Best Advice

[tleigh]

So I am getting ready to undergo the eval process and have really enjoyed perusing through your posts.

For those of you on "the other side" (lol) what is the best advice you would pass on to someone like me. Something you did, read, a question you asked, an approach you took, etc.

Thanks

 

[tleigh]

So I am getting ready to undergo the eval process and have really enjoyed perusing through your posts.

For those of you on "the other side" (lol) what is the best advice you would pass on to someone like me. Something you did, read, a question you asked, an approach you took, etc.

Thanks

 

[tleigh]

So I am getting ready to undergo the eval process and have really enjoyed perusing through your posts.
<br />
<br />For those of you on "the other side" (lol) what is the best advice you would pass on to someone like me. Something you did, read, a question you asked, an approach you took, etc.
<br />
<br />Thanks

 

[Transplantmommy]

The best advice that I got was to keep as healthy as I could because "If you walk into transplant, you will walk out of it." Yes, you will get the normal infections, and frequently, but if you keep at least as active as you can, and are still walking around at least a little, the recovery post tx will be easier. I didn't go out an exercise, but I had a baby that I had to take care of (though I did have help) and that meant getting up to change diapers, make bottles, and play a little. It was hard, but it kept me at least a little healthy.

I literally walked into the OR and got up on the operating table myself. I was in the ICU for 5 days because they didn't have a bed open on the transplant floor, and when I was in the ICU I wasn't allowed to walk around. But, when I got my own room, I was ready to get up (with help) and walk a little and go to the bathroom without a bedpan. I have to admit though, a lot of wanting to get up and use the bathroom was a LARGE distaste for bedpans. LOL

Anyway, that was the best advice that I was given and it worked for me. <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Transplantmommy]

The best advice that I got was to keep as healthy as I could because "If you walk into transplant, you will walk out of it." Yes, you will get the normal infections, and frequently, but if you keep at least as active as you can, and are still walking around at least a little, the recovery post tx will be easier. I didn't go out an exercise, but I had a baby that I had to take care of (though I did have help) and that meant getting up to change diapers, make bottles, and play a little. It was hard, but it kept me at least a little healthy.

I literally walked into the OR and got up on the operating table myself. I was in the ICU for 5 days because they didn't have a bed open on the transplant floor, and when I was in the ICU I wasn't allowed to walk around. But, when I got my own room, I was ready to get up (with help) and walk a little and go to the bathroom without a bedpan. I have to admit though, a lot of wanting to get up and use the bathroom was a LARGE distaste for bedpans. LOL

Anyway, that was the best advice that I was given and it worked for me. <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Transplantmommy]

The best advice that I got was to keep as healthy as I could because "If you walk into transplant, you will walk out of it." Yes, you will get the normal infections, and frequently, but if you keep at least as active as you can, and are still walking around at least a little, the recovery post tx will be easier. I didn't go out an exercise, but I had a baby that I had to take care of (though I did have help) and that meant getting up to change diapers, make bottles, and play a little. It was hard, but it kept me at least a little healthy.
<br />
<br />I literally walked into the OR and got up on the operating table myself. I was in the ICU for 5 days because they didn't have a bed open on the transplant floor, and when I was in the ICU I wasn't allowed to walk around. But, when I got my own room, I was ready to get up (with help) and walk a little and go to the bathroom without a bedpan. I have to admit though, a lot of wanting to get up and use the bathroom was a LARGE distaste for bedpans. LOL
<br />
<br />Anyway, that was the best advice that I was given and it worked for me. <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[CountryGirl]

I'm with transplantmommy...excercise! Build and keep up your back and leg strength doesn't matter how you do it, just do it.

I personally horseback rode, English, because it uses more leg strength. Atfirst I could only last 5 minutes on the horse but eventually I got to lasting a whole 45 minutes to and hour and I didn't have to stop and catch my breath as often...my lung function even went up a little!

After my tx I was only in ICU for one day and I was walking by the third day. I recall not even five days after tx standing on one leg putting on a sock and the physical therapist walked in and freaked out like I was gonna fall but I was balancing perfectly. The Physiccal Therepists later told me that I was had the strongest legs out of their tx patients...I chalk it up to the riding!

 

[CountryGirl]

I'm with transplantmommy...excercise! Build and keep up your back and leg strength doesn't matter how you do it, just do it.

I personally horseback rode, English, because it uses more leg strength. Atfirst I could only last 5 minutes on the horse but eventually I got to lasting a whole 45 minutes to and hour and I didn't have to stop and catch my breath as often...my lung function even went up a little!

After my tx I was only in ICU for one day and I was walking by the third day. I recall not even five days after tx standing on one leg putting on a sock and the physical therapist walked in and freaked out like I was gonna fall but I was balancing perfectly. The Physiccal Therepists later told me that I was had the strongest legs out of their tx patients...I chalk it up to the riding!

 

[CountryGirl]

I'm with transplantmommy...excercise! Build and keep up your back and leg strength doesn't matter how you do it, just do it.
<br />
<br />I personally horseback rode, English, because it uses more leg strength. Atfirst I could only last 5 minutes on the horse but eventually I got to lasting a whole 45 minutes to and hour and I didn't have to stop and catch my breath as often...my lung function even went up a little!
<br />
<br />After my tx I was only in ICU for one day and I was walking by the third day. I recall not even five days after tx standing on one leg putting on a sock and the physical therapist walked in and freaked out like I was gonna fall but I was balancing perfectly. The Physiccal Therepists later told me that I was had the strongest legs out of their tx patients...I chalk it up to the riding!

 

[tleigh]

Got it...exercise! Thanks so much for your input-it would be so cool to be able to recover quickly. Guess I will work hard at setting myself up for that.

 

[tleigh]

Got it...exercise! Thanks so much for your input-it would be so cool to be able to recover quickly. Guess I will work hard at setting myself up for that.

 

[tleigh]

Got it...exercise! Thanks so much for your input-it would be so cool to be able to recover quickly. Guess I will work hard at setting myself up for that.

 

[Lex]

Chair Squats...because after TX when you have to use the facilities, you can't use your upper body to "lower" yourself with the handicap rails. You need major leg strength. I'm being serious.

 

[Lex]

Chair Squats...because after TX when you have to use the facilities, you can't use your upper body to "lower" yourself with the handicap rails. You need major leg strength. I'm being serious.

 

[Lex]

Chair Squats...because after TX when you have to use the facilities, you can't use your upper body to "lower" yourself with the handicap rails. You need major leg strength. I'm being serious.

 

[musclemania70]

I am taking horseback riding lessons too...
It is awesome exercise and you'd never believe that its such a good lung workout too.
I haven't started evaluations yet.

 

[musclemania70]

I am taking horseback riding lessons too...
It is awesome exercise and you'd never believe that its such a good lung workout too.
I haven't started evaluations yet.

 

[musclemania70]

I am taking horseback riding lessons too...
<br />It is awesome exercise and you'd never believe that its such a good lung workout too.
<br />I haven't started evaluations yet.

 

[tleigh]

@Lex That's great....I hadn't even thought about that!

I grew up riding horses-maybe I will have to make a trip back home :-0

 

[tleigh]

@Lex That's great....I hadn't even thought about that!

I grew up riding horses-maybe I will have to make a trip back home :-0