blood sugar question

tara

New member
Hi Candice,

If your body is telling you to eat, then eat! Especially if you're stuck without your meter for a few days. Can someone mail it to you? Or maybe you can go by the pharmacy and just pick up another one? If you transfer your prescription for supplies to a local pharmacy where you are visiting, they should give you the meter for free. They have done that for me several times.

Tina,

I was diabetic while pregnant with twins. I'm wondering is your endocrinologist familiar with CFRD? I find it surprising they want your sugars so "normal" 1 hour post meals. The goal when I was pregnant was 80-140 two hours post meals. Aim for that. Short term highs are much better for the baby than lows. You have your facts right. Trust your gut. I would do exactly what you're doing, ease up on the insulin and test 2 hours post meals. You know your body best. You've gotta do what's best for you.
 

tara

New member
Hi Candice,

If your body is telling you to eat, then eat! Especially if you're stuck without your meter for a few days. Can someone mail it to you? Or maybe you can go by the pharmacy and just pick up another one? If you transfer your prescription for supplies to a local pharmacy where you are visiting, they should give you the meter for free. They have done that for me several times.

Tina,

I was diabetic while pregnant with twins. I'm wondering is your endocrinologist familiar with CFRD? I find it surprising they want your sugars so "normal" 1 hour post meals. The goal when I was pregnant was 80-140 two hours post meals. Aim for that. Short term highs are much better for the baby than lows. You have your facts right. Trust your gut. I would do exactly what you're doing, ease up on the insulin and test 2 hours post meals. You know your body best. You've gotta do what's best for you.
 

tara

New member
Hi Candice,

If your body is telling you to eat, then eat! Especially if you're stuck without your meter for a few days. Can someone mail it to you? Or maybe you can go by the pharmacy and just pick up another one? If you transfer your prescription for supplies to a local pharmacy where you are visiting, they should give you the meter for free. They have done that for me several times.

Tina,

I was diabetic while pregnant with twins. I'm wondering is your endocrinologist familiar with CFRD? I find it surprising they want your sugars so "normal" 1 hour post meals. The goal when I was pregnant was 80-140 two hours post meals. Aim for that. Short term highs are much better for the baby than lows. You have your facts right. Trust your gut. I would do exactly what you're doing, ease up on the insulin and test 2 hours post meals. You know your body best. You've gotta do what's best for you.
 

tara

New member
Hi Candice,

If your body is telling you to eat, then eat! Especially if you're stuck without your meter for a few days. Can someone mail it to you? Or maybe you can go by the pharmacy and just pick up another one? If you transfer your prescription for supplies to a local pharmacy where you are visiting, they should give you the meter for free. They have done that for me several times.

Tina,

I was diabetic while pregnant with twins. I'm wondering is your endocrinologist familiar with CFRD? I find it surprising they want your sugars so "normal" 1 hour post meals. The goal when I was pregnant was 80-140 two hours post meals. Aim for that. Short term highs are much better for the baby than lows. You have your facts right. Trust your gut. I would do exactly what you're doing, ease up on the insulin and test 2 hours post meals. You know your body best. You've gotta do what's best for you.
 

tara

New member
Hi Candice,
<br />
<br />If your body is telling you to eat, then eat! Especially if you're stuck without your meter for a few days. Can someone mail it to you? Or maybe you can go by the pharmacy and just pick up another one? If you transfer your prescription for supplies to a local pharmacy where you are visiting, they should give you the meter for free. They have done that for me several times.
<br />
<br />Tina,
<br />
<br />I was diabetic while pregnant with twins. I'm wondering is your endocrinologist familiar with CFRD? I find it surprising they want your sugars so "normal" 1 hour post meals. The goal when I was pregnant was 80-140 two hours post meals. Aim for that. Short term highs are much better for the baby than lows. You have your facts right. Trust your gut. I would do exactly what you're doing, ease up on the insulin and test 2 hours post meals. You know your body best. You've gotta do what's best for you.
 

tinamarie4685

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>tara</b></i>


Tina,



I was diabetic while pregnant with twins. I'm wondering is your endocrinologist familiar with CFRD? I find it surprising they want your sugars so "normal" 1 hour post meals. The goal when I was pregnant was 80-140 two hours post meals. Aim for that. Short term highs are much better for the baby than lows. You have your facts right. Trust your gut. I would do exactly what you're doing, ease up on the insulin and test 2 hours post meals. You know your body best. You've gotta do what's best for you.</end quote></div>

That's the funny thing... I said to her, "are you even familiar with CFRD?" and she got all pissy and said she was... but from how she is telling me to eat (if I ate how she wants me to eat, I would literally be losing weight) and by what she wants my sugars at 1 hour after a meal, I really don't think she has much knowledge on CF. I have always read/heard to test the sugars 2 hours post meals, and she was like "I want you to test 1 hour after a meal". Oh well, I am done with her and just found out that as of the end of this month, her & the other doctors in her group won't be taking my insurance - so I do need to find a new endocrinologist regardless.

Thanks for the replies - I am going to continue to do what I am doing! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

tinamarie4685

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>tara</b></i>


Tina,



I was diabetic while pregnant with twins. I'm wondering is your endocrinologist familiar with CFRD? I find it surprising they want your sugars so "normal" 1 hour post meals. The goal when I was pregnant was 80-140 two hours post meals. Aim for that. Short term highs are much better for the baby than lows. You have your facts right. Trust your gut. I would do exactly what you're doing, ease up on the insulin and test 2 hours post meals. You know your body best. You've gotta do what's best for you.</end quote></div>

That's the funny thing... I said to her, "are you even familiar with CFRD?" and she got all pissy and said she was... but from how she is telling me to eat (if I ate how she wants me to eat, I would literally be losing weight) and by what she wants my sugars at 1 hour after a meal, I really don't think she has much knowledge on CF. I have always read/heard to test the sugars 2 hours post meals, and she was like "I want you to test 1 hour after a meal". Oh well, I am done with her and just found out that as of the end of this month, her & the other doctors in her group won't be taking my insurance - so I do need to find a new endocrinologist regardless.

Thanks for the replies - I am going to continue to do what I am doing! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

tinamarie4685

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>tara</b></i>


Tina,



I was diabetic while pregnant with twins. I'm wondering is your endocrinologist familiar with CFRD? I find it surprising they want your sugars so "normal" 1 hour post meals. The goal when I was pregnant was 80-140 two hours post meals. Aim for that. Short term highs are much better for the baby than lows. You have your facts right. Trust your gut. I would do exactly what you're doing, ease up on the insulin and test 2 hours post meals. You know your body best. You've gotta do what's best for you.</end quote></div>

That's the funny thing... I said to her, "are you even familiar with CFRD?" and she got all pissy and said she was... but from how she is telling me to eat (if I ate how she wants me to eat, I would literally be losing weight) and by what she wants my sugars at 1 hour after a meal, I really don't think she has much knowledge on CF. I have always read/heard to test the sugars 2 hours post meals, and she was like "I want you to test 1 hour after a meal". Oh well, I am done with her and just found out that as of the end of this month, her & the other doctors in her group won't be taking my insurance - so I do need to find a new endocrinologist regardless.

Thanks for the replies - I am going to continue to do what I am doing! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

tinamarie4685

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>tara</b></i>


Tina,



I was diabetic while pregnant with twins. I'm wondering is your endocrinologist familiar with CFRD? I find it surprising they want your sugars so "normal" 1 hour post meals. The goal when I was pregnant was 80-140 two hours post meals. Aim for that. Short term highs are much better for the baby than lows. You have your facts right. Trust your gut. I would do exactly what you're doing, ease up on the insulin and test 2 hours post meals. You know your body best. You've gotta do what's best for you.</end quote>

That's the funny thing... I said to her, "are you even familiar with CFRD?" and she got all pissy and said she was... but from how she is telling me to eat (if I ate how she wants me to eat, I would literally be losing weight) and by what she wants my sugars at 1 hour after a meal, I really don't think she has much knowledge on CF. I have always read/heard to test the sugars 2 hours post meals, and she was like "I want you to test 1 hour after a meal". Oh well, I am done with her and just found out that as of the end of this month, her & the other doctors in her group won't be taking my insurance - so I do need to find a new endocrinologist regardless.

Thanks for the replies - I am going to continue to do what I am doing! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

tinamarie4685

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>tara</b></i>
<br />
<br />
<br />Tina,
<br />
<br />
<br />
<br />I was diabetic while pregnant with twins. I'm wondering is your endocrinologist familiar with CFRD? I find it surprising they want your sugars so "normal" 1 hour post meals. The goal when I was pregnant was 80-140 two hours post meals. Aim for that. Short term highs are much better for the baby than lows. You have your facts right. Trust your gut. I would do exactly what you're doing, ease up on the insulin and test 2 hours post meals. You know your body best. You've gotta do what's best for you.</end quote>
<br />
<br />That's the funny thing... I said to her, "are you even familiar with CFRD?" and she got all pissy and said she was... but from how she is telling me to eat (if I ate how she wants me to eat, I would literally be losing weight) and by what she wants my sugars at 1 hour after a meal, I really don't think she has much knowledge on CF. I have always read/heard to test the sugars 2 hours post meals, and she was like "I want you to test 1 hour after a meal". Oh well, I am done with her and just found out that as of the end of this month, her & the other doctors in her group won't be taking my insurance - so I do need to find a new endocrinologist regardless.
<br />
<br />Thanks for the replies - I am going to continue to do what I am doing! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

AnD

New member
Just to second (?) what everyone else has said- my doctor wanted my sugars in the same range as Tara's did, and 2 hours after, not 1 hour- and wasn't concerned with the occasional 170- 2 hours after, either. I hope you find a more reasonable endo quickly <img src="i/expressions/face-icon-small-smile.gif" border="0"> .

Candice- Walmart sells a fairly inexpensive meter, that takes (again) fairly inexpensive test strips, that I've read works okay, if you are in a pinch and need one and can't get a free one <img src="i/expressions/face-icon-small-wink.gif" border="0"> .
 

AnD

New member
Just to second (?) what everyone else has said- my doctor wanted my sugars in the same range as Tara's did, and 2 hours after, not 1 hour- and wasn't concerned with the occasional 170- 2 hours after, either. I hope you find a more reasonable endo quickly <img src="i/expressions/face-icon-small-smile.gif" border="0"> .

Candice- Walmart sells a fairly inexpensive meter, that takes (again) fairly inexpensive test strips, that I've read works okay, if you are in a pinch and need one and can't get a free one <img src="i/expressions/face-icon-small-wink.gif" border="0"> .
 

AnD

New member
Just to second (?) what everyone else has said- my doctor wanted my sugars in the same range as Tara's did, and 2 hours after, not 1 hour- and wasn't concerned with the occasional 170- 2 hours after, either. I hope you find a more reasonable endo quickly <img src="i/expressions/face-icon-small-smile.gif" border="0"> .

Candice- Walmart sells a fairly inexpensive meter, that takes (again) fairly inexpensive test strips, that I've read works okay, if you are in a pinch and need one and can't get a free one <img src="i/expressions/face-icon-small-wink.gif" border="0"> .
 

AnD

New member
Just to second (?) what everyone else has said- my doctor wanted my sugars in the same range as Tara's did, and 2 hours after, not 1 hour- and wasn't concerned with the occasional 170- 2 hours after, either. I hope you find a more reasonable endo quickly <img src="i/expressions/face-icon-small-smile.gif" border="0"> .

Candice- Walmart sells a fairly inexpensive meter, that takes (again) fairly inexpensive test strips, that I've read works okay, if you are in a pinch and need one and can't get a free one <img src="i/expressions/face-icon-small-wink.gif" border="0"> .
 

AnD

New member
Just to second (?) what everyone else has said- my doctor wanted my sugars in the same range as Tara's did, and 2 hours after, not 1 hour- and wasn't concerned with the occasional 170- 2 hours after, either. I hope you find a more reasonable endo quickly <img src="i/expressions/face-icon-small-smile.gif" border="0"> .
<br />
<br />Candice- Walmart sells a fairly inexpensive meter, that takes (again) fairly inexpensive test strips, that I've read works okay, if you are in a pinch and need one and can't get a free one <img src="i/expressions/face-icon-small-wink.gif" border="0"> .
 

LeneSouthAfrica

New member
Little OT but just want to comment about the HBA1c: I failed my Glucose tolerance test, but my HBA1c is perfectly normal. HBA1c tests you average sugars over a few months, and even if it is low/normal you can still have CFRD!!! That is because our pancreas often still produces some insulin, it is just less or delayed so eventually your body manages to get the sugars under control = stable AVERAGE sugars over a period. What that doesnt tell you is what happens short term; meaning if you eat, your sugar skyrockets, then crashes below normal, then you eat again and repeat this spiking and crashing a few times a day this might give you a normal looking HBA1c, (because the average of low and high is middle - makes sense?) but for sugars to be so unstable isnt normal and strains your body, and high sugars 'feeds' infection.

So yes CF diabetes is different and needs to be treated individually, whether you test 1 or 2 hours depends on your own case. My doc normally says 2 hours but my spike is def after 1 hour, and that is what I am trying to get under control because that 1 hour spike causes the sudden rebound drops in sugar with that shaky/puky feeling you are all describing. To find out your peak eat something without insulin, and test afterwards every 20 mins for say 2.5 hours.

Also if you are getting the lows, try a faster acting insulin because your insulin may be 'missing' your food because it is too slow. Or inject before your eat instead of afterwards. Non-Cf doctors often miss this whole concept because they are used to normal diabetics that have sugars that are just constantly high. I also go with less insulin rather than more...low is more dangerous than high (unless your sugars STAY HIGH all the time). Off course sometimes CFRD can cause the constant highs too, I think if your pancreas is more damaged = more constant highs.

If you are getting the mid morning crash, try eating jogurt (milk=slow release) or leftover meat and veggies for breakfast and see if it happens again - cereal for breakfast with or without insulin is the easiest way for out-of-control sugars! (It sucks, I love cereal)
 

LeneSouthAfrica

New member
Little OT but just want to comment about the HBA1c: I failed my Glucose tolerance test, but my HBA1c is perfectly normal. HBA1c tests you average sugars over a few months, and even if it is low/normal you can still have CFRD!!! That is because our pancreas often still produces some insulin, it is just less or delayed so eventually your body manages to get the sugars under control = stable AVERAGE sugars over a period. What that doesnt tell you is what happens short term; meaning if you eat, your sugar skyrockets, then crashes below normal, then you eat again and repeat this spiking and crashing a few times a day this might give you a normal looking HBA1c, (because the average of low and high is middle - makes sense?) but for sugars to be so unstable isnt normal and strains your body, and high sugars 'feeds' infection.

So yes CF diabetes is different and needs to be treated individually, whether you test 1 or 2 hours depends on your own case. My doc normally says 2 hours but my spike is def after 1 hour, and that is what I am trying to get under control because that 1 hour spike causes the sudden rebound drops in sugar with that shaky/puky feeling you are all describing. To find out your peak eat something without insulin, and test afterwards every 20 mins for say 2.5 hours.

Also if you are getting the lows, try a faster acting insulin because your insulin may be 'missing' your food because it is too slow. Or inject before your eat instead of afterwards. Non-Cf doctors often miss this whole concept because they are used to normal diabetics that have sugars that are just constantly high. I also go with less insulin rather than more...low is more dangerous than high (unless your sugars STAY HIGH all the time). Off course sometimes CFRD can cause the constant highs too, I think if your pancreas is more damaged = more constant highs.

If you are getting the mid morning crash, try eating jogurt (milk=slow release) or leftover meat and veggies for breakfast and see if it happens again - cereal for breakfast with or without insulin is the easiest way for out-of-control sugars! (It sucks, I love cereal)
 

LeneSouthAfrica

New member
Little OT but just want to comment about the HBA1c: I failed my Glucose tolerance test, but my HBA1c is perfectly normal. HBA1c tests you average sugars over a few months, and even if it is low/normal you can still have CFRD!!! That is because our pancreas often still produces some insulin, it is just less or delayed so eventually your body manages to get the sugars under control = stable AVERAGE sugars over a period. What that doesnt tell you is what happens short term; meaning if you eat, your sugar skyrockets, then crashes below normal, then you eat again and repeat this spiking and crashing a few times a day this might give you a normal looking HBA1c, (because the average of low and high is middle - makes sense?) but for sugars to be so unstable isnt normal and strains your body, and high sugars 'feeds' infection.

So yes CF diabetes is different and needs to be treated individually, whether you test 1 or 2 hours depends on your own case. My doc normally says 2 hours but my spike is def after 1 hour, and that is what I am trying to get under control because that 1 hour spike causes the sudden rebound drops in sugar with that shaky/puky feeling you are all describing. To find out your peak eat something without insulin, and test afterwards every 20 mins for say 2.5 hours.

Also if you are getting the lows, try a faster acting insulin because your insulin may be 'missing' your food because it is too slow. Or inject before your eat instead of afterwards. Non-Cf doctors often miss this whole concept because they are used to normal diabetics that have sugars that are just constantly high. I also go with less insulin rather than more...low is more dangerous than high (unless your sugars STAY HIGH all the time). Off course sometimes CFRD can cause the constant highs too, I think if your pancreas is more damaged = more constant highs.

If you are getting the mid morning crash, try eating jogurt (milk=slow release) or leftover meat and veggies for breakfast and see if it happens again - cereal for breakfast with or without insulin is the easiest way for out-of-control sugars! (It sucks, I love cereal)
 

LeneSouthAfrica

New member
Little OT but just want to comment about the HBA1c: I failed my Glucose tolerance test, but my HBA1c is perfectly normal. HBA1c tests you average sugars over a few months, and even if it is low/normal you can still have CFRD!!! That is because our pancreas often still produces some insulin, it is just less or delayed so eventually your body manages to get the sugars under control = stable AVERAGE sugars over a period. What that doesnt tell you is what happens short term; meaning if you eat, your sugar skyrockets, then crashes below normal, then you eat again and repeat this spiking and crashing a few times a day this might give you a normal looking HBA1c, (because the average of low and high is middle - makes sense?) but for sugars to be so unstable isnt normal and strains your body, and high sugars 'feeds' infection.

So yes CF diabetes is different and needs to be treated individually, whether you test 1 or 2 hours depends on your own case. My doc normally says 2 hours but my spike is def after 1 hour, and that is what I am trying to get under control because that 1 hour spike causes the sudden rebound drops in sugar with that shaky/puky feeling you are all describing. To find out your peak eat something without insulin, and test afterwards every 20 mins for say 2.5 hours.

Also if you are getting the lows, try a faster acting insulin because your insulin may be 'missing' your food because it is too slow. Or inject before your eat instead of afterwards. Non-Cf doctors often miss this whole concept because they are used to normal diabetics that have sugars that are just constantly high. I also go with less insulin rather than more...low is more dangerous than high (unless your sugars STAY HIGH all the time). Off course sometimes CFRD can cause the constant highs too, I think if your pancreas is more damaged = more constant highs.

If you are getting the mid morning crash, try eating jogurt (milk=slow release) or leftover meat and veggies for breakfast and see if it happens again - cereal for breakfast with or without insulin is the easiest way for out-of-control sugars! (It sucks, I love cereal)
 

LeneSouthAfrica

New member
Little OT but just want to comment about the HBA1c: I failed my Glucose tolerance test, but my HBA1c is perfectly normal. HBA1c tests you average sugars over a few months, and even if it is low/normal you can still have CFRD!!! That is because our pancreas often still produces some insulin, it is just less or delayed so eventually your body manages to get the sugars under control = stable AVERAGE sugars over a period. What that doesnt tell you is what happens short term; meaning if you eat, your sugar skyrockets, then crashes below normal, then you eat again and repeat this spiking and crashing a few times a day this might give you a normal looking HBA1c, (because the average of low and high is middle - makes sense?) but for sugars to be so unstable isnt normal and strains your body, and high sugars 'feeds' infection.
<br />
<br />So yes CF diabetes is different and needs to be treated individually, whether you test 1 or 2 hours depends on your own case. My doc normally says 2 hours but my spike is def after 1 hour, and that is what I am trying to get under control because that 1 hour spike causes the sudden rebound drops in sugar with that shaky/puky feeling you are all describing. To find out your peak eat something without insulin, and test afterwards every 20 mins for say 2.5 hours.
<br />
<br />Also if you are getting the lows, try a faster acting insulin because your insulin may be 'missing' your food because it is too slow. Or inject before your eat instead of afterwards. Non-Cf doctors often miss this whole concept because they are used to normal diabetics that have sugars that are just constantly high. I also go with less insulin rather than more...low is more dangerous than high (unless your sugars STAY HIGH all the time). Off course sometimes CFRD can cause the constant highs too, I think if your pancreas is more damaged = more constant highs.
<br />
<br />If you are getting the mid morning crash, try eating jogurt (milk=slow release) or leftover meat and veggies for breakfast and see if it happens again - cereal for breakfast with or without insulin is the easiest way for out-of-control sugars! (It sucks, I love cereal)
 
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