Blood clots?

joysfriend

New member
I have a close friend who is 39 & has just been admitted in to the hospital with blood clots on both lungs. I can't find any info on the web about CF pts with blood clots. Has anyone experienced this before? Does anyone have any info or know where I can get info? How serious is this? Help me know what to expect.
 

joysfriend

New member
I have a close friend who is 39 & has just been admitted in to the hospital with blood clots on both lungs. I can't find any info on the web about CF pts with blood clots. Has anyone experienced this before? Does anyone have any info or know where I can get info? How serious is this? Help me know what to expect.
 

JustDucky

New member
Yes, I have had blood clots in my lungs, they are called pulmonary embolisms, google that and you will come up with tons of info. I guess the degree of seriousness depends on how big and where the clots are located. As a nurse in my previous lifetime, I have taken care of various degrees of seriousness with PE's...I had one guy who had normal oxygen levels, what brought him to the hospital was sudden breathlessness. He had a clot in one lung and it wasn't that big, but he had to go on anti coagulants for about 5 days and then onto Coumadin, an oral anticoagulant for some time. On the flipside, I have seen some very serious PE's...Sometimes doctors will go in, like they are going to do a cath of the heart, but instead go into the pulmonary artery and its branches and remove the clots (or inject very powerful clot busters similar to those used in heart attacks) that way if becomes that serious. In my case, it was a shock to the docs, I had what was called micro emboli throughout my lungs, found incidentally via a lung biopsy. My oxygenation was hurt by this, I am now on Coumadin indefinitely because of this as well as for not being very active due to my vent and muscle disease. The docs do this to prevent this from happening againI pray that your friend pulls through okay, he is in my thoughts...this is a serious problem and is not to be taken lightly, but docs can do so much now.
Please keep us updated, again, your friend is in my thoughts and prayers.

Here is a link to get you started about pulmonary emobolisms...

http://www.emedicine.com/emerg/topic490.htm

Hugs, Jenn <img src="i/expressions/rose.gif" border="0">
 

JustDucky

New member
Yes, I have had blood clots in my lungs, they are called pulmonary embolisms, google that and you will come up with tons of info. I guess the degree of seriousness depends on how big and where the clots are located. As a nurse in my previous lifetime, I have taken care of various degrees of seriousness with PE's...I had one guy who had normal oxygen levels, what brought him to the hospital was sudden breathlessness. He had a clot in one lung and it wasn't that big, but he had to go on anti coagulants for about 5 days and then onto Coumadin, an oral anticoagulant for some time. On the flipside, I have seen some very serious PE's...Sometimes doctors will go in, like they are going to do a cath of the heart, but instead go into the pulmonary artery and its branches and remove the clots (or inject very powerful clot busters similar to those used in heart attacks) that way if becomes that serious. In my case, it was a shock to the docs, I had what was called micro emboli throughout my lungs, found incidentally via a lung biopsy. My oxygenation was hurt by this, I am now on Coumadin indefinitely because of this as well as for not being very active due to my vent and muscle disease. The docs do this to prevent this from happening againI pray that your friend pulls through okay, he is in my thoughts...this is a serious problem and is not to be taken lightly, but docs can do so much now.
Please keep us updated, again, your friend is in my thoughts and prayers.

Here is a link to get you started about pulmonary emobolisms...

http://www.emedicine.com/emerg/topic490.htm

Hugs, Jenn <img src="i/expressions/rose.gif" border="0">
 

anonymous

New member
Hi Jenn,
Thank you so much for the straight-fwd info. Not all good news but at least I know where she stands. I'm going to go visit her & bring lots of magazines/reading stuff so she sits still! I'm going to read more about PE's & also a site I found about "friends of CF pts." I cannot imagine that it is going to be easy, but I wouldn't give up my friendship with Joy for anything.

Thanks again for your info & time,
Karen
 

JustDucky

New member
Your welcome Karen...yeah, I remember reading alot of magazines myself when I had the clots LOL! It is a good sign that she is alert (at least that is what I get from your post), I am betting the docs are keeping a close eye on her...I am sure she is either receiving the shots in her belly (Lovenox) or heparin drip. I am glad I have helped, that article was just one of many and describes both very serious PE's as well as those that don't comprimise the blood flow (like the gentleman patient I had, you would never know he had that PE, except when you listen to his lungs, the part where the blood clot was was quiet, or diminished as they say). I am still pulling for your friend. Hugs, JEnn <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

anonymous

New member
Hi Joy. My daughter with cf has a genetic clotting disorder called Factor V Leiden. This was diagnosed because she had a lot of superficial clotting while on IVs causing phlebitis and her brother without cf had an 18 inch long blood clot after heart surgery. Her grandfather had pulmonary emboli in both lungs. Factor V can be diagnosed by a simple blood test. There are two types. One is more serious than the other. If your friend has not already been tested, this might be something he/she should ask the doctor.
Snow.
 
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