lovemygirl
New member
Jen,
Congratulations on your pregnancy. I am the mom of a 4 yr old with CF and we had no history in our family. We found the first year really difficult, but then things start to fall into place. Take care of yourself so that you can care for your baby. Try not to dwell on the disease but marvel in everything your baby does, because they grow up fast. It is good that you are able to cry, and people were strange with us at first, but you will soon see it is because they care so much that they don't want to say the wrong thing.
Here is a link to something which may help you, it is called "Welcome to Holland". It is a new perspective or way to look at disease in a child. It was not written for a CF child but the same principles apply. I still read it when I am having a bad day.
http://www.angelfire.com/ky/touristinfo/holland.html
Good luck to you and your family.
Congratulations on your pregnancy. I am the mom of a 4 yr old with CF and we had no history in our family. We found the first year really difficult, but then things start to fall into place. Take care of yourself so that you can care for your baby. Try not to dwell on the disease but marvel in everything your baby does, because they grow up fast. It is good that you are able to cry, and people were strange with us at first, but you will soon see it is because they care so much that they don't want to say the wrong thing.
Here is a link to something which may help you, it is called "Welcome to Holland". It is a new perspective or way to look at disease in a child. It was not written for a CF child but the same principles apply. I still read it when I am having a bad day.
http://www.angelfire.com/ky/touristinfo/holland.html
Good luck to you and your family.