Bactrim if not coughing?

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kitomd21

New member
Thank you everybody. I think the issue with this doctor is that he's so dry and to the point that he doesn't elaborate on much of anything - leaves me with questions all the time! <img src="i/expressions/face-icon-small-smile.gif" border="0"> I have a tendency not to trust doctors...I assume they're all bound to be wrong and I'm always on guard. A good thing and a bad thing, I suppose. Hopefully I'll still catch when they are "wrong" about something by being vigilant.
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<br />Thanks for your input, Harriet. He didn't seem too alarmed by the clubbing until we have a follow-up XRAY from over a year ago. If the XRAY is concerning, he's going to order a bronchoscopy or CT scan....again, he didn't really elaborate on the causes on clubbing. He really doesn't address anything unless he really needs to, it seems. Just a difficult person to read!!
 
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ymikhale

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kitomd21</b></i>

Thank you everybody. I think the issue with this doctor is that he's so dry and to the point that he doesn't elaborate on much of anything - leaves me with questions all the time! <img src=""> I have a tendency not to trust doctors...I assume they're all bound to be wrong and I'm always on guard. A good thing and a bad thing, I suppose. Hopefully I'll still catch when they are "wrong" about something by being vigilant.



</end quote></div>

I am like that too. I would say it is a good thing, it already served me once: they wanted to take my dd off anti reflux meds with no explanation, I question it and on the next appointment all of a sudden the doctor started talking about doing some the testing before as I previously suggested. Naturally I let her take the credit for this decision!
 
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ymikhale

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kitomd21</b></i>

Thank you everybody. I think the issue with this doctor is that he's so dry and to the point that he doesn't elaborate on much of anything - leaves me with questions all the time! <img src=""> I have a tendency not to trust doctors...I assume they're all bound to be wrong and I'm always on guard. A good thing and a bad thing, I suppose. Hopefully I'll still catch when they are "wrong" about something by being vigilant.



</end quote>

I am like that too. I would say it is a good thing, it already served me once: they wanted to take my dd off anti reflux meds with no explanation, I question it and on the next appointment all of a sudden the doctor started talking about doing some the testing before as I previously suggested. Naturally I let her take the credit for this decision!
 
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ymikhale

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kitomd21</b></i>
<br />
<br />Thank you everybody. I think the issue with this doctor is that he's so dry and to the point that he doesn't elaborate on much of anything - leaves me with questions all the time! <img src=""> I have a tendency not to trust doctors...I assume they're all bound to be wrong and I'm always on guard. A good thing and a bad thing, I suppose. Hopefully I'll still catch when they are "wrong" about something by being vigilant.
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<br />
<br />
<br /></end quote>
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<br />I am like that too. I would say it is a good thing, it already served me once: they wanted to take my dd off anti reflux meds with no explanation, I question it and on the next appointment all of a sudden the doctor started talking about doing some the testing before as I previously suggested. Naturally I let her take the credit for this decision!
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M

mneville

Guest
Just got back from the National CF Conference and there was a lot of talk about viruses exacerbating CF lungs which are already laden with bacteria..In Sweden, they treat most viruses with abx and have good results.
 
M

mneville

Guest
Just got back from the National CF Conference and there was a lot of talk about viruses exacerbating CF lungs which are already laden with bacteria..In Sweden, they treat most viruses with abx and have good results.
 
M

mneville

Guest
Just got back from the National CF Conference and there was a lot of talk about viruses exacerbating CF lungs which are already laden with bacteria..In Sweden, they treat most viruses with abx and have good results.
 
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Mommafirst

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mneville</b></i>

Just got back from the National CF Conference and there was a lot of talk about viruses exacerbating CF lungs which are already laden with bacteria..In Sweden, they treat most viruses with abx and have good results.</end quote></div>

Thanks for sharing -- is there anything else from the conference that you think is worth sharing??!!
 
M

Mommafirst

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mneville</b></i>

Just got back from the National CF Conference and there was a lot of talk about viruses exacerbating CF lungs which are already laden with bacteria..In Sweden, they treat most viruses with abx and have good results.</end quote>

Thanks for sharing -- is there anything else from the conference that you think is worth sharing??!!
 
M

Mommafirst

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mneville</b></i>
<br />
<br />Just got back from the National CF Conference and there was a lot of talk about viruses exacerbating CF lungs which are already laden with bacteria..In Sweden, they treat most viruses with abx and have good results.</end quote>
<br />
<br />Thanks for sharing -- is there anything else from the conference that you think is worth sharing??!!
<br />
<br />
 
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ymikhale

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mneville</b></i>

In Sweden, they treat most viruses with abx and have good results.</end quote></div>

In Israel they do too
 
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ymikhale

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mneville</b></i>

In Sweden, they treat most viruses with abx and have good results.</end quote>

In Israel they do too
 
Y

ymikhale

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mneville</b></i>
<br />
<br />In Sweden, they treat most viruses with abx and have good results.</end quote>
<br />
<br />In Israel they do too
 
K

kitomd21

New member
We started her on Bactrim as mentioned above...oddly enough, the odor I've ALWAYS noticed on her breath has disappeared. She has cultured staph since dx at two-weeks-old...I can't remember her breath not "smelling like infection" at any point in her life. She has never had a baseline cough and had stopped coughing due to a cold the day before starting Bactrim. Have any of you noticed changes in breath based upon positive cultures?

What intrigues me is her previous doctor (who left the current CF center we go to) didn't want to start her on abx when her xray showed "changes" a year ago...the doctor we see now would have rx'd abx based upon her xray alone...now I'm regretting that we didn't follow his original orders. Frustrating when two doctors at the same CF center had different approaches. Her current doctor doesn't pay much heed to the idea of staph keeping PA at bay to some degree. He maintains that people are referring to a single study from many years ago and making a generalization based upon that single study...thoughts?
 
K

kitomd21

New member
We started her on Bactrim as mentioned above...oddly enough, the odor I've ALWAYS noticed on her breath has disappeared. She has cultured staph since dx at two-weeks-old...I can't remember her breath not "smelling like infection" at any point in her life. She has never had a baseline cough and had stopped coughing due to a cold the day before starting Bactrim. Have any of you noticed changes in breath based upon positive cultures?

What intrigues me is her previous doctor (who left the current CF center we go to) didn't want to start her on abx when her xray showed "changes" a year ago...the doctor we see now would have rx'd abx based upon her xray alone...now I'm regretting that we didn't follow his original orders. Frustrating when two doctors at the same CF center had different approaches. Her current doctor doesn't pay much heed to the idea of staph keeping PA at bay to some degree. He maintains that people are referring to a single study from many years ago and making a generalization based upon that single study...thoughts?
 
K

kitomd21

New member
We started her on Bactrim as mentioned above...oddly enough, the odor I've ALWAYS noticed on her breath has disappeared. She has cultured staph since dx at two-weeks-old...I can't remember her breath not "smelling like infection" at any point in her life. She has never had a baseline cough and had stopped coughing due to a cold the day before starting Bactrim. Have any of you noticed changes in breath based upon positive cultures?
<br />
<br />What intrigues me is her previous doctor (who left the current CF center we go to) didn't want to start her on abx when her xray showed "changes" a year ago...the doctor we see now would have rx'd abx based upon her xray alone...now I'm regretting that we didn't follow his original orders. Frustrating when two doctors at the same CF center had different approaches. Her current doctor doesn't pay much heed to the idea of staph keeping PA at bay to some degree. He maintains that people are referring to a single study from many years ago and making a generalization based upon that single study...thoughts?
 
Y

ymikhale

New member
My dd also cultured staph since diagnosed at 2 m/o. She gets antibiotics when the count gets high (something like 10^6) even in the absence of any symptoms/cough. I guess the idea behind this is that staph is damaging to the lungs too. If i am not mistaken there is a member here with 2 kids and the kid with staph and no PA has more scarring than the one with PA.
 
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