Bleak future?

intheIMAGEofHim

New member
I don?t know if any of you all have ever experienced this, but yeah anyway?. I am finding myself to be very ?bleak? about the future. I want so much to be able to live this life & do something with it? but somehow I feel that I can?t. Like it?s almost as if I?m ?blocking out the future? I don?t want to think about it, or even dream about it?because I know for some reason I wont be able to do any of that?.& I don?t want to get my hopes up to high if it does not work out. Then I am also afraid that I?m going to end up alone?because I do have CF?& who would want to marry someone like me or even have kids because I may not live very long. I just hate the thought of the one I love having to deal with me dying! Anyway, I was just wondering if anyone here has gone through these same kinds of thoughts & feelings & if so, how did you ?deal with it? or just snap out of it?
Much thanks ~ Kyndall
<img src="i/expressions/rose.gif" border="0">
 

Allie

New member
<blockquote>Quote<br><hr>who would want to marry someone like me or even have kids because I may not live very long.<hr></blockquote>

*raises hand* I loved a Cfer. It's not quite as uncommon as you think lol. If you have a good personality, I have no doubt you'll get married someday. It's natural to be somewhat uncertain about your future, because Cf is as such that there's so much you can't know about the future. But don't give up on it. How old are you? I have no doubt that you have ample time to find someone, fall in love, and get married. A loveable person is a loveable person. Cf or no. Most people worth the atoms they are made of will love you regardless.
 

Curley444

New member
Kyndall,

I know it's hard, you just have to stay in a positive state of mind. I have thought the exact same thing many times, but I realized it doesn't do anyone any good. If you decide that you'll never meet someone, you never will - simple as that. You just have to keep an open mind and not let yourself get discouraged. One thing living w/ CF has taught me is to appreciate what I have and not to take ANYTHING for granted. I understand how you feel, believe me, but one thing we CF'ers have to do is be strong. And Allie is right, if someone doesn't love you b/c you have CF, don't waste your time loving them.

Kevin, 25 w/ CF
 

julie

New member
I am sorry to hear how you are feeling, I can't tell you not to but I do want to touch on what Allie already did. I am married to a CFer, a WONDERFUL, fantastic, incredible, loving man, an incredible person, a great lover, my best friend and SOOOO much more. If someone lets your CF define how they feel about you and rule their decisions about your relationship, they really aren't going to be valuable in your life (or really anyone elses life for that matter). Sure, my husband's CF scares me sometimes, and it's hard sometimes, but whose life isn't at some point or another? Many people LOVE or are in love with someone who has CF, don't let that thought get you down, there are those out there who will love and care for you (friends and more.

Keep your head up!
 

thelizardqueen

New member
I used to think the same way as you Kyndall. Everyone of us gets into that state of mind every once and awhile - its hard not to! But you've just got to try to think positive. I have a wonderful boyfriend of two years who loves me for me, including my CF, and is willing and wanting to have kids with me regardless of what sort of future we may have together long term. Try to live everyday as if it were your last. Yes, we do have a long term terminal disease, but a healthy person could drop dead tomorrow from a heart attack, or be hit by a bus. For the past few weeks, I've been dwelling hard on my own mortality, and I found out last night that my best friends father passed away the other day - of a heart attack. No warning, nothing. He was a healthy guy. So try not to base all your thoughts and feelings on the future, and live in today. You will find someone who will love you for you and all your conditions, and try to accomplish everything in life that you want to. Time and life are too precious.
 

littledebbie

New member
Oh Kyndall, we should get together and have a beer, although i don't think you're old enough yet? <img src="i/expressions/face-icon-small-wink.gif" border="0"> I feel you. I struggle all the time to keep my thinking straight. To put myself out there and try to meet someone. And I know people can say if someone can't deal with your CF then they weren't good enough for you anyway, or any version of that. But the fact is that doesn't make anything "feel" better. I was with someone once that I cared for greatly and I thought we might make it. He was on board with the CF thing and then he had a personal experience with the reality of it (it's one thing to hear about it and another to see it in action) and he decided to re-think us. There's nothing anyone can tell me that will make that suck less.

I also have found myself telling people too much too fast. I think I did this on purpose for a while, sort of defeating myself to prove that I was right, no one would want me...stupid, I'm cute and funny etc, I'd totally buy me a drink in a bar <img src="i/expressions/face-icon-small-smile.gif" border="0">

I hope this doesn't seem manipulative, but now if I meet, and like someone, I start off rather slow. That I have a lung disease I was born with, and it's serious, and if it's okay with them I will tell them about it at my own pace, because it's very personal to me. And that if they have questions I would appreciate if they ask me not look it up on line or anything. (Can you believe some of the old misinformation that's out there!?!) So far I've had good success with this. I think it gives people a chance to get to know me and then by the time we get to the...death, no children, blah blah part, they like me too much to throw me back and go look for another fish! I know it could seem manipulative, but I try to look at it as giving us a chance, and some people will probably still jet, but hey maybe they would have jetted anyway-gasp!

As far as feeling bad about getting involved with someone and then they have to go through the pain of losing us..big sigh, that's not easy, I've wrestled with that a lot myslef, and all I can come up with is this: I wouldn't want someone to make that desicion for me. If there's someone out there for me who I'm supposed to be with, I wouldn't want him to decide for me - for us- that for someone reason we can't be together. I like to decide things for myslef. And there's probably no decision as important as who we become involved with and love.

To sum up, if we don't get in the game and find someone to love, what was the point of any of it? If you need more inspiration I would suggest a Beatles album!
 

Allie

New member
<blockquote>Quote<br><hr>As far as feeling bad about getting involved with someone and then they have to go through the pain of losing us..big sigh, that's not easy, I've wrestled with that a lot myslef, and all I can come up with is this: I wouldn't want someone to make that desicion for me<hr></blockquote>

Thank you! Rarr. The times Ry used to try to show me the door made me CRAZY. And I know he really loved me and was trying to 'spare ' me, it still made me crazy and hurt my feelings a little bit that he kept trying to break up with me. I chose to be with him, and I resented that he thought I wasn't strong enough. Luckily, I told him to shut up, I loved him, and then I hit him with a large stick.
 

Faust

New member
<blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i><br>WOw Sean poetic but your advice stinks<hr></blockquote>

That would be true if I was actually giving advice, which I was not. I was answering a question, and elaborating on my answer, with overt references towards popular 80's music. Obviously you didn't "get it", so you now fail the class. I will see you in the same class next year, there won't be any need for you to buy new books over the summer, because you already have them. You will need every bit of help next year to pass, so bring plenty of apples. I prefer Fuji apples by the way. I will inform our phys ed teacher that you should automatically go to the dodgeball team with the smallest children on it, because you will be one year larger than everyone else around you due to failing and being held back. Except Jim Bob Smith...He has been held back atleast 7 years now (we lost count), so we absolutely can't allow you to be on his team, for fear of pediatric genocide in the dodgeball ring.
 

JazzysMom

New member
I have been very fortunate to have a few terrific guys in my life. I was never lacking in love so to speak. I also had a few jerks, but that had nothing to do with my CF. When my first husband & I seperated, I saw one of my aunts for the first time since the split & she was so upset because he & I seperated....her exact words were "and you FINALLY found someone to love you". I know dont if she really meant this to be as hurtful as it was, but it will stick in my head forever. My first hubby & I split up because we never should have gotten married. It was just the next thing to do. Since then I found my new husband & the father of my daughter. I am a difficult person to live with & he loves me 10000%. He might not always like what I do & get aggrivated (he is only human you know), but he has & does love me. I am very fotunate......my sisters dont have that luxury & what a shame because it is fantastic!
 

EnergyGal

New member
Hi Melissa

I just wanted to say I can relate. It sounds like your Aunt is jealous of you. I do not hear that she loves herself either for saying such a stupid thing to you. Next time, I would call her on it. Talk back to her just like she does to you and she will get the message loud and clear. My beloved Grandma who I truly love says so many things it is hard for me to visit her. She is of course is alone in this world besides her family. She said things about my ex husband felt like nails on a chalk board. I do not remember what she said but I gave it right back to her. She did apologize. I do know that she always said, "it is hard to find a guy when your sick" something like that. It hurt so bad I do not remember so I blocked out what she said.


oh and for years after my divorce she would always say so have you heard from him? I was already into another relationship. I do believe all of us say things that we regret but when the person says the same thing over and over they have a serious problem.

I think the best thing to say to people like this are: Did you know that you come very critical at times? I am not sure if you notice how you choose your words but they do not reflect your intelligent mind that you have. I would seriously consider thinking before you speak.

Be prepared for another innocent come back like you are so sensitive dear or I have lots of friends and never have a problem with how I speak to them.

I have lots of buried treasure thoughts from my Mother in law but she really takes the cake so I just consider the source and hardly ever see her.

Take care
Risa
double lung tx
96 & 05
 

JazzysMom

New member
Risa......it wasnt the appropritate time or place to address her comment. Let me explain....Picture it September 1997, my Aunt/Uncles (different Aunt then the one in ??) 60th wedding anniversary. I am seperated from my husband for over a year (tho this side of the family wouldnt know that) & I JUST found out I was pregnant about a week before the party. So not only are they just finding out about my split up with the first husband, but I have REALLY big news to share & didnt feel right doing it then. My brother who made the trip from upstate was also there & I told him after the party, but he is the only one. Even tho it irks me I know that this is her personality. It is really hard to believe that she is my Dads sister. Dad was soooooooooooooo different! Luckily I didnt inherit those family traits!
 

senatorgraham

New member
Dear Kyndall,

I think those of us with CF all feel that way at times. I try not to dwell on the negative. And it can be hard.

Personally, I focus on my goals. I work hard in law school. I am involved on campus and in my community. As well as looking forward to my first run for public office. Being focused on my goals works for me. It assures that I am doing positive things in my life and more importantly other peoples lives. Whether I die tomorrow or 20 years from now I know I contributed and had a meaning full life. That is what works for me.

And given your user name I am sure you are aware of the religious aspect. I know sometimes having faith is hard and sometimes it has nothing to do with faith you just feel down. No worries, there are plenty of people here to pick you up.

Also, try to keep in mind that relationships are hard whether you have CF or not. My wife left me because she couldn't deal with the CF but I am not worried about it. I wish her nothing but happiness and am confident that I will meet someone else sooner or later.

Anyway, if you need to chat you can always pm me here or e-mail me at senatorgraham@yahoo.com

Sincerely,

"Senatorgraham"

"My friends are my estate. Forgive me tyhe avarice to hoard them."-Emily Dickinson
 

EnergyGal

New member
Hi Melissa

So your aunt knew you got remarried as this is your Father's sister right? The other family just found out all the good news on this particular day.
To me in my family we would call her a Character as in Donald Duck. lol I would not even give her the time of day. she sounds too obnoxious for words. I would avoid her like the plague. That is me. Now that I can breathe again, I do not waste my breath on people who are mean spirited. There are many people who are jealous.

When I was waiting for my second tx, I cannot even begin to count how many woman would say how hard it is to find a guy and you have such a great guy. You are so lucky he is staying with you now. Well, I said did you know that I wrote a book on how to find a guy when you are sick lol they shut right up. I even had a nurse stating how did you find two husbands and I didn't find any? I wanted to give her a mouth full but I spared my breath again.

Some people I say. they are JEALOUS you would think they could rise above it all. They have some deep seated issues. I just hope they do not sit on their butts too long.
Thank you
Risa
 

JazzysMom

New member
No Risa.....no one on my Dads side new that my first husaband & I had split up & no one knew that I was pregnant until much further along. Once my Dad died the connection to the family was lost. Its a real shame, but I dont feel comfortable with that part of my family. One cousin takes true interest in how I am etc, but only when I see her. She never calls etc. I know 2 wrongs dont make a right, but that is how I feel & like many other things its unlikely anyone can change my mind!
 

EnergyGal

New member
Melissa

I am with you on this one.<img src="i/expressions/heart.gif" border="0">

You are blessed to have an immediate normal family
Risa
 
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