crickit715
New member
just a bit of useless info: the latin word for onion is cepia (hence cepacia).... <img src="i/expressions/face-icon-small-smile.gif" border="0">
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an alternative browser.
You should upgrade or use an alternative browser.
B. Cepecia and Onions
- Thread starter Pebbles8
- Start date
So many people with 'diseases' choose to live in a <a target=_blank class=ftalternatingbarlinklarge href="http://en.wikipedia.org/wiki/Bubble_Boy">Bubble Boy World. </a>
I myself, have not.
Should I fear those things that I cannot control?
...
Or <b>control the fear</b> of those things that are out of my control?
Personally, I choose to control the fear.
Am I saying you shouldn't take precautions against those things that are known to cause harm? No - I'm not saying go crazy and do stuff that you know will hurt you. What I'm saying is, I've cooked with onions for the last 40 years, pealing them for my grandmother, mother, wife, myself. I fear no onion, although they can make me cry...
I myself, have not.
Should I fear those things that I cannot control?
...
Or <b>control the fear</b> of those things that are out of my control?
Personally, I choose to control the fear.
Am I saying you shouldn't take precautions against those things that are known to cause harm? No - I'm not saying go crazy and do stuff that you know will hurt you. What I'm saying is, I've cooked with onions for the last 40 years, pealing them for my grandmother, mother, wife, myself. I fear no onion, although they can make me cry...
So many people with 'diseases' choose to live in a <a target=_blank class=ftalternatingbarlinklarge href="http://en.wikipedia.org/wiki/Bubble_Boy">Bubble Boy World. </a>
I myself, have not.
Should I fear those things that I cannot control?
...
Or <b>control the fear</b> of those things that are out of my control?
Personally, I choose to control the fear.
Am I saying you shouldn't take precautions against those things that are known to cause harm? No - I'm not saying go crazy and do stuff that you know will hurt you. What I'm saying is, I've cooked with onions for the last 40 years, pealing them for my grandmother, mother, wife, myself. I fear no onion, although they can make me cry...
I myself, have not.
Should I fear those things that I cannot control?
...
Or <b>control the fear</b> of those things that are out of my control?
Personally, I choose to control the fear.
Am I saying you shouldn't take precautions against those things that are known to cause harm? No - I'm not saying go crazy and do stuff that you know will hurt you. What I'm saying is, I've cooked with onions for the last 40 years, pealing them for my grandmother, mother, wife, myself. I fear no onion, although they can make me cry...
So many people with 'diseases' choose to live in a <a target=_blank class=ftalternatingbarlinklarge href="http://en.wikipedia.org/wiki/Bubble_Boy">Bubble Boy World. </a>
<br />
<br />I myself, have not.
<br />
<br />Should I fear those things that I cannot control?
<br />...
<br />Or <b>control the fear</b> of those things that are out of my control?
<br />
<br />Personally, I choose to control the fear.
<br />
<br />Am I saying you shouldn't take precautions against those things that are known to cause harm? No - I'm not saying go crazy and do stuff that you know will hurt you. What I'm saying is, I've cooked with onions for the last 40 years, pealing them for my grandmother, mother, wife, myself. I fear no onion, although they can make me cry...
<br />
<br />I myself, have not.
<br />
<br />Should I fear those things that I cannot control?
<br />...
<br />Or <b>control the fear</b> of those things that are out of my control?
<br />
<br />Personally, I choose to control the fear.
<br />
<br />Am I saying you shouldn't take precautions against those things that are known to cause harm? No - I'm not saying go crazy and do stuff that you know will hurt you. What I'm saying is, I've cooked with onions for the last 40 years, pealing them for my grandmother, mother, wife, myself. I fear no onion, although they can make me cry...
Yes Pebbles8,
Our clinic did say a onion rot can cause B. Cepecia. That was only after myself reserching and me questioning the clinic. With this disease you have to do a lot of reserch yourself, especially with it being such a complex disease.
There are many things that can give bad pathogens to our CFer's.
I don't know why knowing that bad onions were compaired to a movie 'Bubble Boy World'. This is a progressive disease and as time goes by the CFF discovers what is harmful and ways to prevent harm. For example, useing gloves if your slicing onions was a good example, or hand sanitizer. The most they have come up with due to prevention of dangers of bad pathogens/bacteria etc. is Hand Cleaning, trying to avoid sick people, and do your treatments. But, you don't have to be put in Bubble Boy World, to take care of yourself.
There are things that are in your control with this disease and you don't have to be fearful ,but to know something that is harmful and do it and take chance's that you may not catch something is crazy.It doesn't make me a Bubble Boy to be cautious, and Knowledge is Power! There will be many things to be cautious with that you will discover over the years.
It's okay to eat onions, but, I am very cautious with onions or any veg or fruit that is turning bad.
Don't feel guilty that you didn't know, that is what is so good about this site. You can ask questions and we can learn from it, take what we want from it, keep it and use it, or ignore it,or even better take your questions and write them down for your next appt.and discuss it with the CF Clinic.
Good Luck Sweetie, and it's great you are wanting to learn,karla<img src="i/expressions/face-icon-small-wink.gif" border="0"><img src="i/expressions/face-icon-small-blush.gif" border="0">
Our clinic did say a onion rot can cause B. Cepecia. That was only after myself reserching and me questioning the clinic. With this disease you have to do a lot of reserch yourself, especially with it being such a complex disease.
There are many things that can give bad pathogens to our CFer's.
I don't know why knowing that bad onions were compaired to a movie 'Bubble Boy World'. This is a progressive disease and as time goes by the CFF discovers what is harmful and ways to prevent harm. For example, useing gloves if your slicing onions was a good example, or hand sanitizer. The most they have come up with due to prevention of dangers of bad pathogens/bacteria etc. is Hand Cleaning, trying to avoid sick people, and do your treatments. But, you don't have to be put in Bubble Boy World, to take care of yourself.
There are things that are in your control with this disease and you don't have to be fearful ,but to know something that is harmful and do it and take chance's that you may not catch something is crazy.It doesn't make me a Bubble Boy to be cautious, and Knowledge is Power! There will be many things to be cautious with that you will discover over the years.
It's okay to eat onions, but, I am very cautious with onions or any veg or fruit that is turning bad.
Don't feel guilty that you didn't know, that is what is so good about this site. You can ask questions and we can learn from it, take what we want from it, keep it and use it, or ignore it,or even better take your questions and write them down for your next appt.and discuss it with the CF Clinic.
Good Luck Sweetie, and it's great you are wanting to learn,karla<img src="i/expressions/face-icon-small-wink.gif" border="0"><img src="i/expressions/face-icon-small-blush.gif" border="0">
Yes Pebbles8,
Our clinic did say a onion rot can cause B. Cepecia. That was only after myself reserching and me questioning the clinic. With this disease you have to do a lot of reserch yourself, especially with it being such a complex disease.
There are many things that can give bad pathogens to our CFer's.
I don't know why knowing that bad onions were compaired to a movie 'Bubble Boy World'. This is a progressive disease and as time goes by the CFF discovers what is harmful and ways to prevent harm. For example, useing gloves if your slicing onions was a good example, or hand sanitizer. The most they have come up with due to prevention of dangers of bad pathogens/bacteria etc. is Hand Cleaning, trying to avoid sick people, and do your treatments. But, you don't have to be put in Bubble Boy World, to take care of yourself.
There are things that are in your control with this disease and you don't have to be fearful ,but to know something that is harmful and do it and take chance's that you may not catch something is crazy.It doesn't make me a Bubble Boy to be cautious, and Knowledge is Power! There will be many things to be cautious with that you will discover over the years.
It's okay to eat onions, but, I am very cautious with onions or any veg or fruit that is turning bad.
Don't feel guilty that you didn't know, that is what is so good about this site. You can ask questions and we can learn from it, take what we want from it, keep it and use it, or ignore it,or even better take your questions and write them down for your next appt.and discuss it with the CF Clinic.
Good Luck Sweetie, and it's great you are wanting to learn,karla<img src="i/expressions/face-icon-small-wink.gif" border="0"><img src="i/expressions/face-icon-small-blush.gif" border="0">
Our clinic did say a onion rot can cause B. Cepecia. That was only after myself reserching and me questioning the clinic. With this disease you have to do a lot of reserch yourself, especially with it being such a complex disease.
There are many things that can give bad pathogens to our CFer's.
I don't know why knowing that bad onions were compaired to a movie 'Bubble Boy World'. This is a progressive disease and as time goes by the CFF discovers what is harmful and ways to prevent harm. For example, useing gloves if your slicing onions was a good example, or hand sanitizer. The most they have come up with due to prevention of dangers of bad pathogens/bacteria etc. is Hand Cleaning, trying to avoid sick people, and do your treatments. But, you don't have to be put in Bubble Boy World, to take care of yourself.
There are things that are in your control with this disease and you don't have to be fearful ,but to know something that is harmful and do it and take chance's that you may not catch something is crazy.It doesn't make me a Bubble Boy to be cautious, and Knowledge is Power! There will be many things to be cautious with that you will discover over the years.
It's okay to eat onions, but, I am very cautious with onions or any veg or fruit that is turning bad.
Don't feel guilty that you didn't know, that is what is so good about this site. You can ask questions and we can learn from it, take what we want from it, keep it and use it, or ignore it,or even better take your questions and write them down for your next appt.and discuss it with the CF Clinic.
Good Luck Sweetie, and it's great you are wanting to learn,karla<img src="i/expressions/face-icon-small-wink.gif" border="0"><img src="i/expressions/face-icon-small-blush.gif" border="0">
Yes Pebbles8,
<br /> Our clinic did say a onion rot can cause B. Cepecia. That was only after myself reserching and me questioning the clinic. With this disease you have to do a lot of reserch yourself, especially with it being such a complex disease.
<br />There are many things that can give bad pathogens to our CFer's.
<br />
<br />I don't know why knowing that bad onions were compaired to a movie 'Bubble Boy World'. This is a progressive disease and as time goes by the CFF discovers what is harmful and ways to prevent harm. For example, useing gloves if your slicing onions was a good example, or hand sanitizer. The most they have come up with due to prevention of dangers of bad pathogens/bacteria etc. is Hand Cleaning, trying to avoid sick people, and do your treatments. But, you don't have to be put in Bubble Boy World, to take care of yourself.
<br />
<br />There are things that are in your control with this disease and you don't have to be fearful ,but to know something that is harmful and do it and take chance's that you may not catch something is crazy.It doesn't make me a Bubble Boy to be cautious, and Knowledge is Power! There will be many things to be cautious with that you will discover over the years.
<br />It's okay to eat onions, but, I am very cautious with onions or any veg or fruit that is turning bad.
<br />
<br />Don't feel guilty that you didn't know, that is what is so good about this site. You can ask questions and we can learn from it, take what we want from it, keep it and use it, or ignore it,or even better take your questions and write them down for your next appt.and discuss it with the CF Clinic.
<br />
<br />Good Luck Sweetie, and it's great you are wanting to learn,karla<img src="i/expressions/face-icon-small-wink.gif" border="0"><img src="i/expressions/face-icon-small-blush.gif" border="0">
<br /> Our clinic did say a onion rot can cause B. Cepecia. That was only after myself reserching and me questioning the clinic. With this disease you have to do a lot of reserch yourself, especially with it being such a complex disease.
<br />There are many things that can give bad pathogens to our CFer's.
<br />
<br />I don't know why knowing that bad onions were compaired to a movie 'Bubble Boy World'. This is a progressive disease and as time goes by the CFF discovers what is harmful and ways to prevent harm. For example, useing gloves if your slicing onions was a good example, or hand sanitizer. The most they have come up with due to prevention of dangers of bad pathogens/bacteria etc. is Hand Cleaning, trying to avoid sick people, and do your treatments. But, you don't have to be put in Bubble Boy World, to take care of yourself.
<br />
<br />There are things that are in your control with this disease and you don't have to be fearful ,but to know something that is harmful and do it and take chance's that you may not catch something is crazy.It doesn't make me a Bubble Boy to be cautious, and Knowledge is Power! There will be many things to be cautious with that you will discover over the years.
<br />It's okay to eat onions, but, I am very cautious with onions or any veg or fruit that is turning bad.
<br />
<br />Don't feel guilty that you didn't know, that is what is so good about this site. You can ask questions and we can learn from it, take what we want from it, keep it and use it, or ignore it,or even better take your questions and write them down for your next appt.and discuss it with the CF Clinic.
<br />
<br />Good Luck Sweetie, and it's great you are wanting to learn,karla<img src="i/expressions/face-icon-small-wink.gif" border="0"><img src="i/expressions/face-icon-small-blush.gif" border="0">
I try to be as careful as possible with onions/earth.. And since I contracted Myco Bacterium Abscesses & it is believed to be contracted by breathing in the steam from a bacteria filled shower head & poor ventilation I am as careful as I can be with that also ( a little late though <img src="i/expressions/face-icon-small-sad.gif" border="0"> )
I have often wonder why there isnt a list for put out by the CFF & given out yearly by every CF clinic to all CF patients.
Usually when a person is dxd either their parents, spouses or they themselves are in shock & hearing Waa Waa Waa about what CF is about ..
Anyway thats my 2 cents lol <img src="i/expressions/heart.gif" border="0"> joni
I have often wonder why there isnt a list for put out by the CFF & given out yearly by every CF clinic to all CF patients.
Usually when a person is dxd either their parents, spouses or they themselves are in shock & hearing Waa Waa Waa about what CF is about ..
Anyway thats my 2 cents lol <img src="i/expressions/heart.gif" border="0"> joni
I try to be as careful as possible with onions/earth.. And since I contracted Myco Bacterium Abscesses & it is believed to be contracted by breathing in the steam from a bacteria filled shower head & poor ventilation I am as careful as I can be with that also ( a little late though <img src="i/expressions/face-icon-small-sad.gif" border="0"> )
I have often wonder why there isnt a list for put out by the CFF & given out yearly by every CF clinic to all CF patients.
Usually when a person is dxd either their parents, spouses or they themselves are in shock & hearing Waa Waa Waa about what CF is about ..
Anyway thats my 2 cents lol <img src="i/expressions/heart.gif" border="0"> joni
I have often wonder why there isnt a list for put out by the CFF & given out yearly by every CF clinic to all CF patients.
Usually when a person is dxd either their parents, spouses or they themselves are in shock & hearing Waa Waa Waa about what CF is about ..
Anyway thats my 2 cents lol <img src="i/expressions/heart.gif" border="0"> joni
I try to be as careful as possible with onions/earth.. And since I contracted Myco Bacterium Abscesses & it is believed to be contracted by breathing in the steam from a bacteria filled shower head & poor ventilation I am as careful as I can be with that also ( a little late though <img src="i/expressions/face-icon-small-sad.gif" border="0"> )
<br />
<br /> I have often wonder why there isnt a list for put out by the CFF & given out yearly by every CF clinic to all CF patients.
<br />
<br /> Usually when a person is dxd either their parents, spouses or they themselves are in shock & hearing Waa Waa Waa about what CF is about ..
<br />
<br /> Anyway thats my 2 cents lol <img src="i/expressions/heart.gif" border="0"> joni
<br />
<br /> I have often wonder why there isnt a list for put out by the CFF & given out yearly by every CF clinic to all CF patients.
<br />
<br /> Usually when a person is dxd either their parents, spouses or they themselves are in shock & hearing Waa Waa Waa about what CF is about ..
<br />
<br /> Anyway thats my 2 cents lol <img src="i/expressions/heart.gif" border="0"> joni
my65roses4me
New member
I didnt know anything about this. Thanks so much for posting this!
my65roses4me
New member
I didnt know anything about this. Thanks so much for posting this!
my65roses4me
New member
I didnt know anything about this. Thanks so much for posting this!