up a red flag?
I'm not really convinced that she needs the pulmozyme. She does albuterol, & symbicort and her PFT's are in the high 90's. We were told at the clinic the other day that they want to start it with her just to have an added extra protection against infection, and it helps to clear out the extra white blood cells. Does that sound right? What do doctors prescribe pulmozyme for? ARe there certain symptoms that send up a red flag?
B
brewz2
Guest
I was so excited b/c I found the eflow online, and I thought wow, I'll just order one, since we have to give it back at the end of the study. Unfortnately I talked to the clinic and was told that they're not ready to ok them yet when it comes to other meds. She said that the dosages arent' always the same when used in the eflow. I was really bummed b/c they want to start my daughter on pulmozyme after the study is over, and I keep thinking, ugh - tobi, and pulmozyme? My daughter is gonna burn out quick. She already does the eye roll when she knows her tobi month is here.
I'm not really convinced that she needs the pulmozyme. She does albuterol, & symbicort and her PFT's are in the high 90's. We were told at the clinic the other day that they want to start it with her just to have an added extra protection against infection, and it helps to clear out the extra white blood cells. Does that sound right? What do doctors prescribe pulmozyme for? ARe there certain symptoms that send up a red flag?
I'm not really convinced that she needs the pulmozyme. She does albuterol, & symbicort and her PFT's are in the high 90's. We were told at the clinic the other day that they want to start it with her just to have an added extra protection against infection, and it helps to clear out the extra white blood cells. Does that sound right? What do doctors prescribe pulmozyme for? ARe there certain symptoms that send up a red flag?
B
brewz2
Guest
I was so excited b/c I found the eflow online, and I thought wow, I'll just order one, since we have to give it back at the end of the study. Unfortnately I talked to the clinic and was told that they're not ready to ok them yet when it comes to other meds. She said that the dosages arent' always the same when used in the eflow. I was really bummed b/c they want to start my daughter on pulmozyme after the study is over, and I keep thinking, ugh - tobi, and pulmozyme? My daughter is gonna burn out quick. She already does the eye roll when she knows her tobi month is here.
<br />
<br />I'm not really convinced that she needs the pulmozyme. She does albuterol, & symbicort and her PFT's are in the high 90's. We were told at the clinic the other day that they want to start it with her just to have an added extra protection against infection, and it helps to clear out the extra white blood cells. Does that sound right? What do doctors prescribe pulmozyme for? ARe there certain symptoms that send up a red flag?
<br />
<br />I'm not really convinced that she needs the pulmozyme. She does albuterol, & symbicort and her PFT's are in the high 90's. We were told at the clinic the other day that they want to start it with her just to have an added extra protection against infection, and it helps to clear out the extra white blood cells. Does that sound right? What do doctors prescribe pulmozyme for? ARe there certain symptoms that send up a red flag?
NYCLawGirl
New member
Pulmozyme (DNase) is a mucolytic, which means it is prescribed to attack and thin out mucus in the lungs. It doesn't treat "symptoms" or even infections, per se, but it does help reduce the viscosity of mucus so that it can be coughed out and the bacteria has fewer places to set up camp. There are some people with mixed feelings about the drug. Personally, as an adult cystic who remembers the days before DNase, I think it's a godsend. I wish I had been started on it sooner, but it wasn't around. I also started when my PFTs were still very high and my symptoms mild.
Just make sure to keep an eye out for any changes once you start the DNase. Some people do have some side effects and it's always good to be aware. Sorry your doc isn't on board yet with the eflow, btw. I hope it becomes more widespread in the future b/c it makes compliance sooo much easier.
Just make sure to keep an eye out for any changes once you start the DNase. Some people do have some side effects and it's always good to be aware. Sorry your doc isn't on board yet with the eflow, btw. I hope it becomes more widespread in the future b/c it makes compliance sooo much easier.
NYCLawGirl
New member
Pulmozyme (DNase) is a mucolytic, which means it is prescribed to attack and thin out mucus in the lungs. It doesn't treat "symptoms" or even infections, per se, but it does help reduce the viscosity of mucus so that it can be coughed out and the bacteria has fewer places to set up camp. There are some people with mixed feelings about the drug. Personally, as an adult cystic who remembers the days before DNase, I think it's a godsend. I wish I had been started on it sooner, but it wasn't around. I also started when my PFTs were still very high and my symptoms mild.
Just make sure to keep an eye out for any changes once you start the DNase. Some people do have some side effects and it's always good to be aware. Sorry your doc isn't on board yet with the eflow, btw. I hope it becomes more widespread in the future b/c it makes compliance sooo much easier.
Just make sure to keep an eye out for any changes once you start the DNase. Some people do have some side effects and it's always good to be aware. Sorry your doc isn't on board yet with the eflow, btw. I hope it becomes more widespread in the future b/c it makes compliance sooo much easier.
NYCLawGirl
New member
Pulmozyme (DNase) is a mucolytic, which means it is prescribed to attack and thin out mucus in the lungs. It doesn't treat "symptoms" or even infections, per se, but it does help reduce the viscosity of mucus so that it can be coughed out and the bacteria has fewer places to set up camp. There are some people with mixed feelings about the drug. Personally, as an adult cystic who remembers the days before DNase, I think it's a godsend. I wish I had been started on it sooner, but it wasn't around. I also started when my PFTs were still very high and my symptoms mild.
Just make sure to keep an eye out for any changes once you start the DNase. Some people do have some side effects and it's always good to be aware. Sorry your doc isn't on board yet with the eflow, btw. I hope it becomes more widespread in the future b/c it makes compliance sooo much easier.
Just make sure to keep an eye out for any changes once you start the DNase. Some people do have some side effects and it's always good to be aware. Sorry your doc isn't on board yet with the eflow, btw. I hope it becomes more widespread in the future b/c it makes compliance sooo much easier.
NYCLawGirl
New member
Pulmozyme (DNase) is a mucolytic, which means it is prescribed to attack and thin out mucus in the lungs. It doesn't treat "symptoms" or even infections, per se, but it does help reduce the viscosity of mucus so that it can be coughed out and the bacteria has fewer places to set up camp. There are some people with mixed feelings about the drug. Personally, as an adult cystic who remembers the days before DNase, I think it's a godsend. I wish I had been started on it sooner, but it wasn't around. I also started when my PFTs were still very high and my symptoms mild.
Just make sure to keep an eye out for any changes once you start the DNase. Some people do have some side effects and it's always good to be aware. Sorry your doc isn't on board yet with the eflow, btw. I hope it becomes more widespread in the future b/c it makes compliance sooo much easier.
Just make sure to keep an eye out for any changes once you start the DNase. Some people do have some side effects and it's always good to be aware. Sorry your doc isn't on board yet with the eflow, btw. I hope it becomes more widespread in the future b/c it makes compliance sooo much easier.
NYCLawGirl
New member
Pulmozyme (DNase) is a mucolytic, which means it is prescribed to attack and thin out mucus in the lungs. It doesn't treat "symptoms" or even infections, per se, but it does help reduce the viscosity of mucus so that it can be coughed out and the bacteria has fewer places to set up camp. There are some people with mixed feelings about the drug. Personally, as an adult cystic who remembers the days before DNase, I think it's a godsend. I wish I had been started on it sooner, but it wasn't around. I also started when my PFTs were still very high and my symptoms mild.
<br />
<br />Just make sure to keep an eye out for any changes once you start the DNase. Some people do have some side effects and it's always good to be aware. Sorry your doc isn't on board yet with the eflow, btw. I hope it becomes more widespread in the future b/c it makes compliance sooo much easier.
<br />
<br />Just make sure to keep an eye out for any changes once you start the DNase. Some people do have some side effects and it's always good to be aware. Sorry your doc isn't on board yet with the eflow, btw. I hope it becomes more widespread in the future b/c it makes compliance sooo much easier.