For the belly problems, as mentioned above sometimes an acid blocker is needed to help the enzymes work correctly. Our daughter is on Prevacid and it makes a huge difference. Also, you might experiment with the timing of the enzyme dosage, with your doctor's approval of course.
Eating out - she may have a problem with MSG (monosodium glutamate). It is in a lot of pre-prepared foods and lots of restaurant foods. My husband, no CF, has an MSG intolerance and gets horrible cramps if he accidently eats something with MSG in it.
"atypical CF" - as you can see, not everyone agrees that there is such a thing: either you have CF or you don't. Clinically, I believe that doctors use this to identify CF caused by <i>certain</i> genetic mutations where the CFTR gene operates close to normal. <b>Not wanting to start a debate about this</b>, just offering some clarification on the way the term is used. <img src="i/expressions/face-icon-small-confused.gif" border="0">
Best wishes for you and your daughter.
Eating out - she may have a problem with MSG (monosodium glutamate). It is in a lot of pre-prepared foods and lots of restaurant foods. My husband, no CF, has an MSG intolerance and gets horrible cramps if he accidently eats something with MSG in it.
"atypical CF" - as you can see, not everyone agrees that there is such a thing: either you have CF or you don't. Clinically, I believe that doctors use this to identify CF caused by <i>certain</i> genetic mutations where the CFTR gene operates close to normal. <b>Not wanting to start a debate about this</b>, just offering some clarification on the way the term is used. <img src="i/expressions/face-icon-small-confused.gif" border="0">
Best wishes for you and your daughter.