Joblazer86
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bleeding!!!
- Thread starter Joblazer86
- Start date
Joblazer86
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opps i hit enter before adding anything.LOL. I was wondering how amny people have had more than 1 embolization? I had one in January and I am starting to cough up blood all over again! I HOPE IT STOPS.
serendipity730
New member
Joseph,
I had an embolization 3 years ago. I didn't have massive hemoptysis, but I coughed up blood very often, almost once a week. I still cough up blood now, but not nearly as frequently. I would say it is mostly associated with feeling sick at this point.
I had an embolization 3 years ago. I didn't have massive hemoptysis, but I coughed up blood very often, almost once a week. I still cough up blood now, but not nearly as frequently. I would say it is mostly associated with feeling sick at this point.
serendipity730
New member
Me again - I don't think I would get another embolization unless it was absolutely necessary, like a life threatening situation.
Emily65Roses
New member
I have a question. If you're not coughing up so much blood you'd need a transfusion, what exactly is the purpose of an embolization? I realize coughing up blood isn't the most pleasant thing ever... But if you're not losing too much blood, what's the point? Anyone care to enlighten me? <img src="i/expressions/rose.gif" border="0">
ClashPunk82
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Hey everyone. I actually have never bled before ever. My brother coughs up blood all the time but I never have. Very strange! <img src="i/expressions/face-icon-small-happy.gif" border="0">
Joblazer86
New member
serendipity do u still do pulmozyme and the vest even though u still bleed
Joblazer86
New member
serendipity do u still do pulmozyme and the vest even though u still bleed
Joblazer86
New member
emily,
i believe they want u to take care of it b/c it can get worse and supposedly is fatal sometimes. I think it is just a precaution if it's small so it doesn't get worse.
i believe they want u to take care of it b/c it can get worse and supposedly is fatal sometimes. I think it is just a precaution if it's small so it doesn't get worse.
Hi Joseph,
I've had two embolizations. Sometimes when they embolize a certain blood vessel, the blood of coarse has to find another route and if there is another weak blood vessel it will be most certainly be found. I had to have my second embolization about a month and a half after my first one. I started coughing up large amounts of blood again one night when i was getting ready for bed, and i went straight to the hospital, and since it would rebleed large again when i had to really cough i was headed in for another embolization that next morning. Since then i have had some bleeding , but thank God only normal amounts.
To the poster who asked why get an embolization done when you arent coughing up very large amounts, but only coughing up blood too often........ You dont want to allow it go on forever if you cough up blood regularly, one reason being is because, it may signal that you have an area in the blood vessel that isnt healing and eventully may become weaker and have a BIG break ( like i eventually had). I coughed up blood for years, not all the time, but right before i had a serious large bleed i started bleeding each day for about a little over a week. started out small amounts, then each day it would be maybe a half teaspoon more than the day before. Then one night while laying down to go to sleep, it was more than ever before, ( maybe about 7 or 8 teaspoons), and that still didnt get my attention. The next night while sleepig aroun 3:30 am i rolled over onto my left side and WHAM, it all started and felt like it would never stop. It was a large amount that felt like it went on too long and i wound up having to call 911. Then it would start to rebleed every time i would lean over or cough hard, so i wound up having my first embolization shortly after. You do not want to allow a blood vessel to keep bleeding and reopening ( assuming it is the same vessel) time after time. By the time i got my embloization done the intervention radiologist told me he hadnt seen one( blood vessel) with an area so broken apart. I can only assume it had to be because of all the years i ignored it and never had anything done about it. Better safe than sorry..................
~Diane 40 / cf / diabetes / b.cepacia
I've had two embolizations. Sometimes when they embolize a certain blood vessel, the blood of coarse has to find another route and if there is another weak blood vessel it will be most certainly be found. I had to have my second embolization about a month and a half after my first one. I started coughing up large amounts of blood again one night when i was getting ready for bed, and i went straight to the hospital, and since it would rebleed large again when i had to really cough i was headed in for another embolization that next morning. Since then i have had some bleeding , but thank God only normal amounts.
To the poster who asked why get an embolization done when you arent coughing up very large amounts, but only coughing up blood too often........ You dont want to allow it go on forever if you cough up blood regularly, one reason being is because, it may signal that you have an area in the blood vessel that isnt healing and eventully may become weaker and have a BIG break ( like i eventually had). I coughed up blood for years, not all the time, but right before i had a serious large bleed i started bleeding each day for about a little over a week. started out small amounts, then each day it would be maybe a half teaspoon more than the day before. Then one night while laying down to go to sleep, it was more than ever before, ( maybe about 7 or 8 teaspoons), and that still didnt get my attention. The next night while sleepig aroun 3:30 am i rolled over onto my left side and WHAM, it all started and felt like it would never stop. It was a large amount that felt like it went on too long and i wound up having to call 911. Then it would start to rebleed every time i would lean over or cough hard, so i wound up having my first embolization shortly after. You do not want to allow a blood vessel to keep bleeding and reopening ( assuming it is the same vessel) time after time. By the time i got my embloization done the intervention radiologist told me he hadnt seen one( blood vessel) with an area so broken apart. I can only assume it had to be because of all the years i ignored it and never had anything done about it. Better safe than sorry..................
~Diane 40 / cf / diabetes / b.cepacia