Back after "Running Retirement"

A

amysue78

New member
Back after

I have been really wondering about my sugars, especially since I have been so thirsty lately. I do Tobi and pulmozyme and I take zithromax. I just have not been consistent with the ACT. Well, lately anyway. I have been so busy with the doctoral program and my family. I just had to re-prioritize.

I culture Alcaligenese xylosoxidans and staph. Aur.. In the past I cultured Pseudomonas but I have not in years now. Taking Merrem now (3 times in 6 months). That Swine Flu did a number on me, I was so unprepared for it.
I am hoping and praying that with extra focus I will get my numbers back up.

Thank you all for the support.

Amy Long 32 fwcf, mother of Monique (almost) 12 no cf, Elijah 8, no cf and Samuel 7, no cf. Married to Josh no CF 5/30/09...1 week after getting my Master's degree in Rehabilitation Counseling.
The Lord is my Strength and my Rock!
 
A

amysue78

New member
Back after

I have been really wondering about my sugars, especially since I have been so thirsty lately. I do Tobi and pulmozyme and I take zithromax. I just have not been consistent with the ACT. Well, lately anyway. I have been so busy with the doctoral program and my family. I just had to re-prioritize.

I culture Alcaligenese xylosoxidans and staph. Aur.. In the past I cultured Pseudomonas but I have not in years now. Taking Merrem now (3 times in 6 months). That Swine Flu did a number on me, I was so unprepared for it.
I am hoping and praying that with extra focus I will get my numbers back up.

Thank you all for the support.

Amy Long 32 fwcf, mother of Monique (almost) 12 no cf, Elijah 8, no cf and Samuel 7, no cf. Married to Josh no CF 5/30/09...1 week after getting my Master's degree in Rehabilitation Counseling.
The Lord is my Strength and my Rock!
 
A

amysue78

New member
Back after

I have been really wondering about my sugars, especially since I have been so thirsty lately. I do Tobi and pulmozyme and I take zithromax. I just have not been consistent with the ACT. Well, lately anyway. I have been so busy with the doctoral program and my family. I just had to re-prioritize.

I culture Alcaligenese xylosoxidans and staph. Aur.. In the past I cultured Pseudomonas but I have not in years now. Taking Merrem now (3 times in 6 months). That Swine Flu did a number on me, I was so unprepared for it.
I am hoping and praying that with extra focus I will get my numbers back up.

Thank you all for the support.

Amy Long 32 fwcf, mother of Monique (almost) 12 no cf, Elijah 8, no cf and Samuel 7, no cf. Married to Josh no CF 5/30/09...1 week after getting my Master's degree in Rehabilitation Counseling.
The Lord is my Strength and my Rock!
 
A

amysue78

New member
Back after

I have been really wondering about my sugars, especially since I have been so thirsty lately. I do Tobi and pulmozyme and I take zithromax. I just have not been consistent with the ACT. Well, lately anyway. I have been so busy with the doctoral program and my family. I just had to re-prioritize.

I culture Alcaligenese xylosoxidans and staph. Aur.. In the past I cultured Pseudomonas but I have not in years now. Taking Merrem now (3 times in 6 months). That Swine Flu did a number on me, I was so unprepared for it.
I am hoping and praying that with extra focus I will get my numbers back up.

Thank you all for the support.

Amy Long 32 fwcf, mother of Monique (almost) 12 no cf, Elijah 8, no cf and Samuel 7, no cf. Married to Josh no CF 5/30/09...1 week after getting my Master's degree in Rehabilitation Counseling.
The Lord is my Strength and my Rock!
 
A

amysue78

New member
Back after

I have been really wondering about my sugars, especially since I have been so thirsty lately. I do Tobi and pulmozyme and I take zithromax. I just have not been consistent with the ACT. Well, lately anyway. I have been so busy with the doctoral program and my family. I just had to re-prioritize.
<br />
<br />I culture Alcaligenese xylosoxidans and staph. Aur.. In the past I cultured Pseudomonas but I have not in years now. Taking Merrem now (3 times in 6 months). That Swine Flu did a number on me, I was so unprepared for it.
<br />I am hoping and praying that with extra focus I will get my numbers back up.
<br />
<br />Thank you all for the support.
<br />
<br />Amy Long 32 fwcf, mother of Monique (almost) 12 no cf, Elijah 8, no cf and Samuel 7, no cf. Married to Josh no CF 5/30/09...1 week after getting my Master's degree in Rehabilitation Counseling.
<br />The Lord is my Strength and my Rock!
 
W

welshwitch

Guest
Back after

Dear Amy,

I would recommend that you make your health your number one priority, and you will definitely thrive!

Re: the running: Just start slow. Try doing a 20 minute run twice a week. Gradually increase it to 30 min, then an hour if you can. I know about the excuses. Find just 20 minutes where you can dedicate it to you getting your track star self back. Do it until you start to feel clearer.

It's remarkable, because I feel like running for 20 or 30 min has an incredible effect on my lungs, more than treatments. I run because of my lungs, not to lose weight, or stay in shape, or look good (although those are nice side effects!) It's the most amazing feeling to wake up the day after a run breathing clearly. You have more energy, your appetite increases, and you sleep better.

I also think that as CFers we have a higher tolerance for just about anything. As I crossed the finish line yesterday of my half marathon (beating my friend, I might add!) I remember all the people I passed as I ran to the end. There were people passed out, people limping, people complaining. "My legs hurt! My feet hurt!" I thought, "If I can get my lungs to tolerate 13.1 miles there is no WAY a little leg ache is going to stop me!" So be it.

If you think of dedicating yourself to running as a crucial step in your CF treatment, there is no way you can go wrong.
 
W

welshwitch

Guest
Back after

Dear Amy,

I would recommend that you make your health your number one priority, and you will definitely thrive!

Re: the running: Just start slow. Try doing a 20 minute run twice a week. Gradually increase it to 30 min, then an hour if you can. I know about the excuses. Find just 20 minutes where you can dedicate it to you getting your track star self back. Do it until you start to feel clearer.

It's remarkable, because I feel like running for 20 or 30 min has an incredible effect on my lungs, more than treatments. I run because of my lungs, not to lose weight, or stay in shape, or look good (although those are nice side effects!) It's the most amazing feeling to wake up the day after a run breathing clearly. You have more energy, your appetite increases, and you sleep better.

I also think that as CFers we have a higher tolerance for just about anything. As I crossed the finish line yesterday of my half marathon (beating my friend, I might add!) I remember all the people I passed as I ran to the end. There were people passed out, people limping, people complaining. "My legs hurt! My feet hurt!" I thought, "If I can get my lungs to tolerate 13.1 miles there is no WAY a little leg ache is going to stop me!" So be it.

If you think of dedicating yourself to running as a crucial step in your CF treatment, there is no way you can go wrong.
 
W

welshwitch

Guest
Back after

Dear Amy,

I would recommend that you make your health your number one priority, and you will definitely thrive!

Re: the running: Just start slow. Try doing a 20 minute run twice a week. Gradually increase it to 30 min, then an hour if you can. I know about the excuses. Find just 20 minutes where you can dedicate it to you getting your track star self back. Do it until you start to feel clearer.

It's remarkable, because I feel like running for 20 or 30 min has an incredible effect on my lungs, more than treatments. I run because of my lungs, not to lose weight, or stay in shape, or look good (although those are nice side effects!) It's the most amazing feeling to wake up the day after a run breathing clearly. You have more energy, your appetite increases, and you sleep better.

I also think that as CFers we have a higher tolerance for just about anything. As I crossed the finish line yesterday of my half marathon (beating my friend, I might add!) I remember all the people I passed as I ran to the end. There were people passed out, people limping, people complaining. "My legs hurt! My feet hurt!" I thought, "If I can get my lungs to tolerate 13.1 miles there is no WAY a little leg ache is going to stop me!" So be it.

If you think of dedicating yourself to running as a crucial step in your CF treatment, there is no way you can go wrong.
 
W

welshwitch

Guest
Back after

Dear Amy,

I would recommend that you make your health your number one priority, and you will definitely thrive!

Re: the running: Just start slow. Try doing a 20 minute run twice a week. Gradually increase it to 30 min, then an hour if you can. I know about the excuses. Find just 20 minutes where you can dedicate it to you getting your track star self back. Do it until you start to feel clearer.

It's remarkable, because I feel like running for 20 or 30 min has an incredible effect on my lungs, more than treatments. I run because of my lungs, not to lose weight, or stay in shape, or look good (although those are nice side effects!) It's the most amazing feeling to wake up the day after a run breathing clearly. You have more energy, your appetite increases, and you sleep better.

I also think that as CFers we have a higher tolerance for just about anything. As I crossed the finish line yesterday of my half marathon (beating my friend, I might add!) I remember all the people I passed as I ran to the end. There were people passed out, people limping, people complaining. "My legs hurt! My feet hurt!" I thought, "If I can get my lungs to tolerate 13.1 miles there is no WAY a little leg ache is going to stop me!" So be it.

If you think of dedicating yourself to running as a crucial step in your CF treatment, there is no way you can go wrong.
 
W

welshwitch

Guest
Back after

Dear Amy,
<br />
<br />I would recommend that you make your health your number one priority, and you will definitely thrive!
<br />
<br />Re: the running: Just start slow. Try doing a 20 minute run twice a week. Gradually increase it to 30 min, then an hour if you can. I know about the excuses. Find just 20 minutes where you can dedicate it to you getting your track star self back. Do it until you start to feel clearer.
<br />
<br />It's remarkable, because I feel like running for 20 or 30 min has an incredible effect on my lungs, more than treatments. I run because of my lungs, not to lose weight, or stay in shape, or look good (although those are nice side effects!) It's the most amazing feeling to wake up the day after a run breathing clearly. You have more energy, your appetite increases, and you sleep better.
<br />
<br />I also think that as CFers we have a higher tolerance for just about anything. As I crossed the finish line yesterday of my half marathon (beating my friend, I might add!) I remember all the people I passed as I ran to the end. There were people passed out, people limping, people complaining. "My legs hurt! My feet hurt!" I thought, "If I can get my lungs to tolerate 13.1 miles there is no WAY a little leg ache is going to stop me!" So be it.
<br />
<br />If you think of dedicating yourself to running as a crucial step in your CF treatment, there is no way you can go wrong.
 
W

welshwitch

Guest
Back after

Oh yes, is there a 5K or a short race you could sign up for as motivation? That way, you will not only be running for you but you will be "training for race X" which has an incredible effect on whether you make it out or not! Ie, a deadline to make you less likely to make up excuses not to go?
 
W

welshwitch

Guest
Back after

Oh yes, is there a 5K or a short race you could sign up for as motivation? That way, you will not only be running for you but you will be "training for race X" which has an incredible effect on whether you make it out or not! Ie, a deadline to make you less likely to make up excuses not to go?
 
W

welshwitch

Guest
Back after

Oh yes, is there a 5K or a short race you could sign up for as motivation? That way, you will not only be running for you but you will be "training for race X" which has an incredible effect on whether you make it out or not! Ie, a deadline to make you less likely to make up excuses not to go?
 
W

welshwitch

Guest
Back after

Oh yes, is there a 5K or a short race you could sign up for as motivation? That way, you will not only be running for you but you will be "training for race X" which has an incredible effect on whether you make it out or not! Ie, a deadline to make you less likely to make up excuses not to go?
 
W

welshwitch

Guest
Back after

Oh yes, is there a 5K or a short race you could sign up for as motivation? That way, you will not only be running for you but you will be "training for race X" which has an incredible effect on whether you make it out or not! Ie, a deadline to make you less likely to make up excuses not to go?
 
A

amysue78

New member
Back after

I will check and see if there is a 5k coming up. I know our town usually has a small run around Memorial day. That sounds like a good idea. Thank you and Congrats on your Run! Thank you everyone for the support. I started walking yesterday 30 minutes and I will be going today. The prednisone is finally working, so now I can breath.

I will keep you posted
Amy Long
 
A

amysue78

New member
Back after

I will check and see if there is a 5k coming up. I know our town usually has a small run around Memorial day. That sounds like a good idea. Thank you and Congrats on your Run! Thank you everyone for the support. I started walking yesterday 30 minutes and I will be going today. The prednisone is finally working, so now I can breath.

I will keep you posted
Amy Long
 
A

amysue78

New member
Back after

I will check and see if there is a 5k coming up. I know our town usually has a small run around Memorial day. That sounds like a good idea. Thank you and Congrats on your Run! Thank you everyone for the support. I started walking yesterday 30 minutes and I will be going today. The prednisone is finally working, so now I can breath.

I will keep you posted
Amy Long
 
A

amysue78

New member
Back after

I will check and see if there is a 5k coming up. I know our town usually has a small run around Memorial day. That sounds like a good idea. Thank you and Congrats on your Run! Thank you everyone for the support. I started walking yesterday 30 minutes and I will be going today. The prednisone is finally working, so now I can breath.

I will keep you posted
Amy Long
 
A

amysue78

New member
Back after

I will check and see if there is a 5k coming up. I know our town usually has a small run around Memorial day. That sounds like a good idea. Thank you and Congrats on your Run! Thank you everyone for the support. I started walking yesterday 30 minutes and I will be going today. The prednisone is finally working, so now I can breath.
<br />
<br />I will keep you posted
<br />Amy Long
 
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