I saw the article too! Mike has been on the list in Boston for well over a year which is why he got listed in Cleveland too. I went to this man's website and it looks like he has been on the list for a long time too, and was trying to find a living lobe match because he had been waiting forever. now he is too sick for a living donor, I believe. As far as the article, the reporters aren's doctors and get things a little wrong sometimes. We had a reporter write an article about Mike not long ago and she got a bunch of things wrong. I don't think it matters though if in general it is raising awareness. He can't be on the top of the list in the country. You can only be on the top of the list in your region.
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Boston Herald Article
- Thread starter AmyO
- Start date
The fact that Mike & this gentleman have been waiting awhile seems interesting to me. Someone explain how things work to me please. Does someone in the immediate area have to die in order to get donated lungs or is it within a certain mile radius etc? IF SO does it seem that Boston has a low fatality rate with crime & car accidents or death in general? I am curious about how at least 2 people are still waiting and the fact that Shonanna says they dont do many tx compared to other hospital. WHY is that?
The fact that Mike & this gentleman have been waiting awhile seems interesting to me. Someone explain how things work to me please. Does someone in the immediate area have to die in order to get donated lungs or is it within a certain mile radius etc? IF SO does it seem that Boston has a low fatality rate with crime & car accidents or death in general? I am curious about how at least 2 people are still waiting and the fact that Shonanna says they dont do many tx compared to other hospital. WHY is that?
The fact that Mike & this gentleman have been waiting awhile seems interesting to me. Someone explain how things work to me please. Does someone in the immediate area have to die in order to get donated lungs or is it within a certain mile radius etc? IF SO does it seem that Boston has a low fatality rate with crime & car accidents or death in general? I am curious about how at least 2 people are still waiting and the fact that Shonanna says they dont do many tx compared to other hospital. WHY is that?
S
Shoshanna
Guest
The man in the article is from my CF Center. I spoke with my doc yesterday about it.
Katy is right...the reporters often get the facts wrong. Local papers wrote articles about me and screwed information up. They kept saying I was waiting for "the call" from the New England Donor Bank, but it's not the bank that calls, it's your tx center. But, yes, it's getting the point across about organ donation that matters and the publicity helps.
Two strangers offered me their lungs after reading my story and I did tell my CF doc this, wondering if I should ask these people to consider giving to this man instead. It's such an awkward and sensitive subject and after further talk, my doctor decided against it. However, he originally was willing to find out their blood type and speak with them so I think a living donor is still possible. I don't know??
My understanding is that certain regions have access to more lungs than others. New England is limited to VT, CT, MA, NH, RI and Maine. The mid-west and other regions have bigger states and more states that they can receive from. I could be wrong, but I do believe that's why the wait is longer for those of us in the New England region. When someone, like Mike, dual lists, the 2nd tx center is in another region, typically with more supply so his wait time should decrease.
p.s. this man at Mass General has a rare blood type so that is working against him, too.
p.p.s. I emailed the doc who is treating this man from the Herald article as I know the doc well and he is amazing. He's just the most caring doctor. I know he is doing everything possible for this patient.
"Dan and I saw the article in the Herald about the CF man you treat who is critically ill and needs a transplant. I know how hard it must be for you as you are such a loving and caring and dedicated doctor. We're all keeping out fingers crossed that a donor comes through soon. Hopefully the publicity will help."
--------------------------------------------------------------------------------
You are such a dear. What a heart you have. If your fingers matter with the great decision maker, my patient will do just fine.
Love to all of you.
Katy is right...the reporters often get the facts wrong. Local papers wrote articles about me and screwed information up. They kept saying I was waiting for "the call" from the New England Donor Bank, but it's not the bank that calls, it's your tx center. But, yes, it's getting the point across about organ donation that matters and the publicity helps.
Two strangers offered me their lungs after reading my story and I did tell my CF doc this, wondering if I should ask these people to consider giving to this man instead. It's such an awkward and sensitive subject and after further talk, my doctor decided against it. However, he originally was willing to find out their blood type and speak with them so I think a living donor is still possible. I don't know??
My understanding is that certain regions have access to more lungs than others. New England is limited to VT, CT, MA, NH, RI and Maine. The mid-west and other regions have bigger states and more states that they can receive from. I could be wrong, but I do believe that's why the wait is longer for those of us in the New England region. When someone, like Mike, dual lists, the 2nd tx center is in another region, typically with more supply so his wait time should decrease.
p.s. this man at Mass General has a rare blood type so that is working against him, too.
p.p.s. I emailed the doc who is treating this man from the Herald article as I know the doc well and he is amazing. He's just the most caring doctor. I know he is doing everything possible for this patient.
"Dan and I saw the article in the Herald about the CF man you treat who is critically ill and needs a transplant. I know how hard it must be for you as you are such a loving and caring and dedicated doctor. We're all keeping out fingers crossed that a donor comes through soon. Hopefully the publicity will help."
--------------------------------------------------------------------------------
You are such a dear. What a heart you have. If your fingers matter with the great decision maker, my patient will do just fine.
Love to all of you.
S
Shoshanna
Guest
The man in the article is from my CF Center. I spoke with my doc yesterday about it.
Katy is right...the reporters often get the facts wrong. Local papers wrote articles about me and screwed information up. They kept saying I was waiting for "the call" from the New England Donor Bank, but it's not the bank that calls, it's your tx center. But, yes, it's getting the point across about organ donation that matters and the publicity helps.
Two strangers offered me their lungs after reading my story and I did tell my CF doc this, wondering if I should ask these people to consider giving to this man instead. It's such an awkward and sensitive subject and after further talk, my doctor decided against it. However, he originally was willing to find out their blood type and speak with them so I think a living donor is still possible. I don't know??
My understanding is that certain regions have access to more lungs than others. New England is limited to VT, CT, MA, NH, RI and Maine. The mid-west and other regions have bigger states and more states that they can receive from. I could be wrong, but I do believe that's why the wait is longer for those of us in the New England region. When someone, like Mike, dual lists, the 2nd tx center is in another region, typically with more supply so his wait time should decrease.
p.s. this man at Mass General has a rare blood type so that is working against him, too.
p.p.s. I emailed the doc who is treating this man from the Herald article as I know the doc well and he is amazing. He's just the most caring doctor. I know he is doing everything possible for this patient.
"Dan and I saw the article in the Herald about the CF man you treat who is critically ill and needs a transplant. I know how hard it must be for you as you are such a loving and caring and dedicated doctor. We're all keeping out fingers crossed that a donor comes through soon. Hopefully the publicity will help."
--------------------------------------------------------------------------------
You are such a dear. What a heart you have. If your fingers matter with the great decision maker, my patient will do just fine.
Love to all of you.
Katy is right...the reporters often get the facts wrong. Local papers wrote articles about me and screwed information up. They kept saying I was waiting for "the call" from the New England Donor Bank, but it's not the bank that calls, it's your tx center. But, yes, it's getting the point across about organ donation that matters and the publicity helps.
Two strangers offered me their lungs after reading my story and I did tell my CF doc this, wondering if I should ask these people to consider giving to this man instead. It's such an awkward and sensitive subject and after further talk, my doctor decided against it. However, he originally was willing to find out their blood type and speak with them so I think a living donor is still possible. I don't know??
My understanding is that certain regions have access to more lungs than others. New England is limited to VT, CT, MA, NH, RI and Maine. The mid-west and other regions have bigger states and more states that they can receive from. I could be wrong, but I do believe that's why the wait is longer for those of us in the New England region. When someone, like Mike, dual lists, the 2nd tx center is in another region, typically with more supply so his wait time should decrease.
p.s. this man at Mass General has a rare blood type so that is working against him, too.
p.p.s. I emailed the doc who is treating this man from the Herald article as I know the doc well and he is amazing. He's just the most caring doctor. I know he is doing everything possible for this patient.
"Dan and I saw the article in the Herald about the CF man you treat who is critically ill and needs a transplant. I know how hard it must be for you as you are such a loving and caring and dedicated doctor. We're all keeping out fingers crossed that a donor comes through soon. Hopefully the publicity will help."
--------------------------------------------------------------------------------
You are such a dear. What a heart you have. If your fingers matter with the great decision maker, my patient will do just fine.
Love to all of you.
S
Shoshanna
Guest
The man in the article is from my CF Center. I spoke with my doc yesterday about it.
Katy is right...the reporters often get the facts wrong. Local papers wrote articles about me and screwed information up. They kept saying I was waiting for "the call" from the New England Donor Bank, but it's not the bank that calls, it's your tx center. But, yes, it's getting the point across about organ donation that matters and the publicity helps.
Two strangers offered me their lungs after reading my story and I did tell my CF doc this, wondering if I should ask these people to consider giving to this man instead. It's such an awkward and sensitive subject and after further talk, my doctor decided against it. However, he originally was willing to find out their blood type and speak with them so I think a living donor is still possible. I don't know??
My understanding is that certain regions have access to more lungs than others. New England is limited to VT, CT, MA, NH, RI and Maine. The mid-west and other regions have bigger states and more states that they can receive from. I could be wrong, but I do believe that's why the wait is longer for those of us in the New England region. When someone, like Mike, dual lists, the 2nd tx center is in another region, typically with more supply so his wait time should decrease.
p.s. this man at Mass General has a rare blood type so that is working against him, too.
p.p.s. I emailed the doc who is treating this man from the Herald article as I know the doc well and he is amazing. He's just the most caring doctor. I know he is doing everything possible for this patient.
"Dan and I saw the article in the Herald about the CF man you treat who is critically ill and needs a transplant. I know how hard it must be for you as you are such a loving and caring and dedicated doctor. We're all keeping out fingers crossed that a donor comes through soon. Hopefully the publicity will help."
--------------------------------------------------------------------------------
You are such a dear. What a heart you have. If your fingers matter with the great decision maker, my patient will do just fine.
Love to all of you.
Katy is right...the reporters often get the facts wrong. Local papers wrote articles about me and screwed information up. They kept saying I was waiting for "the call" from the New England Donor Bank, but it's not the bank that calls, it's your tx center. But, yes, it's getting the point across about organ donation that matters and the publicity helps.
Two strangers offered me their lungs after reading my story and I did tell my CF doc this, wondering if I should ask these people to consider giving to this man instead. It's such an awkward and sensitive subject and after further talk, my doctor decided against it. However, he originally was willing to find out their blood type and speak with them so I think a living donor is still possible. I don't know??
My understanding is that certain regions have access to more lungs than others. New England is limited to VT, CT, MA, NH, RI and Maine. The mid-west and other regions have bigger states and more states that they can receive from. I could be wrong, but I do believe that's why the wait is longer for those of us in the New England region. When someone, like Mike, dual lists, the 2nd tx center is in another region, typically with more supply so his wait time should decrease.
p.s. this man at Mass General has a rare blood type so that is working against him, too.
p.p.s. I emailed the doc who is treating this man from the Herald article as I know the doc well and he is amazing. He's just the most caring doctor. I know he is doing everything possible for this patient.
"Dan and I saw the article in the Herald about the CF man you treat who is critically ill and needs a transplant. I know how hard it must be for you as you are such a loving and caring and dedicated doctor. We're all keeping out fingers crossed that a donor comes through soon. Hopefully the publicity will help."
--------------------------------------------------------------------------------
You are such a dear. What a heart you have. If your fingers matter with the great decision maker, my patient will do just fine.
Love to all of you.
S
Shoshanna
Guest
Does anyone know how to create spaces btw paragraphs etc? My posts always end up like one big blob and they're hard to read. If someone could tell me how to fix this I'd appreciate it.
Thanks.
Thanks.
S
Shoshanna
Guest
Does anyone know how to create spaces btw paragraphs etc? My posts always end up like one big blob and they're hard to read. If someone could tell me how to fix this I'd appreciate it.
Thanks.
Thanks.
S
Shoshanna
Guest
Does anyone know how to create spaces btw paragraphs etc? My posts always end up like one big blob and they're hard to read. If someone could tell me how to fix this I'd appreciate it.
Thanks.
Thanks.
hello Shoshanna
To create a space hit the enter button and watch what happens. when you start typing you will have created a space. click two times and your space will increase.
@----->--------- hit enter
@------>--------another rose for you<img src="i/expressions/face-icon-small-smile.gif" border="0">
love
Risa
To create a space hit the enter button and watch what happens. when you start typing you will have created a space. click two times and your space will increase.
@----->--------- hit enter
@------>--------another rose for you<img src="i/expressions/face-icon-small-smile.gif" border="0">
love
Risa
hello Shoshanna
To create a space hit the enter button and watch what happens. when you start typing you will have created a space. click two times and your space will increase.
@----->--------- hit enter
@------>--------another rose for you<img src="i/expressions/face-icon-small-smile.gif" border="0">
love
Risa
To create a space hit the enter button and watch what happens. when you start typing you will have created a space. click two times and your space will increase.
@----->--------- hit enter
@------>--------another rose for you<img src="i/expressions/face-icon-small-smile.gif" border="0">
love
Risa
hello Shoshanna
To create a space hit the enter button and watch what happens. when you start typing you will have created a space. click two times and your space will increase.
@----->--------- hit enter
@------>--------another rose for you<img src="i/expressions/face-icon-small-smile.gif" border="0">
love
Risa
To create a space hit the enter button and watch what happens. when you start typing you will have created a space. click two times and your space will increase.
@----->--------- hit enter
@------>--------another rose for you<img src="i/expressions/face-icon-small-smile.gif" border="0">
love
Risa
S
Shoshanna
Guest
I'll try now
let's see if it worked
let's see if it worked
S
Shoshanna
Guest
I'll try now
let's see if it worked
let's see if it worked
S
Shoshanna
Guest
I'll try now
let's see if it worked
let's see if it worked
S
Shoshanna
Guest
Nope. I'm doing something wrong. I click the enter button all the time when I write and my posts look like normal paragraphs, but once I submit them they look like one big blob.
Do I need to change something in my settings?
Do I need to change something in my settings?
S
Shoshanna
Guest
Nope. I'm doing something wrong. I click the enter button all the time when I write and my posts look like normal paragraphs, but once I submit them they look like one big blob.
Do I need to change something in my settings?
Do I need to change something in my settings?
S
Shoshanna
Guest
Nope. I'm doing something wrong. I click the enter button all the time when I write and my posts look like normal paragraphs, but once I submit them they look like one big blob.
Do I need to change something in my settings?
Do I need to change something in my settings?