Bengalsfan
New member
Do any of you have problems with doctor's or hospitals? We do, but this last one just beat all!! We're in hickville USA, Southern Illinois, and Jeremy has tried doctor after doctor, and we finally found a family physician and pulmonologist we thought would be pretty decent. Well, Jeremy's been in and out of the hospital this year already 3 times....once for a blood infection and twice for his lungs....the first time he wasn't given the right antibiotics....that's a whole other story. He doesn't go to a CF clinic because the one he went to in St. Louis is just awful!! The doc is wonderful, but some of the staff is just ridiculous, and other than that the closest CF center is 4 hours away and he says he just doesn't feel like traveling that far anymore. The first time he was in for the blood infection, they took out the port-a-cath from his leg because the infection would not clear up on the plastic and metal in the device. This last time, he finally got the right antibiotics, but the fam phys and pulmo doc called in a surgeon to put a new port-a-cath in....only they REFUSED to put it in his leg! They told him he HAD to put it in his chest. Jeremy BEGGED them for 3 DAYS to put it in his leg....the surgeon refused to come back in and talk to him again, and he felt very pressured, but really had no choice because his veins were giving out because of the high doses of the Tobramiacin. So these doctors pretty much forced the issue of putting it in his chest...and when the surgeon went to do this, he was unsucessful AND punctured Jeremy's left lung collapsing it 10%, which went up to 20%!! Then to top it ALL off, an OR nurse comes in that night and says the only reason his lung was punctured is because the surgeon didn't wait the allotted time for the anesthesia to take full effect, and even though Jeremy's mind couldn't register the pain his nerves did and that made him move around on the OR table, and the needle slipped!!! Now the kicker?? There isn't an attorney around here that will take this case because even if this is the case, the anesthesiologist won't "rat out" the surgeon, so there wouldn't be another physician in the room to verify this and attorney's have trouble basing a case on nurses notes!! We have one attorney that said he would look at the records, but unless they could get another physician to verify what happened was just WRONG, it would take years to get anything done and even at that probably wouldn't be a lot of money....not like what you would think because we wouldn't be able to prove permanent damage.......HELLO!!! CF....lung disease.....physician punctures a lung.....WHO KNOWS WHAT THIS MIGHT LEAD TO????? Anyways....I thought doctors took an oath to do what is best for the patient..not each other?
I just had to let this out to someone who might understand all of this....thanks to all who read and endure it!
LeAndra
wife to Jeremy 30 w/cf
I just had to let this out to someone who might understand all of this....thanks to all who read and endure it!
LeAndra
wife to Jeremy 30 w/cf